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Jane's Rainbow: for all needing support & comfort

Sandra in Sydney 04 Jun 14 - 06:02 AM
Nigel Paterson 04 Jun 14 - 05:38 AM
ChanteyLass 03 Jun 14 - 09:43 PM
gnu 03 Jun 14 - 09:16 PM
gnu 03 Jun 14 - 08:13 PM
billybob 03 Jun 14 - 05:29 PM
gnu 03 Jun 14 - 12:28 PM
GUEST,pete from seven stars link 03 Jun 14 - 11:31 AM
Will Fly 03 Jun 14 - 06:13 AM
Nigel Paterson 03 Jun 14 - 05:41 AM
Janie 02 Jun 14 - 09:11 PM
ChanteyLass 02 Jun 14 - 08:15 PM
Will Fly 02 Jun 14 - 10:40 AM
gnu 02 Jun 14 - 07:18 AM
gnu 01 Jun 14 - 08:12 PM
gnu 01 Jun 14 - 08:04 PM
GUEST,Pete from seven stars link 01 Jun 14 - 06:33 PM
Janie 01 Jun 14 - 04:11 PM
Nigel Paterson 01 Jun 14 - 01:07 PM
gnu 01 Jun 14 - 10:20 AM
maeve 01 Jun 14 - 10:19 AM
Janie 01 Jun 14 - 12:32 AM
GUEST,pete from seven stars link 31 May 14 - 05:04 PM
ChanteyLass 31 May 14 - 12:10 AM
SINSULL 30 May 14 - 12:40 PM
gnu 30 May 14 - 07:41 AM
Sandra in Sydney 30 May 14 - 04:51 AM
Rapparee 29 May 14 - 10:11 PM
ChanteyLass 29 May 14 - 09:00 PM
Janie 29 May 14 - 08:44 PM
Janie 29 May 14 - 07:44 PM
frogprince 29 May 14 - 07:42 PM
catspaw49 29 May 14 - 07:24 PM
gnu 29 May 14 - 10:29 AM
ChanteyLass 28 May 14 - 08:55 PM
Sandra in Sydney 28 May 14 - 07:08 PM
gnu 28 May 14 - 01:00 PM
SINSULL 28 May 14 - 12:44 PM
ChanteyLass 27 May 14 - 09:07 PM
bassen 27 May 14 - 09:18 AM
ChanteyLass 26 May 14 - 08:01 PM
Janie 26 May 14 - 06:10 PM
billybob 26 May 14 - 06:06 PM
billybob 26 May 14 - 04:59 AM
Sandra in Sydney 26 May 14 - 04:34 AM
Nigel Paterson 25 May 14 - 05:56 AM
ChanteyLass 24 May 14 - 09:07 PM
gnu 24 May 14 - 12:42 PM
catspaw49 24 May 14 - 09:46 AM
Nigel Paterson 24 May 14 - 05:41 AM
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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 04 Jun 14 - 06:02 AM

adding my bit to the good wishes on the Rainbow

love to all

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 04 Jun 14 - 05:38 AM

Thank you Pete...just for the record (no pun intended), 'Mad Tom O'Bedlam' & the rest of The Halliard repertoire were written by Dave Moran & Nic Jones. Nic & I then arranged the instrumental parts to make the songs performable. Thinking of you & Tommy & trusting the bone scan comes back with encouraging news.

Wendy...I'm lost for words. Thank you seems totally inadequate. Through all your trials & tribulations, you find time for me & always raise my spirits. I've said this before, but from your tentative first posts, you've become a stalwart Crew member. You are loved, admired & respected in equal measure. The trite comments I make on FB are a 'smoke screen'. The real me appears only here. Wendy, your candour & willingness to share in such intimate detail has emboldened me to 'open up' & for that, I am truly grateful.

ChanteyLass...I'm hanging in, but it's a real finger tip job! Knowing that I sail in such distinguished company, firms up those old fingertips, so I won't be letting go any time soon.

Gnu, what a meaningful sentence: "Patience IS love and that is what it is all about." I need to learn from that. I'm not renowned for my Patience.

I've left a message on Dan's thread. That he is on line & responding is very encouraging. I hope he visits us here when he is well enough so to do.

My final thoughts are reserved for Spaw. I hope you get to read this because after a little research, I discovered that 'Pat' (Patrick) means: "Scion of a noble family." It's not beyond the bounds of credibility that you could be descended from Scottish Royalty! Rise UP Sir Spaw!
       With Love to You All,
                                       Nigel.
                                       xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 03 Jun 14 - 09:43 PM

Nigel, hang in there! Friday and Ann will both be here soon.
Wendy, gnu, hugs to you both and to your moms.
Pete, I'm glad Tommy's cast has been removed.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 03 Jun 14 - 09:16 PM

Dan posted!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 03 Jun 14 - 08:13 PM

Ts&Ps, Wendy. It's hard. I had a hell of a conversation with Mum today. And, after I took her out to the grocery, we had a conversation about paying bills by cash or by cheques. Yes, no, yes in just over a minute... and she got POd at herself. Similar happens pretty much every day. Just getting her to tell me if she did like the seafood chowder is a chore. She did like it... of course >;). Patience IS love and that is what it is all about. Love to you and yours. And to all the crew and beyond.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 03 Jun 14 - 05:29 PM

Reading through all the above posts, so difficult to send love to each and everyone by name..........so love to each and everyone, but very special thoughts and prayers to Nigel, without him the Rainbow would never have set sail and all these lovely people would be adrift on an ocean with no fellow sailors to hold them in their hearts.

Mother has been very ill again this last few days, chest condition worsening and the wrong antibiotics caused an upsetting tummy problem. But today she has bounced back although the Dementia has      gone down another level, very first time she was very angry and waved her fist at me. Pure frustration at our ability to not understand what she was trying to say!

Was really looking forward to going to Essex Girls bar b q on Sunday in London, but I really don't think we will be able to go, maybe I should organise another of our garden " House concerts"

Sailing on,

Love and peaceful thoughts
Wendy xxxxxxxxxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 03 Jun 14 - 12:28 PM

Hope all goes well, pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 03 Jun 14 - 11:31 AM

just been listening to most of the dan tracks gnu posted.
some nice tunes. nice fingerpicking.....be nice to be able to do that so well!
paused to offer a prayer for dan, big al and wife, and nigel.
hope you surface from your creative strangling depression soon. your bedlam song got another airing at singaround last night, and you done lots of great tunes since.
tommy finally had the cast removed today. tender and slowly slowly but otherwise healed up, we think, though we are up to London tomorrow checking bone density.
blessings all    pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Will Fly
Date: 03 Jun 14 - 06:13 AM

I located St Vincents Hospital in Erie yesterday, and sent an e-card to Dan. Heard last night, after getting home from a gig, that it had reached him.

It's odd, isn't it? I'm a fairly rational kind of guy - don't believe in second sight or ghosts or mystical things, and I'm pretty grounded most of the time. But I'd been musing on the good people who rarely post or don't post at all on Mudcat these days, and my thoughts turned, among others, to Dan. He'd recently sent me a wrist watch as a present and simultaneously arranged for an old WW2 military chronograph to be mended by our Amish friend Mahlon.

Then, for no reason whatsoever, I opened this thread - which I've never looked at before - out of curiosity. Lo and behold - there was the recent news of Dan! I'm still pretty rational and grounded - but a big thanks to Coincidence, in all its shapes and forms, for getting the news to me!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 03 Jun 14 - 05:41 AM

Well put, Janie. I think I'm in the "... choppy white caps and dangerous shoals..." quadrant. With Ann away in NC, I'm not doing very well. An overwhelming depression has robbed me of any creative inclinations. It's now more than two months since I wrote a single note of Music. Ann returns this coming Friday. She'll find our house clean & tidy...I have managed to achieve that at least. Suffering from Diabetes & PMR, leaves me wasted & very debilitated. That's largely the genesis of the depression, in addition to which I feel guilty because I have not been able to offer the level of support several of our Crew members (and friends of Crew members) so desperately need. I should stop now...I'm in real danger of drowning in my own self-pity. Janie's last words above speak for me too: "Life. Eh? Glad to have all of you with whom to share the journey".
                                          With Love to You All,
                                                                         Nigel
                                                                         xxxx

PS Thanks to Max, Joe et al for getting the new server up & running.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 02 Jun 14 - 09:11 PM

Thanks for the heads-up re: Al's wife, gnu. I had stopped checking that thread.

On board ship, it seems, when one turns through a full 360 degrees, all manner of weather and seas - the gamut from sunny and blue and fair, to sweltering doldrums, to choppy white caps and dangerous shoals, to raging storms.

Life. Eh? Glad to have all of you with whom to share the journey.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 02 Jun 14 - 08:15 PM

I'm sending positive energy to Big Al's wife in addition to others.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Will Fly
Date: 02 Jun 14 - 10:40 AM

If anyone gets news of Dan, please post it here - as I'm sure someone will. He's been a wonderful friend to me, both with music and with our mutual love of old pocket watches and wristwatches. The "Old Pocket Watches" thread seems very empty without him - and England's a long way off from where he is.

And, yes, best wishes to Big Al and his wife as well.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 02 Jun 14 - 07:18 AM

Just a heads up (via Meagan L)... in part:

Subject: RE: Why Do Musicians Work For Nothing?
From: Big Al Whittle - PM
Date: 02 Jun 14 - 05:30 AM

... as for my wife - we are in crisis at the moment - bad reaction to an anti inflammatory. things are never less than iffy - this week they're in meltdown. I value your friendships.
******************************************************

A little Mudcat Mojo for Big Al's wife and for him is a good thing. He's one of the good ones.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 01 Jun 14 - 08:12 PM

Oh! Some may not know. My name is Gary Owens. Sorry about not explaining that part.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 01 Jun 14 - 08:04 PM

Dan? THE man. The guy goes out of his way to be nice to people he has never met in 3D. No shit. No flies. Just a great guy. I am primed to cheer for the Chicago Blackhawks so, maybe I shouldn't but I wanna let people know how good a man he is. He knew from my posts that I was a true New England Patriots fan (Yankee football... best 'foot'ball in the world) and then... this arrived in the mail.

https://www.flickr.com/photos/15565423@N05/8475316641/

Cool watch too if ya check out the other pics. It sure looks good when I pull it out of my vest pocket.

My fav song is Owens Appalachia.... obviously. Thanks, Dan. You da man.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,Pete from seven stars link
Date: 01 Jun 14 - 06:33 PM

Checking in with thoughts and prayers. Blessings all.    Pete


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 01 Jun 14 - 04:11 PM

I expect it will be awhile before Dan is up to attending, much less responding to posts. Hoping and expecting the surgery went well, but as Pat already noted, the recovery time is long and the anesthesia for this surgery is deep and can take quite a long time from which to recover.

Up Dan! Up Spaw!

I think I have finally found a bonafide starling/grackle proof suet feeder! I know they have to eat also, but they are such gluttons I can't afford it!

Doesn't take much to make me happy.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 01 Jun 14 - 01:07 PM

Thinking of Dan & Spaw & feeling greatly frustrated by the miles that separate us. The geography is daunting, but in no way is my love & compassion diminished.
                Sending Love, Hugs & Kisses to a loyal, trustworthy Crew,
                                                                                                       Nigel
                                                                                                       xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 01 Jun 14 - 10:20 AM

"Feels good and hopeful." Feels good to read that.

Thinking of Dan.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 01 Jun 14 - 10:19 AM

I've just send an e-card to Dan via the hospital's e-card service. Has anyone gotten an update- while preserving his privacy, of course. Spaw darlin'? (And how be ye, Spaw?)

Janie- Good for you. Growth does take time and energy, eh? Love to you.

Up ye all and joy to crew and visitors to this watery thread.
Maeve.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 01 Jun 14 - 12:32 AM

I'm finally beginning to embrace where I am now.

One can not embrace where one is now until one has grieved what one chose to leave. I knew that, but did not expect it to take so long.

Feels good and hopeful.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 31 May 14 - 05:04 PM

prayerful thoughts for spaw and dan, as well as the communal UP !


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 31 May 14 - 12:10 AM

It's the wee hours of Saturday morning EDT. Has anyone heard anything about his condition?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: SINSULL
Date: 30 May 14 - 12:40 PM

Thinking of Dan...


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 30 May 14 - 07:41 AM

Dan is the man. Aces in my books. Kind, generous, caring... could not know finer. When I saw his email box was full when I got failure notices, I was concerned. More so now. Dan... ya just gotta get better again. Thoughts, prayers and love to you, buddy.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 30 May 14 - 04:51 AM

sending love & hugs to the wonderful Old Dude.

A few friends have had that surgery so I know it takes quite a while to feel better.

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 29 May 14 - 10:11 PM

Can't turn around no more without Spaw or Old Dude or somebody being sick or surgeried or...wait, I was surgeried a little bit back a ways.

You two just STOP being sick and surgeried or I'm gonna come out there and know the reason why!!! You hear me? I said, DO YOU HEAR ME?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 29 May 14 - 09:00 PM

My good thoughts are aimed straight at Spaw and Old Dude--and lots of others, too!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 29 May 14 - 08:44 PM

UP Spaw! Haven't uncrossed any appendages or the eyes yet. Do they know yet how the counts look?

Holding our darlin' Dan close in my thoughts.

For all....A little help from my friends


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 29 May 14 - 07:44 PM

Sins, I am so gladdened for you! And also for your son. Beaming good thoughts his way and all hope for his journey on the seas of recovery.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 29 May 14 - 07:42 PM

Dan is one of the best, and one of those whom I've been fortunate to meet in person a couple of years ago.

Sins, that is so good to hear.

And "Up Spaw", and Up all the crew.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 29 May 14 - 07:24 PM

WOW......First to Wendy with my thanks for such a wonderful post.

AND SINS!!!!! Simply unbelievable is all I can say but I do have some inkling of how you feel. May the feeling hold and get even better.

Bottom dropped out for me the day after I posted but we're coming back. Not sure where the problem is, whether I lost the balance or the daccogen has some strange twists to it.....Whatever it is I got a couple of pints and and we're going along fine.

NEED GOOD AND GOODER THOUGHTs FOR OLD DUDE !!!!


Dan is going in Friday for a single bypass surgery. I would have hoped the Robotic surgeries would have been everywhere by now but they will be cracking his chest which takes some recovery time. Stint doesn't do it so....Let's all send some good vibes to St. Vincent's Hospital in Erie, Pennsylvania for our old friend. I love this guy a lot and I know you do too.


Spaw


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 29 May 14 - 10:29 AM

New thread... Liz the Squeak is back on Mudcat! The thread is 'Hello chaps...'.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 28 May 14 - 08:55 PM

That's wonderful, SINSULL!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 28 May 14 - 07:08 PM

amazing & encouraging posts from Wendy, Bassen, ChaneyLass & Sins - not that I'm surprised to read such lovely thoughts & inspiring posts (YAH!, Sins) - not that I'm unaccustomed to shedding a tear ...

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 28 May 14 - 01:00 PM

My post did not post. Drat! It was for Wendy, Bassen, Nigel and others and all it really said was "Thanks."

SINS... that is great news!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: SINSULL
Date: 28 May 14 - 12:44 PM

Came in to say Hi to Spaw.
And to share some amazing news - my son is in a rehab where they emphasize self discovery. Yoga, Tai Chi, meditation, relaxation etc as well as traditional 12 steps. He is a new person. Calls and writes me twice a week. Leaves early morning messages on my cell phone and asks for nothing. For the first time in almost 20 years I think he will be OK.
What a joy to laugh and talk and share with him.
SINS


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 27 May 14 - 09:07 PM

Bassen, I am not a performer, but after reading your post I think that sometimes one audience member is all that is needed--if it's the right audience member.

One of the best folk music concerts I ever went to was several years ago at the folk music coffeehouse I go to most often. It was the last performance taking place before Christmas, and it was pouring outside. Only about five audience members showed up in addition to the volunteers. The performer asked us to move up to the front. Then she had the sound system turned off. Now that's acoustic! She sang songs with choruses for us to sing along on, and sing we did.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: bassen
Date: 27 May 14 - 09:18 AM

My choir performed in the old Norwegian mining town Røros last Saturday. That's a five hour drive one way from where I live. The turn out was okay and Røros itself is always worth a visit. On our way home we held a concert in Hov church at Sunndalsøra. We had bitched about this because we would rather have held two concerts in Røros, but our director had arranged the concert and that was that. The turn out was miserable and we felt that, once again, we were putting a lot of effort into something almost nobody appreciates. But there was one young woman who came in just before the concert started; she sat through the first segment with Haydn Missa Brevis and Mozart Laudate Dominum with her eyes closed. The second segment with soloist and piano the same. When the choir started again, we sang movements IV and V from Brahms' Requiem; her tears started to flow. For those unfamiliar with it, the Requiem was composed as a work of comfort and reconciliation. These two movements are the most lyrical and melodious parts. I'm convinced she came to our concert for the comfort the music could give her. I felt ashamed for our thoughts about not more people showing up. We sang for her that afternoon, all else was immaterial.

And Spaw, I've been around the Cat almost as long as you. I was never much of an active contributor, but it felt like home to me too. I miss the good old days they say never happened. You're one of the reasons I've stuck around as long as I have. If I can echo your wit, good writing and raucous humor back at you in any that helps you now, consider it done.

Bassen


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 26 May 14 - 08:01 PM

Thank you, Wendy, for your post.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 26 May 14 - 06:10 PM

Thank you Wendy. You spelled it out with such non-judgemental clarity.

Up Spaw.

Up All.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 26 May 14 - 06:06 PM

Hi Rainbow crew,

I put this on my facebook today, thought I would share here because I know you are the most caring and supportive people I know, please feel free to send or share this with anyone who needs help looking after a loved one with Dementia.

Last week the media was full of reports about Dementia, since my father died three years ago Billy and I have been looking after my lovely mum, she came to live with us and, as family and friends know, her dementia has progressed in stages. In November she had a fall which she has in her body recovered remarkably well, but her Dementia has become such a liability that she needs 24 hour , one on one care. This is not a rant from me, I am very lucky that we have wonderful private carers that sit with mum when I am at work and by her bed every night. I also have a wonderful daughter, son and stepson so BB and I can escape to their homes for a day or weekend. I am hoping you will read this because I am very aware of carers who have no such support, who carry on day by day looking after a loved one and are almost prisoners in their own home. They may not have been told about Admiral nurses ( I have my wonderful Admiral Nurse Sam who I can phone or meet for coffee and ask for advice) They may have family and friends who are unaware of the loneliness of spending your life caring for someone who really is no longer the person they know.I remember at my father's funeral my mother's friends promising to see her every week and take her out to lunch and, yes you guessed we haven't seen them since. Lots of good intentions that I am sure were heartfelt at the time.If you know someone who is looking after a loved one with Dementia just think on this......... call by to spend one hour for a cup of tea and tell them to soak in a lovely bath, or have time to weed their garden, or nip upstairs to hoover the bedrooms or clean the bath. All these simple things are impossible to do when you need to be alert to a vunerable relative who must not be left alone for a minute. I am lucky, we have friends who understand that we can no longer go out in the evenings as we used to, they call by for a cup of tea or just for a good old gossip. One lovely friend brings the dinner party to our house ( we do do the washing up ) So please on this bank holiday take a minute to phone a friend and arrange to give them an hour of your time and make them know that care. Have a lovely day xxx

Hope you did not mind me posting this? But sending love to anyone who is in the same place as me and may not have the love and support I have.

Wendy xxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 26 May 14 - 04:59 AM

Nigel has a gift of putting into words everything we are wishing and thinking.

UP SPAW

sending love and sunny days

sailing on in calm waters

Wendy xxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 26 May 14 - 04:34 AM

beautifully said, Nigel

UP, spaw - hugs & kisses to you & Karen

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 25 May 14 - 05:56 AM

My Dear Spaw...that's one helluva post...I've got everything crossed I can cross without falling over! Your determination & fortitude in the face of such adversity marks you out as a Man of unfailing courage. I can but sit here in awe...thinking...wishing...hoping for every scrap of positive change. Drink deep from the Water of Life. Turn your face to the sun...feel the breeze as it ruffles your hair...hold Karen close & remember, there are many here who love you. Many here who would rush to your side & stand shoulder to shoulder...up, up UP on the barricades, fighting your battles with you.
             My Dear Friend, you are in my thoughts constantly, each & every day,
                                                   With Love,
                                                                  Nigel
                                                                  xxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 24 May 14 - 09:07 PM

Yes, UP, SPAW! Stay focused, and stay UP on our ship's highest yard!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 24 May 14 - 12:42 PM

"This is serious progress." UP SPAW!

BTW... I know how it is with Cat scratchin. That's been my problem too.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 24 May 14 - 09:46 AM

So...............Whatever you can cross, keep crossed.

This is the end of another chemo week and that has always been my lowest point. Made changes in daily meds and diet to better work the balance between the CHF, Intestinal thickening, COD, and the MDS. Today (and this week) I feel better than I have in a couple of years.....and even before the MDS. I look better, have a lot more energy, less O2 demand..went out and ran around yesterday PM and didn't even pack any along....Hard to tell what happens next.

We'll see what the numbers do over the next couple of weeks and know more then. Balancing this crap is a hell of a juggling act and about half of it I know as much about what to do as the Docs. We upped the Lasix but with the water being the best source for stool softeners and the thickening of the intestinal walls, the added Lasix took that water away as well. So I modified my diet. Then I modified the Lasix dosage (okayed by the my cardio guy) to some alternate day dosage levels and things are moving, so to speak.LOL Better yet, there seems to be no fluid at all around my heart....This is serious progress.

Then add that the current chemo has a strong fatigue factor and so is then accompanied by a steroid has obviously helped. I really wanna' see the numbers now....Keep 'em all crossed Folks.

I know, and you should too so there's no confusion, MDS is not curable but I going to buy all the time with Karen I can. While this past year has been great together, there has been far too many 10 day periods of chemo misery and many days spent low in numbers before I can get blood. Nobody my age beats this. Not Nora Ephrom, not Carl Sagan, and not me. But June the 8th is my birthday and my wish is for one more year and especially one where I feel like I do now. Next year I'll repeat that and see how long we can do it!

Sorry, I'm still pissed over the 'Cat but that's just because I do really miss what it once was. Time passes, things change, and as Tom Wolfe wrote, you can't go home again. I'll get over it.......

Hugs once again for the crew here and follow Nigel's good advice: Set the sails...splice the mainbrace...plot a course for the sun.


Spaw


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 24 May 14 - 05:41 AM

So glad you're back, Spaw. We need you here. I echo your sentiments: "But I can't leave this place alone for what it means and the reasons for this thread". It's been a frustrating time with the Cat's performance, but today, everything seems hunky-dory.
ChanteyLass, I couldn't agree more with your comments about Janie's post.
Janie, I reckon Social Work must be one of the most challenging callings. Impossible not to 'take some of your clients issues home', no matter how hard you try. The caring doesn't stop when you leave to go back to the office or finish for the day & despite your best efforts, 'the system' falls short...that's tough...really tough...on so many levels.
         Sending Love, Hugs & Kisses to you All,
                      Set the sails...splice the mainbrace...plot a course for the sun,
                                                                                                                  Nigel
                                                                                                                  xxxx


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