I don't know anything about the parents - google wasn't very helpful,
so have no knowledge of their ability to make intelligent educated informed decisions...???

But it does on the surface appear that they are quite possibly being exploited as 'willing' pawns
by noxious fringe religious / political pressure organizations....

... and if I was cynical, I'd consider how much money is in the pipeline
for media interviews and book deals...???

I completely agree with Sen, that their misguided desire to keep their child breathing
beyond reasonable expectations in their own home
could potentially result in unintended physical abuse...