The Mudcat Café TM
Thread #142631   Message #3522748
Posted By: VirginiaTam
04-Jun-13 - 04:25 PM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Jane's Rainbow: for all needing support & comfort
Is this the place to insert a little self anxiety about impending treatment for a stubborn illness?

I have been recommended (pending results of bloods and xray to ensure i don't have TB or lung fibrosis) for anti-TNF therapy as my autoimmune conditions (RA, Sjogrens, PMR) are not responding to chemo, anti-malarial and steroid cocktail.

The potential life altering /ending risks are daunting. These being cancer, lymphoma, heart failure, blood abnormalities and (peculiarly for American patients) multiple schlerosis.

I now have to decide if I want to risk one or more of these potential threats and which biologic treatment to try out of the 5 offered. 4 are self inject and 1 is hospital infusion.

I'd be grateful for any good thoughts here, as well as, experiences with this type of treatment first or second hand. Perhaps they should be put on the "So that's why I feel like crap" thread, even though it has been dormant for some months now.

Thanks all.

Trembling Tam