Joybell! I know from experience how terrifying it is when you know something is wrong but the med professionals only patronise.
I have periods of unprovoked shooting blood pressure that has only been witnessed once by an out of hours doctor in Feb 2009 (it was 245/120) and since then I am awakened 3 to 5 times a night by palpitations. EKG tests inconclusive. My GP prescribed antacid, which only gave me stonking headache. I know I don't have reflux. Had it my 30s and know what it feels like. A completely different kind of hell.
I wish I would faint during one of these episodes. Maybe someone would take notice.