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Jane's Rainbow: for all needing support & comfort

gnu 03 Jun 13 - 06:59 PM
catspaw49 03 Jun 13 - 05:43 PM
ChanteyLass 03 Jun 13 - 12:24 AM
gnu 02 Jun 13 - 05:54 PM
Wolfhound person 02 Jun 13 - 04:36 PM
Janie 01 Jun 13 - 08:09 AM
Pete Jennings 01 Jun 13 - 06:59 AM
Nigel Paterson 01 Jun 13 - 06:16 AM
Sandra in Sydney 01 Jun 13 - 05:34 AM
gnu 01 Jun 13 - 05:29 AM
GUEST,Frug 01 Jun 13 - 05:22 AM
ChanteyLass 31 May 13 - 11:52 PM
frogprince 31 May 13 - 11:00 PM
Janie 31 May 13 - 10:55 PM
billybob 31 May 13 - 07:07 PM
GUEST,Frug 31 May 13 - 06:00 PM
gnu 31 May 13 - 05:52 PM
GUEST,Frug 31 May 13 - 05:41 PM
gnu 30 May 13 - 07:37 PM
billybob 30 May 13 - 05:37 PM
maeve 30 May 13 - 05:26 PM
maeve 30 May 13 - 07:22 AM
gnu 30 May 13 - 06:43 AM
Janie 29 May 13 - 11:11 PM
ChanteyLass 29 May 13 - 09:24 PM
gnu 29 May 13 - 02:01 PM
Nigel Paterson 29 May 13 - 01:57 PM
billybob 29 May 13 - 01:41 PM
Nigel Paterson 29 May 13 - 01:33 PM
gnu 28 May 13 - 06:48 AM
Sandra in Sydney 28 May 13 - 05:26 AM
ChanteyLass 27 May 13 - 09:51 PM
GUEST,pete from seven stars link 27 May 13 - 06:03 PM
gnu 27 May 13 - 06:32 AM
billybob 27 May 13 - 06:05 AM
gnu 26 May 13 - 05:45 PM
billybob 26 May 13 - 04:01 PM
ChanteyLass 26 May 13 - 02:28 PM
AllisonA(Animaterra) 26 May 13 - 12:18 PM
gnu 26 May 13 - 12:03 PM
Pete Jennings 26 May 13 - 10:54 AM
maeve 26 May 13 - 09:05 AM
ChanteyLass 25 May 13 - 10:24 PM
frogprince 25 May 13 - 09:39 PM
Janie 25 May 13 - 03:42 PM
gnu 25 May 13 - 08:18 AM
gnu 25 May 13 - 05:10 AM
Sandra in Sydney 25 May 13 - 03:06 AM
katlaughing 24 May 13 - 11:29 PM
GUEST 24 May 13 - 11:05 PM
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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 03 Jun 13 - 06:59 PM

Spaw, buddy... ye trow it an we'll clean it up. You vent at will. Please.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 03 Jun 13 - 05:43 PM

Hi Crew! Sorry if I haven't been around although I have been reading. I am so impressed with the way we all continue to sail on and that others have come in including a good friend, Frug. He was duly warned and pleaded with when he wrapped himself tightly around his dearest Sassy as a caregiver but obviously didn't get the message. I am happy too that it finally hit him to take care of himself before it was too late. Frank my friend.....I expect better of you in the future and suggest you stay aboard the Rainbow with us as your advice and counsel can be a great assist!

I was enjoying the way things have been developing here and happy to see how it has become even more with the age. Nigel and Janie have warmed me with some really beautiful thoughts and I can see the vessel and crew just getting better.

I'm just falling into a pattern right now where I have 2 weeks of feeling at half-assed followed by a week of chemo which is okay except the damn shots are rough. 15 shots in the stomach , 3 a day, is not pleasant. Then I go way downhill with excessive pain from the shots, nausea from the drug and the pain combined.....after about 9 or 10 days we're back to fair, another few days to pretty good (Almost there now), and then I get my 2 weeks of A#1 okay.

It pretty much sucks but it is the deal and I'm happy we're making progress. Of course that too is the frustration in a way. This is a "quality of life" treatment because the MDS/Leuk has no cure. I'm not bitchin' here(well damn Spaw, it sure seems like it!)but it would be more tolerable if I had any expectation of a good outcome!   It is sorta' like going to the Doc with a broken leg. The Doc gives you a hammer and tells you to smash your hand once a month.   You say, "Will this fix my leg?" Doc says, "No, but it will take your mind off of it until we amputate it"

Enough with the bitching! My numbers keep going up although the weekly number may drop after chemo, it gets better as the weeks go by and I go into each new chemo treatment with better numbers than the last.....DEFINITE progress. Hemoglobin still low but very close and platelet count has only a short way to go to be in range, low but in range!

More later if you can stand it.....LOL


Spaw


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 03 Jun 13 - 12:24 AM

Got it, Paws! Liz and Terry!

The inmates are taking over the asylum. Wait . . . . No . . . . The crew is taking over the ship, and it is not a mutiny but a peaceful new arrangement of equality. All Hands on Deck!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 02 Jun 13 - 05:54 PM

Paws... yupper.

Nigel... ya mighta been the cappy on accounta you were the one that laucnhed this tub but I always treated and respected you as part of "the crew"... as one of "us". As in...you an me are just the same poor guy rowin a dory in a big blue sea ceptin that there are a lotta hands on the oars. I can't speak for anyone else but this has been said many times above... thanks.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Wolfhound person
Date: 02 Jun 13 - 04:36 PM

I've just heard from Liz that her husband Terry, who I mentioned earlier has mesothelioma, is in hospital and has been put on the Liverpool pathway.

They both need any spare good thoughts you all might have for a while, to add to the many supportive friends already rallying around in their community.

Paws


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 01 Jun 13 - 08:09 AM

Do us a favor, Frug, and take good care of yourself going forward. No more close calls like that, eh?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 01 Jun 13 - 06:59 AM

Amen to that, Nigel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 01 Jun 13 - 06:16 AM

There is much here deserving of comment, but I'm going to restrict myself to reflecting on Janie's post of 29th. I have referred to 'Jane's Rainbow' as 'our' thread for a while now, but, in truth, it's been almost as hard to 'relinquish the captaincy' as it has been to let Jane go. I felt it remained my responsibility to keep the thread alive; drive it along. I now understand, completely & utterly, for the first time, that my stewardship (Thank you, Janie) is a burden from which, as of this moment, I am relieved. I become one of the Crew; one of many, getting on with my daily duties. We have no rank, no special privileges. What we DO have is each other. Janie expressed it so eloquently: " The wonderful magic is that when called up, the ship and crew will appear immediately to any who summon it, not on the distant horizon from whence it might take days to join, but right here, right now, whenever that now is".
       I apologise for underestimating your Love, Determination, Loyalty & Compassion.
       I/we are in the very best of Hands,
                                                            With Love,
                                                                           Nigel.
                                                                           xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 01 Jun 13 - 05:34 AM

Lucky you! You've just found out why carers/parents/health professionals need to keep in good health so they can help folks.

I assume someone in the health field has suggested you make more regular visits to your doctors as well ask taking these medications?

keep looking after yourself so you can look after your wife.

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 01 Jun 13 - 05:29 AM

I hope you equilibriumiate rapidly and are fully equal soon.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,Frug
Date: 01 Jun 13 - 05:22 AM

Hi folks - just had 10 hours recovery sleep. To fill you in .... as many of you know for nearly 2 years I have been nursing Sassy through her recovery from major head trauma. A consequence of this has been that i have been less than assiduous in attending to my own health. several times last year I was asked if I had Asthma as I was wheezing. I put it down to a chest infection and did nothing. 6 weeks ago whilst having a small break with the family I experienced major breathing difficulties and on visiting the Doctors a long standing and deep seated infection was identified. Several courses of antibiotics and steroid treatments, whilst improving the situation did not resolve the issue. Chest X rays showed fluid build up outside the lungs and an enlarged heart and raised a potentially overactive thyroid ... also the GP noted an increased level of an enzyme which is a precursor to a heart attack. hence the visit to A and E. Thankfully, and without going into too many details, emergency treatment had a dramatic effect for the better and an imminent heart attack was averted. I am very lucky and although very knackered. I am now in possession of appropriate meds which will control things whilst I try and achieve equilibrium.

Spooky eh?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 31 May 13 - 11:52 PM

Hey, Frug, I'm sure there's a hammock on board with your name on it. Sorry about the scare!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 31 May 13 - 11:00 PM

Bless Frug's little heart : ), and may all the crew sleep well.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 31 May 13 - 10:55 PM

Glad to see you took gnu's advice! (in this instance, anyway:>)

Keep us posted, eh?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 31 May 13 - 07:07 PM

Sleep well Frug,
the crew will look after you while you sleep


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,Frug
Date: 31 May 13 - 06:00 PM

Zzzzzzzzz


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 31 May 13 - 05:52 PM

Get thee under the sheets!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,Frug
Date: 31 May 13 - 05:41 PM

Just checking in here for a bit of quiet time. Just released from hospital after 24 hrs in A and E following a cardiac scare. Move over folks I need a little sleep!!

Frank xx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 30 May 13 - 07:37 PM

T&Ps to Skipy.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 30 May 13 - 05:37 PM

Healing thoughts Skipy
xxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 30 May 13 - 05:26 PM

Mudcatter Skipy has had a stroke. Kindly add him to your thoughtful moments- I will picture him singing as he regains the power of speech. There's a thread upstairs.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 30 May 13 - 07:22 AM

Nigel- We hereby declare you to be on guilt-free leave. Check your PMs, eh?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 30 May 13 - 06:43 AM

Janie... I got teary eyes.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 29 May 13 - 11:11 PM

Ah Nigel, this thread can sail itself, doesn't need a captain or a helmsman. It is guaranteed to sail on, a full complement of crew aboard. There may be times when it sails below the horizon, but is sailing nonetheless, a full crew aboard. The wonderful magic is that when called up, the ship and crew will appear immediately to any who summon it, not on the distant horizon from whence it might take days to join, but right here, right now, whenever that now is.

There is no "duty" to what this thread represents. You do not need to feel like you have to be a steward. Jane's Rainbow is here. It will stay here.

Love never dies and this thread is a testament to all the different ways of loving, caring, joining, holding, and letting go that encompass what we humans experience as love.


Remember, Nigel, that you are wrapped in a virtual circle of care and concern, as are all the rest of the crew. There is no pricetag, and no duty attached to that.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 29 May 13 - 09:24 PM

Whatever you need, whatever you want, Nigel. Whether I post here, elsewhere, or not at all, you and Ann will be in my thoughts. Sending more love your way.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 29 May 13 - 02:01 PM

Hey... ya need a break, take a break. As for me, I will check in but I have taken on two new projects plus I think we had our last good chance of frost and my transplantin starts in two or three ales... gotta lubricate the old back, eh? Also, one of the projects is rather taxing so I might not comment very much over the coming weeks unless dramatic changes take place.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 29 May 13 - 01:57 PM

Thank you, Wendy....maybe one day in Frinton?
                                                                        With Love,
                                                                                       Nigel.
                                                                                       xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 29 May 13 - 01:41 PM

Nigel

rest up please,
we will carry on sailing,the Rainbow will be here for those in need,
you have captained us so well, but time to go ashore, or simply rest on deck I think.

Much love

Wendy
xxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 29 May 13 - 01:33 PM

Is our thread gradually winding down to a natural conclusion?
Have we achieved what we set out to achieve?
Is the time approaching when we should go our separate ways; remembering everything & everyone, safe in the knowledge that 'Jane's Rainbow' will be here, nevertheless & can be revisited should the need arise?
       Speaking personally (not for Ann), I am emotionally exhausted & need to 'step back' & 'sit under a tree & watch many sunsets'.
       Please let me know what you think, publicly or PM. I am tired & sad & really need to hear from you.
       Maybe someone else could 'take the wheel' for a time?
                  With Much Love to You All,
                                                          Nigel (Ann's here, but this is a very personal comment from me alone)                                  xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 28 May 13 - 06:48 AM

CL... we all knew what ya meant.

Oh, and, welcome to the club. There are lots of us. >;-)


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 28 May 13 - 05:26 AM

me, too!!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 27 May 13 - 09:51 PM

Uh-oh--my last post. I meant to say happy birthday to Alllson A.'s mum, not Wendy's.

Wendy, have a relaxing time away, and I hope you come back feeling refreshed.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 27 May 13 - 06:03 PM

ditto- and well deserved i,m sure. blessings   pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 27 May 13 - 06:32 AM

ENJOY!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 27 May 13 - 06:05 AM

Want to thank everyone who posted such supportive messages, it helped me lift my spirits so much. Don't often feel that bad ( in fact never before?)

Thanks to Maeve,her idea, we are going to have a week away at the end of June. I have arranged for 24/7 care for mum.She will still be at our home but with "live in" carers that she knows and likes. My daughter will pop in every day to make sure all is well.

We are going to stay in Somerset where my cousin has a holiday apartment and has said we can use at anytime! So how lucky are we. So looking forward to 7 days with Billy, good books and a few glasses of good wine!

much love
Wendy
xxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 26 May 13 - 05:45 PM

AllisonA.... ENJOY!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 26 May 13 - 04:01 PM

sending all our love to Pete , one of the nicest people on the UK folk scene. Croydon Folk Club at the Waddon was brilliant. Pete is a superb entertainer, shadow puppeteer, singer and lovely friend!
Get well soon Peter

Feeling much better myself today, went out and attacked the garden!!

Sailing on

Wendy
xxxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 26 May 13 - 02:28 PM

Wendy, Happy birthday to your mum.

Maeve, thanks for the tip about the other thread. I'll wander over there soon.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: AllisonA(Animaterra)
Date: 26 May 13 - 12:18 PM

Greetings from one who is silent but present most of the time. Today is my mother's 87th birthday; she is a brilliant, loving, courageous woman who finished raising three geeky, emotional children from 1975 on when my father left the family. Ironically, today is also the 5th anniversary of his death, not the first but the last goodbye after so many.
My mother will be coming for supper, injecting her rainbow energy into what would otherwise be a day of regretful memories.

Love to you all.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 26 May 13 - 12:03 PM

maeve... most assuredly.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 26 May 13 - 10:54 AM

Just checking in after a week away on hols...


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 26 May 13 - 09:05 AM

I've just seen a thread regarding Mudcat's kind Waddon Pete,
who has had a stroke: Peter Twitchett (Waddon Pete) Perhaps we can keep him in mind as well.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 25 May 13 - 10:24 PM

Aw, Wendy, love from me, too.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 25 May 13 - 09:39 PM

Back with you all; Wendy, Spaw, and all, you have may continuing best wishes.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 25 May 13 - 03:42 PM

What others have already said about shoulds, Wendy.... Sending love to all and doing my best to appreciate gentle breezes that move this ship along where ever she needs to sail.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 25 May 13 - 08:18 AM

There is a thread above the line I started with the title: What does music mean to humans? It has links to vids of people with dementia stimulated by music from their past. Dunno if this might help or hurt just now, Wendy. If you go to it, I hope it helps.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 25 May 13 - 05:10 AM

Well said, maeve. But, it's hard not to sometimes and ruing doing it can make it worse.

I just hope you soon find yourself "rising up".


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 25 May 13 - 03:06 AM

Don't SHOULD on yourself, & don't MUSTurbate!

Something I learnt at a meditation session about 20 years ago.

sandra (who even now hears occasional inner shoulds)


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: katlaughing
Date: 24 May 13 - 11:29 PM

me,too. listen to maeve....shoulds have no place where they belong.

[[[[[hugs]]]]]


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST
Date: 24 May 13 - 11:05 PM

Me too.


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