Bobert, believe me, I understand. I have numerous horror stories myself.

Off the top of my head, three thoughts:

1. Your legislators are on your side. Make a contact, and see what's available. Each state is different. Here, we've gone through numerous programs, all well intended, but often poorly managed.

2. Many drug companies and various advocacy groups have programs to help. The Berlex company paid for my Betaseron for a year when I couldn't get any insurance company to take me. The MS society has lots of info and people to help me. There is an organization for nearly any disease. If you can't find one, there is the orphan disease group. These folks know the ropes.

3. Talk to the auxiliary people in your doctor's office. They will tell you things (sometimes whispered off the record) that your doctor cannot talk about.

Follow up on Donuel's info. Then also consider a lawyer or the "Action Reporter." Make noise - and good luck. I promise it will come out OK, eventually, but it sure is hell going through the process.

And special hugs to the P-Vine.