BS: VirginiaTam's daughter - health prob

Subject: RE: BS: VirginiaTam's daughter - health prob
From: ChanteyLass
Date: 22 Apr 11 - 04:25 PM

My thoughts and hope are also with you, your daughter, and those who love you both.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Lizzie Cornish 1
Date: 22 Apr 11 - 02:49 PM

Lots of love to you both, Tam. x

Subject: RE: BS: VirginiaTam's daughter - health prob
From: fat B****rd
Date: 22 Apr 11 - 02:46 PM

The best of best wishes to you and yours , Tam
Charlie.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: wysiwyg
Date: 22 Apr 11 - 02:45 PM

Me too

~S~

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Richie Black (misused acct, bad email)
Date: 22 Apr 11 - 02:35 PM

I will be offering prayers at our Easter service here in Mottram St Andrew for your daughter, and for you.

Stay strong, we all hold you in our thoughts.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: gnu
Date: 22 Apr 11 - 02:18 PM

Good news in the overall VT. Hope it stays that way.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: olddude
Date: 22 Apr 11 - 01:32 PM

Love you Tam, in my prayers always

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 22 Apr 11 - 01:27 PM

Results from liver biopsy paraphrased from her facebook.

"Chronic hepatitis (probably auto immune) and incomplete cirrhosis, which I looked up. Not too bad at least it doesn't cause liver failure. And now to start taking fun litte meds.... azathioprine."

She is feeling much better (physically) since the antibiotic, though still having bouts of the blues which she can not attribute to anything. She just suddenly gets low (sometimes angry) and has to wait for it to pass.

She is saving for both a car and the wedding now and looking into different kind of work. Medical collections is quite the soul destroyer. I suspect this might account for a lot of low (and angry) periods.

Thank you all for keeping her in your thoughts. Want to say, I so appreciate that I am able to vent my anxiety here and feel the love as you drop your good wishes in the thread. This is especially important to me, because I am so far from her and from my own family.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Dharmabum
Date: 18 Mar 11 - 08:31 PM

Hoping for good news.

DB.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: olddude
Date: 18 Mar 11 - 06:59 PM

Still in my heart, in my prayers and in my thoughts Tam

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 18 Mar 11 - 04:39 PM

Thank you all. She is home now and says she is ok. But it is another waiting game for results.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: fat B****rd
Date: 18 Mar 11 - 04:03 PM

More best thoughts to you and yours VT.
Charlie fB

Subject: RE: BS: VirginiaTam's daughter - health prob
From: GUEST,Patsy
Date: 18 Mar 11 - 07:58 AM

Good wishes to Hilary for her biopsy today VT, hope everything goes well. X

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Bonnie Shaljean
Date: 18 Mar 11 - 07:47 AM

Thinking of you

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 18 Mar 11 - 07:36 AM

Hilary is going in for liver biopsy today. Galen stayed with her last night and is taking her in to hospital today and staying with her after. I love this young man.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: ChanteyLass
Date: 27 Feb 11 - 05:00 PM

I'm still keeping all of you in the Light.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 27 Feb 11 - 09:43 AM

Not exactly news but more info...

Hilary is still having significant low energy problem. Only some pain in spleen but it increases if she is stressed. Work is stressing her because she is finding it difficult to meet the goals they set for her.

Still no treatment forthcoming, because they don't know if it is autoimmune or fatty liver disease. Doesn't seem to matter that when she was 14, the biopsy said it was autoimmune liver disease.

She has a plan to join the credit union Galen's mom uses and save $300.00 every month for next 2 years to pay for wedding.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: ChanteyLass
Date: 24 Feb 11 - 12:11 AM

It's wonderful to hear your daughter is feeling better.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Andy Jackson
Date: 23 Feb 11 - 07:08 PM

What a good news thread this has become. Congrats to the happy couple and here's wishing all of you a swift return to health and normality.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Wolfhound person
Date: 23 Feb 11 - 03:02 PM

VT

There's usually quite a lot of silk material on ebay at quite a saving from shops.
Search on "pure silk" - and keep your eyes open, as there's one or two sellers passing off synthetics as silk, but I've also had some good stuff, both from UK and Far East sellers.

Happy shopping

Paws (I made both my daughter and my daughter in law a silk dress)

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 23 Feb 11 - 02:21 PM

what this ordeal has done to me in a Mastercard advert

Blood Pressure ---- 147 over 98
Swelling in feet from Blood Pressure meds ---- 3 times normal size
Work missed for emergency doctor appointment ---- 4 hours

Relief that she is feeling so much better ---- priceless

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Herga Kitty
Date: 23 Feb 11 - 01:59 PM

Tam - I'm so glad to hear the good news!

Kitty

Subject: RE: BS: VirginiaTam's daughter - health prob
From: My guru always said
Date: 23 Feb 11 - 01:52 PM

So very glad to see all the good news, positive thoughts still coming!

Subject: RE: BS: VirginiaTam's daughter - health prob
From: wysiwyg
Date: 23 Feb 11 - 09:57 AM

TBTG!

~S~

Subject: RE: BS: VirginiaTam's daughter - health prob
From: GUEST,Patsy
Date: 23 Feb 11 - 09:46 AM

It all looks so beautiful and exciting! I am pleased to hear how things are going for you both, good luck with everything.

Best wishes

Patsy

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 23 Feb 11 - 03:02 AM

from Hil

I feel like back to normal, even. On Sunday she was her silly, quirky self again.

Still breathing relief, here. Hoping she won't ignore medical advice for further tests though. I will ask Galen to wheedle if she tends to balk.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Bonnie Shaljean
Date: 21 Feb 11 - 04:12 AM

Or start a new thread? I would - sort of like a new dawn or a fresh page or something. Especially seeing that there are two bits of good news to celebrate, not just one.

Can't tell you how joyful I am to read your latest update. Yes, well worthy of a new thread methinks, with a recap of the happy news for anyone who might have missed it. (And be sure to re-post those lovely links of the gown & lace.)

Hugs << >>
and jumping up & down from happiness ^^

Bonnie xxxx

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 21 Feb 11 - 03:09 AM

wonder if a Mod could change the title to VaTam's daughter feeling better or good news?

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 20 Feb 11 - 11:32 AM

I don't know whether to be angry or relieved or frustrated. Bit of a mix, I think.

Hil had an infection in navel that caused fluid build up in abdomen. Why they didn't catch this and start treating right away, I don't know. Anyway she has been on antibiotics since Wednesday and she feels so much better.

Aggravating thing is when it all kicked off, she thought she had kidney infection and Primary Care doc gave her antibiotic. When the urine and bloods came back they said not kidney infection. Assuming (rightly) kidney stones, Doc took her off antibiotics and made appt for gastro. In the meantime, Hil became so ill with pain she went to ER where they decided, chronic liver disease, enlarged spleen and smattering of tiny kidney stones. Later MRI revealed distended navel (internal) and confirmed the other stuff as well as sludge in gall bladder. The gall bladder scan last Tuesday showed it normal.

So why when she had the MRI a couple of weeks ago, didn't they put her on antibiotics for the infection in her navel? I guess when you are in pain or a mom worrying about your child's health days feel like weeks even months. It is the only time that time slows down.

They are still going to do liver biopsy, which is good. Then hopefully start correct treatment which I expect will be normal treatment for autoimmune liver disease. Steroids in high doses.   BTW... my research found that the distended and infected navel can be a knock on from the other gastro problems. Starts with liver, then kidneys and spleen are involved, etc. and so on.

The best news is she feels so much better. She can eat, coping with much less pain killer, has more energy and can concentrate. Back to work on Monday and out looking at wedding stuff with Galen and his mom today.

I want to be there.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: fat B****rd
Date: 19 Feb 11 - 01:17 PM

Great news,VT. Here's to continuing good fortune.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Maryrrf
Date: 19 Feb 11 - 09:39 AM

I'm so glad she's feeling better. What a relief that must be for mom - and getting to help plan the wedding - how exciting!

Subject: RE: BS: VirginiaTam's daughter - health prob
From: ChanteyLass
Date: 18 Feb 11 - 10:23 PM

Wonderful news!

Subject: RE: BS: VirginiaTam's daughter - health prob
From: maeve
Date: 18 Feb 11 - 05:42 PM

We're glad for you all, Tam!

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 18 Feb 11 - 05:31 PM

on Hilary's face book today

"i feel better!!!!" and a little smiling sunshine character.

Mamma feels better too.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: wysiwyg
Date: 18 Feb 11 - 10:06 AM

VT, I'm continuing to follow this thread prayerfully. (Not always posting.)

Love,

~Susan

Subject: RE: BS: VirginiaTam's daughter - health prob
From: billybob
Date: 18 Feb 11 - 07:05 AM

Oh my that dress is beautiful!!!!! She will look stunning x

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Lizzie Cornish 1
Date: 17 Feb 11 - 02:03 PM

Good to read some more positive news, Tam. Love to you all, and remember to look after yourself as well. I hope your job stays safe, tough times out here for many.

Lovely message from your daughter, which must be making you feel better too..

Stay strong.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 17 Feb 11 - 01:51 PM

Stilly river Sage asked me on facebook to post links to wedding garb ideas here

circlet

galadriel gown

beaded lace to be over the

heavy diamond white satin gown.

Lace will only be used on skirt and to make sheer sleeves.

bouquet is to be purple roses and blue morning glories

Better news..

Hillie's face book status

" I feel uber better today.. ready to get back to my life.. and start planning jampa pie's and my wedding"

Jampa is Galen's Buddhist name.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: GUEST,Patsy
Date: 17 Feb 11 - 07:53 AM

And another 'Yay!' the plans for the wedding gown and accessories sounds wonderful and a great thing for you to focus on.

Take it steady.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: billybob
Date: 17 Feb 11 - 07:26 AM

Still thinking of you both, what wonderful news about the engaement! Keep well Tam, look after yourself you are precious!
xx Wendy

Subject: RE: BS: VirginiaTam's daughter - health prob
From: maeve
Date: 17 Feb 11 - 06:36 AM

It's lovely to "see" your smile, Tam.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 16 Feb 11 - 05:10 PM

we've just spent the evening picking out the pattern and fabric for wedding gown (it will be a Galadriel type gown). and found silver circlet with blue stone for head dress. and looked at purple rose / morning glory bouquets.

I hope I can make her dress. i really want to. Put me back to making her medieval garb when she was in the society for creative anachronists.

smile

night mudcat

Subject: RE: BS: VirginiaTam's daughter - health prob
From: gnu
Date: 16 Feb 11 - 03:57 PM

"She is eating and not getting sick!!!! Yay!"

Yay here too.

T&Ps for you both.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Herga Kitty
Date: 16 Feb 11 - 02:12 PM

Tam - thanks for the update, and sending virtual hugs to you, Hil and Galen..

Kitty
xxx

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 16 Feb 11 - 02:00 PM

TY Maeve

She is eating and not getting sick!!!! Yay!

Goes back to work Monday.

Fatigue and brain fog are typical side affects o hepatitis. She is not processing ammonium properly. Prednisone will help but they are startng that until they get a definitive of what is causing the autoimmune prob.

Liver biopsy in March.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: maeve
Date: 16 Feb 11 - 11:46 AM

We're not going anywhere, Tam. One day at a time.

Maeve

Subject: RE: BS: VirginiaTam's daughter - health prob
From: VirginiaTam
Date: 16 Feb 11 - 11:45 AM

No such luck on his insurance. He is buying his own which is quite expensive for a single person. Personal reasons and it is necessary. His work (major department store) does not offer health insurance to the plebes.

Her room mate is looking to bail out on the shared apartment because she thinks Hilary is going to lose her job. So much for friends, eh? I can cover Hil's rent for next 2 months if it comes to it. Hopefully by then she will be treated and feeling better and able to get old job back or better a new one nearer to the fiance.

needless to say the worry is taking it's toll on me too. the RA is worse than ever. I used both wrist supports and walking sticks to get to my RA appointment today. Nurse says i have to come off the blood pressure meds as the swelling it is doing to my feet and ankles is making things worse.

Please keep the mudcat mojo working on her (and me).

Subject: RE: BS: VirginiaTam's daughter - health prob
From: Maryrrf
Date: 16 Feb 11 - 08:54 AM

Congratulations to your daughter and her fiance - I have to admit that possible insurance coverage was my first thought too. If he works for a company that offers insurance, he might be able to put her on the policy? I hate it that we have to think that way in this country, but getting good insurance is so tied to having a job that offers it. As an individual with a preexisting conditions one's options are very limited. Good luck to the couple.

Subject: RE: BS: VirginiaTam's daughter - health prob
From: GUEST,mg
Date: 15 Feb 11 - 10:30 PM

I hope the young man has insurance and that the marriage takes place quickly..as I hope all marriages do..why wait when there is true love? mg

Subject: RE: BS: VirginiaTam's daughter - health prob
From: catspaw49
Date: 15 Feb 11 - 07:29 PM

Whatever good thoughts I have are yours and hers. Sorry VT.....that really is a bad situation but there is still a ways to go and my best advice has already been given. Focus in on the tests and on the healing.........fuck the rest of it. (Had to phrase that in Spaw fashion)

Spaw