The Mudcat Café TM
Thread #138365 Message #3186421
Posted By: Neil D
12-Jul-11 - 11:17 PM
Thread Name: BS: Chemo
Subject: RE: BS: Chemo
For me the neulasta didn't cause much pain but about 12 hours after the shot I would get these rushes that would start in my tailbone and run up my back to the top of my head. The first time it happened I had not been forewarned and it really freaked me out to the point that I went back to the hospital, thinking something bad was happening to me. Later on I knew to expect it and it was just more of a curious little side effect that didn't hurt but made me shudder all over. Radiation isn't as unpleasant as chemo but it will lower the blood count causing fatigue and some mild shortness of breath. At one point they gave me a blood transfusion to get my hemo count up. Even though the side effects at the time weren't as bad as the chemo, I've actually had more lasting effects from the radiation. Even after 2 years plus, my blood counts weren't all the way back to normal. Also, my femur was made permanently brittle and I have to be careful to avoid fractures, no running or other high impact exercises. I had fairly decent insurance but between copays, deductibles and coinsurances I'll be paying it off for years. I hate to think what would have happened had I been uninsured. It's sad that so many in this country are so much at the mercy of fate when it comes to health care, a situation that could be remedied if we had the collective will to prioritize it. Dan, keep encouraging her and pass along all of our good thoughts. Having my wife at my side through it all was a true blessing so don't underestimate the role you play and keep yourself strong as well. It WILL be over soon and once it is, you'll be surprised how quickly things will improve. Love from Neil and Christina.