Update on Winters Wages

Subject: Update on Winters Wages
From: Peter Kasin
Date: 25 Feb 01 - 04:47 AM

Greetings, Mudcatters. Winters Wages (Lloyd) asked me to update you on his lymphoma and treatments. Things are looking a little better lately, and he is feeling more hopeful.The good news is that the node under his arm is receding. He is getting chemo and radiation treatments. His hair hasn't fallen out yet, but his doctor expects that it will after another round of treatments.

His daughter is a vet tech, and her boss is his unofficial medical advisor. He calls Lloyd every other day to advise him on what to do, and on what to tell his doctor to do. It's a good thing he is. He told Lloyd "Why aren't they doing a bone marrow stick?" Lloyd passed that on to his doctor, and his doctor said "Oh, yeah, we need to do that." He was having severe stomach pain. The vet explained that "Chemo works where the cells divide the most. In your case, the lining of the stomach. Take Pepcid AC or Tagamet." Lloyd did, and after 40 minutes the pain was gone. Where was his doctor on that one? Lloyd urges everyone who's in an HMO or some other large medical establishment to get involved and "get in your doctor's face" with questions. It's easy for you to become a "manila envelope with stats." So, that's Lloyd's message to you. He's not anywhere out of the woods yet, but it's looking more hopeful. Your continued prayers and thoughts are greatly valued by him.

-chanteyranger

Subject: RE: Update on Winters Wages
From: Lady McMoo
Date: 25 Feb 01 - 04:50 AM

That is encouraging news. Please pass on my best wishes to Lloyd.

mcmoo

Subject: RE: Update on Winters Wages
From: AllisonA(Animaterra)
Date: 25 Feb 01 - 07:07 AM

Thanks so much for the update, chantyranger. Please send our continued love and encouragement to Winters Wages!

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 25 Feb 01 - 07:31 PM

This is great news but have I gotten this right? A veterinarian is advising him? Personally, I trust my vet before my doctor but...

Subject: RE: Update on Winters Wages
From: Sorcha
Date: 25 Feb 01 - 07:35 PM

Encouraging news. Perhaps I need to get our Vet in on Kate's problems.....nobody else seems to be making headway.

Actually, vets have more schooling than MD's......and meds for animals are tested more thoroughly than meds for humans.

I had this itchy rash on my tummy, MD said "???? Who knows?" Vet said, "Mites, get some topical mite spray with pyrethins". It worked.

Get well, Lloyd!! Here's to you!

Subject: RE: Update on Winters Wages
From: Jeri
Date: 25 Feb 01 - 07:40 PM

Great news! I hope he continues to do well and doesn't suffer much from the chemo.

SINS, vets have to know about several species. People doctors only know about one. Vets have to deal with patients that can't talk. People doctors have patients that can tell them where it hurts. Last I heard, it was harder to get into veterinary colleges than medical ones. Of course, I wouldn't want a vet to take my temperature...

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 25 Feb 01 - 07:52 PM

Yeah. Kneeling naked on that cold steel table is the pits. Lloyd, if you are reading this, the humor shows relief not disinterest. I am glad you are doing well.

Subject: RE: Update on Winters Wages
From: katlaughing
Date: 25 Feb 01 - 08:47 PM

Thanks, CR, for the update and the good news. Lloyd, thanks for the important insight; I don't think it can be stressed enough, that being in your doc's face with questions and some of your own research and answers. My doc loves it when I come in with stuff off the internet!

Keeping you in the Light and sending good thoughts your way,

kat

Subject: RE: Update on Winters Wages
From: catspaw49
Date: 25 Feb 01 - 09:45 PM

Outstanding!!! And thanks chants for the update.

Spaw

Subject: RE: Update on Winters Wages
From: Peter Kasin
Date: 26 Feb 01 - 02:07 AM

Lloyd wrote me that he went out and played a gig last night, and that it went pretty well. Keeping his emotional state in positive mode is not easy for him, but I keep reminding him that it's essential for his physical well being. So, I'm very glad he got out to this gig.

Subject: RE: Update on Winters Wages
From: Ebbie
Date: 26 Feb 01 - 03:06 AM

My very best wishes to Lloyd/Winters Wages. I'm glad you are playing- music is a healer of spirits so it certainly must be good also for bodies! Bathe in it, steep yourself in it, let it resonate in your bones...

Ebbie

Subject: RE: Update on Winters Wages
From: Joe Offer
Date: 26 Feb 01 - 04:31 AM

Thanks for the information, Peter. Lloyd's a pretty feisty guy, so you'd expect him to do pretty well. I wish him the best.
-Joe Offer-

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 26 Feb 01 - 09:33 AM

CR, please let Lloyd know that a link to this thread for the updates will go out to the prayer chain this week.

~S~

Subject: RE: Update on Winters Wages
From: MMario
Date: 26 Feb 01 - 09:38 AM

Good to hear an update!

As far as vets vs MD's - I got a dietician job one summer based on my animal nutrition courses. The dietician said anyone who could formulate diets for 6 species should be able to handle one!

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 26 Feb 01 - 05:36 PM

Thanks folks for all the good wishes BUT The new update is my hair is now starting to fall out. Sunday I awoke and there was a gob of hair on my zip drive next to the computer..I took my hand a ran it through my hair..Woe is me..Im gonna be bald, BUT alive, and I thank God for everyday..I will keep fighting...Hi to Joe Offer Bye all Lloyd/Winters Wages

Subject: RE: Update on Winters Wages
From: Peter Kasin
Date: 26 Feb 01 - 09:39 PM

Now you'll have a chance with all those women who think bald men are sexy. :-)

Subject: RE: Update on Winters Wages
From: Wesley S
Date: 27 Feb 01 - 12:24 PM

Hair is over rated - life isn't. We're glad to hear that you're doing better.

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 27 Feb 01 - 12:45 PM

Hey Chantman..I have been single for over 2 years now. couldnt get a date even with my hair let alone without it. Im too cynical (thats why they call me Harry Callaghen here at work)My melodian's been my main squeeze these days.) I will keep the course and run on bare poles if I have too **BG Winters Wages

Subject: RE: Update on Winters Wages
From: AllisonA(Animaterra)
Date: 27 Feb 01 - 04:57 PM

I couldn't help it, Lloyd- I looked up your photo on the Mudcat Resources and trust me... you look just dandy in the pix, and you'll be just fine without the hair! Remember, you're not getting balder, you're getting better (we all hope and pray!)

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 27 Feb 01 - 05:10 PM

Looks good to me too. Don't let Kendall see the cap - it's his trademark. If you get really self conscious about losing your hair(I happen to find bald men attractive), tie on a pirate scarf and wear an earring - Very Sexy.Works for UncleJacque.

Subject: RE: Update on Winters Wages
From: Melani
Date: 28 Feb 01 - 01:07 PM

Hey, Lloyd, bald can be a fashion statement. But ya gotta stop sleeping on your zip drive!

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 13 Mar 01 - 12:34 PM

How are you doing, WW? I've been thinking of you and Barry a lot.

Subject: RE: Update on Winters Wages
From: catspaw49
Date: 18 Apr 01 - 10:04 PM

Hey California Catters!!!!

It's been awhile and we haven't heard a thing. Barry is "on his way" and I think a lot of us would like to hear what's happening with Lloyd........Anybody???

Spaw

Subject: RE: Update on Winters Wages
From: RichM
Date: 18 Apr 01 - 10:15 PM

LLoyd, when I was going through radiation and chemotherapy,it wasn't pleasant. I found my energy would really take a nosedive during each course of treatment.
I tried to work with the process mentally, to help by visualizing this medicine coursing through my body and aggressively attacking each cancer cell it encountered. I think it did help; I've been cancer free since 1977. I'll be thinking of you, and including you in my meditations.
Keep fighting the good fight.

Rich

Subject: RE: Update on Winters Wages
From: radriano
Date: 19 Apr 01 - 10:57 AM

I spoke to Lloyd a couple of weeks ago. He was experiencing quite a bit of discomfort but seemed in fairly good spirits despite it. He seems to prefer a low profile so that's all I'll say at this point. I am hoping to hear from him any day now.

Richard

Subject: RE: Update on Winters Wages
From: catspaw49
Date: 19 Apr 01 - 11:20 AM

Thanks Richard..........No problem in the "low profile" idea, but pass on our best.

Spaw

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 19 Apr 01 - 11:30 AM

Thanks for the update. I keep praying and thinking good thoughts.
Mary

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 19 Apr 01 - 03:19 PM

Hi: Thanks for the concern folks...Yes, I keep a low profile as I am frightened to death. The node have gone pretty much on the outside of the body. BUT the doctor said most people get rid of this stuff after three treatments. I still have lymphoma in my spleen, stomach area and down by the spine. The catscan revealed reduced lymphoma in the spine and stomach. He saw no change in the spleen. I tell myself thats cause thats the basket or central headquaters for lymph system and it will probably be the last to go..BUT the doctor said he pulled my slide to re-examine to confirm (I though they did that..they told me so) that its a "large mass B" cell. Well, he said they could not tell as lymphoma is hard to pick the types...Soooo they sent it off to Stanford for review. My blood counts have been low...a few "knockdown"days. My finger tips numb from the "vincristine" so I make typos. Cannot play guitar (not that I could anyway)..No hair..and pretty lonely...All this started well...it a personal matter but lets just say, as the old song goes, "dont play b17 it was our song" Sure you guys get the picture. Anyway..Dont worry about me..I will survive...Work has been kind to me I am sked gfor chemo on Tuesday..blood count permitting UGH! Dont mind the juice but that damn Prednisone for five days wires me up. Miss all you guys and Radriano sorry I did not answer your call..Tell everyone Im Hanging! and good luck with the concert. Tell John I sang his song but dont want to go there just yet***BG Warm Regards Lloyd Jones "Winters Wages"

Subject: RE: Update on Winters Wages
From:
Date: 19 Apr 01 - 03:21 PM

Keeping you in my thoughts, Lloyd. I've faced a similar demon -- twice. Just keep spitting in its face. You have friends you don't even know in Mudcat.

All the best.

Mary (Giac)

Subject: RE: Sorry for the Entries
From: GUEST,Winters Wages
Date: 19 Apr 01 - 03:35 PM

Sorry folks do not know what has happened why you got so many entries....Something with the server I believe Sorr again lloyd

---

Deleted the duplicates. --JoeClone

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 19 Apr 01 - 03:41 PM

Lloyd, are you singing?

~S~

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 19 Apr 01 - 06:13 PM

Lloyd's update (with Spaw's post asking for news and radriano's reply) went out to the Prayer Chain. (Please see Prayer Chain Update and FAQ thread if any questions.)

~Susan

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 19 Apr 01 - 07:05 PM

Only to myself when I drive..Sometimes my voice gets all hoarse and gruff...Im'a hanging though! Dont worry. Im not checking out for a long time (I hope) Lloyd

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 19 Apr 01 - 08:57 PM

I'll sing for you, Lloyd. What'll it be? Especially for our Saturday Night Service. Any requests for great acoustic hymns?

~S~

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 19 Apr 01 - 09:33 PM

Fear is normal, WW. I would be worried about you if you weren't afraid. But for what it is worth, I believe you are showing great courage and stamina. After you spit at it, give it the finger. The relax in the safety of friends.

Subject: RE: Update on Winters Wages
From: radriano
Date: 20 Apr 01 - 12:20 PM

Hey, Lloyd, great to hear from you. No need to apologize for not calling me back. You've got a lot on your plate these days.

We'll record the John Conolly/Pete Sumner concert at the Hyde Street Pier through the sound system for you. I recently got a copy of their cd Trawlertown, The Singing of the Fishing - be happy to pass it on to you if you'd like to hear it. It's an excellent recording.


Richard

Subject: RE: Update on Winters Wages
From: harpgirl
Date: 20 Apr 01 - 12:32 PM

Oh my goodness, I missed this on the first go round. Lloyd hang in there. I've always been partial to bald men. I think they are sexy as hell!!!! I'm in the middle of diagnostic exams myself and I am hoping I pass. But if I don't I'm gonna plaster my breasts all over the web for a last hurrah! Good luck and think happy thoughts! harpgirl

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 20 Apr 01 - 03:34 PM

Radriano; I would love to hear nay music these days. I sure miss being in the circuit. Harpgirl..You gals always say that but then well...you know what they say...So me the money or put up ets **BG Let me tell you, people avoid you like the plague when your bald. They think Im in a cult or Heavens Gate people. No one has paid my way to Disney World yet though** you can see what they think when they take a gander at you ("Hmmm wonder how long he has") Folks! Im not checking out for a long time! (God willing) Take care all Lloyd

Subject: RE: Update on Winters Wages
From: catspaw49
Date: 20 Apr 01 - 03:52 PM

Hmmmm............Ya' know WW, you might want to get some robe looking toga thing and see if you can pick up some extra money at the airport.................

Spaw

Subject: RE: Update on Winters Wages
From: GUEST,errabus-Winters Wages (at studio)
Date: 18 May 01 - 10:57 AM

This message is also to Radriano as I do not have your landline available. Thanks for the concerns. I had fourth treatment yesterday...It was rough..A new drug Rituxan was introduced..The whole session was over 7 hours. loaded me up with the usual chemo then the Benedryal..I was flying high...then came the new drug..Half way through I needed to stop as my whole body ached...then they started it s l o w . Im fine this morning...no sleep of course runing on prednisone. I just want this to work...I do not make a good patient. Radirano (thinks thats the right spelling) You know who you are**BG I misplaced your number. I have not felt up to parr to call everyone. I know Chanteyranger has been trying and too much gets in the way..Yes, Im interested in the cd's also hope you get a recording of John singing Fiddlers Green...Tell him it is for someone under the weather. Alas, everyone take care and I will talk on here when \\\i get a chance Regards Winters Wages

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 18 May 01 - 11:42 AM

Forwarding that to the Prayer Chain, Lloyd. We've been praying for you right along, and will continue to do so.

A good friend of mine has come down with what you have. I especially pray for you when I am driving her for chemo or otherwise spending time with her. Are you on a one-week-per-month cycle of it like she is?

It's from that viewpoint that I want to thank you personally for subjecting yourself to all this awful treatment. Those of us who get to enjoy your time with us appreciate it more than you probably know.

love,

~Susan

Subject: RE: Update on Winters Wages
From: katlaughing
Date: 18 May 01 - 02:01 PM

Oh, Lloyd, you've been on my mnd so much, lately. You are being so good to come visit with us when it sounds as though you'd much rather have a lie-down. Thanks for the updates and do know that we all appreciate you and are proud to call you our friend. We are also here to help in anyway that we can. Do you need more CD's, tapes, etc. to listen to? Can we send anything? Do you have a Walkman you can listen to while undergoing treatment? How about just a few cards and letters of support? Something you can actually hold in your hand, like what we did for Barry Finn when he got his new liver? We wouldn't have to have your private addy if someone else would be willing to give us a POB or something.

Please just let us know. In the meantime, I will be sending you lots of love and good thoughts and energy. You are doing good! Keep focussed on the positive and let the mis-shapen cells flow away out of your body.

luvyakat

Subject: RE: Update on Winters Wages
From: radriano
Date: 18 May 01 - 02:23 PM

Hey Lloyd!

Good to hear from you. I'll send you a PM with my personal info. I'd be happy to get some music to you, Lloyd. I'm prepared to come right to your door, unless, of course, you'd prefer that I not do that. I don't have your address so send me a PM and I'll get that John Conolly/Pete Sumner cd over to you. It's an excellent cd!
Your presence is sorely missed at the shanty sings. My time is pretty free these days so if you ever want to get together and sing some songs just say the word.

Richard

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 18 May 01 - 02:29 PM

Lloyd - Do you have a Mudcat Calendar? It will distract you or at least make you laugh.

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 18 May 01 - 09:39 PM

Well, I dont have a mudcat calendar..and as far as PM's go...My cookie is not set on this rig. It a rig given to me made up of who knows what.But it works. My address is 2028 Broderick Street, San Francisco, Ca 94115 I dont mind giving it out (remember folks I am still a cop Nash is watching the house) I love aqll music...But honestly folks...Im not going down for the count! Not yet! Damn it. It gets bleek at times though I must confess. Radriano...You can come by any time...Lets get Larry Johnson or Jim Nelson too and well jam! Yeah! And Kat Thanks so much Yes I do jump in here. I am concerned for John Hartford and check daily. And, WYSIWIG thaqnks so much for the prayers.I reall appreciate it more thasn I can say. Sorry for the typos...My fingertips get numb (they call it neuropathy) or sometnig like that...Take care..As we used to say on Ham Radio in the old days ....Im reaqding the mail off on the side 73's and 88's Winters Wages

Subject: RE: Update on Winters Wages
From: catspaw49
Date: 18 May 01 - 09:59 PM

Ain't nobody here thinks you're "going down for the count" Lloyd. We're all just asking after you a bit and really wanting you to know you have real friends, though unmet. If you need something there's probably some way we can do something or another......Just ask. And believe me, I'm just glad you pop in for whatever reason anytime! We all are. Keep hangin' tough.

Spaw

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 19 May 01 - 02:28 AM

Smoochies all over you, Lloyd.

~S~

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 19 May 01 - 02:18 PM

Thanks all..Oh, and I forgot, WYSIWIG, My treatment is called CHOP..It is every 21 to 30 days depending on weekends. Harpgirl...Best of luck..You dont want to do that though...They are making great advances in that field. And Spaw! Thanks...I know what you are saying. I always feel beter when I can check in here. Love to all Lloyd (Winters Wages)

Subject: RE: Update on Winters Wages
From: wysiwyg
Date: 19 May 01 - 05:47 PM

Thanks, Lloyd.

My friend is extremely inarticulate when it comes to undertsnsding and relaying what her doctor tells her... so I have a really poor idea of what she is facing. It makes it hard to pray too specifically, so I just ask that our Lord enwrap her in hugs and peace. It seems her main struggle now is just tremendous exhaustion. She has been throguh three rounds and starts the fourth this week-- I will miss this one because we will be away. It is very unclear to me how much of her tiredness is the disease and how much is the treatment-- we are not seeing her out and about much now even between treatments. She is pretty old, and has beat a lot of other challenges all her life. She says now that if this is her time, that's not the worst thing in the world, and she is not worried about what comes next. (I worry I am not supporting her enough, but she is great at asking for help and, at this time, is not asking anything.)

Her name is Edith. Lloyd, when you feel like you are having your own hardest times, please think of and pray for her, then, would you?

Hardi and I will continue to pray for you while we are gone. Just now I am listening to a wide velvet ribbon of deep, strong sound slowly being unwound by the wonderful fiddler Bonnie Rideout; and with every ream of ripples she pushes off the end of her bow, I am sending the peace and beauty of it to you and Edith.

~Susan

Subject: RE: Update on Winters Wages
From: GUEST,Winters Wages
Date: 19 May 01 - 11:03 PM

Well, I hope Edith makes recovery soon. It depends on which stage she was in when diagnosed. Age has a lot to do with the exhaustion as well. they sometimes give you a break to see what gives and let your body recover. It is important for that to happpen and not be in sirvival all the time (as with all of us too in everyday life) Thats why we have music...Soooo Lets party one day. I will keep her in my prayers as well along with you and the nice people here. I just had my fourth on Thursday and am wired now on Prednisone...Com Tuesday I crash..I also have to have a daily shot of Nueprogen (how ever you spell it) to bring my white count up. Gonna sign now and try and squeeze out a tune on my squeeze box. Warm Regards to you and yours WYSIWIG Winters Wages

Subject: RE: Update on Winters Wages
From: SINSULL
Date: 13 May 02 - 01:03 PM

I couldn't find the newer thread, soooooo...any updates?

Subject: RE: Update on Winters Wages
From: Mary in Kentucky
Date: 13 May 02 - 01:12 PM

Here's the recent thread, click here<.