The Mudcat Café TM
Thread #144776   Message #3365963
Posted By: katlaughing
20-Jun-12 - 04:37 PM
Thread Name: BS: Need some extra 'oomph' thoughts, please
Subject: RE: BS: Need some extra 'oomph' thoughts, please
There are more books in you than one, Meg. I can't wait to read them. Love that story, too!

Hawker, nice to see you AND the rest of you, too!

I have a huge sigh of relief and some good news.

We met with the pulmonologist, today. She says she is happy with how I am doing, now we are back on track with certain meds, and explained why cardiologists and pulmonologists never look at echocardiograms in the same way and don't have much to do with one other because of their differences.

Anyway, what had happened was the cardio read the echo, said everything was worse, no surgical options left, etc. scaring us half to death, literally. In between all of this was the new alternative pain med which we are still not done trying different combos of to get it just right, if possible, and weight gain from the lack of meds for a couple of weeks (another experiment), and the iv iron infusions plus my first ever (and I hope last!) migraine, and a diagnosis of fibromyalgia. I am glad the past few weeks or so are over!

I've been so scared, sleepless, tired, overwhelmed, etc. This one really knocked me for a loop. The way the cardio sounded, I felt terminal, up close and personal.

Of most concern, is the pulmonary hypertension, but as long as i continue to keep my O2 sats above 90% AND remain 100% compliant in using my bi-pap machine at night, the doc is NOT concerned about the ph and doesn't need to see me for 6 months!

Note to self: so, now you have three docs, a therapist, and a healer telling you they believe you are doing well and have no need to be so scared. Are you listening? Floating?:-)

I know one thing, I am THANKFULL to all of you for your help. I know I still have a lot of challenges, probably always will, but I can face them when I know of the wonderful love and support I receive right here on Mudcat. Thank you all so very much!

luvyakatnappingnow