BS: Mudcat hugs requested: 13-yr-old with leukemia

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: SINSULL
Date: 29 Oct 09 - 11:31 AM

That is good news, Lynne.

Here's hoping that next year she can Trick or Treat as Lady Godiva.

Mary

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 29 Oct 09 - 11:21 AM

For those who wanted to be updated on this, Alicia came out of hospital for a week yesterday after her first batch of chemo. She has no hair and may not leave the house. The girls don't yet know if they will be allowed to visit her or not.

The good news is that, before leaving hospital she had her bone-marrow tested and there is, at present, no sign of the leukemia.
The first round score is:
Alicia 1 leukemia 0

Next week she will go back in for the next blast of chemo.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 25 Oct 09 - 06:47 AM

Oh Alex, I'm so sorry. I don't know if I would cope with the loss of a child, but I guess you have no real choice.

Alicia has not yet read this thread. I'm wondering if I should perhaps copy and paste most of the messages so Shady can print them off and show them to her next week when she is briefly out of hospital. There was a number of other messages which, while sympathetic, I think may be tactless to show her at this point. If I do it that way people can say what they feel they need to and I can edit them if I think it necessary.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: VirginiaTam
Date: 25 Oct 09 - 05:28 AM

So sorry for your loss guest Alex. There is a handful of us on this forum who have lost children.   

However, we try to keep "positive" thoughts flowing in these threads, especially as they may be viewed by the person (and family) to which they are dedicated.

If you have an interest in music, please visit above the BS section and join the forum. You might make some friends, and get comfort in both above and below the line discussions.

Maybe a moderator will, for Alica's sake, remove the post from guest_Alex and even this post with appropriate explanation?

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: GUEST,Alex Miller
Date: 25 Oct 09 - 05:09 AM

All the best to Alicia and her family. I lost my youngest son, Grant, to this disease just over three years ago. He had been diagnosed with leukaemia at age 12. It was Acute Lymphoblastic Leukaemia (ALL), that time round, and chemotherapy lasted for two + years. Three years later on it was AML. The doctors here said there was a 75% chance of complete recovery at his age. (The older you are the lower the chances for a complete cure, apparently) Unfortunately, at 16 plus, he turned out to be in the "25%" bracket.
I pray there will be a better outcome for Alicia.

Alex

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Hawker
Date: 25 Oct 09 - 04:08 AM

Sending healing thoughts and love to all of you. No hair? WOW what an opportunity to have fun with wigs and hats. Every grey cloud can be turned inside out to reveal its silver lining, Hope, Love and Courage I send by the bucketful; :0)
x Lucy x

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Gweltas
Date: 25 Oct 09 - 01:19 AM

Best wishes for a GOOD OUTCOME.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: sing4peace
Date: 24 Oct 09 - 02:07 PM

Light surrounding you all...
Peace and comfort,
Joyce

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: Sandra in Sydney
Date: 24 Oct 09 - 09:47 AM

more good wishes winging your way

sandra

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Neil D
Date: 24 Oct 09 - 12:16 AM

Much progress has been made in fighting this disease so keep up hopes. We are also sending our wishes for total remission.
                                    Neil and Christina

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: VirginiaTam
Date: 23 Oct 09 - 02:47 PM

Lynne... check your PM box

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: RangerSteve
Date: 23 Oct 09 - 02:47 PM

I missed this, somehow. You've got my thoughts heading your way.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 23 Oct 09 - 09:41 AM

Thanks again guys, it all helps.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Peace
Date: 21 Oct 09 - 08:02 PM

Best wishes and prayers for the young lass.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Hollowfox
Date: 21 Oct 09 - 04:59 PM

Sorry I missed this thread earlier; the good thoughts and assorted juju are going out as I type, and a special, genuine purebred midwestern %$@#-reduction candle will be fired up for her as soon as I get home (within the hour).

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 21 Oct 09 - 03:28 PM

To keep you updated, Alicia is coming out of hospital for a week next week. The kids can go and visit her at home provided they don't have colds or anything. She seems to be keeping her spirits up. I don't know if her hair has gone yet

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 30 Sep 09 - 05:22 PM

Thanks again guys. I'm not sure if Shady has read all this yet. She's going to copy it into an e-mail to Alicia since they can't visit for a month now. I wasn't sure that sending her the link was necessarily a good idea. The stall/auction idea is a good one and I'll put it to Shades. There are aslso posibilities in the hat idea...perhaps we could build it up to a hat fashion show to raise money?

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Linda Kelly
Date: 30 Sep 09 - 04:17 PM

Tell her to be full of hope. this disease in childhood is eminently curable. Love and hugs Linda

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: katlaughing
Date: 30 Sep 09 - 01:00 PM

Lynne, if you need goods for an auction/sale, please let us know. I would be happy to contribute an all-the-way-from-Colorado custom-designed necklace and earrings using semi-precious stones and other natural materials.

{{{{{{HUGS}}}}}

kat

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: SINSULL
Date: 30 Sep 09 - 10:36 AM

Maybe we can each send her a hat or baseball cap from our to show support and help her past the hair loss. What do you think, Lynne?
SINS

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: alanabit
Date: 30 Sep 09 - 09:55 AM

Here's one more well wisher. I hope the treatment works and that she returns to bouncing good health soon.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 29 Sep 09 - 03:59 PM

Shady tells me that Alicia has Acute Myeloid Leukaemia (AML) which is the most common type. Apparently the acute forms are more treatable than the chronic forms.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Pistachio
Date: 29 Sep 09 - 02:24 PM

A friends' son was permitted by school (as an exception to usual rules) to be sponsored to shave his head - in support of his sick friend. He raised over £1000 and made so many more people aware of Camerons' illness and how medical treatment affected him. I'm sure friends will think of other less drastic things to be sponsored for. Even paying 50p or £1 and wearing a silly hat or headscarf for a school day - puts a smile on faces and money in the bank!

Mudcat((((((((((((((((((((((Alicia)))))))))))))))))))))))))tacduM

H.x

The Teenage Cancer Trust 'TCT' is another to get in touch with.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 29 Sep 09 - 05:44 AM

Villan, yes she is in UK. I will have a look at the link. Thank you. She does have her own appointed Macmillan nurse though, who is liasing with school and supporting her and her family.

I'm not sure if Shady knows what type it is...I'll ask her. She and all the friends are learning very quickly. Shady went to visit again last night but the treatment starts today and they won't be able to visit for a bit due to risks of infection. Alicia's father is going to sort her out a laptop and dongle (whatever that is!) so she can get on line and communicate with her friends that way.

Meanwhile the girls have spoken to their head of year about doing some fund-raising. Since they are all musical and performing sort of people it has been suggested that maybe they think about putting on a concert with the help of the school. Other things have also been suggested, such as a cake stall, various sponsored things etc.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Rasener
Date: 29 Sep 09 - 04:38 AM

My hugs thoughts and best wishes to this young lady and hopefully we will hear some very good news in the near future after her treatment. Stay strong Alicia.

MBSLynne, is this young lady in the UK?

If so, has anybody from CLIC Sargent got involved. They do a wonderful job supporting both the youngster and their family through this.
http://www.clicsargent.org.uk/Home

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: Genie
Date: 28 Sep 09 - 10:46 PM

{{{{{{{{{{{{{{{ Alicia }}}}}}}}}}}}}}}

And healing visualizations too.

Genie

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: Janie
Date: 28 Sep 09 - 09:30 PM

More good thoughts wending their way across the wide, wide sea.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Gurney
Date: 28 Sep 09 - 08:35 PM

A very good friend of ours is at this moment on the mend from this illness, her hair growing back, looking forward with good nature and determination.
The same to you, Alicia.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: Amos
Date: 28 Sep 09 - 08:13 PM

Recent news from PhysOrg:

Scientists have discovered a completely new route by which leukaemia develops, according to research published in Nature this weekend.

Scientists from the Wellcome Trust/Cancer Research UK Gurdon Institute at the University of Cambridge studied a gene called JAK2 which is faulty in many cases of leukaemia - but until now its role was not clear.

They discovered that if JAK2 is faulty, the cell's meticulously controlled message system 'short circuits'. As a result many genes are switched on and off inappropriately and a completely new cell signalling route by which leukaemia can develop is turned on.
The scientists found that the enzyme made by the JAK2 gene is also located inside the cell nucleus and plays an important role to control how genetic information is used by the cell. Previously it was only known to be located on the inner surface of cells - acting as a messenger between the outside of the cell and the cell's nucleus.
The team discovered that the JAK2 enzyme acts in the nucleus to switch on and off a number of genes. It does this by changing the structure of histones (the proteins that pack and protect DNA) and which control the behaviour of many genes. The garbled messages from the faulty JAK2 gene lead to mismanagement of histones which results in catastrophic effects on the workings of a cell.

Lead author Professor Tony Kouzarides of the Wellcome Trust/Cancer Research UK Gurdon Institute at the University of Cambridge said: "This is a completely new route by which cancer can develop. In this exciting research we have revealed new unidentified parts of the cell's messaging system which can become faulty and lead to leukaemia."

---

Perhaps this will lead to a solution.

Warm regards to Alicia and all who watch over her.



A

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leuk
From: VirginiaTam
Date: 28 Sep 09 - 05:39 PM

WAIT! Only a moment. A faerie friend will be along any moment with a message.

           .--.   _,
       .--;    \ /(_
      /    '.   |   '-._    . ' .
     |       \  \    ,-.)  -= * =-                     *
      \ /\_   '. \((` .(    '/. '
       )\ /     \ )\  _/   _/
      /  \\    .-' ~~~'--. /_\
     |    \\_.' ,         \/||                      Be well, Alicia
     \     \_.-';,_  _/'\ \||
      '.       /`\   (   '._/
        `\   .;  |    '.                   *
          ).'  )/|      \
          `    ` |       |
                 \/\/\/\/
                   '.|   |
                      \  '\__
                       `-._  '. _
     *                    \`;-.` `._                      *
                           \ \ `'-._\
                            \ |
                             \ )
                              \_\

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: GUEST,suzi
Date: 28 Sep 09 - 05:13 PM

Love and blessings to this litle girl , and may you all stay strong with her.

suzi...xx

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Jack Campin
Date: 28 Sep 09 - 03:12 PM

Well I just heard that she has the type which requires the six months of chemo not the two years. That's got to be good? I didn't even realise there were different sorts. They are to start the treatment immediately.

There are probably hundreds of different kinds of leukaemia known by now, and about as many different outcomes and appropriate kinds of treatment, ranging from "give up, nothing will work" to "no treatment is needed, you'll die of something else decades from now" - and in between, some kinds have very effective new treatments. It would help a lot for somebody to find out which she's got.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Art Thieme
Date: 28 Sep 09 - 01:56 PM

Here is a story. I hope it helps, and I send it with many hugs attached to it!

Friends of mine were walking home with their two children, a boy and a girl. This was after a h-u-g-e rain storm --- and the ground had turned into thick gooey mud. Every time they took a step forward, they fell back three steps.

They were afraid they would never get home.

The two kids put their heads together and thought hard about their situation. And they DID figure out a way out of the problem.

All three of them turned around --- and went in the opposite direction!!

They got back home faster than they ever had before!!

BE WELL QUICK...

(((((((((((((Art Thieme)))))))))))))

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Andy Jackson
Date: 28 Sep 09 - 01:07 PM

Good news Lynne. Keep it coming.

Andy XXXXXX

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 28 Sep 09 - 12:52 PM

Well I just heard that she has the type which requires the six months of chemo not the two years. That's got to be good? I didn't even realise there were different sorts. They are to start the treatment immediately.

Love Lynne

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: SINSULL
Date: 28 Sep 09 - 10:56 AM

Hardly fair that at 13 she shouild be facing anything more difficult than an occasional pimple.

That said, a candle will be lit tonight and prayers said.
SINS

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: katlaughing
Date: 28 Sep 09 - 10:31 AM

It will bring a little bit of fast growing up to them; with the great good wishes and all of the medical advances Alicia will be able to share that with them.

WARNING - FOLLOWING MAY BE TOO SAD FOR SOME TO READ, RIGHT NOW -



























When I was thirteen or fourteen, we lost a girl, Janie, in my school; this was near mid-1960s. I had known her in elementary school for a couple of years, then we moved on to different circles, but she was always there. Everyone at school loved her. She was ill off and on and we missed her. Then she couldn't come to school and the next thing we knew, we were threatening a sitdown in the halls of school if they didn't let us out for her funeral. They did and I believe it helped us to understand our own mortality a little bit, plus it helped to share our fears and sorrow. We would have traded all of that to have her back, though.

Thank goodness this does not have to be the case these days; treatments are so much better.

Sorry if this causes too much pain or fear.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Keith A of Hertford
Date: 28 Sep 09 - 09:02 AM

Fondest thoughts to you for the hard times ahead.
Please remember that the diagnosis is not as bleak as it once was.
Be strong.
keith.

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: Bryn Pugh
Date: 28 Sep 09 - 08:52 AM

Love and hugs to all, especially the little lass.

May the Great Mother and the All Father heal and comfort.

So mote it be.

Erica and Bryn

Subject: RE: BS: Mudcat hugs requested: 13-yr-old with leukemia
From: MBSLynne
Date: 28 Sep 09 - 03:31 AM

Thank you guys. Reading all these has brought tears to my eyes..again.

I remain convinced of the good that these sort of thoughts and prayers do, which is why I asked. One can always count on Mudcatters (and folkies generally) to give love, care and support.

Deidre, it has been occuring to me that this will make them all grow up rather fast. It will hopefully make them stronger though. Shady and some of the other friends are going to talk to their head of year today about fund raising for leukemia research.

Love Lynne

Subject: RE: BS: Mudcat hugs requested
From: Sandy Mc Lean
Date: 27 Sep 09 - 09:31 PM

I lost a niece to leukemia before treatment became so effective. In the intervening 30 years medical science has made great advances. Treatments are still pretty rough but the outlook much better. Things like hair loss are devastating for teenagers but thank God the outlook in the long run is so much brighter! With all of my best wishes,
               Sandy

Subject: RE: BS: Mudcat hugs requested
From: Donuel
Date: 27 Sep 09 - 08:16 PM

Take heart that treating childhood leukemia has made the most progress of cures and remissions compared to other cancers.

In the old days leukemia seemed like a death sentence, but not anymore. After all the atmosheric testing in the 50's and 60's the rate of childhood leukemia went up 900%, an astonishing increase.

But today the incidence is very small and the treatments are excellent, effective and expensive.

Hugs all around but there are plenty of good solid reasons to be of good cheer and remain honestly positive.

Subject: RE: BS: Mudcat hugs requested
From: Maryrrf
Date: 27 Sep 09 - 07:40 PM

Sending rays of white light from Virginia.

Subject: RE: BS: Mudcat hugs requested
From: katlaughing
Date: 27 Sep 09 - 07:24 PM

And from Colorado, too. May the great good spirit infuse her with healing, completely and quickly. I give thanks for this or something better for the highest good of all concerned. So mote it be!

{{{{{{LOTS O'HUGS for ALL}}}}}}}}

Subject: RE: BS: Mudcat hugs requested
From: skarpi
Date: 27 Sep 09 - 07:22 PM

Big hugs from me
prayers and candles are already on .

all the best Skarpi

Subject: RE: BS: Mudcat hugs requested
From: Sandra in Sydney
Date: 27 Sep 09 - 07:17 PM

big hugs to Alicia, her family & friends from the the other side of the world

sandra

Subject: RE: BS: Mudcat hugs requested
From: John J
Date: 27 Sep 09 - 06:46 PM

Positive thoughts and best wishes coming from Cheshire!

Lots of love and hugs,

John

Subject: RE: BS: Mudcat hugs requested
From: Herga Kitty
Date: 27 Sep 09 - 06:09 PM

Big hugs from me and Derek. Having you, Shady, Richard and Ted as friends is a good start!

Kitty
xxx

Subject: RE: BS: Mudcat hugs requested
From: BusyBee Paul
Date: 27 Sep 09 - 04:06 PM

She can have every hug I've got in me today, except those I need to spread amongst her friends. This will make them all grow up quicker than they should or you would like. I hope that in amongst the angst they find plenty to share laughs about. I'm sure you parents will make certain that they do.

Please keep us updated, we can send more hugs as they ripen!.

Deirdre

Subject: RE: BS: Mudcat hugs requested
From: number 6
Date: 27 Sep 09 - 03:32 PM

positive thoughts, hugs of healing and hope from the Port City of New Brunswick.

biLL