Stilly keeps mentioning all the stuff I do but does not realize the 10 to 12 hours a day that I am in bed on most days, or sitting in my comfie chair with computer on lap or, better days, a book. I do manage to cook something some days or just put a frozen something in toaster oven. Yesterday it was a big tray of cabbage rolls from M&M in oven as it was cooler weather, so R could have something different - he did not come home last night!
The trip to Toronto was worth every bit of the trouble: biggest being that I did not realize my next med appointment was contingent on having started the new meds at the "right time"! I just spent an hour trying to get through to someone at the cancer clinic. But - have faith! word did get through and a wonderfully cheerful nurse did phone me and will phone back with required info! I did not start the meds as soon as they arrived - unaware of the contingency- because I did not want any new side effects to get in the way of the trip. I told the nurse it was mental health med!
Getting to meet Jay Linden, a cancer survivor, and creator of wonderful songs. I met him on MySpace 15 years ago when I loved "Looking for Something Better to Believe". And to see he and Colin (his brother, who I have known about 40 years, but not seen in many) interact on stage was worth the two days getting there and the 6 hour drive through the horrendous RAIN storm getting back. And a night in a Comfort Inn which was quite comfy. I was only out of bed 8 hours Friday! On the way, we had a night at Beaver - I spent the night and the next morning in bed. Then drove to Toronto for 7 pm - horrendous traffic for 3 hours! And yet, it was something I really needed to do and I would have been seriously bereft, even depressed, had I not succeeded.
Now, I must pay heed to the schedule! This med could cause remission. As for being at death's door: I certainly felt that was the case when this first hit me. I also just wanted it to be over without any suffering. But my cheering squad helps a lot.
AND I am hoping to have good hearing aides in a couple weeks!
And I have no ice thingy on my frig and no javex/chlorine anywhere - highly sensitive to it- and the furnace is working and the portable a/c is working and the weather is cooler for a bit, the basement had water but the books are OK, I can weed for ten minutes....
AND the oncology nurse phoned and we cleared up when to take the pill and she asked me all sorts of questions and gave me her phone number and extension so I can phone if the new med gives me any trouble ... and the next appointment is 9 September for blood work and chat with the Dr.