Jane's Rainbow: for all needing support & comfort

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 04 Nov 16 - 07:36 PM

In real time, Dean got his medicine at long last.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 04 Nov 16 - 04:48 PM

What could we say, indeed.

Those of us who have first-hand experience with both trauma and grief, will remember occasions when trauma blended with grief, and the blend was so intense as to make the whole more than the sum of its parts. It really defies description, the feeling is a devastation.

Our simply being present for the bereaved survivor, is, already, something that will make itself felt. Our presence cannot change what brought the person to this pass. And projecting a future outcome does only so much, and no more. Being present with the grieving survivor, respecting the mourning that must be experienced now -- this we can do, and our actions of being and doing must speak for us.

I don't have anything novel and original to say, but I mean sincerely what I say. Hope our Mudcat member/colleague knows that he is not alone at this time.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 03 Nov 16 - 08:08 AM

sending good wishes to all

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 02 Nov 16 - 08:54 PM

Janie, of course I'll add my love and send positive energy to the Mudcatter in such sad circumstances.
Rap, good going for you and Pat!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 02 Nov 16 - 07:50 PM

Y'all 2 are tough as nails, RAp. Glad Pat's recovery is going well. Safe journeys to you both.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 02 Nov 16 - 05:29 PM

What a terrible shock for this member. Take a long time to come to terms with . What could we say ......

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 02 Nov 16 - 03:28 PM

What a tragedy, Janie. Thanks for letting us know. Circle the wagons, folks.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 01 Nov 16 - 11:06 PM

He (and I can guess who) is in my thoughts and aura of positive energy.

The party went well, the honoree was indeed surprised. His grandson, the officer, was there as was his 89 year old brother in law from DC and his wife. Carlos said that there WILL be a 90th birthday party in Maryland next year to honor is BIL and he will be there.

One of the things on display was the presentation case (about 20 x 20 inches) of Carlos' bronze star medal (with V for valor) and the documents that go with it. "How," said someone, "did they get that here without you noticing it was missing?" "They stole it," replied Carlos. Actually, they got him out of the house and on the way to the party and then someone went back for it.

The day after tomorrow I fly to Illinois and will be gone most of November. Yes, Pat is coming out about eight days later.

Oh, yes. Driving to and from Reno. Pat insisted on "doing her share" both ways. So much for eye surgery. She has a post-op appointment tomorrow.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 01 Nov 16 - 10:10 PM

Good thoughts tonight, please, for a good friend and mudcatter who hasn't posted in a long time. He found his lovely and troubled daughter dead in her room tonight. Lost his wife just a few years ago to a long term illness. Without his permission, I won't name him, but I know this crew doesn't need names to hold people close on tempest tossed seas.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ranger1
Date: 29 Oct 16 - 10:42 AM

Keberoxu, Sev's friend Phil passed away a year ago. We remembered him at this year's Getaway - all our ID badges had Phil's photo on them and songs were sung in his memory. Lonesome EJ wrote a song after Phil passed called Any Friend of Hank's in Phil's honor and he played it at the Saturday night concert.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 28 Oct 16 - 02:41 PM

A thought for Severn, by the way, who disclosed on another thread the recent passing of someone with whom he made music for many years; it must be like losing a brother. Sorry for your loss, Severn.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 26 Oct 16 - 10:36 PM

Rap, minutes ago public television showed a promo for American Experience. On Nov. 1 the episode will be about the Battle of Chosin! That's the date for it in Boston, anyway. Check your local listings because Providence usually airs programs after they've been viewed in Boston. In my part of RI, I can watch broadcasts from both cities. If I hadn't read your recent post, I wouldn't have known of your family connection to that battle.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 26 Oct 16 - 08:17 PM

Hey Rap, reassured to know Pat doesn't have a 3rd eye awaiting cataract surgery:>)

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 26 Oct 16 - 07:08 PM

Fair winds and following seas, Mr. and Mrs. Rapparee.

Hope Keith and his household are hanging in there.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 26 Oct 16 - 03:14 PM

Great news about your wife, Rap. I'm glad you are the half of we doing the driving, though! Give my love and respect to your uncle. I'm glad he made it home, but it must have been awful.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 26 Oct 16 - 09:25 AM

Glad to hear the catawrecks are all done.

Buy the old fellah one for me and say "Thank you, sir."

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 25 Oct 16 - 09:11 PM

Today my wife had the cataract removed from her right eye and that was the last one. Tomorrow, immediately after the post op appointment, we drive to Reno for the 90th birthday party for her uncle.

Did I say "we"? Well, after 43 years of marriage "I" and "we" mean pretty much the same thing.

(Her uncle joined the US Coast Guard at 14(!) and then the Marines. He made the long walk back from the Chosin Reservoir.)

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 25 Oct 16 - 06:36 PM

This thread is still a wonderful place for encouragement and comfort. That said, should you need some nonsense and belly laughs, check out "olddude for president" BS thread, where Rapparee and Severn are out-doing themselves (and giving olddude a run for his money).

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 23 Oct 16 - 03:54 PM

refresh

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 20 Oct 16 - 09:14 PM

Nigel, that was supposed to be MGA for Music Guardian Angel! Auto-correct must have changed it! I use MA often as the abbreviation for my neighboring state of Massachusetts, so I may have "taught" that to auto-correct. I'm glad you got a chuckle out of it, anyway.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 20 Oct 16 - 09:55 AM

Neat, ChanteyLass, very neat...love it...thanks...put a smile on my face (-: (-:

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 19 Oct 16 - 08:54 PM

I'm happy to know that your MA is caring for you, Nigel!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 19 Oct 16 - 12:13 PM

I can confirm that Guardian Angels exist. In my case, specifically a Music Guardian Angel. I have received a copy of an album I really wanted. It arrived unsolicited & completely unexpectedly.
               Thank you, Guardian Angel, my head is now reverberating with new songs.
                                                             With Love,
                                                                               Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 17 Oct 16 - 05:44 AM

Thank you very much, CL. Unfortunately the Tidido link is also not UK friendly, but I found a performance of 'Toward' on YouTube...not by Gordon Bok, but an iffy cover. The lyrics link DID work...HOORAH! & compensated for the lack-lustre cover. It is a beautiful song, perfectly judged by Janie. I posted above about "...regional rights", that should be "...territorial rights", something about which I have personal experience. Only about one third of my published guitar arrangements appear on my website, the remainder languish in a 'territorial rights black hole'. Very frustrating, but something about which I can do nothing.
                                                                   Musically,
                                                                                  Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 16 Oct 16 - 09:45 PM

Double good news for Ann!

Donuel, I'm sorry that your son has been treated in such a way.

Nigel, let me know if this link let's you hear Turning toward the Morning.

http://tidido.com/a35184374020351/al55f14689a5f3907573837406/t55f1468ba5f39075738374ef

If not, you can still read the lyrics here.
@displaysong.cfm?SongID=7448

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 16 Oct 16 - 12:07 PM

Dean, pound to a penny, copyright & particularly regional rights are the reason for the song's omission. I just knew it had to be 'right song, right time'...Janie's choices are always impeccable.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: frogprince
Date: 16 Oct 16 - 11:45 AM

Awww, who would block access to that song; I would make a substantial bet that none of the trio were behind it. That song is so beautiful musically that it would be hard to resist even if the lyric were an ode to Donald Trump instead of the actual gentle words of encouragement. I've been hooked on it for years.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 16 Oct 16 - 04:56 AM

Pete, thank you very much. A "...weight off" to be sure...& I omitted to say that Ann was recently discharged from her TIA clinic too, so a double weight off.

Janie, unfortunately 'Turning Toward the Morning' is unavailable on UK YouTube. I'm betting we're missing out on something special.

Mysha, thank you for underscoring gnu's post. You signed off with: BFN, which took me straight back to my childhood when TTFN (ta- ta for now) was in common usage.
                                        With love to You All,
                                                                         Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 16 Oct 16 - 04:34 AM

Dear Donuel, state schools in the UK are not without their faults & inconsistencies, but based on my own experience, a 180 page folder of 'concerns' would have almost certainly been included in an application for 'Statementing'...a process, once triggered, that provides extra, specialised help & support for the student in question. There are cost implications, so Statementing is a rigorous & often protracted process, but once in place, it can transform that student's life. I was profoundly angered to read that Dean was punished in such an insidious way, rather than receiving the help & understanding he needed. To use your words, dignity & respect were conspicuous by their absence.
             Frustrated by my inability to help in any concrete way, I nevertheless offer my experience & training unreservedly,
                                                         Nigel.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 15 Oct 16 - 06:17 PM

That's good to hear Nigel . I remember hen you were expressing your worries about ann . A weight off you both hooray !                Blessings all.       Pete.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 15 Oct 16 - 02:42 PM

Just seemed a good fit to post.

Turning Toward the Morning

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 15 Oct 16 - 11:54 AM

Talked to the doctor and there should not so much as a bump in the road. I probably would have preferred a conspiracy theory to rail against but life is full of random events and authority often has an unfriendly minority.

The school has a 180 page folder in small font describing Dean's unwillingness to participate. Not in the folder is the passive aggressive punishment he received for not participating. If the same care and effort had been given dean in the form of a friend who could treat him with respect and dignity we would be in a different place now.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 14 Oct 16 - 07:01 PM

how lovely to be kicked out!

joke for Mysha - what sits on the bottom of the ocean & shakes?
















a nervous wreck! (my only joke, remembered from the childrens pages of a paper decades ago & trotted out on occasion!)

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Mysha
Date: 14 Oct 16 - 06:32 PM

What GNU said.

BFN

Mysha
Or at least, parts of Mysha held together by daily routine, support from others, and the occasional joke.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 14 Oct 16 - 05:21 PM

"We don't need to see you again" OH HAPPY DAY!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 14 Oct 16 - 06:13 AM

Still here, but recently on Jane's Rainbow, I've been taking the PM route.
Wendy, very pleased to read about BB's progress. Well done everyone at Colchester!
I echo other folk's comments about Donuel & Dean's situation...some of us should get our heads together & write a guide as to how to deal with unhelpful medical professionals (& vice principals who make derogatory comments).
We have some good news to share. Ann has finally been discharged from the breast cancer clinic...a ten year haul, but to hear the words: "We don't need to see you again", ten years seemed to evaporate in a trice.
                                                 Much love to you all,
                                                                                  Nigel & Ann xxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 13 Oct 16 - 08:30 PM

Oh, Donuel, I'm sorry Dean and your family are facing this obstacle in his treatment, and I wish there was something I could do about it.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 13 Oct 16 - 04:50 AM

good luck, Donuel & best wishes to Dean

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 12 Oct 16 - 10:01 PM

To my knowledge a compounding Pharmacy can be entirely closed for failing an inspection but to have only one specific medicine banned while remaining open is very odd.(?) I should mention a Vice principal also made a derogatory comment regarding Dean's treatment.
My wife was oblivious to these machinations so coincidence or my fertile imagination may still be in play.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 12 Oct 16 - 09:23 PM

After the second treatment we are once again in limbo and a low information zone. Just today we learned the compounding pharmacy stopped filling prescriptions the very day we called to have it filled. I suspect the nurse Cratchet type attendance officer who called social services, SS then called and insisted she also be present at a hastily called school meeting both had something to do with the cessation of treatment. that is only an unsubstantiated guess. This is the same woman who openly criticized us for not seeking more aggressive therapy. Now she believes Dean's treatment is akin to chemical shock therapy. But that is the problem with suspicion. Adversaries by intention or accident do not tell you what they are thinking and I am more sensitive to behavioral dynamics than my wife who relies only upon what is actually said. So Dean has opened up quite a bit more but now is in limbo until we hear what our alternatives are from the doctor.

My opinion of busy body do gooders with power in my past probably colors my suspicions but I will keep an open mind and press on.
The best cure for worry is always more information.

Push back from the powers that be to new ideas, has always been my bailiwick. Dean will persevere I am sure.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 12 Oct 16 - 05:07 PM

Hooray for Billy. After the 5th year is complete, will he be checked less frequently?

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 12 Oct 16 - 01:01 PM

Great news, Wendy!

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 12 Oct 16 - 10:14 AM

ditto to all the above from me too,sending love and healing thoughts.

Good news here, Billy saw his consultant for his 4 monthly appointment today, always a "take a big breath moment" before we go in! The good news , all is well, see you in 4 months. He completed his chemo 4 years ago in December. He is still on a trial , which monitors him on an ongoing schedule, so well done and thank you Colchester Hospital, praise from us both.

with love
Wendy xxxxxxx

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: maeve
Date: 11 Oct 16 - 03:44 PM

Keith's (and Mary's) thread is here:
Chemotherapy

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 11 Oct 16 - 11:36 AM

Yes wishing them well through this hard time.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 10 Oct 16 - 10:37 PM

Holding Keith and his partner in my thoughts.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 10 Oct 16 - 09:35 PM

What Sandra said.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 10 Oct 16 - 04:21 AM

best wishes to both Keith & Mrs A

sandra

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 09 Oct 16 - 07:00 PM

Only a few days ago, Mudcatter Keith A from Hertford refreshed his own "chemotherapy" thread, having finally come up for air, so to speak, after his September treatments. His thread is inactive now, however this thread is certainly inclusive enough for all of us thinking of him.

And he had good news, that his better half's treatment had resulted in a cancer-free situation today. Keith's is rather worse, but his treatment continues and we can continue keeping him in our thoughts and prayers.

Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 04 Oct 16 - 05:18 PM

Lovely happy photo ranger 1