The Mudcat Café TM
Thread #142401   Message #3282333
Posted By: VirginiaTam
31-Dec-11 - 06:14 AM
Thread Name: BS: Lupus
Subject: RE: BS: Lupus
All these autoimmune conditions.

A former colleague has Lupus. Evidently really bad case as she was often signed off from work. She put on about 3 stone in less than a year. She was on steroid treatment.

I have yet to be signed off with rheumatoid arthritis, though in last few months I was near it and have, since first diagnoses 6 years ago have developed Sjogrens. I've had hypothyroidism from age 18.

The medical research community really needs to get behind study of the human immune system. Too much money and attention is thrown at treating symptoms rather than causes.

I started looking at the autoimmune problem with my daughter Hilary when she was 14 and diagnosed with autoimmune liver disease and now has polyovarian cyst syndrome. Her older sister dies a few years later due to autoimmune adrenal dysfunction. Hypothyroidism in both girls.

I am sharing link to American Autoimmune Related Diseases Association at it appears to be the only group working toward cause of AI conditions and not merely the symptoms.

AARDA

The American Autoimmune Related Diseases Association, Inc. (AARDA), was founded in 1991. AARDA's mission is the eradication of autoimmune diseases and the alleviation of the suffering and socioeconomic impact of autoimmunity through initiating, fostering, and facilitating collaboration in research, education, advocacy and patient services in an effective, ethical, and efficient manner.

They also have a facebook page which I joined.