You're very brave. It's good that the dialysis is working out for you and can act as a functioning kidney for you for as long as you need it.
Good luck with the CT scan. I hope that the results will be better than you can hope for. Please let us know what decisions have been made and the timeline?
We didn't go to the meeting this past Sunday, but we were at a peer group meeting the previous Sunday where I found it very encouraging to meet people who were bright, alert, and in good humour, in spite of (or because of?) being reliant on having dialysis several days a week.
Several were happy to show and tell about their physical modifications that enable connection to the machinery. Several in the room have dialysis at a clinic where, because the usual dialysis needles are not being used, they can manage the entire procedure themselves and seemed to thrive on that feeling of having more control in their lives.
We talked with my husband's primary care physician on Monday. The good news was that we've been making great strides in controlling the diabetes, cholesterol and blood pressure, however creatinine is climbing higher and higher, liver numbers are not good, his kidney function went from 17% to 15%. We keep hoping it won't go any lower, but...
The doctor advised that it's time to make a decision about proceeding to dialysis, or doing nothing and .... He said he will support my husband in either decision.
We can't believe this is really happening and are looking for rainbows, unicorns and a higher kidney function next month.