The Mudcat Café TM
Thread #45210   Message #671005
Posted By: Dharmabum
17-Mar-02 - 07:41 PM
Thread Name: BS: No where else to go...
Subject: RE: BS: No where else to go...
OK, Now we know what it is. Now to learn how to not only fight it,but also live with it.
Hopefuly the steroid treatment won't be long term,but it's pretty effective at kickin' the disease's butt.

I've been on Avonex since last May.Once a week,self injections.First couple of times Amy will feel flu like symptoms for about a day after.For many people the side effects are less after time. I just feel a bit irritable & run down for about 20 or so hours.

MS tip,Have Amy do her Avonex injections an hour or two before bedtime. That way she can sleep through the first few hours of the side effects.

I've only had one relapse since the injections (in January)it didn't hit as hard as previous relapses.

There's tons of support out there,MS Society,local support groups,etc.I'm sure you've already gotten much of this info.

This is not great news Anna,but it could have been much worse. There will be some really "crappy"days. But there will be alot of good days also. If nothing else,MS has taught me how to appreciate the good days and the really important things in my life. And spend less time worrying over the BS.

You've got my number,I'm about an hour and a half away.I'm here if you need something.

Ron.