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Jane's Rainbow: for all needing support & comfort

ChanteyLass 01 Mar 17 - 09:31 PM
Rapparee 01 Mar 17 - 09:20 PM
Janie 28 Feb 17 - 11:44 PM
ChanteyLass 26 Feb 17 - 08:27 PM
Pete from seven stars link 26 Feb 17 - 05:40 PM
Donuel 26 Feb 17 - 10:01 AM
Mysha 25 Feb 17 - 07:10 PM
keberoxu 23 Feb 17 - 12:57 PM
Pete from seven stars link 22 Feb 17 - 04:35 PM
Donuel 21 Feb 17 - 11:41 PM
ChanteyLass 21 Feb 17 - 08:28 PM
Rapparee 21 Feb 17 - 07:03 PM
Pete from seven stars link 21 Feb 17 - 04:30 PM
Sandra in Sydney 21 Feb 17 - 04:43 AM
ChanteyLass 20 Feb 17 - 06:26 PM
Rapparee 19 Feb 17 - 09:40 PM
ChanteyLass 16 Feb 17 - 07:23 PM
Rapparee 15 Feb 17 - 09:58 PM
ChanteyLass 15 Feb 17 - 09:18 PM
Pete from seven stars link 15 Feb 17 - 12:41 PM
gnu 15 Feb 17 - 11:28 AM
billybob 15 Feb 17 - 07:20 AM
Nigel Paterson 14 Feb 17 - 11:34 AM
Nigel Paterson 10 Feb 17 - 04:40 AM
ChanteyLass 09 Feb 17 - 08:24 PM
Donuel 09 Feb 17 - 04:20 PM
Nigel Paterson 09 Feb 17 - 11:03 AM
keberoxu 05 Feb 17 - 05:55 PM
Pete from seven stars link 05 Feb 17 - 03:29 PM
Nigel Paterson 05 Feb 17 - 04:00 AM
Janie 04 Feb 17 - 11:08 AM
Pete from seven stars link 04 Feb 17 - 09:56 AM
Rapparee 03 Feb 17 - 08:51 PM
gnu 03 Feb 17 - 11:04 AM
billybob 03 Feb 17 - 07:25 AM
ChanteyLass 02 Feb 17 - 06:11 PM
Sandra in Sydney 02 Feb 17 - 05:10 PM
Pete from seven stars link 02 Feb 17 - 03:44 PM
keberoxu 31 Jan 17 - 02:46 PM
Nigel Paterson 30 Jan 17 - 11:46 PM
keberoxu 30 Jan 17 - 01:57 PM
keberoxu 28 Jan 17 - 06:13 PM
ChanteyLass 25 Jan 17 - 10:14 PM
ranger1 25 Jan 17 - 05:00 PM
ChanteyLass 24 Jan 17 - 09:28 PM
Janie 24 Jan 17 - 06:47 PM
ranger1 24 Jan 17 - 12:50 PM
gnu 24 Jan 17 - 07:08 AM
Nigel Paterson 24 Jan 17 - 01:28 AM
Nigel Paterson 24 Jan 17 - 01:07 AM
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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 01 Mar 17 - 09:31 PM

Janie, aloft or below, it's good to have you aboard.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 01 Mar 17 - 09:20 PM

So this is what Janie's doing.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 28 Feb 17 - 11:44 PM

I don't check in to Mudcat as often I used to so can fall very behind here. My brain also ain't what it used to be so after reading through the posts here and the many cares, concerns, and also good news, when playing catch up, by the time I post I can no longer recall each and every concern by name of person even though I just read. My apologies for my lack of brain cells.

Still sailing and a hand on deck, even if I'm simply up in the sails and don't make eye contact when I shuffle down onto the deck, grab a cupppa then scurry off to my hammock.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 26 Feb 17 - 08:27 PM

Donuel, good news that Dean will get that level of support.
Pete, dang those catheters and their infections! I hope they clear up soon.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 26 Feb 17 - 05:40 PM

No problems keberoxu or donuel . We are well aware of the gravity and danger of tommys condition. And I am sure you both meant best. .       Tommy still doing quite well despite the deterioration , though we are having infection problems with the catheter.       Blessings all.    Pete


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 26 Feb 17 - 10:01 AM

I am not the person to draw a line between privacy and summarizing someone else's issues without a PM to ask permission.
For one thing privacy no longer exists and I become more old fashioned with every passing year.

I brought this up in what I thought was a tactful way but was instead cryptic. Without Keb I would have been in the dark so his post is a good thing. I was also worried. What if someone posted a prognosis regarding a child who was not told of a dire reckoning and read the post ?

I over think most things so if there is no problem there is no foul,
which means Keb should post to his heart's content.

btw Dean and us got into the top tier of support in the country for his condition of wanting to hide.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Mysha
Date: 25 Feb 17 - 07:10 PM

Hm, Hurtigruten! That brings back memories. I never went myself, but my mother went, and she liked it very much. She brought back shiploads of photographs, and it was the topic of one of the presentations (?) that she would do around the province, and sometimes abroad. Happy memories. (-:

It also inspired some word smithing of mine at one time. It made it to the WWW to my surprise; it may still be around. Oh dear, another one I should probably list on myshas.net, I guess. When will the list ever be complete?

Bye,
                                                                Mysha


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 23 Feb 17 - 12:57 PM

I should probably stop posting on this thread.
However I sincerely send good wishes even as a lurker to the thread.
And I hope Rapparee is on that cruise ship off of Norway soon, even if he has the use of only one arm.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 22 Feb 17 - 04:35 PM

Donuel, clicked on your link about myotonia and certainly recognised a lot of tommy in there. Could not work out your comments though , or whether they related to tommy or someone else. Or to how it related to keborux , though he did comment on tommy and our care of him. But thanks for the link ( where it was not too tech for me !).


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 21 Feb 17 - 11:41 PM

Rap if you see a pale beer in Norway called Giraffe get it. It has a long neck with spotted foil. You will find it amazing and you won't need pain killers or the ability to stand. It will be imported since it is brewed in Denmark.

Keb, If you are going to make summaries with people's permission you should know what the facts are which are far more encouraging than your words portrayed. https://www.ncbi.nlm.nih.gov/books/NBK1165/

I met the 80 year old next door neighbor of my son who lives off campus. They both share an interest in history. After chatting I noticed we had a similar knowledge base, psyche and curiosity. I asked if he was an aviation engineer and he surprisingly said yes. The last plane he helped engineer was the 767. I believe he is a national treasure if we had that designation in our society as they do in japan. We share the same first name among other things like a fascination with pre history. My son's vitality and drive is infectious and refreshing. I hope they continue to look after each other with support and comfort.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 21 Feb 17 - 08:28 PM

I'm glad your arm can get a quick fix. I hope you have calm seas and don't need to reach out suddenly to steady yourself.
I also hope Pat gets an "All Clear" for her biopsy results.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 21 Feb 17 - 07:03 PM

Surgery Thursday morning to reattach the left bicep at the elbow. The doc didn't even need an MRI -- he could tell by looking and feeling. It's about an hour procedure and no overnight hospital stay. The doc feels that I'll be able to visit Norway if I'm a good boy and really, really careful. Being on a ship means staying in one place for a couple of weeks, so it shouldn't be too bad once I get aboard.

AND! Pat has a biopsy on her right breast tomorrow. Something about the architecture therein. She won't do anything until after Norway, though.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 21 Feb 17 - 04:30 PM

That looks very nice rapparee


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 21 Feb 17 - 04:43 AM

Rap, you & your wife have done your bit for the medical industry over the past few years, fingers crossed for you - again!

sandra


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 20 Feb 17 - 06:26 PM

Oh, my! I certainly hope you can go, and without pain or restricted movement. That was supposed to be my next trip, with the same line of ships but on a less luxurious one. I was hoping to do it in 2018, but just learned that my son's family is going to Disney World this fall and I may join them there. If I do, it will take some time for my budget to recover.
If you do this trip, I hope you'll share a lot of your adventures and photos where I can see them.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 19 Feb 17 - 09:40 PM

Most likely I've torn the bicep loose at the elbow -- a distal bicep tear, just like the one I did to right arm some years ago. Because fixing this will involve surgery I've stopped taking aspirin and ibuprofen for pain and am using acetaminophen with mild codeine. I will see the hand/arm doctor Tuesday (Monday's a holiday) and I will get an MRI. I still hope to cruise the sunny shores of Norway from the 15th of March through the first week of April. Relaxing on the deck of the M/S Trollfjord, dancing under the stars until dawn...actually it's an educational trip to investigate the Aurora Borealis. I do hope I can go!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 16 Feb 17 - 07:23 PM

C'mon, Rap! If it hurts, don't do it!
I hope you're soon out of pain.
Oslo--nice, but not with a sore arm.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 15 Feb 17 - 09:58 PM

Awakened this morning with muscles on the inside of my left elbow hurting like that-unpleasant-place-sinners-go and it did so all day. Saw the baby doc this evening at the clinic and I'm wearing a sling for the next couple of days. Basically, they have no idea what the problem is. However, it hurts to turn my left hand palm-side up or to touch it in places. I'm supposed to be in Oslo on the 15th! AAARGH!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 15 Feb 17 - 09:18 PM

Pete, hooray for Tommy!
Wendy, hooray for Billybob's and hix test results! I'm sorry about your granddaughter's diagnosis, though. That's sounds like it will be tough to deal with.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 15 Feb 17 - 12:41 PM

Seems like the 'ignorance is bliss ' has been a blessing for the previous years Wendy . Let's hope having to be more cautious now won't be too upsetting for her . Great to hear continuing clearance for billy though.                                                                                 Yesterday was a nice sunny day , and it was also the first day since tommy came home from hospital that we got him out , and he was pleased to be pushed around the village in his chair . He had also stood for a bit unaided .   Things looking up here !                   Blessings all.         Pete


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 15 Feb 17 - 11:28 AM

Glad to hear about the tests, Wendy. Too bad about the young lady. I hope she "is careful" but doesn't lose out on anything.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 15 Feb 17 - 07:20 AM

morning,

fingers and everything crossed please as Billy is seeing his leuchemia consultant this morning for his 4 monthly blood tests and check up.

We had bad news last week about our ten year old granddaughter. Most of you know that she has a bad hearing loss and wears hearing aids. She has never had a diagnosis until now. She had an MRI last June and ( after 7 months??) had an appointment Friday last with the top Consultant. They say she has EVA and there is no treatment unfortunately. The really bad news is that she must never have a bang to the head as this may cause immediate complete hearing loss. So no gymnastics, horse riding, contact sports. But for 10 years she has done all the cartwheels and sports etc as no one knew of the risks. If mummy had known when she was first born I am sure she would have been wrapped up in cotton wool so it was probably a case of ignorance is bliss! So now we have to try to keep her safe without making her feel different or making a fuss."Be carefull" will be very difficult not to say!

Off to put the coffee on,
love to all, extra to those worried or unwell.

While I have been typing this Billy phoned the tests were all clear, no sign of anything bad. He is still on the trial from Leeds University and has been clear for 3 years!! Next appointment in 4 months. Whoop de doop, might open some fizz when he gets home, glasses at the ready for the Rainbow crew.

much love
Wendy xxxxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 14 Feb 17 - 11:34 AM

Refresh.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 10 Feb 17 - 04:40 AM

Donuel, mixed feelings fully understood. Sincere condolences from Ann & myself.
                                                                   Nigel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 09 Feb 17 - 08:24 PM

Oh, dear! Regrets regardless, Donuel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Donuel
Date: 09 Feb 17 - 04:20 PM

With two deaths in the family things will be up in the air for awhile. There is an efficient advantage in a two-fer one situation like this.
No need for the sweet talking circling pet vulture of the grim reaper to personally respond or the folks with the private email address' of angels on high to ask for special dispensation. The departed will be deeply missed.

When the unfortunate are 82&90 as well as distant in laws, you can understand the mixed feelings.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 09 Feb 17 - 11:03 AM

A gentle nudge upwards.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 05 Feb 17 - 05:55 PM

Pete, I just did a little looking back in this thread, I didn't read all of your posts about Tommy, but I read a few more. It helped because I am a relative newcomer here, so did not know about Tommy's myotonic dystrophy.

Also did not know that Tommy has been with you for over ten years, and for all of his teenage years, or that he was not expected to live to see the teenage years.

It's all very eye-opening and humbling for me.

My background has been in a family of origin where people have great physical resilience but they share emotional and psychological dysfunctions which few, if any, admit to or offer up for healing. Said another way, my family has a long history of people playing at being victims and martyrs, the hypochondriac sort, and often as not they outlive everyone else. Up close and in contact with them often, as in my childhood, what you witness is people draining each other.

So it is really humbling and edifying to see people giving to each other instead of taking from each other.
Sorry for going on about myself and my history this much.

Much gratitude for this thread and the hard-working humanity of those who keep this thread going.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 05 Feb 17 - 03:29 PM

Thanks . In answer to your question Nigel ,I'm sure you won't be surprised that I would say ultimately I believe it is God and my Christian faith. I would add that I believe His strength in my weakness is displayed by family and friends too , that send kind thoughts and offer prayers , not the least of which being the crew of this fine ship.                         Tommy seems better today than yesterday , and though we've been told again not to expect him to live another year , we don't give up hope .            Blessings.          Pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 05 Feb 17 - 04:00 AM

Pete, the news about Tommy has given my Sunday morning the something it was lacking...hope. That he is well enough to return home is such an achievement. Where do you all get the strength from?
                      With Love,
                                       Nigel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 04 Feb 17 - 11:08 AM

Glad he is home, Pete. May he continue to strengthen.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 04 Feb 17 - 09:56 AM

He's thrown a couple of wobblers last couple of days ....a good sign really !


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Rapparee
Date: 03 Feb 17 - 08:51 PM

Tommy's tough!


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 03 Feb 17 - 11:04 AM

Glad to hear Tommy is home.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: billybob
Date: 03 Feb 17 - 07:25 AM

Sending love and prayers To you and Tommy Pete.

Wendy xxxxxxxxxxxxx


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 02 Feb 17 - 06:11 PM

My prayers for Tommy and others will continue.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Sandra in Sydney
Date: 02 Feb 17 - 05:10 PM

sending love & good wishes to Tommy & his family & frirnds


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Pete from seven stars link
Date: 02 Feb 17 - 03:44 PM

Tommy has got through it and is now home . However his left lung is still down , but he is looking pretty well , though still weak . The medics didn't expect him to survive and they have warned us that they don't expect the lung to heal , reminding us again that it's in the last stages. But we have heard that before ,and though we have increased care to give him , he is still with us . Thanks again for the prayers and well wishes offered            Blessings.    Pete


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 31 Jan 17 - 02:46 PM

My heartfelt sympathies to the Mudcat member attached to a broken ankle.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 30 Jan 17 - 11:46 PM

Pete & Tommy, Ranger1, Janie...we're all here for you.
                                     With Love,
                                                    Nigel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 30 Jan 17 - 01:57 PM

sometime quiet, always needed and appreciated.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: keberoxu
Date: 28 Jan 17 - 06:13 PM

Janie, glad to hear that you keep on keeping on.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 25 Jan 17 - 10:14 PM

It's the little things that surprise us by how much they hurt, ranger1. Is there a child in your life, niece or nephew perhaps, for whom you can make a card and send with cinnamon red hots? If you gran's cards were elaborate, you can make a simple one. I've folded red card stock in half and cut the outline of one side of a heart so that when unfolded it is a whole heart. I'm glad you have Beau to hug when you feel sad.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ranger1
Date: 25 Jan 17 - 05:00 PM

Monday was a year from when my grandmother passed. It also hit me that there will be no hand-made Valentine's Day card and package of cinnamon red hots in the mail for me, either. It's always the little things, isn't it?


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ChanteyLass
Date: 24 Jan 17 - 09:28 PM

I'm stopping by to wish relief to all who are suffering, or to their loved ones who are. Whether your pain is physical or emotional, I wish you well.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Janie
Date: 24 Jan 17 - 06:47 PM

Oh Pete. Holding Tommy close in my heart.

Rap and Pat. Keep healing. Probably should not attempt sled riding just now.

Maeve, may it be cozy inside.

Went to PT for the ulnar nerve this morning. Not sure the PT or the splint is gonna help, but won't hurt, and as I do research, leaning away from surgery even if the PT doesn't help at all. It isn't clear at all that surgery has more than a 50% chance of being helpful, and is apparently very painful with a long recovery time, whether it helps or not.

Did some work in the yard today. Not a lot, but some. Got new hand clippers for Christmas, plus had done some oiling, cleaning, sharpening of larger clippers so they work better and require less hand strength. The right hand tools, and well-maintained tools make a difference. Plus it was a good leg day. The old gray mare ain't what she used to be, but still plugging along.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: ranger1
Date: 24 Jan 17 - 12:50 PM

Here, just being quiet in the corner.

Pete, thinking positive thoughts for Tommy.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: gnu
Date: 24 Jan 17 - 07:08 AM

Thoughts and prayers, Pete.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 24 Jan 17 - 01:28 AM

'Jane's Rainbow' has never been a thread of dissension or 'news-mongering'. For many, including myself, it has served as a haven, a sanctuary if you will. Please preserve, protect & respect our founding ideals.
                                             With Love to All,
                                                                      Nigel.


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Subject: RE: Jane's Rainbow: for all needing support & comfort
From: Nigel Paterson
Date: 24 Jan 17 - 01:07 AM

Pete, I'm certain the combined emotional resources of 'Jane's Rainbow' are supporting you & Tommy, every minute of every day.
                                 With Love,
                                                 Nigel.


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Mudcat time: 17 October 12:36 AM EDT

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