The Mudcat Café TM
Thread #142631 Message #3839071
Posted By: billybob
15-Feb-17 - 07:20 AM
Thread Name: Jane's Rainbow: for all needing support & comfort
Subject: RE: Jane's Rainbow: for all needing support & comfort
fingers and everything crossed please as Billy is seeing his leuchemia consultant this morning for his 4 monthly blood tests and check up.
We had bad news last week about our ten year old granddaughter. Most of you know that she has a bad hearing loss and wears hearing aids. She has never had a diagnosis until now. She had an MRI last June and ( after 7 months??) had an appointment Friday last with the top Consultant. They say she has EVA and there is no treatment unfortunately. The really bad news is that she must never have a bang to the head as this may cause immediate complete hearing loss. So no gymnastics, horse riding, contact sports. But for 10 years she has done all the cartwheels and sports etc as no one knew of the risks. If mummy had known when she was first born I am sure she would have been wrapped up in cotton wool so it was probably a case of ignorance is bliss! So now we have to try to keep her safe without making her feel different or making a fuss."Be carefull" will be very difficult not to say!
Off to put the coffee on,
love to all, extra to those worried or unwell.
While I have been typing this Billy phoned the tests were all clear, no sign of anything bad. He is still on the trial from Leeds University and has been clear for 3 years!! Next appointment in 4 months. Whoop de doop, might open some fizz when he gets home, glasses at the ready for the Rainbow crew.