Hi Tom, Hope that I can help you with this! I work for the handicap administration in the south of Sweden and I have various contacts with teachers who work with children who suffer from Spielmeyer-Vogts, or Batten´s disease which I think it is known as outside Scandinavia. You can try e-mailing one of them asking exactly what you require, and please don't hesitate to use my name. mailto:stig-ake@ekeskolan.specialskolorna.se Tony Cassidy, på HMC Borås.
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