I heard about this drug recently too. Seems those who would put it to good use, feel that they have been persistently blocked. I have long been disappointed in the medical community which has failed to come up with an answer to this disease despite decades of aggressive fund raising.
All it takes is one brave doctor to prove that DCA really works. If there is any truth to what we are being told, I'd expect more than one would be willing to risk her/his career to save a friend.