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Jane's Rainbow: for all needing support & comfort

billybob 02 Dec 12 - 05:02 AM
catspaw49 01 Dec 12 - 09:55 AM
Sandra in Sydney 01 Dec 12 - 01:33 AM
ChanteyLass 30 Nov 12 - 11:02 PM
frogprince 30 Nov 12 - 09:48 PM
catspaw49 30 Nov 12 - 07:05 PM
maeve 30 Nov 12 - 06:54 PM
gnu 30 Nov 12 - 06:50 PM
catspaw49 30 Nov 12 - 12:17 PM
Nigel Paterson 25 Nov 12 - 04:54 AM
ChanteyLass 23 Nov 12 - 11:27 PM
GUEST,pete from seven stars link 23 Nov 12 - 09:15 AM
billybob 23 Nov 12 - 08:51 AM
olddude 22 Nov 12 - 10:00 PM
GUEST,999 22 Nov 12 - 06:24 PM
GUEST,pete from seven stars link 22 Nov 12 - 06:04 PM
Nigel Paterson 22 Nov 12 - 05:19 AM
billybob 21 Nov 12 - 02:42 AM
billybob 20 Nov 12 - 09:05 AM
frogprince 19 Nov 12 - 10:29 AM
GUEST,pete from seven stars link 19 Nov 12 - 08:44 AM
Nigel Paterson 19 Nov 12 - 07:23 AM
ChanteyLass 18 Nov 12 - 07:51 PM
gnu 18 Nov 12 - 07:50 PM
GUEST,pete from seven stars link 18 Nov 12 - 07:12 PM
Sandra in Sydney 17 Nov 12 - 01:58 AM
ChanteyLass 16 Nov 12 - 10:14 PM
GUEST,pete from seven stars link 16 Nov 12 - 03:58 PM
gnu 16 Nov 12 - 02:19 PM
billybob 16 Nov 12 - 06:40 AM
Nigel Paterson 16 Nov 12 - 05:09 AM
Janie 15 Nov 12 - 10:44 PM
gnu 15 Nov 12 - 05:41 PM
catspaw49 15 Nov 12 - 05:07 PM
GUEST,pete from seven stars link 15 Nov 12 - 04:52 PM
gnu 15 Nov 12 - 03:36 PM
billybob 15 Nov 12 - 03:46 AM
gnu 14 Nov 12 - 07:55 PM
catspaw49 14 Nov 12 - 07:29 PM
gnu 14 Nov 12 - 06:12 PM
frogprince 14 Nov 12 - 11:30 AM
Nigel Paterson 14 Nov 12 - 05:49 AM
rumanci 13 Nov 12 - 07:41 PM
ChanteyLass 13 Nov 12 - 07:19 PM
gnu 13 Nov 12 - 06:16 PM
GUEST,999 13 Nov 12 - 06:07 PM
GUEST,pete from seven stars link 13 Nov 12 - 04:39 PM
Donuel 13 Nov 12 - 11:48 AM
catspaw49 13 Nov 12 - 11:44 AM
katlaughing 13 Nov 12 - 11:16 AM
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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 02 Dec 12 - 05:02 AM

sending good healing thoughts Frogprince, those tests hurt,hope all goes well,
with love, Wendy xxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 01 Dec 12 - 09:55 AM

Keep us posted Froggy.

Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 01 Dec 12 - 01:33 AM

& mine


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 30 Nov 12 - 11:02 PM

I've already commented on Spaw's thread. Frogprince, my best wishes to your wife.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 30 Nov 12 - 09:48 PM

My wife also had a bone marrow biopsy just a few days ago. She has tended to anemia for a long time, and has been testing a bit more so. We'll see the doc for results a couple of daya after we get home.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 30 Nov 12 - 07:05 PM

Most of my post from above seems to be missing but its on the Catspaw thread as well so I'll transfer it back here. I put it in here first because this thread has been so important to many of us....

Regarding this thread and the anemia/breathing problem.................I had a bone marrow biopsy two weeks ago to see if there was a reason there for this anemia which is causing the breathing problem. As it turns out, there is!

I have some lazy-ass bone marrow which ain't keeping up with the needed supply. Mostly all the things we associate with Leukemia. At this point it ain't. The condition is called Myeloplastic Dysplasia Syndrome. The good news is that it is a pre-cancerous diagnosis and may or may not become Leukemia at some point in the future. The lesser news is that if it does it is a type that does not respond well to most of the known treatments.

We are starting weekly injections to stimulate the marrow which obviously needs a swift kick in the ass. We'll see how that goes first and move on from there. My hemoglobin and platelets are better than they were but still very low. I'm breathing better and doing better overall but I look forward to hopefully boost my red blood cell output with the shots. It will probably take awhile to see/feel the effect of those. Hopefully there will be some!!!

Biggest problem right now is the trip to Columbus (100 mile round trip) which will be weekly. My back has been bothering me since that 2 month stint in the hospital a couple of years back following the botched appendectomy. The trip gets uncomfortable for me plus it is another 100 miles on the car and the gas. So I need to get some more info then talk to the insurance folks about a closer location for the shots or home health care to do them.


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 30 Nov 12 - 06:54 PM

Hi, everyone. Like gnu, I check this thread daily. Sometimes I send a PM; you're all always in my thoughts.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 30 Nov 12 - 06:50 PM

Good news, Wendy!

I'm with Spaw. I check this thread every day it's on the board. Often, I don't post. Can't really explain why. I figure it's obvious. Just me.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 30 Nov 12 - 12:17 PM

Thought I better post since I said I would.....LOL......Plus the thread needed a "Refresh" as it has been a few days without news.

cLet's hear from some of the rest of you! I've been missing the updates. Of course there are times when there are none but I like the thread!!!


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 25 Nov 12 - 04:54 AM

So pleased to read your news, Wendy. As you say, onwards & upwards,
                      With Much Love to you both,
                                                                Nigel & Ann.
                                                                xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 23 Nov 12 - 11:27 PM

Glad to read it, Wendy!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 23 Nov 12 - 09:15 AM

amen!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 23 Nov 12 - 08:51 AM

We enjoyed Thanksgiving from afar in the UK by Skypeing Billys four sisters in New Jersey,wonderful to see all that food!!!!!

Billy's blood results were really good this week, onward and upward only one more chemotherapy to go on the 10th of December!So something to give thanks for!

sailing on with love to all the Rainbow Crew

Wendy xxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: olddude
Date: 22 Nov 12 - 10:00 PM

Love you all, I hope you all had a wonderful day ... I did, it was quiet but really nice


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 22 Nov 12 - 06:24 PM

I too hope my American friends have had a great Thanksgiving.

More importantly, I wish my friends (both those I know and those I don't) posting to this thread are able to feel the love and embraces so freely offered and lovingly given by those who understand what they are going through. In the parlance, hang tough. Understand, when you hurt for those you love, we hurt for you.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 22 Nov 12 - 06:04 PM

likewise,happy thanksgiving to american friends.my wife went to american friends for dinner and i have just consumed the contents of the doggy bag and am stuffed!.pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 22 Nov 12 - 05:19 AM

Wishing all our American Friends & our Daughter & Family in Charlotte NC, a very Happy, Peaceful & Joy-filled Thanksgiving,
                                    With Love,
                                                   Nigel & Ann.
                                                   xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 21 Nov 12 - 02:42 AM


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 20 Nov 12 - 09:05 AM

xxxxx and hugs
Wendy


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 19 Nov 12 - 10:29 AM

ditto what Pete said.
             Dean


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 19 Nov 12 - 08:44 AM

i hope you manage to grab some rest and have more peace in the waiting.pete


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 19 Nov 12 - 07:23 AM

Pete, very pleased to hear the good news about Tommy (One of our Grandsons is named Thomas, which frequently morphs into Tommy, especially if Ann is around!)
       There won't be much in the way of updates regarding Jane for a few days; maybe even a week or two. The new medication takes a while to establish itself & then her Doctors can begin scanning again.
       Whilst Ann & I retain our trust in Jane's Doctors to create an appropriate treatment plan for her, it is noticeable how weary & worn we are all getting. The effort required to 'keep on, keeping on' doesn't get any easier. The spectre of cancer is always there, hovering in the shadows.
       Much Love to All of You, our Very Dear & Special Friends,
                                       Nigel & Ann.
                                       xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 18 Nov 12 - 07:51 PM

Hooray for Tommy!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 18 Nov 12 - 07:50 PM

Good to hear.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 18 Nov 12 - 07:12 PM

tommy allowed home today on more antibiotics-doing well.thanks for the kind thoughts and prayers on his behalf.

bruce-i found you on you tube tonight.good stuff.even my wife said "thats quite nice" which is a very complimentary remark from becky!
blessings pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 17 Nov 12 - 01:58 AM

me, too

sandra


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 16 Nov 12 - 10:14 PM

What Pete said.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 16 Nov 12 - 03:58 PM

a mixed bag but sounding more hopeful than negative.with a prayer that the best,most effective treatment is identified and effective.blessings   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 16 Nov 12 - 02:19 PM

Ditto Wendy.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 16 Nov 12 - 06:40 AM

" Mixed bag" Optimism and hope sounds good Nigel.Hope that the Oncologist finds the rogue gene and this new medication is successful.
I admire Jane's positive way of living with the cancer so much, she is indeed inspirational to us all,

Billy is on the last day of cycle five today and is working as usual,he has a very positive attitude and fingers crossed the trial he is on has very good chamces of remission.I must say how lucky we are in the care of our loved ones, the staff of our hospitals should be praised for their dedication and sympathetic reassurance.
How far cancer treatments have come in the last 20 years!

At the begining of this year, when you started this thread, we were strangers, the year has been full of ups and downs, good news and set backs, now the year is drawing to a close and I have new friends to share worries and highs with, once again "Thank you" Nigel for bringing us all together.

Thinking of you all and keeping you in our prayers

with love

Wendy xxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 16 Nov 12 - 05:09 AM

Jane's PET scan results have turned out to be something of a mixed bag. The increase in 'activity' in her hip bones is confirmed, but the Doctors profess to be "Not overly concerned". Her current medication has been stopped & a new drug instigated immediately. The Oncologist is exploring the possibility of a 'rogue gene' being the initial cause of the cancer. If this turns out to be true, then Jane becomes an ideal patient for the new medication by virtue of her age, overall level of fitness & the fact that she has never smoked. The Doctors report an encouraging level of success with the new drug given the criteria I've just outlined. Jane remains very positive about her situation. She is determined that the cancer will not rule her life...she is living with it, not dying from it.
      We live in the hope that a 'rogue gene' will indeed be found. The results of that investigation won't be available just yet.
      There is a certain sense of optimism & hope within our Family that feels different from simply 'clutching at straws'.
       Holding all of You in our thoughts as You hold us,
       With Love,
                      Nigel & Ann.
                      xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 15 Nov 12 - 10:44 PM

Haven't looked in for a few weeks, caught up in what amount to petty concerns. The posts from the last three weeks give renewed perspective and lead me to better appreciation of just how petty many concerns in my own life that seem major from a small and short perspective really are.

To Nigel & Family, Wendy & Billybob, 'Spaw & Karen, and others I have surely missed naming in this hasty post: Even as I join my focused care and concern for you with that of others, I am also grateful for the gift of your sharing.

Janie


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 15 Nov 12 - 05:41 PM

I hope it continues, pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 15 Nov 12 - 05:07 PM

Very glad Pete.....good thoughts still coming!!!


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 15 Nov 12 - 04:52 PM

thanks all.tommy did have a bit of a dip earlier but was doing much better this evening. pete


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 15 Nov 12 - 03:36 PM

Wendy... for me? No need. Essentially, I just have a doc with small fingers... a blessing, actually. >;-)


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 15 Nov 12 - 03:46 AM

Thinking of you, Ann and Jane today Nigel. Praying the results are good XXXXXXX
Love and prayers for Spaw,Tommy and Gnu.

Will be thinking of you all all day as always

much love
Wendy xxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 14 Nov 12 - 07:55 PM

Spaw... my fingers are crossed for you. Hmmm... there won't be any discomfort... I have fingers like a baby.

Explanation : my doc is from La Belle Province and he often says things translated from Quebec French that are lost on anyone who don't parlez... even those that talk Acadian French (and Shaques - local... VERY local). Gee, I still don't think I explained it, but I did laugh before he shoved his


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 14 Nov 12 - 07:29 PM

That's an important point Nigel. I too am blessed with a best friend for a spouse. It is almost unimagineable that I would do anything of any sort without her. Even when either of us is at the doctor, the other is in the exam room most of the time. Our Docs don't mind and I don't think I'd go to any doctor who did.

Speaking of which, they did the bone marrow today and that wasn't too bad.....except for two periods of about 3 seconds each and one other of about 5 seconds that was a major "WHOA!!!" Serious discomfort but so short it really isn't a big deal unless you're some sort of wimp......like me. LOL.....Results in a few weeks.


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 14 Nov 12 - 06:12 PM

"I write in the singular, but Ann is always present, right by my side, so you can always substitute 'We' for 'I'. For all practical purposes, they are synonymous."

To know you are not alone and have the love and support of Ann "always present"... that, in itself, is comforting to me. You are a lucky man and she ain't doin too bad needer, eh buddy b'y?


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 14 Nov 12 - 11:30 AM

Hoping so much for those good clinical results for Jane and others here. At the same time holding forth for peace and strength for all, however the chips may in fact fall.
                         Dean


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 14 Nov 12 - 05:49 AM

I've said something similar before, but you are indeed a unique group of very special people. I often feel that the sum total of all our Life experiences would contain more than enough Wisdom & Knowledge to produce a 'Book of Life'. It would be a book that could answer all those questions that begin: "What can I do?...this has happened", & if not answer, then offer words of comfort & solace that renew one's hope.
       To everyone who has ever contributed to this thread, a heartfelt & sincere thank you; you have shone light into the darkest corners of my Life; brought me comfort when desperation seemed the only option; opened my mind to ways of thinking & being of which I was unaware, or maybe reluctant to adopt. The Thread remains an on-going experience that has become as much a part of my Life as breathing. It has become an ever-changing, ever evolving Constant. That sounds like a contradiction in terms, but I'm sure you understand what I mean.
       As I've also said before, I write in the singular, but Ann is always present, right by my side, so you can always substitute 'We' for 'I'. For all practical purposes, they are synonymous.
                   Much Love to You All,
                   Stay Close,
                                    Nigel & Ann.
                                    xxxxxxxxxx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 13 Nov 12 - 07:41 PM

and I'm never that far away either - keeping everybody close in thoughts if not always immediate deeds. Hugs to all.
rum xx


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 13 Nov 12 - 07:19 PM

Nigel, I'm still here full of hope for your daughter Jane. And for you, Spaw. Now for Pete's young friend Tommy. And Gnu, for your friends and relatives, too. I've got lots of hope for Mudcatters, their families, and their friends!


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 13 Nov 12 - 06:16 PM

Nigel... all... be as well as you can be. Just got two bad rounds of bad news tonight about friends and relatives. I guess all one can do is say what I said... be as well as you can be.

Thanks for this thread, Nigel. Means a lot to a lot of Mudcatters.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 13 Nov 12 - 06:07 PM

Pete, you got it, buddy. My email address is

irishancestry (at) gmail (dot) com

Write me if you can. I have an idea for Tommy.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 13 Nov 12 - 04:39 PM

pausing to name before God those unwell and awaiting test results.
we look after a special needs boy called tommy who has myotonic dystrophy and is currently in hospital with pnemonia.this is always a worry with his condition but he,s "turned the corner" now hopefully but anyone with a prayer to spare-thanks
God bless   pete.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Donuel
Date: 13 Nov 12 - 11:48 AM

Spaw I know partying with your vampire friends is a hoot but you should limit it to the holidays this year.


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 13 Nov 12 - 11:44 AM

Time tp ost on this check-in. Wanted all to know I do read this thread religiously and continue to be inspired by it. Also to say that none of you are ever far from my thoughts. I too await news from Nigel and expect only the best.

As for me, I have a bone marrow biopsy and scan tomorrow which may or may not tell us what's going on with my enemia. I'm feeling pretty fair although I opted to come home at only 8.6 and should have gone for two more pints....LOL......


Spaw


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Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 13 Nov 12 - 11:16 AM

Been sending you and yours my love and good wishes for healing for us all. I am doing better. Thanks, Nigel.

Pete, beautiful poem/message. Thank you for the reminder.

luvya'llkat


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