BS: DB's daughter update

Subject: BS: DB's daughter update
From: Dharmabum
Date: 27 Jan 11 - 11:39 AM

Well,it's been about a year & a half since my daughter's first signs of a T.B.I.(traumatic brain injury)appeared.
I've accepted the fact that this has changed both of our lives,although,periodically,I'm reminded just how much.

About two weeks ago,Shalisa had a seizure.
This is the first one that I'm aware of,& honestly,the first one that I've ever witnessed.
I'm glad to say that she recovered in about a minute or two,& has no memory of it happening.
I'm also happy to report that I managed to keep it together & did,what I discovered later,were all of the appropriate things to do while someone's having a seizure.
(Although,deep down,It felt like an eternity,& I was sh**ing bricks!)

We were at the University of Penn Medicine in Phila. last week for an E.E.G.
& a visit with the neurologist.
The testing showed a few "spikes" in brain activity & we were told that with the present brain damage, that Shalisa will more than likely suffer an occasional seizure.
At this time,she's taking an anti seizure medication & I'm monitoring her for any extreme mood changes.

I'm doing my best to keep Shalisa as active as possible,both, physically & mentally.
Some days that's that's a fairly large task.
Some days it's much easier.
Other than this latest scare,she's ,for the most part, doing ok.

Ironically,I've been so busy dealing with the changes in our lives,
I hadn't realized how much our lives had changed.

    DB.

Subject: RE: BS: DB's daughter update
From: SINSULL
Date: 27 Jan 11 - 12:47 PM

You have a rough road ahead, DB. Wish i had some sage advice or the ability to make it all better.
Shalisa is lucky to have you.
Stay well yourself.
Mary

Subject: RE: BS: DB's daughter update
From: Ebbie
Date: 27 Jan 11 - 01:50 PM

What Sins said. It is amazing what one gets kind of used to. Shalisa is lucky to have you- and I suspect you feel lucky to have her.

Subject: RE: BS: DB's daughter update
From: Rapparee
Date: 27 Jan 11 - 01:54 PM

TBI? I don't remember -- how did this happen? (Not being nosy, just want to see if I can find places to help.)

Subject: RE: BS: DB's daughter update
From: maeve
Date: 27 Jan 11 - 02:15 PM

The original thread is here, Rap.

Seems a person can get used to 'most anything!

Best wishes,

Maeve

Subject: RE: BS: DB's daughter update
From: GUEST,999
Date: 27 Jan 11 - 02:49 PM

My thoughts are with you and Shalisa.

Subject: RE: BS: DB's daughter update
From: ragdall
Date: 27 Jan 11 - 06:24 PM

DB,
Best wishes to you and to Shalisa as you deal with this new challenge.

Is Shalisa still able to enjoy her music? Has her short term memory improved any since you posted here in June last year? You mentioned that repetition seemed to help, if Shalisa could repeatedly watch a video of her playing her music could she commit the event to memory?

Thanks,
rags

Subject: RE: BS: DB's daughter update
From: olddude
Date: 27 Jan 11 - 06:49 PM

In my thoughts and prayers
Dan

Subject: RE: BS: DB's daughter update
From: Dharmabum
Date: 27 Jan 11 - 06:54 PM

Thanks everyone for your support.

Rapparee;We still don't know exactly what caused her TBI,but with continued testing,we're hoping to get a definitive diagnoses.

Ragdall;Yes,she's still able to play some.
But,so far we've been unable to trigger her brain to learn & retain new music.
I've recorded one song multiple times onto cd & had her listen to it.
She's able to play along with it note for note,but so far unable to repeat it on her own.

I have to believe it's all still "in there" somewhere.
I'm always hopeful that we'll find a way to it.

DB.

Subject: RE: BS: DB's daughter update
From: kendall
Date: 27 Jan 11 - 07:50 PM

The brain is a marvel for the things it can do. Keep working at it.

Subject: RE: BS: DB's daughter update
From: Maryrrf
Date: 27 Jan 11 - 08:35 PM

Best wishes to you, DB - it sounds like a hard road you are treading but you are doing it with determination, dignity and good cheer. All the best to you and your daughter.

Subject: RE: BS: DB's daughter update
From: wysiwyg
Date: 27 Jan 11 - 09:30 PM

Love to you both from us here.

~Susan

Subject: RE: BS: DB's daughter update
From: ChanteyLass
Date: 27 Jan 11 - 10:07 PM

Oh, my. I hope for improvement and healing.

Subject: RE: BS: DB's daughter update
From: Sandra in Sydney
Date: 27 Jan 11 - 11:40 PM

love & best wishes to you both

sandra

Subject: RE: BS: DB's daughter update
From: jacqui.c
Date: 28 Jan 11 - 09:34 AM

Sending good thoughts to both of you.