Although the poem below comes from another health domain I think it may have some relevance to the current discussion. Take from it what you will. It certainly floored me when I first found it and reflected on it. Happy to share it with you.

"The problem, unstated till now, is how
To live in a damaged body
In a world where pain is meant to be gagged
Uncured, un-grieved over. The problem is
To connect, without hysteria, the pain
Of anyone's body with the pain of the world".

Cheers,

Andrez

Source: Morris, J (2001). Impairment and disability: constructing an ethics of care which promotes human rights, Hypatia, Vol. 16, No 4.