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LilyFestre-Mommy+Daddy+Baby...now on to Life!

Sandra in Sydney 20 May 10 - 03:58 AM
jacqui.c 20 May 10 - 06:35 AM
Bobert 20 May 10 - 07:26 AM
LilyFestre 20 May 10 - 07:39 AM
LilyFestre 20 May 10 - 07:42 AM
SINSULL 20 May 10 - 07:57 AM
wysiwyg 20 May 10 - 10:22 AM
Stilly River Sage 20 May 10 - 11:31 AM
katlaughing 20 May 10 - 07:24 PM
Bobert 20 May 10 - 08:01 PM
LilyFestre 20 May 10 - 08:50 PM
AllisonA(Animaterra) 21 May 10 - 08:22 AM
wysiwyg 21 May 10 - 10:43 AM
SINSULL 21 May 10 - 11:38 AM
LilyFestre 21 May 10 - 05:52 PM
jacqui.c 21 May 10 - 07:20 PM
Sandra in Sydney 21 May 10 - 08:45 PM
LilyFestre 21 May 10 - 10:48 PM
Bobert 21 May 10 - 10:53 PM
Sandra in Sydney 22 May 10 - 03:16 AM
jacqui.c 22 May 10 - 11:08 AM
Tannywheeler 22 May 10 - 11:37 AM
VirginiaTam 22 May 10 - 11:54 AM
LilyFestre 22 May 10 - 03:59 PM
LilyFestre 22 May 10 - 04:23 PM
LilyFestre 22 May 10 - 08:01 PM
Bobert 22 May 10 - 08:13 PM
katlaughing 22 May 10 - 11:33 PM
Stilly River Sage 23 May 10 - 01:17 AM
LilyFestre 23 May 10 - 01:55 AM
VirginiaTam 23 May 10 - 04:57 AM
Sandra in Sydney 23 May 10 - 05:28 AM
VirginiaTam 23 May 10 - 10:25 AM
katlaughing 23 May 10 - 12:20 PM
LilyFestre 23 May 10 - 12:27 PM
LilyFestre 23 May 10 - 12:51 PM
Ebbie 23 May 10 - 01:08 PM
Bobert 23 May 10 - 01:08 PM
LilyFestre 23 May 10 - 01:12 PM
gnu 23 May 10 - 03:31 PM
AllisonA(Animaterra) 23 May 10 - 05:11 PM
wysiwyg 23 May 10 - 08:18 PM
LilyFestre 23 May 10 - 09:03 PM
LilyFestre 23 May 10 - 09:39 PM
LilyFestre 24 May 10 - 03:35 AM
Sandra in Sydney 24 May 10 - 05:47 AM
katlaughing 24 May 10 - 08:47 PM
Stilly River Sage 25 May 10 - 01:08 PM
wysiwyg 25 May 10 - 04:08 PM
Ebbie 25 May 10 - 05:31 PM
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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Sandra in Sydney
Date: 20 May 10 - 03:58 AM

me too

sandra (sitting here with very sore legs, almost a permanent fixture)


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: jacqui.c
Date: 20 May 10 - 06:35 AM

Bitching is good. It gets out what is bothering you and doesn't let it sit and fester in your mind. So, go ahead and bitch, whinge, whatever you need to do dear. We're here and listening and understanding.

That said, I hope that today is a better day for you.

xxxxxxxx


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Bobert
Date: 20 May 10 - 07:26 AM

Womenz don't bitch... They offer constructive criticism...

B;~)


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 20 May 10 - 07:39 AM

Good Morning!!!

    Look at that sunshine!!!!   It's been missing for awhile in these parts and I'm glad it's found it's way home.

    Bobert.....thanks for the reminder.....I WILL think about what


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 20 May 10 - 07:42 AM

I will think about what the chemo is doing to those cells, especially today. I've already had a quiet morning conversation with my body about how we are going to handle this pain today. It has started now but there's this calm wrapped around me this morning that I don't know quite how to explain....almost like a heavy quilt on a cold winter morning.

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: SINSULL
Date: 20 May 10 - 07:57 AM

Michelle.
I continue to be amazed at how much you endure without bitching. I would be holding a continuous whine fest from Day 1. I don't suffer quietly.
Bitch away.
And listen to Bobert. He knows.
Mary


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: wysiwyg
Date: 20 May 10 - 10:22 AM

LF, yes, bitching here is venting, and bitching elsewhere is not helpful to relationships as I am sure you know. It can be a hard balance to keep! :~)

I think I can tell the venting here from the behavior out there-- which tells me that you are not only doing the best you can, but that you are, from this view, doing really WELL under a really HARD situation. And THAT is the flashing red L I mentioned earlier.

(caps to save time, gotta run all day)

~Susan


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Stilly River Sage
Date: 20 May 10 - 11:31 AM

What Bobert said, in his last couple of posts. Too bad he isn't nearby, might be able to consult about the California and New Mexico approach to chemo after effects. I hear the medicinal varieties are being used to help with PTSD also. There was a story this week on Morning Edition.

SRS


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: katlaughing
Date: 20 May 10 - 07:24 PM

Michelle, you are SO on the right track with the yoga. Check out this article: Yoga & Sleep for Cancer Survivors.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Bobert
Date: 20 May 10 - 08:01 PM

Yeah, Magz....

I tried to get Michelle tio send Pete down to the local high school to cop some weed but then she said she couldn't handle the smoke so then I brought up the brownies but...

Yeah, I wish that every sate has medical marijuana laws in place so that everyone could benefit from the goodness of pot... I mean, one of the chemo drugs, Taxol, comes from a plant (tree, to be exact) so I think it would be only fittin' to use Taxol and Cannibus in conjuntion with one another...

We have some very messed up laws that caasue people to suffer needlessly... Makes me sick to think of people having to indure bad side effects when it is proven that pot helps and helps alot...

B~


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 20 May 10 - 08:50 PM

Taxol? I take Taxol....freakin' beast.

Today went well. I didn't do much but given that it's Day 3 for me, I'm happy with what I did.

I got my shower, drove 30 miles to a church luncheon where they donated $100.00 to my Relay for Life team!!!   I am VERY excited about that!

I got to visit with a tech who also happens to be my friend...she did my ultra sound early on and I KNEW from the look on her face and tone of her voice that something was up way early on but of course, she can't divulge that kind of stuff. She was very happy to see me and I was happy to see her.....gonna do something together this summer....something we've been putting off for way too long.

I drove home, met my husband on the porch and he said, "How ya doin'?"

"Sleep." I said. "I need sleep." I walked right by him, upstairs, got in my night clothes and crashed for a few hours.

When I got up, I sat out on the front porch with Pete and he brought me pots filled with dirt and I planted some herbs. It felt good to poke around in the dirt....I only got 8 planted but that was plenty of activity for me and required breaks for my hands. I planted 2 of each of these: oregano, thyme, rosemary and lavendar. It was incredibly relaxing and we enjoyed ourselves. I now have a cirle of herbs in my front yard.   :)

I did not try the new pain meds.....I think they are for heavy duty, extreme pain....and while I had pain today, I don't think that heavy of a drug was necessary.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: AllisonA(Animaterra)
Date: 21 May 10 - 08:22 AM

Good morning, sweetie- how are you feeling today?


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: wysiwyg
Date: 21 May 10 - 10:43 AM

LF, as you probably know, we're headed out of town shortly for a quick hop. But only a cell phone away.

~Susan


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: SINSULL
Date: 21 May 10 - 11:38 AM

An interesting article on Yoga and chemo:
http://abcnews.go.com/Health/AlternativeMedicine/yoga-cancer-patients-fatigue-insomnia-treatment/story?id=10704310


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 21 May 10 - 05:52 PM

Hello My Friends,

    Today started out rough.....lots of nausea and I had to be on the road. Ugh. I travelled to Geisinger (about 2 hours away) with my mom today for her post-surgery check up. Everything with her is WONDERFUL!!!   Part of her surgery involved a scope to make sure her ovaries are ok and they are!!!!! I know I don't have to tell you that I cried tears of relief for her!!!!
    I pushed myself around the hospital in a wheelchair....too much walking for my legs today. And let me just say..I should do that more often...what an awesome workout for my upper arms!!! I'm NOT a great driver of wheelchairs...damn doors and corners!!! ;)
    We stopped at a nursery on the way home and because I so loved last night's potting adventures, I picked up some more herbs...basil and parsley and also 3 larger pots of dark purple salvia...LOVE IT! We stopped for Thai food for lunch and I think I ate about 1/4 of a cup of food and brought the rest home....food just isn't too appetizing today and that's ok. We also stopped at a farmer's market where I got a round loaf of the best oatmeal bread ever, a few bunches of rhubarb (gonna make rhubarb crisp and freeze a bunch) and a 6 inch rhubarb pie. Mmmmmmmmmm. Mmmmmmmmmmmmmm. For today, I am finding that food looks and smells good but a few bites and I'm done....weird, but true. Maybe it will help get off the multiple pounds I gained during the last treatment when I couldn't get enough to eat!!!!
    Bone pain kicked in around 2:00 so I had some more percoset. I'm leery of the new meds...not sure why.....I think I want to know that I have something REALLY powerful if I need it if that makes sense.
    We had bear tracks in the driveway...mama bear and baby bear....very sweet...disappeared into a tangled mess of honeysuckle.
    Also, I just got off the phone with my nana who told me how proud she is of me and how I've been handling things. Compliments like that don't come often in my family and I think I'm still beaming!!! :) She was also telling me how *CUTE* her cardiologist is...LOL....cracks me up!
    I'll stop for now, although if you were here with me, I'd put some coffee or tea on and we could sit on the porch and chat awhile. My mouth is working better than my hands (which are swollen and painful today) so I'm going to stop typing for now.
    Love to you all!

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: jacqui.c
Date: 21 May 10 - 07:20 PM

What a lovely day you've had, in spite of the chemo reaction. I am so glad.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Sandra in Sydney
Date: 21 May 10 - 08:45 PM

me too - it's a rainy day here in Sydney & your mention of the Farmers Market reminded me that our wekly (inner city) farmers market is in the local park. I could use some tomatoes & maybe other produce, but don't feel like venturing out. Tho the baker has some yummy lunch-type stuff ...

sandra


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 21 May 10 - 10:48 PM

Pain is different this time. It seems to jump about....mostly in my hands, the backs of my hands, knees, shins and tops of my feet. I'd give it a 7 on a scale of 1 to 10....the only way I can describe it is that it feels like someone has an aluminum bat and is trying to beat their way OUT of my bones from the inside out.

Today is Day 4. This will pass. It will pass. I know it will pass. Oh please pass SOON!!

*whimper*


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Bobert
Date: 21 May 10 - 10:53 PM

This too shall pass...

Just keep thinking that as bad as you may feel them bad boy cancer cells is fellin' one heck of a lot worse... Gotta just keep thinkin' that way and all this will be over real soon and them bad boys will all be outta you forever...

B~


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Sandra in Sydney
Date: 22 May 10 - 03:16 AM

sending another hug

sandra


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: jacqui.c
Date: 22 May 10 - 11:08 AM

(((((((((Michelle)))))))))

I hope you're feeling a bit better today.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Tannywheeler
Date: 22 May 10 - 11:37 AM

Well, friend, I've been avoiding looking into this since I've been back. During my gone time hubby found he'd contracted lung C-word. We were finally able to get to surgery(when they discovered they'd put it off so long it had tripled in size), which went pretty well, but lasted 3 times as long as they'd expected. Then recovery(9 days in hosp), more recovery--& on to chemo. Monthly for a while. This all involved trips to VA facility at a distance of over 80 miles each way: exams, tests, more exams, more tests, prep work, the surgery, the checkups, then each of the chemos, then more checkups. The good news is: SO FAR IT'S WORKED!!!! C-word still gone! God grant you the same. It's no fun for the ones who love you & accompany you, but it's even less fun for you going through the mess. I tried to avoid thinking about it, but couldn't always. May your outcome be as successful as ours. Tw


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: VirginiaTam
Date: 22 May 10 - 11:54 AM

wishing you marked relief from pain, Lilbit. This is the home stretch innit?

And what Bobert said about how bad the chemo makes you feel, visualise those cancer cells doing a last gasp before they shrivel up and then evaporate.

Yeah...Take that you evil little bastards!


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 22 May 10 - 03:59 PM

Tammywheeler....EXCELLENT NEWS!

Today is my worst day so far this cycle. Very weak. Tired. Out of breath extremely easy. Pain level high at times. Feeling useless. Cancelled bus trip I was supposed to go on tomorrow to Antietam. There's just no way I can do it. My friend was very understanding.

I have developed a sore throat and cough too. Ugh. My body is just wore out. Will call the Dr. on Monday if it persists.

Probably won't get to church tonight. I am just too tired.
,
Michelle who is in bed with a book, hot lemon tea, Vick's vapor rub and sale papers for the week....probably won't look at any of it.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 22 May 10 - 04:23 PM

Doing my best to think good things....if I feel this bad, there must be a LOT of cancer cells being stopped in their tracks today.

Pain meds to the rescue. Took 1. Am allowed to take 2 at a time and am seriously considering it.

I just want to howl.

Would be fun and probably more effective if we all could do it together in a big circle......


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 22 May 10 - 08:01 PM

I do NOT know what my deal is. You'd think by this point, I'd have it figured out to just TAKE THE PAIN MEDS AND GO TO BED and then to wake up and TAKE MORE PAIN MEDS. It's amazing how much better I feel after taking the medication and putting myself into time out for a nap.

I just don't want to be hooked on pills I guess or to have the effectiveness of them wear out....but for crying out loud (Note to self)...TAKE THE DAMN PILLS ALREADY.

Tonight I am leaving the Land of the Living and taking the express route to Land of Fog. I will miss you all and if I remember, I'll send you a postcard.

XOXOXO


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Bobert
Date: 22 May 10 - 08:13 PM

Michelle,

I fully understand you not wanting to get strung out on pain pills but...

...this is a difficult time that you are going thru so, please, take 2 pills and be glad you got 'um... The bad guys that yer killin' off would love to have some of them pills... Tough... They'll just have to deal with it... You??? Not!!! Take the pills, go off to Fogsburg and be happy knowing that yer right on the verge of being crowned...

...Queen of the 10,000 Club!!!

Nighty, nite... don't let the bed bugs bite...

b~


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: katlaughing
Date: 22 May 10 - 11:33 PM

Hmmmm...I seem to remember having to tell you to take the Xanax waaaayyyy back. It's okay to use the meds when you are going through such a MAJOR event as you have been. I know you don't want to get strung out on meds, but you won't because you aren't wired that way. As you say, Take the Meds and let it go, already!**bg**

Sleep tight and sweet dreams. See ya on the flip side!

luvyakat


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Stilly River Sage
Date: 23 May 10 - 01:17 AM

Michelle, the difficulty here is that there is way more information out there about drug abuse than the use about appropriate use for pain control. When you're fighting pain, you're not going to get strung out on those pills. They're doing what they're supposed to do.

My mother had a very painful death, from metastasized breast cancer (into the bones of her spine). The hospital wanted patients to request pain medications when they needed them, my mom and my sister (her advocate) wanted them on a regular schedule, but the hospital wouldn't comply. And when my mom did ask for pain medications, it typically took the nurse over an hour to bring it. By then the pain was so bad, and the medicine, when it acted, knocked her out for a couple of hours. She hated that excruciating pain/sleep/little zone of comfort pattern. Much better to take it as needed, or on a regular schedule. You're lucky you can choose, so choose what makes you feel better.

Mom finally had enough of the health care system and went on strike. She refused all food and medications, and they put in (I think) an IV for fluids and a pump for pain meds only. She died two weeks after her first hospitalization, but she could have lived much longer without pain with prescribed long term pain treatments (targeted radiation to kill nerves in the spine that were responsible for the pain). I place the responsibility for her early death on the miserable health care system--they're so busy trying to operate within the finances as they exist today that they can't treat patients when they need attention. You shouldn't have to negotiate on things like this.


Sorry to introduce this sad story, but the point is that whether you're going through chemo or at the end stage of life, pain control is important and the medications will control the pain. They won't make you high and you won't get hooked, as long as you use them to treat pain.

Take what you need, when you need it. Get the sleep you need, and get past this hump. We're looking forward to the dynamo you become when you're back feeling better again. That Michelle is absolutely stunning!

SRS


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 01:55 AM

SRS,

   I'm so sorry. :(

    You are very right, I am so lucky to have the relief available and I do need to use it. In fact, I have an overabundance of pain meds as both my doctors tell me that there is no reason I need to be in pain. Before my surgery ever happened, I asked about pain control/pain management and was told that if I was in pain, I needed to let them know and it would be taken care of, period.
    I get cloudy when I hurt so much and don't think straight. As of now, I've had 8 hours of pain management and everything about ME is in a better space...perhaps sleepy and kinda foggy but I can think.
    I have asked Pete to PLEASE remind me to take the meds...there is no reason to waste another day like I did today.
   
   On a completely different note, I wrote to the American Cancer Society to see about being a volunteer driver (of course this is for when I am feeling well and through the predictable week of ick)...taking people to their appointments. They need drivers and it makes me feel good to help someone else.....lets me be useful. Also, I've inquired about a camping drum circle/yoga weekend for after my last treatment....I wrote to them explaining health circumstances and will see what they have to say.....I think the act of beating on something sounds therapeutic and a drum circle just sounds like FUN!!! I am a novice djembe player so it's a chance to learn something or to just get lost dancing to the beat!

   And SRS....thanks for sharing that with me.....you made me think.

Much love,

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: VirginiaTam
Date: 23 May 10 - 04:57 AM

Don't forget darling that pain is stress and stress is bad. If you get fuzzy for a time so be it. Just float. If you get addicted (which I doubt) then deal with that problem after you've kicked the cancer.

Get it? Get your priorities straight. Fight for life first. Then for the quality of life.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Sandra in Sydney
Date: 23 May 10 - 05:28 AM

beautifully put, Tam

sandra (who often forgets to take effective pain relief!)


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: VirginiaTam
Date: 23 May 10 - 10:25 AM

aahhh but Sandra... codydramol is trading one kind of pain for another. Constipation and bad headache when it wears off. If I can cope with joint pain which is not threatening my life, then I do.

I have been much better these last couple of weeks. Lots of walks. I am chuffed.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: katlaughing
Date: 23 May 10 - 12:20 PM

Michelle, my apologies for sounding smug or bossy in my last posting. I was just trying to illustrate there is a pattern there of you not wanting to take meds and then recognizing it's okay.:-) You do sound SO much better, today.

SRS, thanks for sharing what must be a very painful memory.

One thing I noticed at the hospitals here is they are big on taking care of pain. They have a chart they show patients which helps them to identify the level of pain and they treat it. Like Tam said, though, some of the meds can leave one with other pain, esp. constipation and, in my experience, the hospitals were not good about warning about that and how to combat it.

Have a good day, Michelle.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 12:27 PM

Kat....I didn't think you were bossy at all...nobody was. And I DO need a reminder to take those meds and that it's ok. For the life of me, I don't know why I am so weird about it.

Today is a MUCH better day. I am making out grocery lists, reading, fussing on the net, sipping hot tea and just taking it easy in general.

Before the last treatment, I bought myself a paint by numbers kit...chickadees and purple flowers......kinda cheesy but fun!

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 12:51 PM

I posted in the Accountability thread that I had gained 13 pounds during the last chemo cycle and now, 6 days after my 5th treatment, I am down by 7 pounds. Dr. said not to worry about the gain and to just listen to what my body is asking for. I was hungry ALL THE TIME inbetween cycles.

Susan,

   You mentioned something about weight stuff and chemo and what you have seen for two others (probably more too). The thing is, there are SO many kinds of cancer and even more combinations of drugs that it's hard to tell what's going on when comparing individuals. From what I have read, for ovarian, uterine and some breast cancers, weight gain is common. As you know, I've worked very hard to lose quite a chunk of weight. I try NOT to focus on that now as it all depends what my body is able to handle and I'm not going to push when it comes to food (not necessarily pointing to you or anything you said....I'm just sayin...). I've been very happy with maintaining my weight within a 3 pound range since January (lost a huge chunk in December strictly from anxiety). So 13+ pounds concerned me....that's an awful lot for 21 days.
    And yes, my platelets did THANKFULLY go up, by quite a bit. They know that nutrition doesn't help with that (no treatment other than transfusion) BUT my intense hunger could have been a result of my body making those platelets.
    In anycase, I'm glad some of the weight has come back off and even more pleased with the increase of platelets.
    Know what else is happening? I'm finding more and more longer hairs on my head...still virtually invisible if you aren't looking for them...but baby...I look every chance I get!!!!!!!!!!!!!!

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Ebbie
Date: 23 May 10 - 01:08 PM

After chemo-driven hair loss, my sister's hair came back swirly curly. Very pretty. When she was a girl she had tendrils of curls on her forehead and later it was wavy, I remember, but evidently she all along was meant to be a curlilocks.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Bobert
Date: 23 May 10 - 01:08 PM

Two short weeks from now and this will all be over... The chemo and the cancer!!!

Until then, take yer pills, Michelle...

Doc Bobert the Nag


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 01:12 PM

Bobert...
    Thanks for the reminder! I almost can't imagine it and in the same breath am SO excited to think about growing energy and getting my life back!!!!!!!!!!!!!!!!!!!!!

Michelle who hopes to have curls but will be thankful for whatever hair grows back in!!!!!!!!!


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: gnu
Date: 23 May 10 - 03:31 PM

Indeed, soon... ya done good.


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: AllisonA(Animaterra)
Date: 23 May 10 - 05:11 PM

Back after two very busy computer-less days, but have been thinking of you through them all. I had nothing to add to the wisdom of this circle, but lots of love as you slog through the journey.

And yes, wouldn't it be great if we could stand in a circle with our arms over our shoulders and howwwwwwwwwlllllllllll the pain away!

Full moon this week- I may just go out into my woods and do a little howlin' on your behalf!


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: wysiwyg
Date: 23 May 10 - 08:18 PM

I'm not going to push when it comes to food (not necessarily pointing to you or anything you said....I'm just sayin...).

Keerect-- main thing is, you trust the body and do not stop!

~Susan


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 09:03 PM

Struggling with frustration and my energy levels today. Would be quite happy to pitch a full blown tantrum. This article helped me put things in perspective...more easily read if printed out, but I read it online just fine....just have to scroll a bit. Well worth the time to read it if cancer has touched your life or someone you love.

http://caonline.amcancersoc.org/cgi/reprint/49/3/178.pdf


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 23 May 10 - 09:39 PM

Planning a photog adventure for next weekend.....something to look forward to and focus on is a good thing!


YAY!!!!!!!!!   I can't wait.....time to charge all the cameras...might even pick up some film too....uh huh...FILM!!!!!!!!!!!!

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: LilyFestre
Date: 24 May 10 - 03:35 AM

Someday, it would be nice, to have a decent night's sleep.....peaceful sleep without the horrific dreams of late.

It is 3:34am. I think I'll get up, have a drink of water, shake off the latest dream and tuck back in with a book.

Arg.

Michelle


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Sandra in Sydney
Date: 24 May 10 - 05:47 AM

happy reading

sandra


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: katlaughing
Date: 24 May 10 - 08:47 PM

How're you doing today, Michelle? I had a restless night with a book, too. Made for a slow, tired day, but it also confirmed to me how important uninterrupted sleep is! You will get there. Until a couple of weeks ago, I was still having a lot of trouble with that; finally the biofeedback and getting over depression has had an effect and, until last night, I've had some very good sleep nights of at least 3-4 hours at a time, up for a few minutes, then another 2-3 hours. I have not been a good sleeper for years, so if there is hope for me, I know there is for you, too.:-)

You're almost done and then it's going to be so nice...no more constant trips to the chemo, the doc, the lab, etc. Just once in awhile and you can get back into your routine of yoga, gardening, cooking, cleaning, reading, whatever AND counting those curly hairs!

{{{{{HUGS}}}}}

kat


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Stilly River Sage
Date: 25 May 10 - 01:08 PM

Pretty soon she's going to sit up again and realize she feels great. And get a bunch more stuff done in preparation for that last treatment. We're all looking forward to that last countdown!

SRS


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: wysiwyg
Date: 25 May 10 - 04:08 PM

:~)

She is often quicker than that. Sometimes when we don't see a post here-- I assume that it's because she is OUT having FUN.

She is very good at knowing when to do that, and DOING it, BTW. (In that, I am HER student.)

~Susan


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Subject: RE: LilyFestre - Only one more chemo to go!!
From: Ebbie
Date: 25 May 10 - 05:31 PM

Twelve HUNDRED. Neat.


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