Sinsull: With only what you posted. I know nothing about the kids with CF. I went to Google and found this Canadian link with such a wonderful story.

http://www.cysticfibrosis.ca/en/aboutCysticFibrosis/Personalstories_mbenson.php

It may have other good stuff on the site.

I used to have a pamphlet written by a marvellous man in Britain who had CF and was an inspiration to many people. He wrote from his bed with one finger n a keyboard. I gave it to a mom who had twins (12) with CF. one also had Down's; the other was bright. There was also a daughter who seemed to be doing very well. The Mom was fantastic. Life moves on and I lost touch.

Life certainly seems to deal hard hands to some people. This is one of the more difficult ones, for sure. Just to be there for your cousin...