The Mudcat Café TM
Thread #162443   Message #3866190
Posted By: Senoufou
15-Jul-17 - 03:15 AM
Thread Name: BS: The Very Sad Case Of Charlie Gard
Subject: RE: BS: The Very Sad Case Of Charlie Gard
That's it I believe Mrrzy. The specialists say only 16 people throughout the world have been born with Mitochondrial DNA Depletion, and all died in early infancy.

The treatment is purportedly an oral administration of something which 'replaces the mitochondria' and 'improves somewhat' the condition. But the USA chap has never treated an infant who has deteriorated so much.
As there has been untold brain damage, the consultants at GOSH feel that any 'improvement' would be minimal or non-existent.

And to experiment on the child is unethical. If the procedure were to do some good, as there are only 16 known cases, it wouldn't be used very often.
The point which concerns me the most (and I admit I am absolutely ignorant) is the statement by the GOSH consultants that the baby could be in pain. Paralysed, blind, deaf and unable to breathe unaided, having many seizures every day, he could be suffering untold pain and it would be impossible to tell.

I'm hoping the three-ring circus of media attention, demonstrators, online bile and so on will die down. People get bored eventually and seek another 'sensation' to get heated about.