Hi anyone. I am about to tart dialysis. I have polycystic kidney disease, my stomach has reached the proportions of a doubly pregnant elephant, My Gfr is about 6% =, creatinine in the high 700's and life is becoming increasingly difficult, unable to breathe at night, can only go to sleep sitting up and so fatigued that I can fall asleep several times a day when I am doing nothing else. This isn't a sympathy cry, if anyone need sympathy it's Mrs Viking who has seen me collapse several times with internal cyst bleeding and watched me deteriorate whilst being steadfastly loving and supportive.

Does anyone here have advice, knowledge, information that may be of some use? Is there a glimmer of hope that improvement will be the outcome?

I know that fairly soon after starting I am likely to have one or both kidneys removed. Transplant...... well, that's another matter and probably (if) a long way down the line.

Speak words of wisdom to me as there is always someone here that knows an answer or tw.

Thankyou.