Update...Sassy had a tracheotomy yesterday(18th) and came off sedation. Last night she was communicative(without talking)but animated and moving. She did not sleep much last night and this morning she was again animated and communicating. Unfortunately throughout the day her temperature started to climb......not as high as last week (which was alarming) but sufficient to cause some concern. There is some evidence of an infection in the brain fluid and they are now considering options. In a series of intellectual functioning tests today, Sassy performed well and the indicators were more than encouraging . ....physically she also performed well demonstrating strong right hand side movement and coordination and also good potential on the left, sluggish but capable of development. An up and down day!! Sassy is very scared and we have put a lot into reassuring her about her progress and strength...............so difficult to do when you are shit scared yourself. My lady fights on. I know we are receiving all sorts of support...My son's Muslim friends have a prayer cycle going in the Liverpool and Manchester areas. My Sikh friends in Birmingham and the Black Country similarly.We have had messages of support and prayer from our friends who follow Christianity and Judaism......whilst we are not religious ourselves we are deeply touched by the intense expressions of support we are receiving from faith groups and those like ourselves who believe in personal strength and spirit. Bring it all on folks.

Frank, Sam and Dom xx