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Jane's Rainbow: for all needing support & comfort

GUEST,pete from seven stars link 21 Dec 12 - 01:55 PM
billybob 20 Dec 12 - 08:11 AM
katlaughing 19 Dec 12 - 11:29 PM
ChanteyLass 19 Dec 12 - 10:58 PM
rumanci 19 Dec 12 - 09:07 PM
Janie 19 Dec 12 - 08:55 PM
Sandra in Sydney 19 Dec 12 - 07:42 PM
catspaw49 19 Dec 12 - 07:30 PM
GUEST,henryp 19 Dec 12 - 05:05 PM
gnu 19 Dec 12 - 02:32 PM
Nigel Paterson 19 Dec 12 - 11:52 AM
GUEST,999 19 Dec 12 - 10:47 AM
GUEST,pete from seven stars link 19 Dec 12 - 10:10 AM
Nigel Paterson 19 Dec 12 - 06:47 AM
ChanteyLass 18 Dec 12 - 10:31 PM
billybob 18 Dec 12 - 09:23 AM
GUEST,pete from seven stars link 18 Dec 12 - 06:19 AM
Sandra in Sydney 17 Dec 12 - 07:32 AM
catspaw49 16 Dec 12 - 07:25 PM
fat B****rd 16 Dec 12 - 03:36 PM
Nigel Paterson 16 Dec 12 - 12:29 PM
Janie 16 Dec 12 - 07:21 AM
maeve 16 Dec 12 - 07:13 AM
GUEST,pete from seven stars link 16 Dec 12 - 06:31 AM
Janie 16 Dec 12 - 06:21 AM
Nigel Paterson 16 Dec 12 - 04:56 AM
frogprince 13 Dec 12 - 07:03 PM
katlaughing 12 Dec 12 - 11:27 PM
gnu 12 Dec 12 - 11:03 PM
Sandra in Sydney 12 Dec 12 - 06:58 PM
billybob 12 Dec 12 - 06:45 PM
frogprince 12 Dec 12 - 11:32 AM
Nigel Paterson 12 Dec 12 - 11:01 AM
katlaughing 11 Dec 12 - 08:21 PM
gnu 11 Dec 12 - 05:55 PM
catspaw49 11 Dec 12 - 03:12 AM
Janie 11 Dec 12 - 12:13 AM
frogprince 10 Dec 12 - 11:31 PM
ChanteyLass 10 Dec 12 - 10:49 PM
catspaw49 10 Dec 12 - 09:55 PM
gnu 10 Dec 12 - 09:39 PM
Jeri 10 Dec 12 - 09:33 PM
GUEST,999 10 Dec 12 - 08:37 PM
Sandra in Sydney 10 Dec 12 - 08:21 PM
billybob 10 Dec 12 - 02:04 PM
GUEST,pete from seven stars link 10 Dec 12 - 12:09 PM
Sandra in Sydney 10 Dec 12 - 07:50 AM
Nigel Paterson 10 Dec 12 - 07:30 AM
Sandra in Sydney 10 Dec 12 - 12:35 AM
Maryrrf 09 Dec 12 - 10:12 PM
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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 21 Dec 12 - 01:55 PM

pleased to read of encouraging updates.
good one henry.    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 20 Dec 12 - 08:11 AM

Henry, the poem is beautiful, lovely sentiments!
Spaw, thanks for the hugs,
Hugs all round from me!!

Billy and I went to a concert last night, first time out together for months, we saw The Mellstock Band,A Celebration of Christmas,readings from Thomas Hardy and Dickens, lovely singing of traditional songs and carols, we had a wonderful evening. They are at Cecil Sharp House on Saturday so do go if you are in London?

Love and hugs to all the crew,

Wendy


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 19 Dec 12 - 11:29 PM

It's late, so I'll post an update, tomorrow.Glad to hear the better news from you, Spaw and that Jane has some relief.

Henry, your poem is beautiful. thank you for sharing.

kat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 19 Dec 12 - 10:58 PM

Nigel, I'm glad Jane's pain has been eased somewhat and hope even more can be done.

Spaw, hang in there!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 19 Dec 12 - 09:07 PM

Hugs, love, hope - holding fast here and feeling better for being Sp.a.whugged too! Backatcher all.
rum


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 19 Dec 12 - 08:55 PM

A Janiehug back at ya', Spaw!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 19 Dec 12 - 07:42 PM

watching & sending love to all

sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 19 Dec 12 - 07:30 PM

Thank you Henry. Welcome.

Let me a minute to refresh where I'm at. I've returned twice to the hospital for overnight stays, the last being a week ago After. the first shot nothing really happened and my hemoglobin actually went down when I had the blood work last Wednesday before the second shot. I went in to the hospital and got three additional pints. When I left, my hemoglobin was 9.3 and I felt much better.

Today I went for the third shot. From what I have read and heard from medical friends, Aranesp works reasonably quickly but in terms of bone marrow this means 2 to 6 weeks or so. I was hoping that I could at least maintain or maybe drop only a tenth or two. I awaited the bloodwork results and found I was at 9.8. My joy knew no bounds. We'll see where we are next week and what the Doc has to say and go from there but this was at least encouraging and I ain't felt too encouraged lately.

To all my fellow travellers aboard this thread...........Please keep posting. I think of you all and check in often. I think I'm going to leave a note more often though........even if I have nothing to say. Best thoughts to all and a request for Nigel to give Jane and Ann a "Spaw Hug" and I'll send him a really big hug to pass around. Matter of fact, ALL of you need to be considered as "Spaw Hugged!"


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,henryp
Date: 19 Dec 12 - 05:05 PM

I'd like to add my support to Nigel, Ann and Jane, Billy and Wendy, and everyone else who may be undergoing treatment, or looking after someone who is. Patients and carers alike need support.

If I should wake on Christmas Day to find
All the power of nature mine to do with as I please,
I would not cease from labour until every anxious mind
Lay calm and every restless heart found ease.

With my best wishes,

Henry


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 19 Dec 12 - 02:32 PM

Glad to her it, Nigel.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 19 Dec 12 - 11:52 AM

Pete, have to answer your post with a pm.
Bruce, as always, good to hear from you. Yes, I've been busy 'scribbling' away! You can hear some of my efforts at: https://soundcloud.com/nigel-paterson-music.
       Pleased to report that Jane's Doctors have modified her pain control & whilst not pain-free, she is feeling more comfortable.
       With Love,
                      Nigel & Ann.
                      xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 19 Dec 12 - 10:47 AM

Hey, Nigel. Howzit? My thoughts are always with y'all, and one of them is "I wonder if he's (meaning you) been writing music?"


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 19 Dec 12 - 10:10 AM

sorry to hear that jane is having such a tough time of it at present-i hope it will level off and she will be at least sufficiently well to participate in the family gathering.
do you have any hospice at home in your area?we have ellenor-lions in our locality whose nurses call at home to moniter and assist in concert with other drs and agencies.tommys ellenor nurse is very helpful.i,m sure you are too far out for them but i,m sure they could advise of any other such in your area if needed.blessings   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 19 Dec 12 - 06:47 AM

Maeve, the calligraphic version of 'Letter to a Friend' adds yet more beauty to already beautiful words. I rarely look back as far as the 16th century for comfort & inspiration. Clearly, I need to adjust my thinking!
       Thank you all for being with us; for sending your Love; for your prayers; your meditations; your positive thoughts. Jane had what could be termed an unplanned scan yesterday, with a promise from her Consultant that he would make the results available immediately. We are waiting for a phone call as I type. The last few days have been particularly tough for Jane. Extreme reactions to the chemo coupled with ineffective palliative care do not a happy person make.
       Our whole Family will be together for Christmas. It's the first occasion for several years that everyone's been in the UK at the same time. We cling to the hope that Jane will be well enough to enjoy this rare 'gathering of the Clans'.
       Sending Much Love to You All,
                                                    Nigel & Ann.
                                                    xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 18 Dec 12 - 10:31 PM

I have nothing to add, but I am still here and praying.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 18 Dec 12 - 09:23 AM

Just sending lots of love to all your family Nigel,
Wendy


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 18 Dec 12 - 06:19 AM

i trust renewed courage continues
blessings to all    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 17 Dec 12 - 07:32 AM

everyone is saying what I wish I could find the words to say.

love from sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 16 Dec 12 - 07:25 PM

Sometimes I can do no better than the words of others and in this case I love what Janie and Maeve have given us. Nigel my friend, hold tight and hold on to each other and hope for the best possible outcome whenever that time arrives. You'll find us still here and still sending our best thoughts, love, and caring.

Much Love,

Pat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: fat B****rd
Date: 16 Dec 12 - 03:36 PM

Dear Nigel and Ann.
If I don't post here all that much it doesn't mean that you and yours are not in my thoughts.
With the best possible regards and a wish that you have the best possible Christmas.
Charlie X


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 16 Dec 12 - 12:29 PM

Janie, Pete, Maeve, you bring tears to my eyes; fill my heart full of love & once more restore my courage & strength to live in the moment. True Friends bringing thoughts & words redolent with truth & wisdom. I was particularly low this morning. My mood has lightened & the 'dark corners' don't seem quite so dark.
       Life's Blessings on All who meet here,
                                                                With Love,
                                                                               Nigel & Ann.
                                                                               xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 16 Dec 12 - 07:21 AM

That is so beautiful and wise, maeve. Thanks for posting it.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 16 Dec 12 - 07:13 AM

Dear Nigel, Ann, and Jane,

What we have is this minute, right now, polished with memories and hopes. That's all we ever have. All that changes is our response to events of life and death. Posted here with love to you, this is a reminder to "Take Joy" my husband and I have placed in our home:

"Fra Giovanni's "Letter to a Friend"
Here's a beautiful calligraphic version...click

"I salute you. I am your friend and my love for you goes deep. There is nothing I can give you which you have not got. But there is much, very much, that while I cannot give it, you can take. No heaven can come to us unless our hearts find rest in today. Take heaven! No peace lies in the future which is not hidden in this present little instance. Take peace! The gloom of the world is but a shadow. Behind it, yet within our reach, is joy. Take joy! Life is so full of meaning and purpose, so full of beauty . . . that you will find earth but cloaks your heaven. Courage then to claim it, that is all! . . .

And so I greet you, with profound esteem and with the prayer that for you, now and forever, the day breaks and the shadows flee away."
                  ******************************
"Letter to a Friend" attributed to Fra Giovanni, 1513
~ Fra Giovanni Giocondo [c.1433-1515] was an early Italian Renaissance pioneer, architect, archaeologist, Franciscan friar, and classical scholar.

*Take Joy! is an excerpt from FRA GIOVANNI's, "Letter To A Friend: A Letter to the Most Illustrious the Contessina Allagia Dela Aldobrandeschi", Written Christmas Eve Anno Domini 1513. However, there is some debate: "The British Museum stated in 1970 that it had "proved impossible" to identify Fra Giovanni, the purported author of this letter. It is possible that it was published in the 1930s, "with Christmas Greetings" from Greville MacDonald, son of novelist George MacDonald, and Mary MacDonald".   [wikipedia]


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 16 Dec 12 - 06:31 AM

normally i would be at church at this time but tommy has a bug so i stayed home.maybe that was in some way providential as i have just read and pondered your post ,nigel,and lifted my thoughts in empathetic prayer for you.
tommy has myotonic dystrophy and when we took him on we were told that he would not live long and we have had some close calls and all the time we know that humanly speaking he is deteriorating-but not as fast as expected.
we also have a friend who was expected to die 4/5 year ago but is at present in remission,i think.she has however recently had treatment abroad which family and friends have paid for.
i think you are probably right in expecting the inevitable and it is painful emotionally for all concerned and physically sometimes for jane.living in the present situation could be for quite some time yet,-though of course we can not forsee as you have said.
try not to let what will happen to all of us at some time steal the precious times and the potential times of joy in the now.
God bless   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 16 Dec 12 - 06:21 AM

Nigel & Ann, please consider this to be simply in the fwiw department. During those times of standing still, try simply to soften around the pain so that you neither resist or nor cling, but accept. And in that moment of accepting what is in the moment, realize it is ok to accept all of that moment, not only the pain and anticipation of loss at some point in the future, but also the love, laughter, and delights for the senses that are there to be had in the same moment.   

And Nigel, don't worry in this thread about gun control in America. There are currently two threads, and many others that are archived where the debate on that issue, often rancorous, rages on.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 16 Dec 12 - 04:56 AM

It warms my heart to read & feel the optimism in the most recent posts. Sadly, that optimism doesn't extend to the Paterson Household. It turns out that Jane's course of Radiotherapy is for palliative care only. In reality, we are in much the same position as we were in late January, early February. Jane's cancer is treatable but not curable. We are haunted by the thought that this could be her final Christmas. No one knows how much time she has left; no estimates, no futile guesses. The 'Day at a Time' approach is the only way to go, but it begins to feel that we are simply standing still, waiting for the inevitable. My thoughts & words are coloured too by the appalling, catastrophic Murder of the Innocents at Newtown, Connecticut. My American Friends, please help this ignorant Brit form a greater understanding as to why 'The Right To Bear Arms' is clung to so passionately by such a significantly large percentage of the American population.
       I'm sorry that this post is so gloomy on this bright, sunny, Sunday morning (at least here in East London).
                        Keep safe; stay close,
                                                       With Love,
                                                                      Nigel & Ann.
                                                                      xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 13 Dec 12 - 07:03 PM

Hmmm; Kat, we're looking at 5 sessions, and they said just approx a half hour for each.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 12 Dec 12 - 11:27 PM

frogprince, i had three sessions of iv iron last summer. tell her to take along a good book or two. they cannot put it in too fast, so it took from 2.5-4 hrs.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 12 Dec 12 - 11:03 PM

Thinga are lookin up. I hope up continues for all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 12 Dec 12 - 06:58 PM

Whoop de doop good news Nigel and froggie, Billy doing well too!

very nicely put, Wendy


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 12 Dec 12 - 06:45 PM

Whoop de doop good news Nigel and froggie, Billy doing well too!
I still have a sore behind after the cup cake incident but feel like dancing, what was that dance in the 20's? Was it the black bottom or the cake dance?
Dancing off............
Wendy xxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 12 Dec 12 - 11:32 AM

We just saw my wife's doc as followup to the bone marrow check. No sign of any problem with her bone marrow. Some of the batch of meds she currently needs may be pushing her toward anemia. She'll get some doses of intravenous iron over the next couple of weeks, perhaps followed by periodic shots to stimulate her marrow to a little more production. Not bad news at all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 12 Dec 12 - 11:01 AM

Very appropriate that we have some food related posts...Jane is eating normally & last night consumed a three course restaurant job! Her food intake is more than just a return to normality. She lost 4 kilos in weight last week; had that risen to 5, her Oncologist would've halted her treatment, so regaining the loss is uppermost in her mind. Next week the Dear Girl is going to have to endure five consecutive days of radiotherapy to zap the nasty critters that are invading her hip bones.
      Janie & Kat, I can barely keep from salivating on my laptop. Those recipes would prove to be temptation beyond endurance, even for a diabetic! (I have the will but no power!)
                      With Love to You All,
                                                      Nigel & Ann.
                                                      xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 11 Dec 12 - 08:21 PM

Before a family member was found to have diabetes, I used my sister's recipe for cinnamon-sugar nuts sauteed in butter...pecans, walnuts, etc. omg they were good!!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 11 Dec 12 - 05:55 PM

You are keen on a whippin... kinky, you.

Well... better than just a freeresh when the thred is one from falling off. Sue me.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 11 Dec 12 - 03:12 AM

Okay Rainbow Warriors!!! Let's all order up from Janie. I miss my Mom's homemade caramels at Christmas. How about you whip up a batch of those Janie???? Huh> Huh? Oh PLEEEEEEZE...............


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 11 Dec 12 - 12:13 AM

I'm in the midst of my annual Holiday baking frenzy. Fresh apple cakes, pumpkin-cranberry-walnut bread, shortbread (a very plain and rich recipe, more biscuit than cookie (by USA definitions - not so sweet and a bit thicker than a typical cookie, shortbread or otherwise), blackstrap molasses cookies, savory roasted pecans, and who knows what else if I find time in this next week.

Virtual gifts of love to all of you from my virtual kitchen. Wish I could cross the street, knock on your doors in 3-D, and say, here is a little comfort food, seasoned with my gratitude to know you in the season for a little indulgence.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 10 Dec 12 - 11:31 PM

But the buns are all black and blue... : )

So glad to hear the positive stuff from all of ya.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 10 Dec 12 - 10:49 PM

I'm glad Jane is starting to feel better and that Billy's completed his last round of hospital chemo. Wendy, ouch! Sorry about your fall, but glad the cupcakes survived!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 10 Dec 12 - 09:55 PM

Wait and hope with a lot of love and look what happens! Bumps in the road and we'll always be here......Happythoughts your way tonight Nigel. Very happy thoughts!


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 10 Dec 12 - 09:39 PM

DITTOS!

Made my day and I needed that! Great news all round.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Jeri
Date: 10 Dec 12 - 09:33 PM

I wish I had a magic want and could make heal everybody. Until I get one, you have my continued well-wishes. I'm very glad things are getting better!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 10 Dec 12 - 08:37 PM

It's beginning to look a lot like Christmas . . .


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 10 Dec 12 - 08:21 PM

good save, Wendy!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 10 Dec 12 - 02:04 PM

So pleased Nigel, that is heart warming news, those side effects can be horrid so to hear Jane is feeling much better today is wonderful!

Good news here too, Billy had his last Chemo treatment at the hospital today so four more days of chemo tablets to go this week and then fingers crossed for the tests in the New Year, however I can make you laugh I hope, I made a batch of gingerbread cupcakes to say thank you to the team at Colchester hospital,glammed up a bit as it is Christmas ,so was wearing silly shoes, slid on the corridor floor and landed up spread eagled, BUT I saved the cup cakes!! Think they will remember me?

Love and smiles,

Wendy xxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 10 Dec 12 - 12:09 PM

been very tied up last few days so when i began reading i felt a little of the pain that you had but was pleased to see a much brighter picture emerge.
love and prayers pete


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 10 Dec 12 - 07:50 AM

brilliant news

sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 10 Dec 12 - 07:30 AM

I'm no doctor, but it would appear that Jane's problems over the past few days have been a pharmacological crisis, rather than pathological. We spoke on the phone this morning. Up until yesterday, she wasn't even able to pick up the phone, let alone make a call. Her voice was bright & strong; she's eating again & feels so much better. Jane was warned that the latest course of chemo would have unpleasant side effects that might last for a few days, but none of us imagined just how severe these would be. Looks like the Mudcat Mojo has worked it's magic once again.
      I'm so pleased too that 'Catters return to post...it's wonderful to hear from everyone of you.
      With Love,
                     A much less anxious Nigel & Ann.
                     xxxxxxxxxxxxxxxxxxxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 10 Dec 12 - 12:35 AM

sending the usual love & hugs, & hope

sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Maryrrf
Date: 09 Dec 12 - 10:12 PM

Nigel, I don't go on Mudcat as much as I used to and rarely post, but I have been following this thread and adding my prayers to all the rest. I suspect that there are many who quietly wait and hope with you and your family from a distance.


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