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Jane's Rainbow: for all needing support & comfort

ChanteyLass 09 Dec 12 - 04:23 PM
Pete Jennings 09 Dec 12 - 12:57 PM
GUEST,999 09 Dec 12 - 12:11 PM
Nigel Paterson 09 Dec 12 - 11:30 AM
GUEST,Frug 09 Dec 12 - 09:23 AM
rumanci 09 Dec 12 - 09:07 AM
catspaw49 09 Dec 12 - 07:58 AM
billybob 09 Dec 12 - 07:06 AM
Nigel Paterson 09 Dec 12 - 05:16 AM
frogprince 08 Dec 12 - 03:21 PM
gnu 08 Dec 12 - 12:56 PM
katlaughing 08 Dec 12 - 11:13 AM
Janie 08 Dec 12 - 07:50 AM
catspaw49 08 Dec 12 - 06:55 AM
ChanteyLass 07 Dec 12 - 08:03 PM
billybob 07 Dec 12 - 02:48 PM
GUEST,pete from seven stars link 07 Dec 12 - 01:50 PM
maeve 07 Dec 12 - 07:32 AM
catspaw49 07 Dec 12 - 06:41 AM
Sandra in Sydney 07 Dec 12 - 05:28 AM
Nigel Paterson 07 Dec 12 - 04:33 AM
Jeri 06 Dec 12 - 07:13 PM
GUEST,999 06 Dec 12 - 06:16 PM
Sandra in Sydney 06 Dec 12 - 08:19 AM
Janie 06 Dec 12 - 05:34 AM
Nigel Paterson 06 Dec 12 - 04:37 AM
ChanteyLass 05 Dec 12 - 08:08 PM
gnu 05 Dec 12 - 06:00 PM
Nigel Paterson 05 Dec 12 - 04:11 AM
frogprince 04 Dec 12 - 08:17 AM
catspaw49 04 Dec 12 - 05:28 AM
Sandra in Sydney 04 Dec 12 - 05:09 AM
ChanteyLass 03 Dec 12 - 10:29 PM
Nigel Paterson 03 Dec 12 - 01:29 PM
GUEST,999 03 Dec 12 - 12:51 PM
rumanci 03 Dec 12 - 12:48 PM
GUEST,pete from seven stars link 03 Dec 12 - 12:25 PM
billybob 03 Dec 12 - 08:48 AM
Nigel Paterson 03 Dec 12 - 08:32 AM
katlaughing 02 Dec 12 - 11:56 AM
billybob 02 Dec 12 - 05:02 AM
catspaw49 01 Dec 12 - 09:55 AM
Sandra in Sydney 01 Dec 12 - 01:33 AM
ChanteyLass 30 Nov 12 - 11:02 PM
frogprince 30 Nov 12 - 09:48 PM
catspaw49 30 Nov 12 - 07:05 PM
maeve 30 Nov 12 - 06:54 PM
gnu 30 Nov 12 - 06:50 PM
catspaw49 30 Nov 12 - 12:17 PM
Nigel Paterson 25 Nov 12 - 04:54 AM
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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 09 Dec 12 - 04:23 PM

I wish I could hold Jane's hand, if that would provide any comfort.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Pete Jennings
Date: 09 Dec 12 - 12:57 PM

I'm still here, been here all along - more love and hope from Staffordshire. Pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 09 Dec 12 - 12:11 PM

That is wonderful, Nigel. You know, I think about you, Ann and Jane every single day, no kidding. It's strange. Sometimes I'll be playing guitar, washing dishes, trying to understand the logic of geese or staring into space, and boom, there y'all are.

I banged my foot into a chair leg a few days back. I kinda squinted my eyes, gritted my teeth and worked hard to avoid voicing a string of expletives mostly gathered from friends of my youth who had colourful vocabularies in English, French and Italian for just such occasions. Infinitely small potatoes in light of the concerns you carry and the courage you continue to show. Semper fidelis, buddy.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 09 Dec 12 - 11:30 AM

Love & Hope...clinging firmly to both. Interestingly, Jane managed to get up today & she has eaten solid food for the first time in four days. We are having to learn to recognise the positive & negative changes in her condition as 'micro events'. Tiny changes that bode ill or bode well. Additionally, we are all recognising that we are becoming emotionally exhausted. The proverbial 'Good Night's Sleep' is an effective panacea, but not always easy to achieve. So in between my last post & this, I can report positive movement, not forgetting the 'micro' caveat.
         A warm welcome to Frug. Your first post I think (Could be wrong). Hope it's the first of many.
         Thanks Bruce for the blissful email. You really have a way with words that go straight to the heart of the matter.
         To Kat, Rumanci, Spaw, Wendy: Love, Hugs & Kisses,
         With Love to You All,
                                        Nigel & Ann.
                                        xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,Frug
Date: 09 Dec 12 - 09:23 AM

Radiating positive vibes...


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 09 Dec 12 - 09:07 AM

Love and Hope - two of the best four letter words there are and Hugs.
Constantly.
rum


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 09 Dec 12 - 07:58 AM

I love the word Hope. It embodies nothing but positive thoughts for any outcome and assures us that those who send it will always be there sending more. Hope isn't cheap and actually is all encompassing. I always feel this group here may send prayers or thoughts or whatever their personal belief empowers them to do, but the one thing everyone on this thread sends in virtually every message is Hope.

So I end this one simply sending my best Hope for Nigel and Ann and Jane and the entire family. Its a good thing.....Hope.

All human wisdom is contained in these two words, 'Wait and Hope."
― Alexandre Dumas



Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 09 Dec 12 - 07:06 AM

Dear Nigel and Ann,

sitting here at the other end of Essex and wishing to be nearer,hopeing so much that Jane's medication is the cause of her present debilitation.You have given all of us so much love on this thread,certainly your thoughtful comments have helped me over the past six months.Please know that all those positive words of kindness are sent back to you and multiplied!

May you all find strength and know that you are in our daily prayers and that Jane will soon be feeling much stronger again.

Wishing you both all the blessings that you have been sending to us.
with love
Wendy xxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 09 Dec 12 - 05:16 AM

Ann & I spent most of yesterday with Jane. She stayed in bed. Seeing her lying there, in pain & listening to her voice that sounded frail & strangely child-like was a total anathema. She has devoted her adult life to her husband & her four, bright, energetic children, energy which she has repaid in spades...clubs, teams, parties, shopping, school trips...you know the drill. Jane has kept physically fit too, playing netball right up until two weeks before her initial diagnosis. The contrast between then & now is stark & frightening. We are pinning our hopes on her current distress being pharmacological rather than pathological. The latter we can barely begin to consider, let alone talk about.
       And You, our Dear Friends, are a great source of strength & comfort. The physical distances that separate us melted away months ago. Ann & I wish Life's Blessings for every single one of you.
       With Love from our Hearts to Yours,
                                                             Nigel & Ann.
                                                             xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 08 Dec 12 - 03:21 PM

Here with you.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 08 Dec 12 - 12:56 PM

Thoughts & prayers continue here as well.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 08 Dec 12 - 11:13 AM

Still here, nearer and nearer for love, compassion, and the sharing brought about by Jane's thread know no distance, no time, no barriers. You and your family have given us so much. May our sharing help you through this and whatever may come. I give thanks that Jane is healthy and whole. I give thanks for this, or something better, for the highest good of all concerned. So mote it be!

With much love,

kat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 08 Dec 12 - 07:50 AM

No words - just open heart.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 08 Dec 12 - 06:55 AM

Next post is 1000.......And today there is more energy flowing to more people and the grand companionship created............wow.......Hoping for the best now for Jane but also thinking how much Jane has created and given to all of us.........


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 07 Dec 12 - 08:03 PM

Aw, Nigel, like so many here, I'm still on it. Today I drove on a road I drive on occasionally and noticed the a side street was named Paterson St. with one t. I immediately thought of Jane, Ann, and you. I probably would have done so even if the street sign had said Patterson. My prayers continue.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 07 Dec 12 - 02:48 PM

SEnding love,
Wendy and Billy xxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 07 Dec 12 - 01:50 PM

thinking of you in your worries. God bless   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 07 Dec 12 - 07:32 AM

I'm following this thread closely, Nigel and Ann (and everyone else); walking alongside as well as one can from a geographical distance.

You have the strength to handle old and new challenges, and the support to ease some of the emotional burden.

With warm respect and concern,

Maeve


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 07 Dec 12 - 06:41 AM

We're here and you have all our best Nigel. I'm still offering that second "T" if you think it might help. Much Love to all.....

Spaw---aka, Pat Pat(t)erson.....Remove "t" if needed.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 07 Dec 12 - 05:28 AM

thinking of you

love from sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 07 Dec 12 - 04:33 AM

More than ever before, Ann & I need your Love, Thoughts, Prayers, Meditations; anything that might direct positive energy in Jane's direction. Suffice it to say, we are far more worried about her health today than we were three days ago.
          Please come closer; Please stay close,
                                        With Love to you All,
                                                                        Nigel & Ann.
                                                                        xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Jeri
Date: 06 Dec 12 - 07:13 PM

I'm still here too. Please assume I'm reading this and hoping for the best, although I usually don't have much to say.
I'm paying attention.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 06 Dec 12 - 06:16 PM

Nigel: you, Ann and Jane have the unmitigated love of everyone on this thread. Our hopes and hearts are with you all. Don't forget that, buddy.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 06 Dec 12 - 08:19 AM

love & hugs from me, too


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 06 Dec 12 - 05:34 AM

{{{{{{{hugs}}}}}}}}} to all.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 06 Dec 12 - 04:37 AM

Breathing & Hanging Tough.....Breathing & Hanging Tough......Breathing & Hanging Tough. I should write this Mantra on dozens of stickies & festoon our house.
          To borrow Gnu's words: "Glad to know every single one of you".
          With Love,
                         Nigel & Ann.
                         xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 05 Dec 12 - 08:08 PM

Remember to breathe.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 05 Dec 12 - 06:00 PM

I can only agree with all of you. Love to all. Glad to know every single one of you.

Nigel... hang tough.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 05 Dec 12 - 04:11 AM

You're so right, Dean, Ann & I are more than preoccupied with Jane's health. She has a prelim meeting tomorrow & then the biopsy on Friday. The tension in the air is palpable.
          Thank you for your kind words,
                                                          With Love,
                                                                         Nigel & Ann
                                                                         xxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 04 Dec 12 - 08:17 AM

Nigel, re that posted picture; you never need apologize to us for having your heart and mind taken up with ine of your very own. Just now "The sun is shining, For me and my gal" on St.Martin.
             Dean


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 04 Dec 12 - 05:28 AM

I agree with Nigel about our friend Bruce's link.........yeah......kinda' perfect.................I'll go with Bruce. This means I'll have to pick up the check I suppose?

Best thoughts to all........Wonderful thread..............


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 04 Dec 12 - 05:09 AM

sending more good wishes & love to you all

sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 03 Dec 12 - 10:29 PM

Redoubling my prayers for Jane.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 03 Dec 12 - 01:29 PM

Bruce, my Dear Friend...yes, the right words are hard to come by. The photo you've published says everything that's needed & not a single word has been spoken.
                         Much Love to You Both,
                                                            Nigel & Ann.
                                                            xxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 03 Dec 12 - 12:51 PM

Sometimes words are hard to come by, Nigel.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 03 Dec 12 - 12:48 PM

I'm holding fast and holding you all close for what that's worth - love, hugs, thoughts and prayers a constant backdrop even if the scenery changes and other acts begin.
rum xx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 03 Dec 12 - 12:25 PM

seems like uncertainties abound at present.best wishes to,and prayer for all concerned.   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 03 Dec 12 - 08:48 AM

Nigel and Ann,

so sorry to hear that Jane has more worries, will hold her in my prayers and hope this is just another hic cup and nothing serious.

Wish I lived a little closer, could have had a hot meal ready for you on your return and filled the larder!We will get together in the spring and hopefully have news of a good new year for everyone on this thread who has had health scares.

much love

Wendy xxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 03 Dec 12 - 08:32 AM

Apologies for my absence. Ann & I have been away looking after two of our Grandchildren whilst Jane was taking a short break, prior to a biopsy at the end of this week. A lump has appeared on her lower back & for the first time since her initial diagnosis, she needs pain killers. The biopsy is not the problem (non-invasive ultrasound), it's the outcome that is weighing heavily on all our minds.
       Dean & Spaw, I've neglected you both...that bothers me; I'm sorry. But enormous thanks to all the other Rainbow Crew members who have rallied round...you are irreplaceable.
       We've just returned home; the larder is bare; we need to get to the shops pronto! I'll post again soon,
                With Much Love & Healing Thoughts,
                                                                         Nigel & Ann.
                                                                         xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 02 Dec 12 - 11:56 AM

me, too, Frogprince...lots of love and light

luvyakat


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 02 Dec 12 - 05:02 AM

sending good healing thoughts Frogprince, those tests hurt,hope all goes well,
with love, Wendy xxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 01 Dec 12 - 09:55 AM

Keep us posted Froggy.

Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 01 Dec 12 - 01:33 AM

& mine


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 30 Nov 12 - 11:02 PM

I've already commented on Spaw's thread. Frogprince, my best wishes to your wife.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 30 Nov 12 - 09:48 PM

My wife also had a bone marrow biopsy just a few days ago. She has tended to anemia for a long time, and has been testing a bit more so. We'll see the doc for results a couple of daya after we get home.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 30 Nov 12 - 07:05 PM

Most of my post from above seems to be missing but its on the Catspaw thread as well so I'll transfer it back here. I put it in here first because this thread has been so important to many of us....

Regarding this thread and the anemia/breathing problem.................I had a bone marrow biopsy two weeks ago to see if there was a reason there for this anemia which is causing the breathing problem. As it turns out, there is!

I have some lazy-ass bone marrow which ain't keeping up with the needed supply. Mostly all the things we associate with Leukemia. At this point it ain't. The condition is called Myeloplastic Dysplasia Syndrome. The good news is that it is a pre-cancerous diagnosis and may or may not become Leukemia at some point in the future. The lesser news is that if it does it is a type that does not respond well to most of the known treatments.

We are starting weekly injections to stimulate the marrow which obviously needs a swift kick in the ass. We'll see how that goes first and move on from there. My hemoglobin and platelets are better than they were but still very low. I'm breathing better and doing better overall but I look forward to hopefully boost my red blood cell output with the shots. It will probably take awhile to see/feel the effect of those. Hopefully there will be some!!!

Biggest problem right now is the trip to Columbus (100 mile round trip) which will be weekly. My back has been bothering me since that 2 month stint in the hospital a couple of years back following the botched appendectomy. The trip gets uncomfortable for me plus it is another 100 miles on the car and the gas. So I need to get some more info then talk to the insurance folks about a closer location for the shots or home health care to do them.


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 30 Nov 12 - 06:54 PM

Hi, everyone. Like gnu, I check this thread daily. Sometimes I send a PM; you're all always in my thoughts.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 30 Nov 12 - 06:50 PM

Good news, Wendy!

I'm with Spaw. I check this thread every day it's on the board. Often, I don't post. Can't really explain why. I figure it's obvious. Just me.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 30 Nov 12 - 12:17 PM

Thought I better post since I said I would.....LOL......Plus the thread needed a "Refresh" as it has been a few days without news.

cLet's hear from some of the rest of you! I've been missing the updates. Of course there are times when there are none but I like the thread!!!


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 25 Nov 12 - 04:54 AM

So pleased to read your news, Wendy. As you say, onwards & upwards,
                      With Much Love to you both,
                                                                Nigel & Ann.
                                                                xxxxxxxxxx


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