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Jane's Rainbow: for all needing support & comfort

Sandra in Sydney 28 Aug 13 - 08:46 PM
frogprince 28 Aug 13 - 06:33 PM
olddude 28 Aug 13 - 04:48 PM
Nigel Paterson 28 Aug 13 - 05:18 AM
ChanteyLass 27 Aug 13 - 09:11 PM
billybob 26 Aug 13 - 06:32 AM
Nigel Paterson 26 Aug 13 - 05:48 AM
ChanteyLass 25 Aug 13 - 09:13 PM
frogprince 25 Aug 13 - 04:09 PM
gnu 25 Aug 13 - 01:56 PM
catspaw49 25 Aug 13 - 01:40 PM
billybob 24 Aug 13 - 06:17 AM
ChanteyLass 23 Aug 13 - 08:47 PM
GUEST,pete from seven stars link 23 Aug 13 - 12:19 PM
Sandra in Sydney 23 Aug 13 - 10:05 AM
gnu 23 Aug 13 - 08:13 AM
Nigel Paterson 23 Aug 13 - 06:29 AM
gnu 22 Aug 13 - 07:49 PM
VirginiaTam 22 Aug 13 - 02:33 PM
gnu 21 Aug 13 - 07:58 PM
GUEST,pete from seven stars link 21 Aug 13 - 04:44 PM
billybob 21 Aug 13 - 04:30 PM
maeve 21 Aug 13 - 08:18 AM
Nigel Paterson 21 Aug 13 - 03:14 AM
maeve 20 Aug 13 - 09:12 PM
GUEST,olddude 20 Aug 13 - 12:18 PM
Pete Jennings 20 Aug 13 - 11:25 AM
Sandra in Sydney 20 Aug 13 - 09:43 AM
Janie 19 Aug 13 - 11:18 PM
ChanteyLass 19 Aug 13 - 08:12 PM
gnu 19 Aug 13 - 02:00 PM
Sandra in Sydney 19 Aug 13 - 12:26 PM
Ebbie 19 Aug 13 - 11:57 AM
maeve 19 Aug 13 - 07:22 AM
gnu 19 Aug 13 - 07:08 AM
ChanteyLass 18 Aug 13 - 08:18 PM
frogprince 18 Aug 13 - 04:30 PM
catspaw49 18 Aug 13 - 10:07 AM
gnu 18 Aug 13 - 05:30 AM
Janie 18 Aug 13 - 12:56 AM
KT 18 Aug 13 - 12:09 AM
maeve 17 Aug 13 - 08:55 PM
Sandra in Sydney 17 Aug 13 - 01:43 AM
gnu 16 Aug 13 - 10:46 AM
frogprince 16 Aug 13 - 10:46 AM
LilyFestre 16 Aug 13 - 10:41 AM
kendall 16 Aug 13 - 06:48 AM
billybob 16 Aug 13 - 05:59 AM
gnu 16 Aug 13 - 05:32 AM
catspaw49 15 Aug 13 - 11:08 PM
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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 28 Aug 13 - 08:46 PM

sending love & good wishes


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 28 Aug 13 - 06:33 PM

Dan, it's not real easy to know what to say about that. Sometimes with a dementia patient, each time you tell them that a loved one has died, they will suffer serious grief...and then, before long, want to talk to that person again anyhow. One would have to know your aunts personal condition right at this point, to judge what would be best for her, and even then it might be hard to say.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: olddude
Date: 28 Aug 13 - 04:48 PM

My mum passed away in May. My aunt Gracie had to move to a nursing home as she has dementia. Thing is, she will go for more than a week perfect normal but then fades out. No one told her mom passed away. Her brothers ordered us not to in no uncertain terms. Mom and Gracie were joined at the hip. They were sisters that never were apart for more than a few days. She is now calling us wanting to talk to mom.
I can't even visit her as I cannot lie to her ... My God what a mess. I think it is not right but her brothers are the ones that have the power of attorney and health proxies. If I tell her ... family chaos

I am lost .. I hate this .. I lost two mom's


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 28 Aug 13 - 05:18 AM

ChanteyLass, your cheery greeting has brightened up my Wednesday morning no end! Also helped by the fact that the sun continues to shine, here in London. So are we in good spirits? I think 'yes' is the answer, a little muted perhaps, but 'yes', nonetheless.
          Ann & I are planning to visit our other daughter & her Family in Charlotte NC around Thanksgiving time. We tried to organise this last year, but circumstances made the trip impossible. Hopefully, this year it will go ahead. Do any American Crew Members live within striking distance of Charlotte & if so, would some sort of a get together be possible/desirable? I don't have firm dates yet, but will post as soon as I do.
                               Much Love, Hugs & Kisses,
                                                                      Nigel & Ann.
                                                                      xxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 27 Aug 13 - 09:11 PM

Hello, fellow crew members. I hope you are all in good spirits in spite of the challenges some continue to face. Fair weather or foul, let's keep this ship afloat.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 26 Aug 13 - 06:32 AM

Day by the sea is certainly still my intent Nigel, the next 3 weekends are busy, mother will be 90 on the 31st so a small family teaparty is being planned. Then the following weekend we are taking her to a very special church service at Little Rissington where they are dedicating a bench to remember my father. It will be an RAF service and dad attended it every September for 50 years to remember his friends from WW2.
The following week we are off to Salisbury to celebrate my cousin 's 70th Birthday, hoping to take mother to that to, but am not sure if two long car journeys will be too much?

This weekend has been lovely with four generations gathering together, seeing the "littles" swimming in the sea and having bacon butties in the beach hut was a joy and bought back memories of doing the same thing when I was young. The great thing about Frinton is seeing the same families every summer over the decades, the young of the sixties now being the grandparents and the sandcastle rituals carrying on just as before! Who can build the biggest and trying to defeat the rising tide!

So maybe late September Nigel, I will pm you nearer the time, we are both looking forward to meeting you and Ann in person.

Up spaw, sending love xxx

much love to all the crew

Wendy xxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 26 Aug 13 - 05:48 AM

In my thoughts today especially are: Spaw, Virginia T, Roger & Kat's Family, Wendy (Do we still have time for a sojourn by the sea?), Maeve & all on board for whom life is in any way difficult or troublesome.
         My meds. changeover seems to be going reasonably smoothly...tapering off the steroids & replacing them with Methotrexate. Upside, almost no appreciable side effects. Downside, seemingly endless blood tests for several more months until the changeover is complete. I've been wondering whether the opposite of Spaw's port exists, you know, like a tap/faucet. I could draw off the blood myself & just drop it off at the clinic! (Needlephobics of the world unite!)
       Readjusting to the pace of life in London after an extended stay on a small, very beautiful Greek island is proving to be more difficult than it used to. We're just about on top of the basics: food shopping, cooking, laundry & the washing up.......eventually! Life DOES go on, albeit forever changed, but live with it we will, given time & your Love & Support.
                     Love, Hugs & Kisses to All,
                                                             Nigel & Ann.
                                                             xxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 25 Aug 13 - 09:13 PM

What frogprince said!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 25 Aug 13 - 04:09 PM

Good to hear "ups" from so many of the crew; may the "ups" continue, except for Virginia Tam's foot; "down" may it go.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 25 Aug 13 - 01:56 PM

I hope the UPward trend continues, my friend. Thanks for the UPdate, Spaw. Bless you and yours.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 25 Aug 13 - 01:40 PM

I have been following but not posting as this was another chemo week.....more later.....FIRST.....I too want to welcome back Nigel and Ann and was glad to know that perhaps their sojourn has provided some solace and peace. Nothing can ever be perfect again but we move along through life with the certain knowledge of the value of friendship and the strength we can gain through the love and compassion of those friends.

Nigel, that is a tremendous piece of work. Your craftsmanship as wordsmith wraps me in awe and sincerity pierces your work in a way which brings an oddly joyous pain. Thank you.

As for me...........This has been my best chemo week ever. I am stronger now than we started and that, combined with the port, has made this week far better than any before it. Karen Wayne, and Connie, all noticed the difference as well. I'm hoping this is a trend! My numbers are all looking better and I think I will not see the drop-off as much as before and the Aronesp will get a bigger boost. If so, we may be able to back off the Aronesp and later, slow down the chemo. No guarantees though. Of course also no transfusions since early April(I was averaging a pint every 3 days then).

I did encounter a problem on two occasions this week when I had friends asked, "How long will you need the chemo?"   I couldn't find an easy way to tell them except the truth. So when I said, "The rest of my life," there was silence and both asked what I meant. I told them exactly what it meant and tailed it with, "You play what you're dealt but be assured I'm playing this hand out as far as it goes." As this will come up occasionally I keep trying to think of something better. The thing is it could be 3 days, 3 months, 3 years, or possibly longer, which brings it back to my original idea which is, it ain't time to worry yet.

Right now things are doing better and my biggest worry is getting Mike's college paid for which may not happen but we're doing our damndest to make it work. My love to all of you and I hope your news is good too. I proudly sail upon this voyage of life with that certain knowledge of the value of friendship and the strength we can gain through the love and compassion of those friends.......all of you!



Spaw


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 24 Aug 13 - 06:17 AM

Beautiful, Nigel

Wendy xxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 23 Aug 13 - 08:47 PM

Great work, Nigel.

Hmm, around the 19th I tried to post something which never appeared here. (The same thing happened with a post I tried to put on another thread that same night.) The one on this thread was something like this.

I'm lighting a candle for Maeve's cake and several others for those who are dealing with health problems (their own or a loved one's) or the loss of a loved one.

I hope the seas are calm while these candles burn. I don't want to set the Rainbow ablaze.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 23 Aug 13 - 12:19 PM

I was not mistaken, nigel, when I predicted you would post something of meaning and interest. well composed also.       blessings   pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 23 Aug 13 - 10:05 AM

thanks, Nigel it brought tears to my eyes

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 23 Aug 13 - 08:13 AM

Lovely.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 23 Aug 13 - 06:29 AM

I have to begin with apologies...several PMs & emails as yet unanswered....they will be!
Where to begin...it has to be with Kat. Some months ago, in one of her many, loving, comforting posts, she made reference to Avalon. A little reading around the Arthurian Legends revealed just how perfect that reference was for Ann & I & as so often happens when my emotions are threatening to overwhelm me, I turned to poetry. What follows was begun when Jane was still alive, but not completed until after her death. I would like to dedicate it to Jane, Kat & her belovéd husband.
                  
                                 'Shall we Meet in Avalon?'

And shall we meet in Avalon, or does our journey voyage on
To places never, ever seen where only those who've passed have been?
At journey's end, what will we find, comfort for the tortured mind?
Respite for the restless soul, with passing time, will we be whole?
Shall we be whole to laugh again, despite the anguish, tears & pain?
Shall we be whole to smile & say: "It's time, tomorrow is another day?"
Another day, a different course, (Death's trade winds blew with awful force.)
Our future waits, as yet unknown, but we are two, we're not alone.
The Love we share that binds us tight, enhanced by Friend's illumined light.
Wisdom, Care, Compassion, Healing as breakers struck & left us reeling.
Calmer waters now surround, recedes the risk to run aground.
This voyage complete, we sail again, more mindful now of other's pain.
More mindful now of what we've lost and how to bear & count the cost.
                                                                                             
                                                                           (March-August 2013)


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 22 Aug 13 - 07:49 PM

VTam... sorry ta hear you are of the giant right foot. I hope it gets sorted.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: VirginiaTam
Date: 22 Aug 13 - 02:33 PM

Hi peeps. I am still lurking.

Welcome back Nige and Ann. Sorry it is to sad news.

Here's hoping for smooth sailing for all on board Jane's Rainbow.

Signed Tam of the giant right foot.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 21 Aug 13 - 07:58 PM

Just learned of kat? Gosh! Didn't realize you had been away that long. I guess it just seems to me that you are here in spirit every day. I know I think of "you" every time I check this thread.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 21 Aug 13 - 04:44 PM

thirded!.
i'm sure you will have something interesting and meaningful to post.
blessings   pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 21 Aug 13 - 04:30 PM

Welcome back Nigel and Ann

We have missed you but hope your visit to Greece was wonderful and restful and healing
much love

Wendy and Billy xxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 21 Aug 13 - 08:18 AM

Welcome home, Nigel and Ann. Your presence is warmly welcomed.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 21 Aug 13 - 03:14 AM

Ann & I have returned from a long stay with Family & Friends in Greece. Will write again soon. Got to get some sleep first...long journey....remote island....etc, etc.. Absolutely devastated to read of Kat's death. Will have much more to say after a good night's/day's, sleep.
            Very glad to be back on board,
                                                          Love, Hugs & Kisses to All,
                                                                                                   Nigel & Ann.
                                                                                                   xxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 20 Aug 13 - 09:12 PM

Pete and Dan- Thanks for checking in. And Dan- we too, you.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,olddude
Date: 20 Aug 13 - 12:18 PM

just wanted to say how much I love you people


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 20 Aug 13 - 11:25 AM

Just checking in...


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 20 Aug 13 - 09:43 AM

wiki has it correct, ChanteyLass - the Green bans saved a lot of Sydney & the world when the ideas spread.

Jack Mundey head of the BLF was a friend of John's

Across the Western Suburbs- by Denis Kevans & Seamus Gill, © 1973

Happy (recent) birthday maeve

good wishes to Max & everyone who might be needing support & comfort

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 19 Aug 13 - 11:18 PM

maeve is trying to stay younger and skipped a birthday. I'm not sure when it was but I ain't lettin' her get away with it. All you caregivers in real time that are rowing along with the flotilla need to be celebrated and fed high calorie birthday cake made with real butter in the icing to keep your strength up - it takes so much energy to be a caregiver...

Hope Max is OK or moving in the direction of OK.

Join me now in this or another song...Well, I got oil in my vessel and my lamp's trimmed and burnin"....


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 19 Aug 13 - 08:12 PM

Sandra, in the song Take Your Bulldozers Away, does D. M. R. stand for Department of Main Roads? Does that song have to do with this "Green ban" entry in Wikipedia? "Another example of a Green Ban in Sydney was the proposed North-Western Expressway that was planned by the Department of Main Roads in the early 1970s. The expressway would have cut through the working class residential areas of Ultimo, Glebe, Annandale, Rozelle and Leichhardt. In July 1972, the Save Lyndhurst Committee requested a Green Ban from the Builders Labourers' Federation to prevent the destruction of historic Lyndhurst (built 1833-1835) in Darghan Street, Glebe. Many battles with police took place, including a confrontation between police and squatters on 18 August 1972. The Federal Labor Whitlam Government purchased the Glebe estate in 1973 from the Anglican Diocese of Glebe to preserve the area. In 1978, the Wran-Labor Government decided to abandon much of the inner-urban expressway link and the 19th century character of Glebe remains intact."

Gnu you wrote "I wish all of you could have been here." I wish I could have been there, too. (Pout, pout.) Next time, invite us! I'm guessing you live only about 9 hours and one border crossing away! I might have even been able to give Maeve a ride!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 19 Aug 13 - 02:00 PM

SiS... lovely!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 19 Aug 13 - 12:26 PM

thanks, Maeve, Janie, ChantyLass & gnu

John Dengate & family According to John's wife Dale, Kit was touched that I'd invited her to the memorial concert at my folk club - we can't have a memorial without the woman who brought him into the world, & besides the rest of his family will be there!

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Ebbie
Date: 19 Aug 13 - 11:57 AM

Wonderful, Gary! I know you made good music.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 19 Aug 13 - 07:22 AM

That's lovely, gnu. Wish I could have been there.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 19 Aug 13 - 07:08 AM

My only comfort at this moment is knowing I'll be okay in several hours, I hope... just had goodbye hugs with Amos and his cousin Gabe. What a night of stories, laughs and music! I even partook of ale and those who play must pay... wish I could pay with Visa right now.

I wish all of you could have been here.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 18 Aug 13 - 08:18 PM

Sandra, that song is lovely. I am sorry about your friend and also sorry about his mother having to cope with his death.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 18 Aug 13 - 04:30 PM

Sumbuddy get on the speaker tube, to spaw down there in the engine room, and see if he sounds coherent to you... : )


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 18 Aug 13 - 10:07 AM

Can I echo a gnu echo? And I mean can, not may. I know I may do it, but can I do it? And would I want to if I could? I want to for sure but I fear what this might do to me..........Screwit.....I'll give it a shot and hope for the best.

Echoing gnu.

Hmmmmm..........seem to still be okay............


Spaw


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 18 Aug 13 - 05:30 AM

Echoing all the posts...


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 18 Aug 13 - 12:56 AM

Lovely Sandra, and my deep condolences. Especially thank you for sharing him and his music.

The only way to avoid loss is to not live and not to love, eh?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: KT
Date: 18 Aug 13 - 12:09 AM

Just checkin' in....feeling the need to be touched by the strength and love and goodness of this fine crew. Blessings and kind regards to all....
KT


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 17 Aug 13 - 08:55 PM

Sandra, I love Gordon Bok's tender treatment of "Bare legged Kate". I'm thinking of your frined's mother, Kate.

Also thinking of our crew member, 999. I miss his contributions and am sending my high regard and encouragement.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 17 Aug 13 - 01:43 AM

see the memorium thread for my friend John Dengate who died 17 days ago, several days after attending the 99th birthday of his mother, Kit, subject of one of his best songs Bare Legged Kate

Kit's husband died in the 80s & she lost her other son a few years ago.

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 16 Aug 13 - 10:46 AM

Yup. <3


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 16 Aug 13 - 10:46 AM

Re what Kendall said: My wife's father is alive and doing quite well at 95. But two of her siblings are gone, one twenty years ago and one over ten years ago. As a bunch of you know, we very, very nearly lost my wife about 14 months ago now. I was torn apart, not only with the thought of losing her, but with the prospect of having to tell her father that the third of his four children was gone. I'm very thankful that it didn't come to that.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: LilyFestre
Date: 16 Aug 13 - 10:41 AM

Just sitting here thinking how lucky we all are to have met one another here, feeling thankful for all of you and sending out love and hugs to all who need them.

<3

Michelle


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: kendall
Date: 16 Aug 13 - 06:48 AM

I can't imagine anything worse than out living our children. Love on all of you.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 16 Aug 13 - 05:59 AM

Just sitting on deck, feeling peaceful and sending a huge hug and love,

Wendy xxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 16 Aug 13 - 05:32 AM

Glad to hear it, Spaw!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 15 Aug 13 - 11:08 PM

We're all in need of some reflection and soft sounds.....Life has so much harshness and at times becomes so slicing and piercing that we have to slow down, breathe deeply, remember how to love and how to care and how we enjoy great friendships.   

I smile when I think of you all and this thread.........I hope you do the same.

And I'm doing fine!


Spaw


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