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BS: VirginiaTam's daughter - health prob
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Ron Davies Date: 03 Feb 11 - 08:32 PM I know a woman who has an auto-immune disease. Seems to be genetically related. Her problem has to do with the back, not internal organs. At any rate, she has tried two drugs to combat it: Humira: administered by shot. Had no positive effect. But lots of negative ones. Specifically, since she already also has asthma, she developed pneumonia--double pneumonia in fact. An unavoidable side effect of these drugs is to lower your resistance to anything going around. Methotrexate: much, much better. Up to now (several months), no side effects. Also it's a pill, not a shot--easier to administer. If you'd like to PM me, Virginia, I can give you more details. But of course, as I said, her problem has to do with her back, so it may not be germane. Ron |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: My guru always said Date: 03 Feb 11 - 04:32 AM Sending positive thoughts! |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: ChanteyLass Date: 03 Feb 11 - 01:29 AM Nightmare! Primary doc can't read them? Huh? Hope gastro doc (I call mine GastroGuy) can help. I also hope her boyfriend or another friend can help. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 02 Feb 11 - 05:41 PM Right Patsy... She has shared her ER test results with employers who are all apparently behind her. She thinks it is because of how conscientious she is about work. She pushes herself to go in when she feels dreadful and they know it. The MRI results are back and have been forwarded to primary care doc who can't read them. So Hil has to wait to find out if she still has appointment on 16 Feb with gastro specialist, because she understood that he discharged her back to primary care after arranging MRI and blood tests. She is confused and too tired to deal with it. I am hoping her friends or boyfriend will step in to help her push for complete diagnosis and start of treatment. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: GUEST,Patsy Date: 02 Feb 11 - 07:55 AM VT - I think it would be best if your daughter approached her HR to let them know exactly what the situation is rather than hide it. It is easy to say when worrying about jobs but it is best to get it out in the open from the start. It would be better for both of you. Best wishes to you both and hope Friday brings good news. Take care. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: billybob Date: 01 Feb 11 - 09:21 AM Oh Tam, so sorry to hear this. As you know my daughter has Crohns desease, and even when she is well we worry about her. Wish we could help but you are both in our prayers and thoughts.I know she is worried about her job but her health must come first,as must yours!!Keep strong ,hope good news comes to you both on Friday xx Wendy |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 01 Feb 11 - 03:46 AM Thanks all. Bobert - She is in northern VA with no car. MCV is a bit of a trek. But if she gets so ill that she cannot work, I will move to my Mom's in town near Richmond and take Hil with me. There is room and family with cars to help. Richard - Even if we could get her here on technicality, I can't support her financially. I don't think she would submit to a move that far away from friends and boyfriend. Latests news - not much. She is very tired. Finding even taking a shower utterly exhausting. And I am very worried. Hoping her appointment this Friday the primary care doc will start prescribing what is needed to make her better and feel better. She is so worried about losing her job. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Ebbie Date: 30 Jan 11 - 06:12 PM Refresh |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Bobert Date: 29 Jan 11 - 08:28 PM Have your daughter contact a social worker @ MCV (Medical College of Virginia) in Richmond... I know they are a first rate hospital and a teaching hospital and your daughter might get treated there for free, or sliding scale... BTW, MCV might be found under VCU-MCV... B~ |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Richard Bridge Date: 29 Jan 11 - 06:49 PM VT - check with a specialist in EU law. Surely my virtue of your marriage you are an EU citizen and she is your daughter. If by virtue of her illness she is dependent on you there are treaty rights. Not my field, but I know a man who might know (and you have even played music with him) |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 29 Jan 11 - 06:00 PM I think that she can say to her boss that she prefers to wait on the results of the tests and has appointment to talk to doc about them this Friday. I believe that is a reasonable answer to give to boss. Then as soon as possible make appointment with HR to discuss as SINS advised. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Stilly River Sage Date: 29 Jan 11 - 05:37 PM Keeping her illness secret from her employers might mean they end up thinking she's absent for less than worth-while reasons. I suppose if they are pressing her, she should talk to them, but she should document everything they say and she says. She shouldn't be thrown under the bus just because she's ill, especially if some flexibility can help both the worker and the employer keep a good worker. SRS |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 29 Jan 11 - 05:31 PM thanx Mary... I did tell her that she should take some info and advice from Doc about capability while being treated. And then talk to HR. Thanks for continued good thoughts. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: fat B****rd Date: 29 Jan 11 - 02:30 PM Still thinking of you, VT. Best regards as usual. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: gnu Date: 29 Jan 11 - 02:18 PM Good advice SINS. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: SINSULL Date: 29 Jan 11 - 02:14 PM VT, Maine is also an employed at will state. But companies can and do look after their own. Maybe your daughter needs to sit down with the Human Resources head, explain the problem, and let them help her work out a solution. They may even be able to help her doctors coordinate tests so she loses a minimum of work time. Just a thought. I wish you both well. Mary |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: gnu Date: 29 Jan 11 - 11:56 AM Ahhh, VT. That's a shame. I hope the situation gets better quickly. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 29 Jan 11 - 08:22 AM Work scheduled her to work today, even though she explained she has appointment for more tests. Hil's employers are pressing her for details of her sickness. Virginia is an employment at will state, which means they can lay her off at any time for any reason. She is shaking in her shoes now, that she will lose her job. Friends have just bailed on taking her to MRI and blood tests to be done today, so she has to walk and take bus, feeling as bad as she does. I wish I was there. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Stilly River Sage Date: 28 Jan 11 - 04:12 PM Someone needs to coordinate the diagnostic work. I had some additional tests after the cancer surgery, based upon an observation the oncologist made. But he pointed out that the kidney he called attention to was out of his field (gynecology) so it was best if my GP coordinated the tests, and that's what he did, meeting with me to discuss results. Everything was fine, but it was good that the specialist said "there's something you might want to take a look at, on general principles." SRS |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 28 Jan 11 - 01:26 PM I have pmd Hil the links with your good wishes. Haven't heard from her since Wednesday night. She is on heavy pain killer and was supposed to return to work today. She has MRI and bloods tomorrow. Gastro specialist has discharged her back to primary care doctor who she will see next Friday. Is it normal for specialist to discharge back to primary care? Thanks for all good wishes. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Stilly River Sage Date: 28 Jan 11 - 10:20 AM I think between a family plan and pre-existing condition legislation, she should be able to get help. Each state has latitude in the types of high risk pool they might run also - there may be something available in the existing system that will let her in. State of Virginia Family Health Home Page. SRS |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Dharmabum Date: 27 Jan 11 - 10:25 AM VT. Best wishes for you & your daughter. I can relate to what you're going through. We've been dealing with my daughters medical issues for some time now. I'm lucky in that she's nearby. I hope everything works out for you both. DB. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: artbrooks Date: 26 Jan 11 - 10:18 PM I make absolutely no claims to be an expert, but there is a program that is already effective under the health care reform program for people with pre-existing conditions who cannot get health insurance. Try going on from here; if that doesn't work, start here and follow the bouncing links. Good luck to her. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Stilly River Sage Date: 26 Jan 11 - 08:48 PM If she is 25 then her father might (if he has health insurance) include her in a family plan. That's one of the benefits of the health care reforms. I think it would go through her 26th year. SRS |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Maryrrf Date: 26 Jan 11 - 07:35 PM I'm very sorry to hear this Tamara. I'm in Virginia and as far as I know there isn't much to help people with medical problems and no (or not enough) insurance - unlike Massachusetts, for example, which does have a program. This organization might be of some help. Having had some (thankfully minor) medical issues recently, and now seeing the co-pays and portions the insurance didn't cover flooding in - it's discouraging. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Herga Kitty Date: 26 Jan 11 - 06:06 PM Tam - FWIW, all best wishes and virtual hugs to you and Hilary Kitty xx |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Waddon Pete Date: 26 Jan 11 - 04:15 PM More good thoughts coming in from East Anglia. Be strong! Best as ever, Peter |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 26 Jan 11 - 03:03 PM The father will do everything in his power to not give a single penny to her.... I know him. I have messaged her with the advice I received here. I have made myself sick with worry, reading up what happens when one goes into liver failure. Autoimmune liver disease prognosis varies greatly from case to case so there is some hope in that bit of information. She is home on very strong pain medication, after appointment with gastro specialist today. MRI and more blood work have been scheduled. She is thankful for thoughts and prayers as am I. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: wysiwyg Date: 26 Jan 11 - 11:26 AM ...He has said they will cross that bridge when she comes to needing it, which means I will send her some money this week.... Sweetie, try not to make that bridge any longer yourself before he has to cross it, OK? ~Susan (We are in that same "who helps?" boat ourselves with one of our adult kids) |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: topical tom Date: 26 Jan 11 - 11:17 AM I cannot offer other than my good wishes and prayers for Hilary and you. May all end well for you both. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: My guru always said Date: 26 Jan 11 - 07:47 AM So sorry to hear about Hilary's problems VT, positive thoughts & hugs to you & yours! |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: VirginiaTam Date: 26 Jan 11 - 02:55 AM Thank you all for the good thoughts and helpful pms. It is impossible to bring her to UK. Unless I could support her completely including private health care. I cannot. The European Union rules do not extend to citizens of the US. She has a network of close friends and her darling boyfriend are helping er with driving her to appointments (she has no car). She has a fair few more appointments to attend. She has asked her father for help with either rent or insurance co pay. He has said they will cross that bridge when she comes to needing it, which means I will send her some money this week. If it comes to it, I will move back to US to take care of her. I have to go to work now (thank god for it keeps my mind occupied). Will return this evening with hopefully better news. I love you all.... Thank you again... keep goo thoughts going as I am afraid she will balk at the treatments for one reason or another. Pray for her strength to face these problems down. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: mouldy Date: 26 Jan 11 - 02:54 AM ((((((VT and Hilary)))))) I can offer very little else, I'm afraid. Andrea |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Stilly River Sage Date: 25 Jan 11 - 11:31 PM Garg has a point - if she were in the UK, would the help be any more dependable, or possible to find? Take care, you're in our thoughts, VT. SRS |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: GUEST,,gargoyle Date: 25 Jan 11 - 10:29 PM Purchase an immediate one-way air-fare to the UK.
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Subject: RE: BS: VirginiaTam's daughter - health prob From: LilyFestre Date: 25 Jan 11 - 09:45 PM VT, I think Hilary might find some help from a hospital social worker or her doctor/specialist. They might have an insight as to where she can find help specific to her needs. Love, Michelle |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: LilyFestre Date: 25 Jan 11 - 09:41 PM (((((((((((Love & Prayers for you and Hilary))))))))))) Michelle |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Sandra in Sydney Date: 25 Jan 11 - 09:12 PM best wishes & hugs from australia |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: jacqui.c Date: 25 Jan 11 - 07:41 PM Good thoughts coming from Maine for both of you. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: wysiwyg Date: 25 Jan 11 - 07:41 PM (((Tam))) Remember this is not last time starting again. It's a whole new day, every day. ~Susan |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Beer Date: 25 Jan 11 - 07:01 PM Wishing you the very best in these tough times. Adrien |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Janie Date: 25 Jan 11 - 06:38 PM Sending my very best to you and to Hilary, VT. Sending pm. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Bonnie Shaljean Date: 25 Jan 11 - 06:29 PM Love TO you. On wings - |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Bonnie Shaljean Date: 25 Jan 11 - 06:28 PM Me too. Thinking of you Tam, and wishing I didn't feel so helpless and useless. Keep us posted on how she gets along. Love you you - |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Anne Lister Date: 25 Jan 11 - 06:16 PM Sending love from here, too - wish it could be something more practical. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: ChanteyLass Date: 25 Jan 11 - 04:48 PM I, too, hope your daughter soon finds the help she needs. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: Slag Date: 25 Jan 11 - 04:47 PM You got it VT. I hope all goes well with your daughter. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: melodeonboy Date: 25 Jan 11 - 04:30 PM I'm sorry to hear that, Tam. I hope to see you soon at some event or other in Kent. Chin up, love! |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: kendall Date: 25 Jan 11 - 04:01 PM If she becomes disabled she might qualify for Social Security SSI. |
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Subject: RE: BS: VirginiaTam's daughter - health prob From: GUEST,mg Date: 25 Jan 11 - 03:54 PM Is she a UK citizen, and could she move back if it became necessary? mg |
