Thanks for your very thoughtful posts, folks. I still have all kinds of conficted feelings about this. It also leads me to think why can we not have the right to end our lives ala Kevorkian if someone else can make this kind (life-altering) decision for a child as these folks and their physicians have done? Also, I would be concerned that people decide to do this when other "Ashley-Pillow children" are even younger. I do agree with some of the positive reasons noted above though. It's a tough one and I am relieved it is not something I have ever had to face.