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01 Jan 11 - 07:50 PM (#3065303) Subject: BS: The most important film I have ever seen From: Donuel The film is titled 'Under Our Skin' Many of you have already seen it since it was released two years ago. http://movies.nytimes.com/2009/06/19/movies/19under.html It is about the silent epidemic a million times more prevelent than AIDS. It is silent because of health insurance company strategies to make more money. My personal struggle and labrynthine journey within our current corporate health insurance system is just one of many long stories, so I will defer to this film to explain. However I did find a personal loophole not mentioned in the film. The reason I hold this documentary as the greatest I have ever seen is in the hope that you may save your life, quality of life or the lives of your loved ones. It should hold special interest to those with an interest in the symptoms, conditions or diseases of unknown origins below; chronic fatigue! (not due to the newly discovered CF retro virus) migrating joint pain sudden acute arthritis fibromyalgia dementia/Alzhiemers ALS MS many more... PM me if you are unable to see or purchase this film. |
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01 Jan 11 - 08:10 PM (#3065313) Subject: RE: BS: The most important film I have ever seen From: Little Hawk How many people are you suggesting have been afflicted by this disease, Donuel? How widespread is it? Just wondering. There's a woman in my town who has finally been correctly diagnosed with it after about 10 years of being given the runaround by the medical services, incorrectly diagnosed for all kinds of other stuff, and basically losing her whole quality of life to the symptoms. I'm surprised you give it such a huge emphasis, because I wasn't aware that there were very many cases of it. |
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01 Jan 11 - 08:34 PM (#3065318) Subject: RE: BS: The most important film I have ever seen From: katlaughing I can't believe they have decided it doesn't exist?! It was a HUGE deal when we lived in CT before leaving there in 1993. I had friends with it and the docs put me on antibiotics the couple of times I'd been bit, to protect the aortic valve. We don't have it out here, so I haven't followed along, but I am really surprised they say it's not a disease. I'll have to ask my daughter about it as she is still back there. Thanks, Donuel. |
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01 Jan 11 - 10:35 PM (#3065354) Subject: RE: BS: The most important film I have ever seen From: Dorothy Parshall All of the "illnesses" listed by Donuel are now considered autoimmune diseases. There is considerable and increasing evidence and research showing that autoimmune diseases are environmentally induced: toxins in the air, water and/or food. This is a special interest of mine due to my own encounter, ongoing, with multiple chemical sensitivity (MCS). There is considerable literature and a number of websites on the subject. In Connecticut, Nancy Alderman has spearheaded considerable efforts to eliminate some of the poisons in the environment. She has been working on it for over 20 years. All over the USA, and other countries, people are working toward this same goal. Canada is somewhat ahead in getting rid of illness inducing chemicals, such as pesticides. A doctor in Nova Scotia has had a clinic to help people dealing with these problems for well over 30 years. At one point, I believe, he was threatened with expulsion from the CMA. Only a few health care people are somewhat knowledgeable. They seem to be operating under the belief that these are figments of - women's - imagination; women are generally more susceptible. I spent four years trying to find help in the "health care system" before my friend finally took me in hand and put me through a regime that healed the worst of it in less than three weeks. The same regime, by the way, which has been used to help many of the 9/11 workers. My friend, in PA, has been studying this since her son was poisoned with an organophosphate in grade 2, along with teachers and other students in the school where it was being used. He became learning disabled as a result and still (at 25) cannot read if he is exposed. I am still hypersensitive to noise and light, esp. flashing lights/disco ball/etc. I also lost some of my auditory processing ability, making it difficult for me to participate in group. events. Prior to this, I was a newspaper reporter who could comprehend auditorily in groups as high as 300 and report accurately the content of meetings. I can put people in touch with some of the sources of information on the subject of MCS. My friend who healed much of my difficulty is also helping others, including another of my close friends who suffered from severe "fibromyalgia" for ten years and is now able to hold a job and be a mom to her daughter. This is both complex and very simple. The chemicals in our environment are causing everything from the above noted to cancers, heart problems, obesity and diabetes. Getting rid of those chemicals is difficult due to the corporate control of the government which precludes the EPA carrying out its job effectively. Getting the chemicals out of our bodies is not too complex but does require effort and knowledge. The Canada Mortgage and Housing Corp has a great deal of info on its web site on how to build and maintain healthy houses. A simple, good quality air cleaner can assist greatly as can drinking mainly distilled water. Above the Fold sends a daily newsletter online regarding many of the environmental problems around the world. There are geographic clusters of these types of illnesses. There is a website which tells where some of these poisons are located. ETC. |
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01 Jan 11 - 11:28 PM (#3065359) Subject: RE: BS: The most important film I have ever seen From: open mike I think the Lyme Disease is one of the main diseases that is often mis- diagnosed. I know a few friends who have become very debilitated from it. One had multiple and incorrect diagnoses for years...and one thing they thought he had is ALS Lou Gerigs's ...he is in the latter stages of life...and it seems it could have been prevented by correct diagnosis and treatment.. I would love to show this film as a benefit for the local Lyme disease support group. (let me know if the video might be available on loan...or??) |
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01 Jan 11 - 11:34 PM (#3065360) Subject: RE: BS: The most important film I have ever seen From: open mike http://www.underourskin.com/ A gripping tale of microbes, medicine & money UNDER OUR SKIN exposes the hidden story of Lyme disease, one of the most serious and controversial epidemics of our time. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are all in their head. Following the stories of patients and physicians fighting for their lives and livelihoods, the film brings into focus a haunting picture of the health care system and a medical establishment all too willing to put profits ahead of patients. |
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02 Jan 11 - 02:26 PM (#3065673) Subject: RE: BS: The most important film I have ever seen From: GUEST,Eliza There are about 700 diagnosed cases of Lyme disease in the UK every year according to my GP. I was bitten by a deer tick 2 years ago which attached itself to me while sitting under a tree in my garden (where fallow and muntjac deer often roam)Luckily my GP took it seriously, inspected the tick and ran some blood tests (negative fortunately) He gave me strong antibiotics just in case, as the tests are not very conclusive. He said it can stay in the body for years, causing arthritis etc and not be correctly diagnosed. Here in Norfolk, Thetford Forest is a hotspot, and the New Forest in Hampshire. |
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02 Jan 11 - 05:27 PM (#3065817) Subject: RE: BS: The most important film I have ever seen From: Q (Frank Staplin) Suggested reading- Lyme Disease information at www.mayoclinic.com Early effects may vary, leading the victim and his doctor to mis-diagnosis. If not caught early, intravenous antibiotic treatment may be necessary. Symptoms may last months or even years after treatment, and some experts are of the opinion that an autoimmune response may be triggered. The truth is that many doctors simply do not have specific knowledge about the disease- a person with late symptoms such as joint pains could be suffering from many other causes, and the average medical practitioner is unable to run them all down in a month of Sundays and still have time to attend other patients. Expensive, but the best way to get a proper diagnosis or recommended treatment for a condition that your doctor can't help is to go to a clinic such as the Mayo with many specialists who can run multiple tests and come to a reasonable conclusion. Blaming insurance companies, poisons in the air or whatever other whipping boy comes to mind, doesn't contribute to a solution. |
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02 Jan 11 - 06:25 PM (#3065849) Subject: RE: BS: The most important film I have ever seen From: olddude Depends on where you live. Around here if you are in the woods like me all the time, well you pretty much are at risk. I never caught it but I have pulled ticks off me many times. I have had several friends that got it ... good thing in my area is docs know what to look for right out of the gate. My buddie had the first documented case in Pennsylvania ... It really made him terribly sick and in the hospital before they finally figured it out. The tick crawled up under his arm pit (a common place) for that nasty little bastard. It can be very serious with life long consequences |
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02 Jan 11 - 07:55 PM (#3065898) Subject: RE: BS: The most important film I have ever seen From: Q (Frank Staplin) The greatest risk is in the northeastern states, and just west of the Great Lakes, but Lyme has been found in all 50 states at one time or another in the last ten years- some 30,000 confirmed cases in 2009 and another 9000 or so probable. Other cases undoubtedly mis-diagnosed or not reported. Pennsylvania is among the worst, with 1562 cases confirmed in 1995 and 4950 in 2009. U. S. Center Disease Control figures, www.cdc.gov The number of cases has doubled over the past ten years, probably due both to increase and better diagnosis. I think the tick and bacterium have now been identified across southern Canada, but PHACanada lists only Nova Scotia, Ontario, Manitoba and British Columbia. The Lyme-infected ticks have been found on rabbits in Alberta. In 1986, a patient in Calgary developed a "multisystem disease in 1986 following a tick bite in his back yard" so no area is 100 per cent safe. |
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02 Jan 11 - 08:30 PM (#3065911) Subject: RE: BS: The most important film I have ever seen From: olddude Had one this fall from my fishing walk abouts .... crawled to the back of my knee and dug in ... One of these days i am sure I will get it |
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02 Jan 11 - 09:11 PM (#3065932) Subject: RE: BS: The most important film I have ever seen From: SINSULL Jacqui was diagnosed with Lyme's about two years ago. Her doctor administered the test to rule it out. She was lucky it was found early. My neighbor's child was diagnosed in the 80s/early 90s just as it was coming into public consciousness. She was first diagnosed with chronic arthritis - at 6 years year old a nightmare. Then the telltale sign was a bulls eye rash - which she never had. She recovered after months of treatment. As did my son's teacher who had a permanent IV in her arm for a year. NAsty business. If you are chronically tired, get tested and RE tested. Sometimes it takes multiple tries. M |
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03 Jan 11 - 11:27 AM (#3066260) Subject: RE: BS: The most important film I have ever seen From: Donuel Q, the same regions you mentioned are also the same regions in which MS is most prevelant. 25 years ago my experimental MS treatment theory involved cloning mylynium sheath cells and inject them into the spinal fluid. IF a cure now involves treating LYme disease successfully, the need for treatment may become a relic of the past. It was said that between diagnosed and undiagnosed cases of Lyme disease, which is a cousin to the spriocete bacteria that causes Syphilus, the number of cases may be as high as 490,000 cases a year in the US. Compared to 39,000 cases of Aids per year, the epidemic is serious. The main point to carry with you is that multiple coexistent infections from a number of different parasitic infections as well as pesticide, herbacide and toxic chemicals is what puts our immune system over the edge and can make Lyme disease progress into a catagory of deadly or crippling diseases. I had to dance around the politicized Lyme disease issue and get antibiotics for a different condition from a physician willing to go along. My case progressed to crutches and wheelchair proportions. Since the elimination of pesticide exposure and 2 years of antibiotics, I look better and can walk with little difficulty despite the intense residual pain. The increase in energy after taking antibiotics is remarkable. It seems that this fall my wife has come down with the fatigue part of the disease. There are several other possible causes for this but her case will almost certainly be complicated by her stubborn refusal to accept any of my advice regarding Lyme disease. Since she is in the medical filed I would say she has a bad case of professional stupidity and chronic skepticism. She wil not even watch the film. The DVD free copy is available upon PM request. In the past the only person to request my free disk offers was Rapaire. You can have it mailed wherever you want. The Amazon price for the dvd is $99.00. That is obscene. |
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05 Jan 11 - 02:23 PM (#3067885) Subject: RE: BS: The most important film I have ever seen From: ChrisJBrady There's good article here: http://movies.nytimes.com/2009/06/19/movies/19under.html And the video can be freely downloaded by torrent from loads of sites - one of the best seems to be: http://isohunt.com/torrents/under+our+skin I do remember some years ago when I was planning to go to one of Pinewood Camp's Music and Dance weeks near Boston, that I researched the health risks of Lyme Disease. It appeared that the area was one of the 'hot' spots. I asked the Pinewood's organisers what the risks were and was told "there aren't any." When I got there I obviously enquired again and to prove a somewhat macho point some of the male staff went round the grounds in shorts and bare feet. I wasn't convinced. After returning I was right to be concerned ... see: http://www.sixponds.org/pdf/July2007NewsletterWeb.pdf At no time during pre-attendance administration, nor during the actual week, were we warned about the presence of deer ticks in the area, nor anything about precautions that we should have been taking. |
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05 Jan 11 - 02:32 PM (#3067894) Subject: RE: BS: The most important film I have ever seen From: Little Hawk Donuel, I'm wondering about the side effects of taking the antibiotics? Do they cause any problems with the digestive system by killing friendly bacteria in the intestinal tract? I ask, because I normally avoid the use of antibiotics for that very reason. I'll PM you about the DVD. |