The Mudcat Café TM
Thread #143849   Message #3340063
Posted By: VirginiaTam
18-Apr-12 - 04:24 PM
Thread Name: BS: Mudcat Mojo - VaTam's daughter
Subject: RE: BS: Mudcat Mojo - VaTam's daughter
The deal is her autoimmune is attacking hepactic and splenic portal vein system causing hypertension in the portal vein, inflammation of spleen and other portal vein organs (stomach, liver, kidneys, etc.)

The spleen is not releasing white blood cells and platelets back into blood stream causing
   1) it to get enlarged and painful
   2) putting her at risk of bleeding to death due to inability to clot (platelets) and inability to fight infection (white blood cells)

SO

Put her in hospital for nearly 2 weeks 13-24 March to try and figure out what is causing problems and how best to treat.

They treated this with high doses of 2 steroids. Then changed to high dose prednisone which is working slowly to get her platelet and white cell count up. Sent her home.

BUT

Prednisone was causing sugar to spike really high, creating a diabetic reaction. She is not diabetic. The prednisone is making her so. She has adjusted her diet as she has been instructed, but it didn't matter much

BECAUSE

the gastritis, splenomeglia and possibly the sugar spike made her so ill she could not keep food or drink down. 5 April back in ER (different hospital this time) and they admitted her. Put her on mitaformin for the sugar problem and sent her home.

Went to PCP couple of days later and Hil's sugar was 422. PCP said stop eating fruit and left the room. Appointment over.

SO

She became dehydrated and her potassium went dangerously low. So back in the hospital this last time from 12 - 16 April with sugar at 722 and doctors livid that a diagnoses proper treatment had not yet been found.

Hilary is now up to speed with clocking how she feels, checking her sugar levels drinking lots of Chai tea with cinnamon (no sugar) and trying to stay on top of the sugar spikes with insulin if her damned PCP will only frigging prescribe and CVS actually have it in stock.

She had to wait 22 hours to get the insulin she needed and the rest which CVS gave her a hard time about again. Turned out the rep was not looking at the correct fields or screen on computer and tried to tell Hil she could not have her prescriptions. Hil demanded to see another CVS rep and she sorted it out. I shudder to think if Hil had not the energy or presence of mind to be assertive about it.

All her meds - prednisone, pain, and nausea pills and anxiety meds and about 10 days worth of insulin = $125.00. The insulin being the most expensive, the most critical to her needs and what she got the least of. I fear her insurance has something to do with this.

Looks like I need to send another payment to her, but I can't for a week until PAYPAL sorts out the 4 fraud transactions that went out of my account to 4 different Polish men this past Monday.

Hucking Fell I am completely wiped.