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Jane's Rainbow: for all needing support & comfort

Janie 22 Mar 13 - 06:55 PM
billybob 22 Mar 13 - 06:48 PM
fat B****rd 22 Mar 13 - 04:41 PM
KT 22 Mar 13 - 12:58 PM
frogprince 22 Mar 13 - 12:52 PM
katlaughing 22 Mar 13 - 10:24 AM
Maryrrf 22 Mar 13 - 10:15 AM
Sandra in Sydney 22 Mar 13 - 08:56 AM
GUEST,999 22 Mar 13 - 07:54 AM
jacqui.c 22 Mar 13 - 07:54 AM
GUEST,pete from seven stars link 22 Mar 13 - 07:49 AM
AllisonA(Animaterra) 22 Mar 13 - 07:40 AM
billybob 22 Mar 13 - 04:37 AM
Nigel Paterson 22 Mar 13 - 04:00 AM
ChanteyLass 21 Mar 13 - 11:51 PM
GUEST,Frug 21 Mar 13 - 07:55 PM
Janie 21 Mar 13 - 07:39 PM
gnu 21 Mar 13 - 07:01 PM
GUEST,pete from seven stars link 21 Mar 13 - 01:48 PM
Pete Jennings 21 Mar 13 - 12:12 PM
katlaughing 21 Mar 13 - 11:24 AM
catspaw49 21 Mar 13 - 11:04 AM
gnu 20 Mar 13 - 11:12 PM
frogprince 20 Mar 13 - 11:05 PM
gnu 20 Mar 13 - 08:17 PM
Janie 20 Mar 13 - 07:57 PM
Wolfhound person 20 Mar 13 - 05:33 PM
KT 20 Mar 13 - 05:16 PM
GUEST,pete from seven stars link 20 Mar 13 - 12:30 PM
AllisonA(Animaterra) 20 Mar 13 - 12:02 PM
Sandra in Sydney 20 Mar 13 - 08:34 AM
Pete Jennings 20 Mar 13 - 06:33 AM
maeve 20 Mar 13 - 05:21 AM
billybob 20 Mar 13 - 04:52 AM
Nigel Paterson 20 Mar 13 - 04:28 AM
Janie 19 Mar 13 - 10:43 PM
ChanteyLass 19 Mar 13 - 09:35 PM
katlaughing 19 Mar 13 - 08:32 PM
gnu 19 Mar 13 - 06:34 PM
billybob 19 Mar 13 - 06:17 PM
catspaw49 19 Mar 13 - 03:53 PM
GUEST,pete from seven stars link 19 Mar 13 - 03:13 PM
Sandra in Sydney 19 Mar 13 - 10:08 AM
Nigel Paterson 19 Mar 13 - 08:39 AM
AllisonA(Animaterra) 19 Mar 13 - 08:38 AM
jacqui.c 19 Mar 13 - 12:38 AM
katlaughing 18 Mar 13 - 08:36 PM
Janie 18 Mar 13 - 08:32 PM
GUEST,pete from seven stars link 18 Mar 13 - 06:13 PM
GUEST,David Nuttall , Wakefield . 18 Mar 13 - 01:53 PM
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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 22 Mar 13 - 06:55 PM

here in the chorus and at the oars with the rest of this crew, rowing as softly and tenderly as I know to do.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 22 Mar 13 - 06:48 PM

Still here

Wendy xxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: fat B****rd
Date: 22 Mar 13 - 04:41 PM

Thinking of you all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: KT
Date: 22 Mar 13 - 12:58 PM

Here... in quiet companionship....


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 22 Mar 13 - 12:52 PM

Here with you all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 22 Mar 13 - 10:24 AM

what jacqui said.

love you all, esp.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Maryrrf
Date: 22 Mar 13 - 10:15 AM

Our prayers are with you and your family, Nigel.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 22 Mar 13 - 08:56 AM

love to all


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 22 Mar 13 - 07:54 AM

Not a day goes by . . .

Ditto what Pete said.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: jacqui.c
Date: 22 Mar 13 - 07:54 AM

I open this thread in a new tab each morning and it stays open until I close my machine down at night.

Nigel and Ann - here keeping vigil. Nothing more to say that seems relevant or necessary.

Spaw - good thoughts always there for the treatment to work.

I would just like to add how much I admire you all for the grace that you show in such dark times.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 22 Mar 13 - 07:49 AM

thanks for sparing the time and energy to post nigel.
we continue to remember you in our thoughts and prayers.    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 22 Mar 13 - 07:40 AM

Oh, Nigel, what a weary, blessed time. Still holding you close.

And you, Spaw, the Intrepid, are also daily in my thoughts. Up you go!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 22 Mar 13 - 04:37 AM

Still here with you Nigel

All ways
Always

love and prayers

Wendy xxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 22 Mar 13 - 04:00 AM

Jane is still with us. The Family have been keeping vigil at her bedside.

       "Not long now, the doctors said,
       Our Darling Jane chose Life instead"

       Her tenacious grasp on Life is, at one & the same time, awe inspiring & heartbreaking.

       No time to write more....back to the hospital,
                                              With our Love to You All,
                                                            Nigel & Ann.
                                                            xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 21 Mar 13 - 11:51 PM

Spaw, is it possible for you to learn to inject yourself with Vidaza?

Nigel, I sometimes post "Just breathe" on threads like this, but I am finding myself holding my breath and have to remind myself to breathe. I hope you are breathing, too.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,Frug
Date: 21 Mar 13 - 07:55 PM

I got my mojo workin Spaw!

Frank


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 21 Mar 13 - 07:39 PM

Thanks for the update, UPSpaw. Been thinking about you a bunch and telling myself there is no use worrying. Hope you rest well and sleep dreamlessly while staying with Connie. Just glad you don't have to try to make that drive back and forth everyday or fork over the dough for a week at a motel and bad food. Maybe take a Jacqui shawl with you to wrap up in as a reminder, when the going is particularly rough, of how many are holding you close to our hearts for what comfort that brings?

Hoping for good results. Any idea of how long it will take to know how effective the Vidaza may be in staving off the progression? Love to Karen and the boys also.

Nigel, Ann, Jane and family, as with so many of the rest of the crew - Love, mostly wordless. May our collective love, care and concern feel palpable to you and perhaps contribute to defining a sacred space around you during this time.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 21 Mar 13 - 07:01 PM

Spaw...

All ways
Always

g


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 21 Mar 13 - 01:48 PM

have been in wordless prayer to the backdrop of "all hands on deck"on " the voyage of the rainbow".beatiful pieces.

hope things begin to look UP SPAW.    Peace and comfort to all    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Pete Jennings
Date: 21 Mar 13 - 12:12 PM

Up Spaw!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 21 Mar 13 - 11:24 AM

UPSPAW / Peaches

much love to and yours and to Nigel, Ann, Jane and hers.

kat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 21 Mar 13 - 11:04 AM

Just a brief up date as several have asked via PM and e-mail.......The Aronesp shots are not working all that well and after 2 pints 2 weeks ago I may need 2 more by next week. So next week I am also scheduled to start on the Vidaza. Its is also used for chemo but also works on the Myeloplastic Dysplasia, a pre-Leukemia condition. I'm hoping for good result although it may take awhile to do the job.

As my hemoglobin count drops below 8.0 I really begin to feel it as it makes the blood less able to carry the oxygen to the the lungs. There are a couple of strange side effects that kick in as well when the hemo drops. I look forward to whatever good the Vidaza brings in raising the hemo level and reducing the need for transfusions. The need to be in Columbus for a week for the Vidaza shots daily I do not look forward to but we'll see what we can do to change that at a later date.

Next week I may be posting less or more....hard to tell...LOL....depends on how I sleep at Connie's house and how tired I am if I don't ! LOL.......Altogether though, it could be a whole lot worse so hold me a good thought and I will do the same for all of you.

Nigel and Ann......You are of course first and foremost in my mind and in the hearts and minds of most of this group. I don't make that up nor do they just say that here. You know those PM's and e-mails I mentioned? ALL, repeat ALL of those folks said it too, ie., "the first thread I open" which is a common comment of many. Much Love.........



Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 20 Mar 13 - 11:12 PM

froggy... I remember that trying time. That was not good. I am so happy for you to this day.

All ways
Always

g


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 20 Mar 13 - 11:05 PM

"Hold her hand, if it's your place."

When there was no way to know if my wife would live, that was all I knew to do for her...and all I knew to do for myself.

All ways
Always

          Dean


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 20 Mar 13 - 08:17 PM

Hold her hand, if it's your place. No explanation required.

My thoughts and prayers to you and yours, Nigel.

I'm here too
All ways
Always


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 20 Mar 13 - 07:57 PM

May the long time sun shine upon you.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Wolfhound person
Date: 20 Mar 13 - 05:33 PM

the road goes ever on

Some peaceful hills nearby.
If it presses your buttons:
"I lift up my eyes to the hills from where shall come my help"

Following the thread alongside, with everyone else.


Paws


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: KT
Date: 20 Mar 13 - 05:16 PM

May the abundant love in this thread be with all of you Nigel. Wishing you comfort, and peace.
KT


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 20 Mar 13 - 12:30 PM

its a shock,and a screwed up stomach,even when you,re expecting it.we all feeling for you nigel.

maeve - beautiful images.
pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 20 Mar 13 - 12:02 PM

Hovering round....


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 20 Mar 13 - 08:34 AM

waiting with you


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Pete Jennings
Date: 20 Mar 13 - 06:33 AM

Just back after a short break.

Had you in my thoughts and now I'm here.

Pete


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 20 Mar 13 - 05:21 AM

Good morning, Nigel and Ann. A bouquet of images borrowed for your comfort:

Here in Maine this first day of Spring is covered by several inches of snow. Even so, it is Spring
Many of your friends here may seem as far away as Spring seems to us,
yet we are sending love,
patience, and joy for the time you've had with your Jane.

Thinking too of Jane- may she experience peaceful release when she is ready,
and much joy in the morning. .

Maeve
.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 20 Mar 13 - 04:52 AM

Holding you all in my heart, Nigel xxxxxx
Wendy


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 20 Mar 13 - 04:28 AM

The hospital said yesterday: "Not long now".
                                                                   With Love,
                                                                                  Nigel & Ann.
                                                                                  xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 19 Mar 13 - 10:43 PM

Our common thread....a distillation of what it means to live and love.

Sending love, care and concern to all.

Somehow tonight, I especially think of Jane's children, her love, care and concern for them, and the difficult and inevitable act of letting go and trusting in the circle of life and death.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 19 Mar 13 - 09:35 PM

I'm still here, too. I've been reading this thread daily but can think of nothing to add to my previous posts. I am still sending my love.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 19 Mar 13 - 08:32 PM

i've been thinking along those lines too. Nigel, i'd be honoured to help with such, when the time comes.

now and always, here for you.

luvyakat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 19 Mar 13 - 06:34 PM

Spaw... I kinda think I know what you have in mind, if I may be so bold as to say so. If I am correct, my vote is cast. Of course, there is only one vote and that belongs to the person who starts the thread, if he wants to start a new thread... he may not... and that is, of course, Nigel.m He may wish to continue this thread with an "update in the title" or whatever he might think of.

"I said some time ago that our Thread will continue after Jane has died. Ann & I would like to dedicate it to her memory & to the memory of all those special departed who leave unfilled voids in all our lives."

Like rum said...

I'm here too
All ways
Always


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 19 Mar 13 - 06:17 PM

So agree Spaw,this thread will always be for Jane, the love and friendship Nigel has inspired means so much to everyone here and must continue in Jane's name.

Billy sees his consultant tomorrow, it has been a long year and I am so proud of him.We have fingers crossed but rowing on!
Hoping your update, Spaw will be positive.

My thoughts ,as always, are with Nigel, Ann and Jane and her husband and children, wrapping you all in this blanket of love and wish you a peaceful night, God bless you

with much love from us both
Wendy and Billy xxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 19 Mar 13 - 03:53 PM

I would think it wholly appropriate Nigel and we will need a new thread title when that time comes. I'd thought of the idea myself but felt I'd wait to bring it up but the idea certainly gets my vote. I'll bet it gets everyones vote.

What news of Billy? Anyone else with some updates? I will let you all know more in a day or two on my part.


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 19 Mar 13 - 03:13 PM

bless you nigel.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 19 Mar 13 - 10:08 AM

seconding what Allison said


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 19 Mar 13 - 08:39 AM

Yes, this is the hardest part. You've all been there with your own Families & Friends. It's different for each & every one of us, but there is a commonality that binds us close when a Life is gradually slipping away.
       The Palliative Care Team have revised their estimate. They are now expecting Jane to live on for another seven to ten days. Looks like our Darling Daughter is in no rush to "slough off this mortal coil".
       Thank you for the PMs; the emails. Thank you all for accompanying Ann & myself on our voyage.Thank you for making this final vigil so calm & tranquil. I said some time ago that our Thread will continue after Jane has died. Ann & I would like to dedicate it to her memory & to the memory of all those special departed who leave unfilled voids in all our lives.
                      With Much Love from our Hearts to Yours,
                                                                                     Nigel & Ann.
                                                                                     xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 19 Mar 13 - 08:38 AM

Still hovering, singing, sending love...


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: jacqui.c
Date: 19 Mar 13 - 12:38 AM

Still here - confirming Kat's post. Love from Maine.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 18 Mar 13 - 08:36 PM

Nigel and Ann, Dear Ones, keep singing and talking her through this, as you are able. Hearing is the last faculty to go...it's of great comfort. There are groups around the usa who sing people through their final leaving and there have been feelings of great relief for those left behind, also.

May Peace be with you,

luvyakat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 18 Mar 13 - 08:32 PM

Oh Nigel.

Here with the rest, holding vigil with love and great tenderness for all of you.

May you dwell in your hearts.

Janie


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 18 Mar 13 - 06:13 PM

also still here with feeling thoughts and prayer    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,David Nuttall , Wakefield .
Date: 18 Mar 13 - 01:53 PM

I wish I had the means to trully express all my warmest feelings which go out to you and your family at this time .

I send you much sincere and heart-felt love.

David


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