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BS: Dialysis, a step into the unknown.

maeve 20 Feb 16 - 08:18 AM
gnu 20 Feb 16 - 06:05 AM
olddude 19 Feb 16 - 10:20 PM
ChanteyLass 19 Feb 16 - 08:32 PM
Sandra in Sydney 19 Feb 16 - 08:23 PM
Eric the Viking 19 Feb 16 - 05:36 PM
gnu 29 Jan 16 - 06:30 PM
Noreen 29 Jan 16 - 06:06 PM
maeve 29 Jan 16 - 08:44 AM
ragdall 29 Jan 16 - 08:21 AM
ChanteyLass 27 Jan 16 - 09:31 PM
ragdall 27 Jan 16 - 08:31 PM
GUEST 14 Dec 15 - 10:41 PM
GUEST,wysiwyg minus cookie 13 Dec 15 - 07:39 PM
Noreen 13 Dec 15 - 03:43 PM
ChanteyLass 12 Dec 15 - 10:30 PM
olddude 12 Dec 15 - 09:29 PM
Eric the Viking 12 Dec 15 - 05:36 PM
GUEST,orybum 11 Dec 15 - 11:04 PM
GUEST,wysiwyg minus cookie 11 Dec 15 - 08:58 PM
gnu 11 Dec 15 - 04:22 PM
MikeL2 11 Dec 15 - 03:03 PM
MikeL2 11 Dec 15 - 03:02 PM
EBarnacle 11 Dec 15 - 01:03 PM
maeve 11 Dec 15 - 07:01 AM
Dave the Gnome 11 Dec 15 - 06:59 AM
Eric the Viking 11 Dec 15 - 06:56 AM
Noreen 26 Nov 15 - 06:45 AM
EBarnacle 25 Nov 15 - 10:43 AM
ragdall 24 Nov 15 - 07:35 PM
gnu 22 Nov 15 - 05:31 PM
Eric the Viking 22 Nov 15 - 04:50 PM
ragdall 22 Nov 15 - 05:33 AM
MikeL2 21 Nov 15 - 05:21 AM
ChanteyLass 20 Nov 15 - 07:50 PM
Eric the Viking 20 Nov 15 - 05:52 PM
ragdall 20 Nov 15 - 05:21 AM
Janie 14 Nov 15 - 02:14 PM
ChanteyLass 13 Nov 15 - 09:08 PM
Eric the Viking 13 Nov 15 - 04:32 PM
Dave the Gnome 11 Nov 15 - 08:17 AM
ChanteyLass 10 Nov 15 - 10:31 PM
EBarnacle 10 Nov 15 - 10:22 PM
GUEST,.farfelue 10 Nov 15 - 09:42 PM
GUEST,Noreen still at work 10 Nov 15 - 04:20 PM
maeve 09 Nov 15 - 06:53 PM
Eric the Viking 09 Nov 15 - 05:30 PM
wysiwyg 06 Nov 15 - 11:53 AM
ragdall 05 Nov 15 - 07:39 PM
ChanteyLass 03 Nov 15 - 08:12 PM

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Subject: RE: BS: Dialysis, a step into the unknown.
From: maeve
Date: 20 Feb 16 - 08:18 AM

We appreciate you checking in, Eric. Thank you. Any time you'd like to let us know how you are but don't wish to post, please just send a PM to one of us to post on your behalf.
Maeve


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Subject: RE: BS: Dialysis, a step into the unknown.
From: gnu
Date: 20 Feb 16 - 06:05 AM

Thanks for the update and keep up the good "work".


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Subject: RE: BS: Dialysis, a step into the unknown.
From: olddude
Date: 19 Feb 16 - 10:20 PM

What istthepprospect fora ttransplantmy  friend


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 19 Feb 16 - 08:32 PM

It's good to hear from you again! It sounds like you are adjusting to your new lifestyle. Emphasis on life. Please keep us informed when you can, especially regarding surgery.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Sandra in Sydney
Date: 19 Feb 16 - 08:23 PM

what part does Loki have in looking after the fish?

sandra

ps. good health report!


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 19 Feb 16 - 05:36 PM

Hello everyone. I am really sorry for the very long space between posts. Somehow my update around Christmas got lost (I don't understand how) and I also have just reset my cookie. Lastly I have been browsing using my ipad and I never allow cookies on that.

I have settled into the three times a week needles. Have got used to the regular failure of needle inserts, resulting in blow outs. Got used to the sudden drop in blood pressure and the effects of that !Generally though life is better on dialysis than it had become before.

I apologise to Maeve for not replying to her message, as I have only just picked it up.

I am waiting to see what the next steps are. I have had almost every check going, X-ray, Scan and Bronchoscopy of my chest and throat. All is fine so quite possibly kidney removal might take place soon. That will be an interesting moment to say the least.

Mrs Viking and I are keeping busy and cheerful. We had a great Christmas and the winter has been pretty good so far. The routine of three early mornings is easy to adjust to as I would get up early to go to earn the crust in the days I used to. I sit hooked up, chatting or listening to the radio, or watching TV. It gives me chance to get back to listening to music.

I still manage my playing and singing (for what it's worth) on a Wednesday afternoon.

Lastly the Mrs Viking is able to do her hill walking and little Miss Viking and I have given her a week break in Paris for mother's day. She is chuffed to say the least. Her and little ( Not so little now 23 yrs)Viking are off next Monday while I, Aragon the dog and Loki the cat look after the fish in the pond.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: gnu
Date: 29 Jan 16 - 06:30 PM

I hope the absence is for "positive" reasons.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Noreen
Date: 29 Jan 16 - 06:06 PM

Positive, healthy thoughts aimed in your direction, Eric. x


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Subject: RE: BS: Dialysis, a step into the unknown.
From: maeve
Date: 29 Jan 16 - 08:44 AM

I've sent him a PM.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 29 Jan 16 - 08:21 AM

Is anyone, in touch with Eric?
rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 27 Jan 16 - 09:31 PM

I hope so, too, rags. Thank you for reviving this thread. I hadn't realized how long this thread has been dormant.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 27 Jan 16 - 08:31 PM

Has anyone heard from Eric? He hasn't posted on Mudcat for a month and a half.

I hope that he is doing very well.

rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST
Date: 14 Dec 15 - 10:41 PM

Eric,
I'm very happy and encouraged to read your positive update. I'll pass on the information to my husband. His lab tests will be next week. We're hoping his GFR % will have improved from last month.

You deserve a great deal of credit for your positive attitude and ability to find humour in what must have been both frightening and embarrassing event in the loo.

rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST,wysiwyg minus cookie
Date: 13 Dec 15 - 07:39 PM

Great, Eric!

~S~


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Noreen
Date: 13 Dec 15 - 03:43 PM

I'm so glad the treatment is having the desired effect, Eric.

A very happy Christmas and a healthy New Year to you and all the family xxx


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 12 Dec 15 - 10:30 PM

I'm glad the treatments are working even if they don't always go smoothly.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: olddude
Date: 12 Dec 15 - 09:29 PM

In my prayers and thoughts, keep up the good work and keep good news coming


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 12 Dec 15 - 05:36 PM

Hi Susan. She is doing really well. We take things head on and always together. We are working round the early mornings and Mrs Viking is taking advantage to be able to do things she wants to do. We have completely fitted a full new kitchen over the past six weeks, slow progress but just some tiling to do to complete. It will be done by Christmas. I have Christmas and Boxing day off !!

Seasons greetings to all and best wishes for the coming year.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST,orybum
Date: 11 Dec 15 - 11:04 PM

Eric the Viking stay edgy


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST,wysiwyg minus cookie
Date: 11 Dec 15 - 08:58 PM

Go Eric! How's the wife doing with these changes in routine?

~Susan


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Subject: RE: BS: Dialysis, a step into the unknown.
From: gnu
Date: 11 Dec 15 - 04:22 PM

I have been lurking all along.

"I have so much more energy." That made my day. I hope for your continued well being.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: MikeL2
Date: 11 Dec 15 - 03:03 PM

Hi Sorry....!!! Must have pressed the wrong button.

Mike


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Subject: RE: BS: Dialysis, a step into the unknown.
From: MikeL2
Date: 11 Dec 15 - 03:02 PM

Hi Eric
Compliments of the Season to you.

Regards

Mike
Well done. Despite set backs you are hanging in there. I am delighted for you and yours.

More of the same please.

Compliments of the Season.

Regards
Mike


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Subject: RE: BS: Dialysis, a step into the unknown.
From: EBarnacle
Date: 11 Dec 15 - 01:03 PM

Why do you continue to get blowouts? Are they inserting the needles wrong? Why are they not using the single fistula needles [dual lumen] currently available. What does the doctor say?


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Subject: RE: BS: Dialysis, a step into the unknown.
From: maeve
Date: 11 Dec 15 - 07:01 AM

Eric- Well done, you, Thanks for the encouraging update. I'll write a note to ragdall to stop by for your message here.

Maeve


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Dave the Gnome
Date: 11 Dec 15 - 06:59 AM

Thanks for the update, Eric, and glad things are improving. Long may they continue to do so!


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 11 Dec 15 - 06:56 AM

Hi all.
Somehow I didn't put in a write up a couple of weeks ago.I wrote it but somehow I didn't hit the right button.

six weeks down the line and settled into the routine of early mornings and being hooked up. It isn't too bad, boredom sets in so the TV, Radio ipad and general conversation help to pass the time. I have had several blowouts and some other adventures such as going to the loo, trousers and kecks down when my arm burst, trying to stem the flow with toilet roll whilst attempting to dignify myself before I call for help ! Having pulled the emergency chord, no one came so struggled half dressed back into the ward holding my jeans up and a wrap of toilet roll dripping blood on the floor in a long trail. Quite funny when you sit back and laugh about it. But and this is particularly for you Ragdoll. The results of dialysis are really amazing. My iron has gone up to normal, my creatinine goes up to a terrible 700+ but after dialysis it's down to 300. My Calccium is up, my potassium down to 3.7, my phosphorous down to 1.5. My crapms have all but disappeared. Life for the other days is so much improved. I have so much more energy. Please assure your husband that it is worth it.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Noreen
Date: 26 Nov 15 - 06:45 AM

Hugs, rainbows and sparkly unicorns for all, today- limited offer! 😃

(Positive thoughts on tap at all times.)


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Subject: RE: BS: Dialysis, a step into the unknown.
From: EBarnacle
Date: 25 Nov 15 - 10:43 AM

Remember, opting out means exactly that. With dialysis, you have the potential to enjoy each other's company for a "normal" life span. That said, the choice is his.
Improvements in treatment come along on a regular basis. There are several implantable artificial kidneys being tested as we speak.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 24 Nov 15 - 07:35 PM

Hi Eric,
You're very brave. It's good that the dialysis is working out for you and can act as a functioning kidney for you for as long as you need it.

Good luck with the CT scan. I hope that the results will be better than you can hope for. Please let us know what decisions have been made and the timeline?

We didn't go to the meeting this past Sunday, but we were at a peer group meeting the previous Sunday where I found it very encouraging to meet people who were bright, alert, and in good humour, in spite of (or because of?) being reliant on having dialysis several days a week.

Several were happy to show and tell about their physical modifications that enable connection to the machinery. Several in the room have dialysis at a clinic where, because the usual dialysis needles are not being used, they can manage the entire procedure themselves and seemed to thrive on that feeling of having more control in their lives.

We talked with my husband's primary care physician on Monday. The good news was that we've been making great strides in controlling the diabetes, cholesterol and blood pressure, however creatinine is climbing higher and higher, liver numbers are not good, his kidney function went from 17% to 15%. We keep hoping it won't go any lower, but...

The doctor advised that it's time to make a decision about proceeding to dialysis, or doing nothing and .... He said he will support my husband in either decision.

We can't believe this is really happening and are looking for rainbows, unicorns and a higher kidney function next month.
   rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: gnu
Date: 22 Nov 15 - 05:31 PM

Been following... lurking. Few words to offer.

Good luck and bless. You're one of the good guys and I appreciate it.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 22 Nov 15 - 04:50 PM

Hi Rags.

I hope all went well at the meeting and your husband managed to go. Some advice (Well offered, not being nosey) Stop smoking, keep an eye of weight, avoid high potassium foods and be very careful of foods containing phosphorous. but I am sure you both know this. Depending on the type of kidney damage there will be other advice offered by the medical staff. I have a genetic condition, nothing can stop it. However there is now a medicine that can stop the cysts growing, which is fantastic news for the younger generation, too late for me. I don't know if it is available in Canada.

I go for a CT scan next Monday to find out which, or both of my kidneys will be removed.

More news to follow.

Thanks everybody, it is nice to be able to put a few words out of my head rather than them floating around the empty space.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 22 Nov 15 - 05:33 AM

Eric,
I'm glad that you are able to remain positive. Maybe there a possibility that a kidney transplant will be an option for you?   

Thank you for thinking of me, when you are going through so much. I'm finding that the worrying is making me very easily distracted, which causes too many mistakes. I'm having difficulty remembering very basic things and doing simple household tasks. My main focus is trying to find effective ways to extend my husband's time before needing dialysis.

If I think of any questions to ask you, I will. I'm still at the stage of trying to find the right questions to ask. We're going to attend a Canadian Kidney Foundation group meeting at the hospital in about 12 hours, if I can convince him to go. I'm hoping that will yield useful information, or maybe meeting some local contacts who have experience on this journey.

rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: MikeL2
Date: 21 Nov 15 - 05:21 AM

Hi Eric

Pleased that things are settling down for you. I agree about your comment about wives and their support.

I have had recent problems with all the attendant worries about anything concerning the 2 Big C". This meant that my wife had to take over the running of the home amid having to take me to hospital and/or doctors at least 3 times a week. She also had to undertake doing dressings etc on the days I didn't have to attend hospital etc.

She is a complete trooper and coped magnificently with all that was thrown at her.

It was great to have people interested and concerned about me and my health but few ever thought to ask how Mrs Mike was coping.

Kind thoughts and best wishes

Regards

Mike


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 20 Nov 15 - 07:50 PM

Hugs for you and for Mrs. Viking.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 20 Nov 15 - 05:52 PM

All well here. Being very positive and begining to get used to the early start (06;30) Hooked up by about 08;15 (Using size 10 knitting needles now.haha) Four and a half hours, aprox, sitting listening to the radio, watching TV or one handed using the ipad or iPhone. We have a good atmosphere as we are all in the same boat.

Rag doll, If there is anything I can tell you, that I may know the answer to, please ask. I lived with little information, other than that which I found out myself. If there is a shortfall in the NHS, it is that there is little consideration given to the effect of a debilitating condition on both partners. The lovely Mrs Viking has been steadfast, looking into a pit that opened up before her. She has seen me collapse in the road in agony, spend evening after evening falling asleep, loosing physical strength and muscle. Visited me in hospital several times and fought my corner when I couldn't. People ask her how I am, they never ask how she is. So how are you, how are you holding up? Good people are around you.

This is for the rest of my life, and we will live with it, adjust and work round it. Mrs Viking will go off and complete some of the dreams we had. She hasn't got it and must still be alive to flourish and live.

Thankyou all for your support. Tomorrow awaits. The size 10's are waiting.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 20 Nov 15 - 05:21 AM

http://mudcat.org/thread.cfm?threadid=158428#3749608

Eric,
I'm sorry to hear that you've had these difficulties, but I very much appreciate you writing about them here as it's not things that we've been told about. If/when my husband goes on dialysis we'll be better prepared to try to act quickly in similar circumstances or to keep calm, knowing that things can and will improve.   

I hope that your future treatments will be much less eventful and very effective.

Hugs,
   rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Janie
Date: 14 Nov 15 - 02:14 PM

Thinking of you.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 13 Nov 15 - 09:08 PM

It sounds like the excitement (?) continues. I hope the rest of your treatments are non-events and a matching kidney is found soon.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 13 Nov 15 - 04:32 PM

Hi all. Tuesday and Thursday went fine except the last few minutes when I bent down to put on my shoe and had a huge blow out across the room, over the dialysis chair in a five foot arch. All was well as I grabbed it quickly and was seen to. It looked spectacular !!! (And made a right mess) We will see what tomorrow brings.

To answer Gargoyle...Just after number 1 daughter Freja was conceived, I was rear ended by a 60mph car. It gave me a whiplash, which got better but I was left with a miniscule ache in my side. So I went to the doctor, who arranged a scan. It is a genetic disease. "1% and looking for a transplant ? I am at 5%.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Dave the Gnome
Date: 11 Nov 15 - 08:17 AM

Good luck for the next lot, Eric. I'll keep my fingers crossed that it does get better.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 10 Nov 15 - 10:31 PM

Oh, Eric, that sounds unpleasant (understatement)! I hope things go much better on Tuesday. Please let us know.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: EBarnacle
Date: 10 Nov 15 - 10:22 PM

Not to throw cold water but sometimes a fistula will simply enlarge and stay that way. It certainly looks scary, though. I hope yours is this situation rather than a blowout.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST,.farfelue
Date: 10 Nov 15 - 09:42 PM

Just curious...

My dear theatrical friend has watched her kindney function numbers drop over three years ... from 50 (liveable) to 21 (kidney transplant search begins).

What FIRST tipped you off to a serious problem?

Sincerely,
Gargoyle

< font color=lime.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: GUEST,Noreen still at work
Date: 10 Nov 15 - 04:20 PM

Hi Eric, so sorry to hear you're having a less-than-pleasant time with the treatment.
Maeve's link suggests things are likely to improve... here's hoping.

Positive thoughts winging your way.

Nxx


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Subject: RE: BS: Dialysis, a step into the unknown.
From: maeve
Date: 09 Nov 15 - 06:53 PM

Eric, this article may be helpful: Correct and prevent bruising...

Blowouts: https://bigdandme.wordpress.com/2009/12/27/blow-outs-in-dilaysis-the-what-how-why-and-what-to-do/


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Subject: RE: BS: Dialysis, a step into the unknown.
From: Eric the Viking
Date: 09 Nov 15 - 05:30 PM

What an eventful week....The first session went relatively well other than my vein blew up like a golf ball. Thursday was a different matter. When the first needle went in, my vein collapsed and suddenly blew up, remove needle. Put needle back into a different bit if vein, second needle collapse vein, has to be removed and inserted in the wrong direction. Dialysis goes well until needle removal. Once the needle was out of my vein, up it blows to the size of a golf ball again. "Oh dear, shouldn't be like that" says nurse. So after a lot of painful pressure it finally stops getting big. My arm is so bruised that they could not dialyse me on Saturday. "Come back for Tuesday" was the statement. Still greatly bruised (Really !!) and sore, but back tomorrow morning for more needles.

I didn't think it was meant to be like that.

Any ideas?

At least, we made the best advantage of it and drove at high speed down to Yorkshire and managed to get to see number one sons' house and pay a visit, so every cloud has a sliver lining.

So I wait with trepidation for tomorrows events.


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Subject: RE: BS: Dialysis, a step into the unknown.
From: wysiwyg
Date: 06 Nov 15 - 11:53 AM

We're with you, Eric!

~S~


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ragdall
Date: 05 Nov 15 - 07:39 PM

Eric,
I'm glad that your first treatment went well. I hope that you're already experiencing improved sleep.   

Please keep posting updates and continue on in much better health.

rags


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Subject: RE: BS: Dialysis, a step into the unknown.
From: ChanteyLass
Date: 03 Nov 15 - 08:12 PM

Thank you, Eric, for getting back to us. Catch some ZZZs, now.


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