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28 Apr 02 - 09:10 PM (#700092) Subject: MS on Larry King Show, CNN-TV USA From: wysiwyg Supporters of people struggling with Multiple Sclerosis can learn a lot by tuning in to this panel discussion which includes patients and a doctor. This will probably be re-broadcast. Probably not much new for people with the disease, but those who love them can listen to these stories and hear what our friends may be facing. ~Susan |
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28 Apr 02 - 10:24 PM (#700130) Subject: RE: MS on Larry King Show, CNN-TV USA From: Mary in Kentucky I saw it...my mother-in-law called! I learned two things. (assuming they are true) Montel said ~2.75 million people have the disease instead of the 300,000 we have always heard. I believe he noted the diagnostic improvements, namely MRI. He also made good points about drug research money and the necessity for everyone to be counted so we can get more research money. I also heard one person say that it is believed to be at least 10 different diseases. I knew of symptom clusters, but didn't realize there were that many. I thought the panel members were very well informed (most people with MS are), and they were very positive and optimistic (most people with MS are). I'm continually surprised at the people who refuse to try one of the disease modifying drugs or who refuse a lumbar puncture. Kinda like people who won't go to the doctor when they suspect cancer because they are afraid they will be diagnosed with cancer! I did note that they had four panel members with "invisible" symptoms. They did not have Annette, Richard or Rita. Overall, I give the program a 10. ;-) |
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29 Apr 02 - 11:19 AM (#700410) Subject: RE: MS on Larry King Show, CNN-TV USA From: SharonA I wasn't able to see the show (no cable!) so I need to ask: I know that Montel Wiliams and Annette Funicello have MS, but who are Richard and Rita? |
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29 Apr 02 - 11:28 AM (#700425) Subject: RE: MS on Larry King Show, CNN-TV USA From: Mrrzy Richard Pryor... ? |
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29 Apr 02 - 01:12 PM (#700519) Subject: RE: MS on Larry King Show, CNN-TV USA From: Mary in Kentucky Yes, Richard Pryor. But I made a mistake on Rita. I started to correct my post, then thought nobody would notice...It's Lola Falana, not Rita (I don't even want to say her last name and feed the misinformation.) |
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29 Apr 02 - 06:52 PM (#700771) Subject: RE: MS on Larry King Show, CNN-TV USA From: Art Thieme Mary, With all due respect, and I have said it before but I, personally, am not taking any of the big-3 drugs because I've been diagnosed with primary progressive MS and that form of the disease does NOT respond to any of those drugs according to my neurologist at the Mayo Clinic. He felt that the side effects, of which there are some quite unpleasant ones, would not be worth the slight and minute chance I MIGHT have my disease stopped for a while where it is----but that it'll most assuredly continue on it's merry way. Keeping my life style intact without those side effects is more important to me right now. Soooo--this is why I do what I do---and why others might do it too. Please, no need to "continually be surprised" any more. Art Thieme |