Jane's Rainbow: for all needing support & comfort

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 26 Oct 13 - 10:22 AM

Lucky Froggie!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 26 Oct 13 - 08:48 AM

The cardiologist had looked over results from a blood sample from last week, gave her and EKG and "once over", and says everything looks excellent. As for the meds, we'll stay with the statin. There was really no question but that the cognitive glitches are basically from circuit damage from the extended "down time" last year; I just wanted to sound him out as to whether the statin might be a little more detriment she doesn't need. He made a pretty good case that, all considered, she is getting the regime that's best for her.

Off in a few minutes to meet some other folks from our local art association at the Flint (Michigan) Institute of Art for an exhibit of Toulouse Lautrec.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 26 Oct 13 - 07:05 AM

Glad to hear that, Spaw.

22! Hope it can get sorted.

Froggy... anything yet?

Nigel... ya do what ya gotta do, and can do, eh?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 25 Oct 13 - 08:56 PM

22? Yikes! However, I think blood glucose is measured on a different scale in some countries. In the US, 22 would probably mean comatose!

I know what day it is by recalling which yoga class and instructor I had the day before!

Nigel, your family members must know how lucky they are that they can rely on you! But it isn't always good to know that you are needed!

Gnu, enjoy your green beans.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 25 Oct 13 - 03:42 PM

Blood sugar of 22? Yikes! More people than not would be laying there still, or with muscles jerking, glassy-eyed.
At our house, fingers get pricked a minimum of four times a day, sometimes a couple of more times if the sugar level is being contrary.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 25 Oct 13 - 03:10 PM

Ah Spaw,glad you feel great, maybe all those Ups are working?

Pete, I never know what day it is till I tune into Breakfast on BBC 1 in the morning!

Frogprince, hope the Dr sorts out the " not statins" x

Talking of Numbers,after a week of dry lips and mouth, Billy checked his blood sugar this morning ( he is diabetic as well as the other problems) and found it was 22! Quick visit to the nurse at the surgery and a new prescription. So now do I need to prick his finger every morning? Men !! But we love them!

Nigel, bet you love being a "grand" just like we do but..........

sailing on

much love

Wendy xxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 25 Oct 13 - 01:01 PM

Sounds like you could use at least a few hugs Nigel!   On the one hand I envy you both your "grand"ness and on the other hand I think, "Better you than me!"


Much Love to All......and I feel great!



Spaw

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 25 Oct 13 - 11:29 AM

I've fallen way behind, checking in & posting. Will try to do better when 'things' ease up. Best I can do at present is to say that 'things' are in a state of flux. Ann & I are ok, but there is much movement within our Family: jobs, schools, houses...too many loose ends for my liking, not helped by certain individuals shirking their responsibilities & expecting Nanny & Grandad to chase round after them & pick up the pieces.
          Nevertheless, you are all in my thoughts, each & every day,
                                                With Love,
                                                               Nigel & Ann (Grandad & Nanny!)
                                                               xxxxxxxxxxxxxxxxxxxxxxxxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 25 Oct 13 - 10:19 AM

Oh! Yeah! I remember. I was supposed to stick a note on the fridge to remind me to go for my flu shot today. Saved a piece of paper and some ink. Hey, ya gotta look at the bright side, eh?

Glad to hear things are looking UP for some. I hope they stay UP!

Today is boiled ham dinner as I snagged Georgia grown greenie beanies at the Coop yesterday for $1.99 a pound. God bless America! On accounta I loves me greenie beanies.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 25 Oct 13 - 09:49 AM

It's definitely Friday today!

I could have sworn it was Friday yesterday - it just felt like it for some reason. Does that happen to anyone else or am I going barmy?!!

Up Spaw again!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 24 Oct 13 - 09:33 PM

Spaw, here's hoping your numbers hold. Frogprince, I hope the doctor will replace the statin with something that works better!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 24 Oct 13 - 01:20 PM

just looked up steampunk festival.looks quirkily interesting.
UP SPAW .enjoy the breather, replenish strength.
wishing wisdom for the docs, frogprince.
blessings all    pete.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 24 Oct 13 - 11:57 AM

Up,Spaw; UP, one and all. Off in a few minutes to take my good gal to the cardiologist. Routine visit, and all recent word has been good. But I'm going to pull his chain a bit as to whether he can see fit to prescribe some alternative to the statin she's taking. The stuff has some linkage to memory and confusion issues, and since last year's episode, she has a tendency to do quite a few little odd things for little odd reasons, without further encouragement. She's still "herself", and not at all a heavy care burden, but she can't quite sort details reliably on any task that's at all complex, unless it's stuff that's established by long habit.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 24 Oct 13 - 10:42 AM

Thanks to all for all the UPS! Well, it is Thursday where I am and I too wonder where Pete is....LOL....And if it is not Friday and Pete thinks it is then I want some of whatever he's smoking!!!! LOL.....Just kiddin' you Pete!

And yesterday was Wednesday and the curtain began to lift through the day . Today I feel pretty fair and getting better all the time. This damn Vidaza throws me a curve at every round. Some new side effect shows up and sometimes some of the previous ones don't. My numbers for the Monday following treatment were pretty good and that seems to improve through each session. I was told by the Doc that after 12 sessions and if my numbers are holding I can get a little time off maybe. This was #8.

Sorry I haven't been posting but those weeks just drag me out. My best to all! Let's sail on!


Spaw

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 24 Oct 13 - 08:55 AM

Pete where are you, its Thursday here hoot!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 24 Oct 13 - 05:50 AM

Friday now so hopefully everyone's feeling good about the coming weekend.

Up Spaw!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 23 Oct 13 - 06:12 AM

October 23... was there something I was supposed to do today?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 22 Oct 13 - 10:00 PM

Wendy, Spaw, VTam, I have been thinking about you but found it difficult to post for a few days. I'm back here to tell you and others that while my posts stopped, my love and hugs did not. Wishing you comfort and ease.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 22 Oct 13 - 06:41 PM

lets hope that the cough condition falls in line too, soon ,tam.
never heard of steampunk.
blessings all    pete.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: VirginiaTam
Date: 22 Oct 13 - 03:39 PM

Gnu You are a good son. Your Mother is very fortunate to have you nearby.

Karen, thank you for looking after our old Spaw.

Spaw keep kickin ass and thank your nurses from the crew of the Rainbow.

Hugging Wendy and fat B****rd.

My mood has improved a bit. Lately, the right foot has let me put some of my old shoes and boots on. I wore boots at steampunk event on Saturday. I was happy.

Can't shake this blinkin 3 month long cough, though.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 22 Oct 13 - 01:54 PM

Just finished shovelling Mum's driveway next to the house. Her backdoor is east of the chimney and that side of the house faces S30W. Fall winds are N to W. Leaves fall here in fall. The fall winds blow them by the chimney and they fall from the east face of the chimey to the east side of her door. This upsets her as she can't easily brush them away with her cane before she enters. Now, most people would simply accept falling fall leaves and wind but, well, I gotta shovel leaves. So I do. I am a good son. I gotta be. She's small but she's got a cane... with an ice cleat attachment. >;-)

Enjoy your leaves and wind.

UP SPAW... but stay downwind eh?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 22 Oct 13 - 06:36 AM

well, it's heading towards Wednesday here - so spaw is heading towards feeling a bit better (tho my Wednesday & his Wednesday are hours apart)

so sending lots of love & hugs to spaw who definitely still needs them & to Karen who probably wouldn't say no to a bit more love & a hug or 2.

sandra

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 22 Oct 13 - 05:25 AM

Good morning, crew. This will bring our ship back out of the fog into the sunshine.

Up Spaw! Courage, Wendy, Tamara, and the rest of us! One step at a time, Charlie.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 20 Oct 13 - 11:50 AM

Hugs to all, but especially Wendy and Spaw this first chilly morning of the season where I live.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 20 Oct 13 - 11:08 AM

and UP again!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 20 Oct 13 - 07:45 AM

Hope you at least closed yer eyes, Spaw. >;-) I only ever personally knew two people who went thru heavy duty chemo and only one of them described for me what you have decribed. I wish a better way to deal with your ills was already found. As for your "sharing", I wish there was a better way to lighten your load but I doubt one will ever be found so you share as much as you can or want to because I know everyone here will shoulder as much as they can for you.

Karen... yer a saint.

UP SPAW!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST
Date: 19 Oct 13 - 09:11 PM

Thanks for the call Spaw, all my love to you and Karen. You know if you need anything you give me a shout

love to all

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 19 Oct 13 - 07:47 PM

Spaw,

your hug and Karen's made me feel much better!

Sending so much love to you, Sunday here now, so UP SPAW!!Huge hug from me xxx

much love to all the Rainbow crew and thank you

xxxxxxx

Wendy

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 19 Oct 13 - 05:29 PM

I hope it don't pan out as bad and as long as you anticipate, spaw , and blessings on you for thinking about others when you have it so rough yourself.
no easy decisions .wendy. billy , I guess will have to decide, but he will know that you support whatever decision is made. blessings all   pete.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 19 Oct 13 - 12:56 PM

How about a big Spaw hug Wendy? Think that'll help? Take one anyway! Karen said she'll send hers too and she gives good hug! Take it from me, I know!

Just finished Round 8 of chemo and there is some possibility that that in a few months, after Round 12, I may get a break if the numbers are still good. Now for just a brief moment, let me whine. Here we go. WHINE ALERT:

I feel like I've been shit at and hit. The one thing I do know about this damned drug is that it has no real pattern save for one. Last time for instance I began feeling rough on Tuesday but this time I still felt great until Thursday AM when the walls all caved in. On Friday it was the absolute pits and also sadly our anniversary. But we talked and hugged and Karen made a good meal that I could barely eat. I am so blessed to have her...............Now today the bottom has fallen out and THAT is the only thing I do know about the Vidaza. By Friday I'll be bad and Saturday worse. Sunday will be pretty blah with marginal but much needed improvement until sometime Wednesday when the curtain lifts as though it was never there. Damn but I friggin' hate this! I really hate every bit of it except my Oncology infusion nurses who are really wonderful.   And my wonderful best friend that married me 27 years ago. WHINE ENDS

Maeve, I saw that post of Charlie's the other day and also a post he'd made on another good thoughts thread running where he said he'd recently been the beneficiary and had to start giving back. Hope we see him back here soon. Tam.....Get better huh? (;<))


Spaw

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 19 Oct 13 - 10:45 AM

The old adage may be "It never rains but what it pours", but sometimes it seems like it never rains but what it floods.. Glad that you've at least been able to sneak in some good happy moments, Wendy.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 19 Oct 13 - 09:15 AM

love & hugs winging your way, Wendy

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 19 Oct 13 - 08:35 AM

Good news and sad news, Wendy. Hope it gets better for youse... and all herein.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 18 Oct 13 - 07:16 PM

Last night Billy took me out for dinner to our local Italian restaurant. My brother came to see mother so we went out for a " normal" evening, very precious for us. I even admitted to BB (Billy) that I have been feeling very down recently, watching mum deteriorate in front of my eyes, it is so hard sometimes to feel (and act) cheerful when you are grieving for someone when they are there , but so distant. Dementia... I hate you!!!

We had a really lovely evening ,talking about the holiday we hope to have in January in Cape Verde, and laughing about stories of holidays in Greece when something silly and unexpected happened, after 26 years of marriage we have had lots of those!! So came home feeling so much better and full of plans.

Tonight had an email from BB's sister in new Jersey , her husband had an operation this week for melanoma , and I quote " The surgeon said it was textbook surgery but in the middle his heart stopped, so they could not proceed with the planned operation, he was in intensive care for two days once he was stable, they don't know why his heart stopped"

BB has four sisters in NJ but he is the only brother. Just feel I should get a ticket and send him home for a visit, his sisters love him so much and miss him every day!!

After his chemotherapy last year and looking after my mother with me I cannot even to begin to tell you how wonderful Billy is and I know he will say he wants us to have a holiday because he knows I could really do with a break, but I think he should go home to support his sister. I would love to go too , I too love his sisters, they are lovely, but it is impossible for me to just drop everything, my business and more importantly my mum.

so give me some support crew, if ever I needed you, now is the time!

Love to you all,( Up Spaw)

Wendy xxxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 18 Oct 13 - 03:47 AM

more hugs for Tam & all who need them.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 17 Oct 13 - 09:55 PM

Tam, hugs to you.

Maeve, thank you for the heads up about Charlie. I haven't got to that thread yet tonight. I start at the bottom and work my way up!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 17 Oct 13 - 09:11 PM

Please keep Charlie and his and Ann's children in mind tomorrow (Friday):
****************************
"Subject: RE: Obit: My Wife Ann
From: fat B****rd - PM
Date: 17 Oct 13 - 03:02 PM

It's Ann's funeral tomorrow, Friday October 18th, at the Dunfermline Crematorium. Her 4 sons will be carrying her in and her two daughters walking behind with flowers. It will be a service lead by a Celebrant and will consist of a couple of bible readings, a poem and, just maybe, those who can joining in with Rosemary Clooney in "You Are My Sunshine". In her own words we will "shuffle out" to "Always Look On The Bright Side Of LIfe"!
Afterwards off to a local hotel for "refreshments" and sausage rolls etc.
Think of us as you always have and accept my thanks once more for the good and helpful words.
Charlie "

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: VirginiaTam
Date: 17 Oct 13 - 01:13 PM

Hello me mates. Sending all love and good feelings I can muster.

Sniff... not much to share as I've been wallowing in pit of homesick self pity that feels something akin to empty nest syndrome.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 16 Oct 13 - 10:04 PM

Nigel, the Argia holds only 39 passengers plus 3 crew members, so we would not have fit, and we are all members of the crew here.

Gnu, you are making me hungry!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 16 Oct 13 - 03:27 PM

This is another way to cheer up someone in the Mudcat clan: Mudcat Secret Santa- Xmas 2013 - Join Us!

Creativity, perseverance, and an open heart are all that's needed...plus postage.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: GUEST,pete from seven stars link
Date: 16 Oct 13 - 02:52 PM

lots of good news heartening stories.   blessings all   pete.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 16 Oct 13 - 12:59 PM

I have often thought I would like to travel the Eastern Seaboard of the US in search of the AMAZING seafood meal deals friends and relatives have spoken about. Of course, if I really wanted to chow down on the best there is, well... here are the directions... take the ferry to Port-aux-Basques, NF, turn right, follow the sign to Margaree BUT ya gotta call first (used ta hafta, anyway) ta find out if the restaurant is open today and at what times. Me zon, me zon, me zon! I mind back in about 95 when a decent seafood platter would run $20 here. In Margaree, $8 and buddy, she was some shockin good! Lots of er in a Captain's Platter... salmon or halibut, cod or haddock, tongues n cheeks, scallops, shrimp, fish cakes. And fresh? Keep yer peepers peeled ona way downa winding road and ya'll see the holding ponds. They pump seawater inta the ponds where they keep the catches until shipping and from which the restaurant gets fresh fish daily... when they are open. Never better an I have eaten seafood from Boston to Nain, Labrador. (Footnote... seals come from the sea but they are not seafood and they taste like ****!)

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 16 Oct 13 - 10:45 AM

Pete, I can say without fear of contradiction, the seafood in Raleigh is, indeed, fantastic. As always, I speak from personal experience!
                                                                Musically,
                                                                               Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete Jennings
Date: 16 Oct 13 - 06:58 AM

Just checking in and sending good thoughts to all. Hey, Nigel, I used to have a colleague who lived in Raleigh NC (a hundred and something miles from the East coast) and he reckoned the seafood was fantastic.

Up Spaw!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 16 Oct 13 - 05:54 AM

So many good & positive posts to read. As we say in that most British of ways: "It warms the cockles of my heart!"
       Ann & I will, finally be in Charlotte NC later in the year...dates firmed up, flights booked. As I said before, if you are within striking distance & you'd like to meet, please PM me.

Wendy, as Gnu said: "Laughter is the best medicine"

Pat, so pleased to read that you are feeling so much better. The timing couldn't be better, what with your Anniversary & all. Many congratulations to the both of you.

ChanteyLass, your sea trip sounds magical. Would there have been room for the whole Crew aboard? That would've been really something!
                                                                      Much Love & Many Hugs,
                                                                                                            Nigel & Ann
                                                                                                            xxxxxxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 16 Oct 13 - 05:42 AM

See Me
Feel Me
Touch Me
Tea Me

Well, that's the way I sing it this time of the morn. I hope your tea is hot.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Amergin
Date: 16 Oct 13 - 12:36 AM

Good to heat that, Pat, ya cranky old man! ;)

Glad to hear you're doing well at the moment...and congratulations on the anniversary!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 15 Oct 13 - 09:50 PM

Keep it UP, SPAW!

Wendy, good to read your post. I'm glad you were able to get out for an enjoyable evening with your family.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 15 Oct 13 - 08:27 PM

Congrats in every way, Spaw. Yer an inspiration. Thanks.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: catspaw49
Date: 15 Oct 13 - 01:09 PM

Today my best thoughts go out to Linn and Tom (Bat Goddess & Curmudgeon) and hope they find some peace in the current situation. Time is finite for all of us but although we pay lip service to that, we sometimes can't really see it til it is driven home. All my best to them.

As for me, I feel as good as I have felt in better than over a year! I'm on Day 2 of my eighth round of Vidaza and this time the side effects are once again different but somewhat the same. Best thing is the Vidaza appears to be working with better numbers as we go. A few days after the chemo week is over the worst of it clears and I start feeling better again. The worst days are Friday thru Sunday. This week we get to celebrate our anniversary Friday and I'm sure we'll just have a barrel of fun!!! Oh well......we celebrate something every day as I'm blessed with a spouse who is my best friend. Damndest thing is that she says so too........go figure.

All my best crew as we sail on......


Spaw