Oh, Anna, lots of love and {{{{{ANNA}}}} hugs coming from here. Here is one place I found which looks well worth looking into: New Jersey Neuroscience Institute at JFK Medical Center.

I agree with the others and cannot stress enough how important that she has someone with her when she is going through this with the docs. It is difficult, when one is the patient, to think clearly, not be intimidated and scared. They need someone there to take notes, ask questions, and to give feedback to the patient, after the doc's visit, when they frequently space out whatever was said except maybe dire predictions or pronouncements.

A lot of doctors get so used to telling people there is something wrong with them, they forget that it is a new and usually total shock to the person, let alone have a clue of what it does to a person's psyche. I think all patients should have an "ombudsman/advocate" with them in these types of situations. I hope your daughter will let you be one for her.

As for the soon-to-be husband? If he can't hack it, he's not worth it. My Rog and I moved in together in June 1979. Within a month, we found out I had to have major surgery and that I had a leaky heart valve. There was never any fear or thought that he might not be there for the long haul and today we celebrate our 22nd anniversary.

Fear is so destructive. When it comes up, please try to say to it "Thanks, but no thanks. We can make without you!

Love and Light, darlin' and holler if there is anything else I can do,

luvyakat