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Jane's Rainbow: for all needing support & comfort

GUEST,999 24 Mar 13 - 07:40 AM
Janie 24 Mar 13 - 07:38 AM
jacqui.c 24 Mar 13 - 07:30 AM
fat B****rd 24 Mar 13 - 07:13 AM
rumanci 24 Mar 13 - 07:02 AM
AllisonA(Animaterra) 24 Mar 13 - 06:56 AM
GUEST,David Nuttall , Wakefield 24 Mar 13 - 06:28 AM
maeve 24 Mar 13 - 06:09 AM
billybob 24 Mar 13 - 05:46 AM
GUEST,Suzi 24 Mar 13 - 04:58 AM
gnu 24 Mar 13 - 04:46 AM
Nigel Paterson 24 Mar 13 - 04:24 AM
ChanteyLass 24 Mar 13 - 02:30 AM
Sandra in Sydney 23 Mar 13 - 09:41 PM
billybob 23 Mar 13 - 08:21 PM
gnu 23 Mar 13 - 07:33 PM
Janie 23 Mar 13 - 06:18 PM
GUEST,pete from seven stars link 23 Mar 13 - 02:24 PM
frogprince 23 Mar 13 - 11:00 AM
maeve 23 Mar 13 - 09:36 AM
AllisonA(Animaterra) 23 Mar 13 - 07:23 AM
gnu 23 Mar 13 - 07:13 AM
billybob 23 Mar 13 - 06:52 AM
Wolfhound person 23 Mar 13 - 06:50 AM
Pete Jennings 23 Mar 13 - 06:44 AM
Nigel Paterson 23 Mar 13 - 06:35 AM
ChanteyLass 22 Mar 13 - 09:48 PM
rumanci 22 Mar 13 - 07:49 PM
Jeri 22 Mar 13 - 07:17 PM
gnu 22 Mar 13 - 07:08 PM
Janie 22 Mar 13 - 06:55 PM
billybob 22 Mar 13 - 06:48 PM
fat B****rd 22 Mar 13 - 04:41 PM
KT 22 Mar 13 - 12:58 PM
frogprince 22 Mar 13 - 12:52 PM
katlaughing 22 Mar 13 - 10:24 AM
Maryrrf 22 Mar 13 - 10:15 AM
Sandra in Sydney 22 Mar 13 - 08:56 AM
GUEST,999 22 Mar 13 - 07:54 AM
jacqui.c 22 Mar 13 - 07:54 AM
GUEST,pete from seven stars link 22 Mar 13 - 07:49 AM
AllisonA(Animaterra) 22 Mar 13 - 07:40 AM
billybob 22 Mar 13 - 04:37 AM
Nigel Paterson 22 Mar 13 - 04:00 AM
ChanteyLass 21 Mar 13 - 11:51 PM
GUEST,Frug 21 Mar 13 - 07:55 PM
Janie 21 Mar 13 - 07:39 PM
gnu 21 Mar 13 - 07:01 PM
GUEST,pete from seven stars link 21 Mar 13 - 01:48 PM
Pete Jennings 21 Mar 13 - 12:12 PM
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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 24 Mar 13 - 07:40 AM

I'm sorry, buddy.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 24 Mar 13 - 07:38 AM

I'm so sorry, Nigel & Ann. So inadequate...words...

For what comfort it may bring, still here.

Janie


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: jacqui.c
Date: 24 Mar 13 - 07:30 AM

No words - still here.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: fat B****rd
Date: 24 Mar 13 - 07:13 AM

Please allow me to add my best thoughts,condolences and kindest regards to those of all your other friends here.
Charles Stenger


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 24 Mar 13 - 07:02 AM

My heart bleeds for you Nigel and Ann and the whole family.
Sincerest condolences and strength to sustain you now.
Rest in peace dear beloved Jane
Love, hugs, all ways
Always
rum


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 24 Mar 13 - 06:56 AM

Oh, dear Nigel and Ann, deepest love and sympathy flowing your way. Still here, still singing, still gathered and hovering.

The evening of the day my beloved Byron died, our friends gathered with me and sang the night away. I felt wrapped in their love and support, as I hope you do now, in this dark time. You are deeply loved, and love never dies.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,David Nuttall , Wakefield
Date: 24 Mar 13 - 06:28 AM

Dear Nigel and Ann ,   I am so very,very sorry to hear of your immense sad loss . Jane , you , Ann and your family are uppermost in my thoughts . I trust you may come to find rest , peace and comfort in the times to come.

The support and genuine affection you have received ( and your reciprocal sincerity and warmth to others here ) are all testimony to the high regard in which you are all held....and I know it will continue to be so .

With sincere condolences.

David


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 24 Mar 13 - 06:09 AM

Goodbye, Jane. Well done the life and the battle. You are loved.

Sail away lady, sail away.

Nigel and Ann- Your deep sorrow is reflected and felt by many friends.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 24 Mar 13 - 05:46 AM

My Dear Nigel and Ann

Cannot find the words to say what is in my heart,God bless you both and may Jane rest in everlasting peace, free from pain but held in your love for ever.

Sending you our love
Wendy and Billy xxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,Suzi
Date: 24 Mar 13 - 04:58 AM

So very sorry Nigei, Ann and of course Janes loving family. may Jane rest in perfect peace. Xxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 24 Mar 13 - 04:46 AM

My sincerest condolences to all.

Rest in peace, Jane.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 24 Mar 13 - 04:24 AM

My Dearest Friends, our belovéd daughter, Jane, lost her battle with cancer last night (Saturday). She died peacefully & painlessly, surrounded by her Family.
       Come to us, be with us, for we are truly bereft.
                      With Love to You All,
                                                      Nigel & Ann.
                                                      xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 24 Mar 13 - 02:30 AM

Wonderful, Maeve.

I agree with others that it is good to know that Jane's pain is under control. It is also good to know that so many people are keeping vigil at Jane's bedside while we keep vigil from a distance.

And Nigel, we'll be here when you are ready. No pressure!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 23 Mar 13 - 09:41 PM

still sending love to all


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 23 Mar 13 - 08:21 PM

Still here
xxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 23 Mar 13 - 07:33 PM

Ditto Janie.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 23 Mar 13 - 06:18 PM

Lovely, maeve.

still here.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 23 Mar 13 - 02:24 PM

beautifully expressed and constructed verse ,maeve.
in all the sorrow it is at least good to know the pain control is fully effective.God bless   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 23 Mar 13 - 11:00 AM

And that, Maeve, is sublime, bless your heart.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 23 Mar 13 - 09:36 AM

Keeping Vigil

This long waiting now weighs heavy- sacred burden that will bless
As the loved ones watch her leaving, sailing off into the West.
Sleepless nights within this dreamtime shape the end of many dreams,
And the music of the living traces nighttime's salty streams.

It is love that makes this journey. It is love that finds the way.
And the arms of friends and family lift the light of this new day.
Gone the pain- and soon, the worry. Feet dance lightly on the sea,
While the songs of those in witness light the dark so we can see.

Maeve- for Jane, Nigel, Ann and all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 23 Mar 13 - 07:23 AM

Agreeing with gnu. As I and many have told you, now is not the time to be concerned with anything but your needs, including the need to spend as much time with Jane as you can. We're keeping watch and will be here whenever you need us.

I'll be at a workshop, singing all day, and I will offer my song up to you and Ann and Jane and Spaw and Kat and all who have been keeping this warm, nurturing, blanket-fortified ship afloat.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 23 Mar 13 - 07:13 AM

"groups of two or three"... "talk to her a lot"

She is blessed by such love and care.

Rest as you can, Nigel. That rest needn't be taxed even with posting any updates. We'll be here when you have time.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 23 Mar 13 - 06:52 AM

Dear Nigel,

as Pete says, do try to rest, not easy I know, we are all here, wrapping you in a warm blanket of love, Ann and Jane also. Take comfort that Jane is peaceful and in no pain and is enveloped in all the love your wonderful family are protecting her with.
God bless you all,

with all the love we can send

Wendy and Billy xxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Wolfhound person
Date: 23 Mar 13 - 06:50 AM

Still here.

Paws


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Pete Jennings
Date: 23 Mar 13 - 06:44 AM

Still with you, Nigel. Get some rest. Pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 23 Mar 13 - 06:35 AM

As always, wonderful, moving, tender posts. I have returned home for one day.
Jane lives on. She sleeps peacefully, pain-free at last (a doctor from the Palliative Care Team told me that it is much harder for them to get pain under control with younger patients). There are moments when she will open her eyes & seem to be aware that there are familiar faces around the bed. There has been an average of ten Family Members sitting vigil, taking turns in groups of two or three. No set times, each group stays for as long as they choose, but all the time mindful that we don't want Jane to be left alone. We talk to her a lot & Jane does make minute facial gestures that could indicate she is hearing us (based on the knowledge that the auditory senses are the last to go). Nevertheless, real or imagined, this is a comfort.
               Jane's 'Sleep of Sleeps' is now entering it's fifth day. As I sit typing, I expect the 'phone to ring any moment....but it doesn't.
               I want to respond personally to all your posts, not just yet, but as soon as I can manage. It would appear we still have some shallows & narrows to navigate first.
               With Continuing Love to You All & Special Love & thoughts for Spaw,
                                        Nigel & Ann.
                                        xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 22 Mar 13 - 09:48 PM

Nigel, are you and Ann getting any sleep? Keeping vigil must be harder and more stressful than I can imagine. I am here with all the others sending love.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 22 Mar 13 - 07:49 PM

I'm on the seat next to Janie keeping the boat straight
All ways
Always here
Love


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Jeri
Date: 22 Mar 13 - 07:17 PM

I am, as always, reading, and like many, wishing I could do more than wish.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 22 Mar 13 - 07:08 PM

Ditto pete.

Here.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 22 Mar 13 - 06:55 PM

here in the chorus and at the oars with the rest of this crew, rowing as softly and tenderly as I know to do.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 22 Mar 13 - 06:48 PM

Still here

Wendy xxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: fat B****rd
Date: 22 Mar 13 - 04:41 PM

Thinking of you all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: KT
Date: 22 Mar 13 - 12:58 PM

Here... in quiet companionship....


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 22 Mar 13 - 12:52 PM

Here with you all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 22 Mar 13 - 10:24 AM

what jacqui said.

love you all, esp.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Maryrrf
Date: 22 Mar 13 - 10:15 AM

Our prayers are with you and your family, Nigel.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 22 Mar 13 - 08:56 AM

love to all


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 22 Mar 13 - 07:54 AM

Not a day goes by . . .

Ditto what Pete said.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: jacqui.c
Date: 22 Mar 13 - 07:54 AM

I open this thread in a new tab each morning and it stays open until I close my machine down at night.

Nigel and Ann - here keeping vigil. Nothing more to say that seems relevant or necessary.

Spaw - good thoughts always there for the treatment to work.

I would just like to add how much I admire you all for the grace that you show in such dark times.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 22 Mar 13 - 07:49 AM

thanks for sparing the time and energy to post nigel.
we continue to remember you in our thoughts and prayers.    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: AllisonA(Animaterra)
Date: 22 Mar 13 - 07:40 AM

Oh, Nigel, what a weary, blessed time. Still holding you close.

And you, Spaw, the Intrepid, are also daily in my thoughts. Up you go!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 22 Mar 13 - 04:37 AM

Still here with you Nigel

All ways
Always

love and prayers

Wendy xxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 22 Mar 13 - 04:00 AM

Jane is still with us. The Family have been keeping vigil at her bedside.

       "Not long now, the doctors said,
       Our Darling Jane chose Life instead"

       Her tenacious grasp on Life is, at one & the same time, awe inspiring & heartbreaking.

       No time to write more....back to the hospital,
                                              With our Love to You All,
                                                            Nigel & Ann.
                                                            xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 21 Mar 13 - 11:51 PM

Spaw, is it possible for you to learn to inject yourself with Vidaza?

Nigel, I sometimes post "Just breathe" on threads like this, but I am finding myself holding my breath and have to remind myself to breathe. I hope you are breathing, too.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,Frug
Date: 21 Mar 13 - 07:55 PM

I got my mojo workin Spaw!

Frank


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 21 Mar 13 - 07:39 PM

Thanks for the update, UPSpaw. Been thinking about you a bunch and telling myself there is no use worrying. Hope you rest well and sleep dreamlessly while staying with Connie. Just glad you don't have to try to make that drive back and forth everyday or fork over the dough for a week at a motel and bad food. Maybe take a Jacqui shawl with you to wrap up in as a reminder, when the going is particularly rough, of how many are holding you close to our hearts for what comfort that brings?

Hoping for good results. Any idea of how long it will take to know how effective the Vidaza may be in staving off the progression? Love to Karen and the boys also.

Nigel, Ann, Jane and family, as with so many of the rest of the crew - Love, mostly wordless. May our collective love, care and concern feel palpable to you and perhaps contribute to defining a sacred space around you during this time.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 21 Mar 13 - 07:01 PM

Spaw...

All ways
Always

g


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 21 Mar 13 - 01:48 PM

have been in wordless prayer to the backdrop of "all hands on deck"on " the voyage of the rainbow".beatiful pieces.

hope things begin to look UP SPAW.    Peace and comfort to all    pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Pete Jennings
Date: 21 Mar 13 - 12:12 PM

Up Spaw!


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