Jane's Rainbow: for all needing support & comfort

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 16 Nov 12 - 10:14 PM

What Pete said.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 16 Nov 12 - 03:58 PM

a mixed bag but sounding more hopeful than negative.with a prayer that the best,most effective treatment is identified and effective.blessings   pete.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 16 Nov 12 - 02:19 PM

Ditto Wendy.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 16 Nov 12 - 06:40 AM

" Mixed bag" Optimism and hope sounds good Nigel.Hope that the Oncologist finds the rogue gene and this new medication is successful.
I admire Jane's positive way of living with the cancer so much, she is indeed inspirational to us all,

Billy is on the last day of cycle five today and is working as usual,he has a very positive attitude and fingers crossed the trial he is on has very good chamces of remission.I must say how lucky we are in the care of our loved ones, the staff of our hospitals should be praised for their dedication and sympathetic reassurance.
How far cancer treatments have come in the last 20 years!

At the begining of this year, when you started this thread, we were strangers, the year has been full of ups and downs, good news and set backs, now the year is drawing to a close and I have new friends to share worries and highs with, once again "Thank you" Nigel for bringing us all together.

Thinking of you all and keeping you in our prayers

with love

Wendy xxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 16 Nov 12 - 05:09 AM

Jane's PET scan results have turned out to be something of a mixed bag. The increase in 'activity' in her hip bones is confirmed, but the Doctors profess to be "Not overly concerned". Her current medication has been stopped & a new drug instigated immediately. The Oncologist is exploring the possibility of a 'rogue gene' being the initial cause of the cancer. If this turns out to be true, then Jane becomes an ideal patient for the new medication by virtue of her age, overall level of fitness & the fact that she has never smoked. The Doctors report an encouraging level of success with the new drug given the criteria I've just outlined. Jane remains very positive about her situation. She is determined that the cancer will not rule her life...she is living with it, not dying from it.
      We live in the hope that a 'rogue gene' will indeed be found. The results of that investigation won't be available just yet.
      There is a certain sense of optimism & hope within our Family that feels different from simply 'clutching at straws'.
       Holding all of You in our thoughts as You hold us,
       With Love,
                      Nigel & Ann.
                      xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Janie
Date: 15 Nov 12 - 10:44 PM

Haven't looked in for a few weeks, caught up in what amount to petty concerns. The posts from the last three weeks give renewed perspective and lead me to better appreciation of just how petty many concerns in my own life that seem major from a small and short perspective really are.

To Nigel & Family, Wendy & Billybob, 'Spaw & Karen, and others I have surely missed naming in this hasty post: Even as I join my focused care and concern for you with that of others, I am also grateful for the gift of your sharing.

Janie

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 15 Nov 12 - 05:41 PM

I hope it continues, pete.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 15 Nov 12 - 05:07 PM

Very glad Pete.....good thoughts still coming!!!


Spaw

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 15 Nov 12 - 04:52 PM

thanks all.tommy did have a bit of a dip earlier but was doing much better this evening. pete

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 15 Nov 12 - 03:36 PM

Wendy... for me? No need. Essentially, I just have a doc with small fingers... a blessing, actually. >;-)

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 15 Nov 12 - 03:46 AM

Thinking of you, Ann and Jane today Nigel. Praying the results are good XXXXXXX
Love and prayers for Spaw,Tommy and Gnu.

Will be thinking of you all all day as always

much love
Wendy xxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 14 Nov 12 - 07:55 PM

Spaw... my fingers are crossed for you. Hmmm... there won't be any discomfort... I have fingers like a baby.

Explanation : my doc is from La Belle Province and he often says things translated from Quebec French that are lost on anyone who don't parlez... even those that talk Acadian French (and Shaques - local... VERY local). Gee, I still don't think I explained it, but I did laugh before he shoved his

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 14 Nov 12 - 07:29 PM

That's an important point Nigel. I too am blessed with a best friend for a spouse. It is almost unimagineable that I would do anything of any sort without her. Even when either of us is at the doctor, the other is in the exam room most of the time. Our Docs don't mind and I don't think I'd go to any doctor who did.

Speaking of which, they did the bone marrow today and that wasn't too bad.....except for two periods of about 3 seconds each and one other of about 5 seconds that was a major "WHOA!!!" Serious discomfort but so short it really isn't a big deal unless you're some sort of wimp......like me. LOL.....Results in a few weeks.


Spaw

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 14 Nov 12 - 06:12 PM

"I write in the singular, but Ann is always present, right by my side, so you can always substitute 'We' for 'I'. For all practical purposes, they are synonymous."

To know you are not alone and have the love and support of Ann "always present"... that, in itself, is comforting to me. You are a lucky man and she ain't doin too bad needer, eh buddy b'y?

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 14 Nov 12 - 11:30 AM

Hoping so much for those good clinical results for Jane and others here. At the same time holding forth for peace and strength for all, however the chips may in fact fall.
                         Dean

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 14 Nov 12 - 05:49 AM

I've said something similar before, but you are indeed a unique group of very special people. I often feel that the sum total of all our Life experiences would contain more than enough Wisdom & Knowledge to produce a 'Book of Life'. It would be a book that could answer all those questions that begin: "What can I do?...this has happened", & if not answer, then offer words of comfort & solace that renew one's hope.
       To everyone who has ever contributed to this thread, a heartfelt & sincere thank you; you have shone light into the darkest corners of my Life; brought me comfort when desperation seemed the only option; opened my mind to ways of thinking & being of which I was unaware, or maybe reluctant to adopt. The Thread remains an on-going experience that has become as much a part of my Life as breathing. It has become an ever-changing, ever evolving Constant. That sounds like a contradiction in terms, but I'm sure you understand what I mean.
       As I've also said before, I write in the singular, but Ann is always present, right by my side, so you can always substitute 'We' for 'I'. For all practical purposes, they are synonymous.
                   Much Love to You All,
                   Stay Close,
                                    Nigel & Ann.
                                    xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: rumanci
Date: 13 Nov 12 - 07:41 PM

and I'm never that far away either - keeping everybody close in thoughts if not always immediate deeds. Hugs to all.
rum xx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 13 Nov 12 - 07:19 PM

Nigel, I'm still here full of hope for your daughter Jane. And for you, Spaw. Now for Pete's young friend Tommy. And Gnu, for your friends and relatives, too. I've got lots of hope for Mudcatters, their families, and their friends!

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 13 Nov 12 - 06:16 PM

Nigel... all... be as well as you can be. Just got two bad rounds of bad news tonight about friends and relatives. I guess all one can do is say what I said... be as well as you can be.

Thanks for this thread, Nigel. Means a lot to a lot of Mudcatters.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 13 Nov 12 - 06:07 PM

Pete, you got it, buddy. My email address is

irishancestry (at) gmail (dot) com

Write me if you can. I have an idea for Tommy.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 13 Nov 12 - 04:39 PM

pausing to name before God those unwell and awaiting test results.
we look after a special needs boy called tommy who has myotonic dystrophy and is currently in hospital with pnemonia.this is always a worry with his condition but he,s "turned the corner" now hopefully but anyone with a prayer to spare-thanks
God bless   pete.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Donuel
Date: 13 Nov 12 - 11:48 AM

Spaw I know partying with your vampire friends is a hoot but you should limit it to the holidays this year.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: catspaw49
Date: 13 Nov 12 - 11:44 AM

Time tp ost on this check-in. Wanted all to know I do read this thread religiously and continue to be inspired by it. Also to say that none of you are ever far from my thoughts. I too await news from Nigel and expect only the best.

As for me, I have a bone marrow biopsy and scan tomorrow which may or may not tell us what's going on with my enemia. I'm feeling pretty fair although I opted to come home at only 8.6 and should have gone for two more pints....LOL......


Spaw

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: katlaughing
Date: 13 Nov 12 - 11:16 AM

Been sending you and yours my love and good wishes for healing for us all. I am doing better. Thanks, Nigel.

Pete, beautiful poem/message. Thank you for the reminder.

luvya'llkat

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 13 Nov 12 - 07:49 AM

You're never far from my thoughts, Nigel. In the parlance, hang tough.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 13 Nov 12 - 07:31 AM

Jane's PET scan should be over by now (12:20 local). Results on Thursday.
       Thank you all for the recent postings. Beautiful poem, Pete...I think I favour poetry over prose when I need to express some of my deeper, more unsettling feelings.
       Special thoughts for Wendy & Billy...& for Kat.
                                  Stay Close,
                                                 With Love,
                                                                Nigel & Ann.
                                                                xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 07 Nov 12 - 05:35 PM

Pete...just " Thank you"
Wendy xxx( was having a bad moment)

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 07 Nov 12 - 05:28 PM

Well said, Pete.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 07 Nov 12 - 05:25 PM

thoughts and prayers for all of you encountering delays and uncertainties.

trees in november look sad and bare
branches are empty,leaves on the ground
foliage fallen,carpets the earth
scattered and drifting without a sound.

life can be hard,our hope falling down
sometime like trees,we desolate stand
forgetting that sap is still in the trunk
renewing hope by an unseen hand..

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 07 Nov 12 - 04:38 PM

Wendy, I'm still praying for Billybob, too.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 07 Nov 12 - 11:48 AM

Nigel,feeling so much for you all, cancellations and waiting are the hardest part!Billy and I have found the ups and downs rather like a roller coaster, last months chemo seemed to go well and the blood tests at ten days were great, then today the consultation with the consultant where we expected to say"still good so next treatment on Monday next" instead the neutrophil count was down so may have to put the treatment back!
Billy was very despondant on the way home ,umlike him.
So cup of tea and some uplifting music on the CD player and sailing onwards!
All our love to you, Ann and Jane,will keep thinking positive thoughts and prayers for you,
Wendy xxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 07 Nov 12 - 08:37 AM

waiting with you

sandra

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 07 Nov 12 - 05:04 AM

Heartfelt thanks to all of You, our Dear, Dear Friends. Ann is going with Jane to her consultation tomorrow...or was...Jane just phoned as I was typing this & the consultation has been cancelled in favour of a PET scan next week, so the waiting goes on.
       Stay Close,
                      Much Love to You All,
                                                       Nigel & Ann.
                                                       xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,999
Date: 06 Nov 12 - 04:26 PM

Nigel, keep the faith. Please give my best regards to both Ann and Jane. Hold each other close and stay positive.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST
Date: 06 Nov 12 - 04:20 PM

best wishes,hopes and prayers.pete

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: gnu
Date: 06 Nov 12 - 03:45 PM

I hope the whole process repeats and good news abounds... for good. Keep the faith, Nigel.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 06 Nov 12 - 05:57 AM

Thinking of you Nigel, Ann and Jane,sending positive prayers for Thursday.
Much love Wendy and Billy xxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 06 Nov 12 - 04:42 AM

Apologies for my absence. Ann & I are becoming increasingly concerned about Jane's prognosis. She has a very important meeting this Thursday where 'the way forward' is to be discussed. She is scared; we are scared. It's beginning to feel like we've all been transported back to January.
                        Keep us in your thoughts,
                                                               With Love to You All,
                                                                                              Nigel & Ann.
                                                                                              xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 03 Nov 12 - 08:50 PM

Just sending thoughts and prayers to Nigel and Ann,
No words from you since Ann got home.
Hope this means you are spending precious time together, but remember we are thinking of you and Jane
With much love
Wendy and Billy xxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 30 Oct 12 - 09:03 PM

I'm fine in RI and hope all other 'Catters are, too. I didn't even lose power, but over 116,000 people in this small state did. My son and his family are fine, too. They lost power which was restored within 24 hours. There are threads about the storm and its effects with a lot of info.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 30 Oct 12 - 01:59 PM

Welcome home Ann,
Bills sisters in New Jersey are all ok thankfully, been watching CNN all day, those poor people!
sending prayers
Wendy xx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: maeve
Date: 30 Oct 12 - 01:56 PM

Welcome home to Ann!

Most of the 'Catters most affected by the storm system will not yet be able to contact us, so I'm trying to be patient. Here in Maine we have a fierce storm system with lightning, rain, hail, and thunder.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 30 Oct 12 - 01:51 PM

Ann arrived home safely on Sunday. Had she been a day or two later, 'Sandy' would have enforced an even longer stay in Charlotte.
      
       How are all our American & Canadian Friends doing with this ghastly hurricane? Are you all safe & sound? The pictures we're seeing on the BBC news look pretty devastating with cleanup costs running into the billions. Do let us know that you're ok,
                      Much Love,
                                       Nigel & Ann.
                                       xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: frogprince
Date: 26 Oct 12 - 11:42 PM

Will be pullin' on the oars a bit now, 'til we get a forecast for fair winds.
                   Dean

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: ChanteyLass
Date: 26 Oct 12 - 10:17 PM

Still sending prayers!

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: billybob
Date: 26 Oct 12 - 08:19 PM

Nigel, just lots of hugs and love. Ann will be home Sunday? Thinking of you all,
Wendy and Billy xxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: GUEST,pete from seven stars link
Date: 26 Oct 12 - 12:31 PM

i guess sometimes positives can emerge from adversity.blessings pete.

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 26 Oct 12 - 05:51 AM

Jane sent me a long email yesterday & I thought a brief quotation from it would add something to our understanding of her current situation:
    "........the doctor was calm and not hurried or overly concerned. They are discussing my case next tuesday and together the lung team will decide on the best course for me."
       She's come such a long way since January. Ann & I are very proud of her.

       With Love to You All,
                                       Nigel & Ann.
                                       xxxxxxxxxx

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Sandra in Sydney
Date: 26 Oct 12 - 02:42 AM

adding my love & optimism!

Subject: RE: Healing thoughts & prayers please (Nigel Paterson)
From: Nigel Paterson
Date: 26 Oct 12 - 01:26 AM

I will be carrying your Love & Optimism around with me every waking minute of every day. I nearly always write in the singular, but Ann is here by my side through thick & thin; even when she's in NC!
       Jane & all of us have learned much since January about living with cancer. The positive mental attitude that that has engendered is something we all need to keep in the forefront of our minds.
       As always, you're all there, just when we need you, you dear, dear Friends.
       With Love to You All,
                                     Nigel & Ann.
                                     xxxxxxxxxx