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LilyFestre-Mommy+Daddy+Baby...now on to Life!

kendall 15 May 10 - 07:05 AM
Sandra in Sydney 14 May 10 - 09:57 PM
LilyFestre 14 May 10 - 07:04 PM
Sandra in Sydney 13 May 10 - 06:07 PM
LilyFestre 13 May 10 - 03:33 PM
Bobert 13 May 10 - 08:35 AM
jacqui.c 13 May 10 - 07:56 AM
Sandra in Sydney 13 May 10 - 03:28 AM
SINSULL 12 May 10 - 07:16 PM
LilyFestre 12 May 10 - 05:47 PM
Sandra in Sydney 12 May 10 - 11:13 AM
SINSULL 12 May 10 - 10:58 AM
VirginiaTam 12 May 10 - 09:33 AM
VirginiaTam 12 May 10 - 09:31 AM
SINSULL 12 May 10 - 08:00 AM
Stilly River Sage 12 May 10 - 12:09 AM
LilyFestre 11 May 10 - 10:36 PM
Sandra in Sydney 11 May 10 - 07:33 PM
SINSULL 11 May 10 - 02:02 PM
LilyFestre 11 May 10 - 01:57 PM
SINSULL 11 May 10 - 08:09 AM
Sandra in Sydney 11 May 10 - 04:48 AM
LilyFestre 11 May 10 - 02:59 AM
LilyFestre 10 May 10 - 10:25 PM
LilyFestre 10 May 10 - 09:20 PM
Rowan 10 May 10 - 06:07 PM
Ebbie 10 May 10 - 09:55 AM
SINSULL 09 May 10 - 02:33 PM
katlaughing 09 May 10 - 12:47 AM
LilyFestre 09 May 10 - 12:16 AM
Sandra in Sydney 08 May 10 - 11:36 PM
Bobert 08 May 10 - 11:08 PM
LilyFestre 08 May 10 - 10:39 PM
wysiwyg 08 May 10 - 11:28 AM
LilyFestre 08 May 10 - 10:28 AM
LilyFestre 07 May 10 - 09:16 PM
AllisonA(Animaterra) 07 May 10 - 08:21 AM
Sandra in Sydney 07 May 10 - 05:01 AM
LilyFestre 06 May 10 - 06:51 PM
jacqui.c 06 May 10 - 01:55 PM
VirginiaTam 06 May 10 - 01:50 PM
LilyFestre 06 May 10 - 01:37 PM
LilyFestre 06 May 10 - 11:59 AM
Bobert 06 May 10 - 07:02 AM
Sandra in Sydney 06 May 10 - 03:14 AM
maeve 05 May 10 - 10:57 PM
LilyFestre 05 May 10 - 10:51 PM
AllisonA(Animaterra) 05 May 10 - 06:41 PM
Sandra in Sydney 05 May 10 - 06:35 PM
Stilly River Sage 05 May 10 - 06:08 PM
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Subject: RE: LilyFestre - She's gonna be a Celeb on Facebook!!
From: kendall
Date: 15 May 10 - 07:05 AM

Bully I say!


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Subject: RE: LilyFestre - She's gonna be a Celeb on Facebook!!
From: Sandra in Sydney
Date: 14 May 10 - 09:57 PM

wow! your montage is spreading further around the (virtual) world!

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 14 May 10 - 07:04 PM

In March, I requested a care package called The Bag of Hope from the Georgia Ovarian Cancer Coalition. I do not live in Georgia but they were very kind and sent me a huge package of goodies (Susan...you've seen me in the cap they sent several times). Anyway, they sent me an email to say they were now on Facebook and I should check it out and Friend them. Ok. I did.

I emailed them to ask if there are any similar groups in Pennsylvania and included a photo of my bald self in the email. The CEO wrote back that he was going to check into it. I sent back an email saying thank you and included my montage (the same one that I've posted here) of my cancer journey. He wrote back and said he absolutely loved it, that he thought it was couragous,etc and with my permission, he wants to put it up on their website and to share it on Facebook where everyone who is a member can see it!!!   

It made my day! Thanks Doug!

Spent the day helping my mom with errands and laundry. She wore me out and I just woke up from a nap!!!

:) Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 13 May 10 - 06:07 PM

Planning so you can be miserable in peace. How's that work!?!?!?   :)

well, if you were being miserable while surrounded by misery & miserable times, that would be 2 or 3 lots of miserable!

or something like that.

happy yoga-ing!

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 13 May 10 - 03:33 PM

Bobert.....

   I'm countin' on your I told you so's!!!!!! Every single day!!!! Treatment coming up next week.....working hard NOW to get stuff done so I can relax and be miserable next week if need be.

    Planning so you can be miserable in peace. How's that work!?!?!?   :)

   Today is good...lots done around the house, talked to a sweet friend who made my prayer shawl and am after I take a break, I'm off to yoga! YAY YOGA!!!!

   I'm a happy girl today. :)

Love to all,

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Bobert
Date: 13 May 10 - 08:35 AM

PARTY!!!

Sounds like things are lookin' up fir ya', Michelle... That's great but...

...I told ya' so...

But great to hear it anyway...

B~


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: jacqui.c
Date: 13 May 10 - 07:56 AM

Haven't been in for a few days - what a lot of lovely news to come back to!


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 13 May 10 - 03:28 AM

literally, a happy dance.

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 12 May 10 - 07:16 PM

10,000 is a nice round number.
Dance the night away.
SINS


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 12 May 10 - 05:47 PM

"Max is nice" LOL.

Yes, Max is a nice name!!!! Just the way I read it struck me as funny!

We haven't decided on a name yet...there are a couple....so far we like Jacob Thomas the best. :)

But we also like Jeremiah...I love the name John but he doesn't. He likes the name Elmore but ummm...I'm not a fan.

OH. Guess what?

Today I got an invitation from the hospital where I have had all my surgery and chemo for a party....for cancer survivors!!!!   YAY! My mom was with me when I opened the envelope and she wanted to know what it was..I tried to ready it but yeah...you got it....I cried. I am allowed to take my caregivers and I plan to CELEBRATE in a big way......hope it's an event with lots of yelling and dancing cuz baby, LOOKOUT!!!!   They are also going to have a large banner like the one they currently have that greets you when you get off the elevator or take the stairs....It says Cancer Survivor and people sign their names to it....every time I see that banner I look forward to the day when my treatment is over and I can sign it too....there will be a new banner this year and this celebration falls just about the time of my last chemo treatment. I am EXCITED!!!!!!!!!!!!!!!!!

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 12 May 10 - 11:13 AM

wonderful news


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 12 May 10 - 10:58 AM

No problem, Miss Tam. It says Excellent News.
I studied Alien languages in college.

Names?? Names??? Have you thought of names?
Max is nice.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: VirginiaTam
Date: 12 May 10 - 09:33 AM

blast... my excellent news scroller messed up.

well you get the idea.

fixed it
mod


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: VirginiaTam
Date: 12 May 10 - 09:31 AM

                           .__  .__                 __   
____ ___ ___ ____ ____ | | | |   ____   _____/ |_
_/ __ \\ \/ // ___\/ __ \| | | | _/ __ \ /    \   __\
\ ___/ >    <\ \__\ ___/| |_| |_\ ___/|   | \ |
\___ >__/\_ \\___ >___ >____/____/\___ >___| /__|
    \/      \/    \/    \/               \/    \/      
                            ._.
____   ______ _ ________ | |
/    \_/ __ \ \/ \/ / ___/ | |
|   | \ ___/\    /\___ \   \|
|___| /\___ >\/\_//____ > __
    \/    \/          \/   \/


Wedding and baby. You certainly don't do things by halves! More power to you, Angel.

What about something a bit medieval re wedding kit. Covers the arms, you can use lovely colours and brocades in both his and hers outfits, very romantic and Pete would probably look a treat in tunic and thigh boots.

gown
simpler gown

Head covering could be made by yours truly - it would be an honour.
I can do this one in pearl beads only with or without sprays you add veil.

Or if not this is lovely
head dress

if I am getting too enthusiastic, just tell me to back off.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 12 May 10 - 08:00 AM

WOW!
You hinted that you had postponed the adoption. Adoption pregnancies last years sometimes. Been there; done that.
You realize that this officially makes you a member of the 10,000 Club.

Two babies in a matter of months. SIGH. Think I'll go get a kitten. 'm jealous.

Not really - much love and great joy here in Maine.
Mary


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Stilly River Sage
Date: 12 May 10 - 12:09 AM

You know, Michelle, I wouldn't say this to most people, but when I look at all that has happened this few months (and I hope you'll take this in the spirit it is intended) I think the big C "Cancer" is the best thing that could have happened to you. You've blossomed, you've grown in so many ways, and you've looked at so many things you never considered before. Your beauty has come through in so many more ways than it did pre-cancer. You're so strong now! Does anyone else know what I'm talking about? No wonder Pete wants to go through with the wedding, dress and all. It will be a thing of beauty, all around.

I know that I became a much better parent after I was diagnosed and had the surgeries. Suddenly I could focus on what was REALLY important. And for all that you have down days because of the chemo, you're coming through it like a champ, with flying colors, and I'm so proud of how well you're doing everything!

This adoption is great news, and perfect timing. And because you really really know what is important, I know you'll be an even greater mom now than you would have been in the past.

I'm reminded of Viktor Frankl's book Man's Search For Meaning (don't buy it from Amazon, find it for a couple of bucks in a used bookstore somewhere). It's a wonderful slim volume that talks about how diversity (to put it mildly) can help you find yourself.

Good luck with all of this!

Maggie (Stilly River Sage)


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 11 May 10 - 10:36 PM

We are adopting a baby boy from Ethiopia. He will be between 8 and 10 months old when he arrives.....they say that will be in December!!! Didn't I share this? I thought I did.....but if not....YAY.....yes....our son will be here soon....although it really does feel like FOREVER away!!!

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 11 May 10 - 07:33 PM

I second that!


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 11 May 10 - 02:02 PM

What baby is due in December?????


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 11 May 10 - 01:57 PM

I think if I asked Pete to wear a tux he might. He's more of an outside kinda man...full beard...think Grizzly Adams. I *WANT* the dress and I'd want him to wear whatever he felt comfy in. *visualizing* Um. This could turn out very strange....at least for the eyes. The hearts, however, would continue to be forever happy. :)

I should put up some links to the ones I like. I want ivory, some kind of sleeves (I have bat arms so sleeveless just isn't going to work) and so far, the flower bouquets I love best are just stems of lilacs tied with a simple ivory silk ribbon. :) I don't have a date in mind at the moment as when we renew our vows, I'd like to have HAIR and also, I think it would be extra special if Veronica, her son and our son were there too.....her baby is due in Septemeber and ours is due in December! :) It's fun to daydream about and plan....


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 11 May 10 - 08:09 AM

HMMMMMM
Would you like Jacqui and me to start hitting the thrift shops for bridesmaids' gowns. We can be very creative with circa 1950 satin and lace.

heh heh


Actually that is a wonderful idea, Michelle. Will Pete wear a tux?
SINS


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 11 May 10 - 04:48 AM

a lovely idea


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 11 May 10 - 02:59 AM

I read something very interesting the other day (I have no idea where I read it).....most cancer chat sites have the most activity late in the night...like now...almost 3:00am. If I don't take Ambien, I either don't sleep or I wake up multiple times during the night..usually with multiple freakish nightmares....horrific stuff..never a complete night of uniterrupted rest without meds during chemo.....must be some powerful stuff to disrupt a body's sleep rhythm so much. As long as it's killing cancer cells....ALL the cancer cells, then it's fine by me.

I took some Ambien about 30 minutes ago....la la la.

In the meantime, I've been looking at wedding dresses online. Why? Well, I've been thinking about the things in life I've always wanted to do and one was to wear a wedding gown. I've been married now for almost 18 years but when we got married, I did not have the dress of my dreams. So...we have discussed renewing our wedding vows and I WANT THE DRESS!!!!!!!!!!!!!!!! :) And I want to wear it in my church as Pete and I were not married by a priest....so that's something I want to see happen too. :) Pete is all for it!!!! :)

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 10 May 10 - 10:25 PM

Here's a link to one of my current favorite songs that I was belting out tonight: Long Way To Go

Favorite line? "Yesterday is a memory. Tomorrows never ours to see. As I walk through this life, I know I'm never alone. All we have is the air we breathe, the here and now and the things we leave.
Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 10 May 10 - 09:20 PM

I will have my 5th chemo treatment one week from today. And today I found myself walking ALL day, feeling great! Pete and I had dinner out and at the end of the meal I had half a cup of coffee. I don't know if it's the caffiene or the mix of caffiene and what's left of the chemo in my body but I have been singing at the top of my lungs for the last hour and a half (LOVE Carolyn Wonderland) and am giggly beyond giggly. I am not complaining.....just sayin.........

WOOOOOOOOOOOOOOO WEEEEEEEEEEEEEEEEEE I am HIGH!!!

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!
From: Rowan
Date: 10 May 10 - 06:07 PM

I ... read that some antidepressants reduce the effectiveness of chemo

As a cynic from way back I've always read the CMI sheets that come with all medicines I've had prescribed over the years and I've made it my business to read up on the (very rare) ones I've just bought over the counter; at heart I'm not into chemotherapy unless a properly informed medico can convince me otherwise.

Now that I'm into chemo not unlike Michelle's I am issued with (what the NSW Cancer Council calls) "The Red Book" which tracks everything and anything to do with my medical treatment, including stuff from my ophthalmologist. Just as well, because one of the drops for my glaucoma (which, I gather, has depressant side-effects; not afflicting me, so far) got the chemo nurses asking whether I still had glaucoma; the predictable answer ("Yes") meant that one of the chemicals used in my changed chemo regime was contraindicated and thus not administered. It only treated expected side-effects of other, required, parts of the chemo regime so it was no great loss.

The local Cancer Support Group (which lost one of our founding members last week; Vale Mary Maclean, a very strong woman indeed) has regular talks by various professionals (dieticians, pharmacists, masseurs, psychologists, nurses, social workers, alternative/complementary medical treatments, etc) and a regular theme is that all your professionals who administer chemical treatments should be informed of all your medical intakes from all your sources, as many things can have synergistic (and often unwanted) effects.

I'm not really posting this for Michelle's benefit but in case there are others (posters or lurkers) who might find it useful info.

Great news, Michelle!

Cheers, Rowan


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Ebbie
Date: 10 May 10 - 09:55 AM

Refresh


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: SINSULL
Date: 09 May 10 - 02:33 PM

Years ago, a friend told me that no two people should worry about the same thing at the same time. It is counter-productive.
Try to let you heath experts do the worrying while you live in the NOW. You're alive and healing. You're mother is recovering nicely. Pete is healthy and by your side. Celebrate the little miracles of today.
Be well, my friend.
Mary


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: katlaughing
Date: 09 May 10 - 12:47 AM

Michelle, I know it's important for you to get this stuff down in your mind, but be careful, please, to not obsess over the past bits. KNOW that you have been well-treated by the docs you were guided to and KNOW that you are free and clear of it all NOW. The "what ifs" about the future and thinking far ahead can drive a gal nuts. I know, it did me until I had to come to a full-stop!*bg* We can all tell you it will be okay and it can help tremendously to hear that reassurance, but deep down you need to believe/know it, too, as you are the most powerful healer there is for you.

I always take a pad with questions on it, too. Recording the doc on your camera is brilliant. I have thought of doing that with my cellphone, but usually have Rog there to help me remember.

I watched some comic or someone recently, talking about men and women and communication; it may have even been something I read here or a link I followed. Ultimately it came down to the husband/partner's job is to just say "It's okay" or "It's going to be okay." I like that. My Rog doesn't always respond with what I would like, word-wise, but he remembers that one, really well, and it always make a believer outta me! Here's to your Pete and what he is doing for you that way, too.

Oh, and, it's going to be okay!*bg*

kat


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 09 May 10 - 12:16 AM

Yep. Surgeon/oncologist says Stage 1.
Chemo Oncologist says Stage 2.

Either way, I know that's good.

As for the platelet stuff....well....when I have a chemo appointment it kinda goes like this. I check in and they call me into the lab and access my port for blood and then attach the chemo tubing, minus the chemo. Then I see the chemo doc. He goes over the results from the lab work they took 20 minutes ago. Anything that is out of line is flagged. For me, that's the platelets and always the blood sugar readings too because the steroids shoot that into outer space. If my platelets fall 13 more points (and it's been falling in much larger increments), they are going to send me home or do a platelet transfusion via my port. I feel better knowing that it would be with my port as that means no painful IVs or hanging out on some creepy slab with mad scientist gear all around. While I can't feel the platelets drop or that they are low, I have to be aware of it as low platelets mean the inability for my blood to clot. Should I cut my finger while chopping veggies, I need to head to the ER because I will need something to help me stop the bleeding...my body won't do it on it's own if the cut is more than a scratch. So...while I'd rather be blissfully ignorant about a good deal of the lab work (and I am),I do need to know some of it. He's good about explaining but I'm bad at remembering. I had him go over the photo pathology of the cancer but for the life of me, I have no idea what he told me. So...I have these photos of black spots but don't quite understand what is what or where. I am going to take my digital camera next time and record what he says so I can refer to that.

I do take a note pad with question. I also take my Mom who writes down the answers because my fingers are too numb and tingly to write much.

And it's a good thing that I have Pete to remember...and everything else. I don't know what I'd do without him! Just tonight he fixed dinner and the washing machine....and both are perfect!!!!!!

It seems I've been running lots and have had very little time with him lately so tomorrow we are having a day to ourselves. I am really looking forward to that and I think he is too. :o)

And Bobert, I'm looking forward to being Queen of the 10,000. I just polished my tiara............*GRIN*

Love to all.

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 08 May 10 - 11:36 PM

Words of wisdom my sister said decades ago which I have NEVER done - take a written list of things you need to know when visiting a doctor & write down what you are told.

Occasionally I ask Dr to write something for me (usually something like the name of the vitamin she want me to use cos I know I'll forget) & I'm always asking my physio to write down details of the exercise she recommends cos I know I won't remember (her stick figures are sooo cute!) but I've often returned home after visiting a doctor with something not mentioned or remembered. I had to make another visit once to get a Referral to the Specialist I was seeing a day or 2 later, which was the main reason I'd made the first appointment!

Good thing you have Pete to remember things for you.

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Bobert
Date: 08 May 10 - 11:08 PM

Well, the problem with cancer treatment is that these good folks who treat it are in it every day and sometimes they just assume that folks know what the heck they are talking about when, in reality, they don't... But they do usually recommend certain books to read so that the patient will be up to speed... I don't really agreer with that approach... I wish doctors would spend a little more time talking in general terms and less in terms about platlet counts and stuff that is way over most folks heads...

That is just my beef with the fine folks who are out there very day on the front lines treating people...

The line I hated hearing was, "Well, we can treat that, too..." in regards to the effects of chemo...

But, havin' said that, Stage 1, Michelle??? Geeze, that is wonderful to hear... That will get you memebership in the "10,000 Club"...

Hang in there... You'll be looking back on this as a *survivor* in short order (relatively speakin')...

B~


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 08 May 10 - 10:39 PM

I am sure you are right Susan. I'm sure I didn't hear much of what was said. I recall feeling like I'd been hit by a giant speeding train....BAM....and stunned. I remember Father Cootiesniffer coming to Mom's house the day I got my intial news......he tried to talk to me but I had no idea what to say. No idea what to think. No idea what to feel....never felt so numb in my life.

I do recall my surgeon telling me I was Stage 1. For the longest time, he wouldn't say if I was going to be ok. Finally, about a month ago, he apologized that this has been so traumatic for me and he said, "You are going to be good." My chemo oncologist says I am Stage 2A...only because 2 organs were affected. I don't know if this is because there was cancer found on both ovaries or if it is because I had cancer in my uterus...completely separate cancers btw.....NOT a spread of one to the other.

I know that this morning I had said something about wishing I knew how much cancer was seen on each ovary....and how I wish they had taken or tested or whatever they do with lymph nodes. Pete said my surgeon didn't think it was necessary and that he would be able to tell visually.....I don't know about that. What I do know is that he is the head of the OB/GYN Oncology department and is a nationally recognized surgeon in the ovarian cancer arena. I feel very confident about my surgeon and trust him implicitly. Where am I going with this? I have no idea. I guess that's kind of how the topic came up this morning.

If I did allude to it earlier, I have forgotten. If I have forgotten, I wish someone would have reminded me of it more frequently....maybe it would have relieved some intense worry time for me. But then again, if I was told this once, why would someone repeat it to me? I know some people dispute the idea of chemo brain but I'm here to tell you that my memory, especially my short term memory is shot. You'd think I'd remmeber something so important to my well being. I think that one of the reasons I write so much...not just here but on my blog as well is so I DO have a memory of this....where I've been, what my thoughts are, how I was able to work through things. Not terribly long ago, I started reading what I've been writing since December. What stands out the most is that I knew....deep down, I KNEW something was horribly wrong but I couldn't put my finger on it. I think my panic and anxiety was because I knew the news was bad....and waiting as long as I did for that to be confirmed was absolute hell for me. I had to stop reading my blog because it just brought all that up for me, including the panic.

I have been taking an antidepressant since January but recently read that some antidepressants reduce the effectiveness of chemo. I called my oncologist right away and he said the one I am taking is fine and I have nothing to worry about. I have stopped taking them anyway. The idea that it COULD reduce the effectiveness of my chemo....that it's possible that I'm not getting the full benefits of this process (which can be pure hell at times)...well, I'm not willing to take that chance. At all. Period. So...we shall see what my reaction is but really, I think I'm doing ok in that arena. I know I get panicky every once in awhile....but I think that's probably normal for anyone with a cancer diagnosis.

I'm rambling. Sorry.

I was productive today....cleaned out one dresser and did some organizing in my closet....still a lot to do but I made a dent! Also had lunch with an old friend and spent the late afternoon with a new friend who I just love.....ever meet someone you instantly click with? Uh huh. That's Angie. :)

Anyway, I need to finish up some of the closet stuff.

Goodnight my friends.

Michelle

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: wysiwyg
Date: 08 May 10 - 11:28 AM

Speaking from vast combined experience on patients and news--

It is not at ALL unusual to not fully hear/understand every word as you get it, at the time you get it...

Or for docs to be sure all fam members DO get it all, at the time they hear it, so they can recall it for the pt. at the time it is most needed.

One of the more interesting features of pastoral care is to hear all the fam. tellings, sift out the "facts," and hold them all, till needed. In the meantime the pastor(s) pray for the whole magilla, and all the potentialities implied. Professional boundary thingie.

Thinks of it like this-- as a teacher or youth counselor, a pro knows things they may not foist upon a child or yoot-- or their parental beings-- because this or that detail may not be the most important thing for them to kn ow right then, in their professional opinion.

In this situation you have been doing the patient's job, and beautifully. You have known what to focus on at each step and have done so, with great strength.

A lot of people hear it all and then just argue with what they are told, anyway. One of the lovelier things about community is that it includes voices who will be wiser than we sometimes are. I like to think it is all God's plan that we hear these different voices, and that He gives strength and wisdom to folks when they need to make sure we "get" something. A big clue is that the truest wisdom usually comes in terms of love, because that's where He tends to put the strength. :~)

Would you really believe anyone right now besides Pete? :~)

I think if you look back, you will see that you alluded to this containment issue very early on. I think I recall it. Tho you may not have known how important it would prove to be to you later, and did not focus right on it squarely. That's OK. Pete had it for you!

~Susan

CC: CS


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 08 May 10 - 10:28 AM

I learned something new today. Or if it's not new, I have forgotten it. Pete and I were talking about....oh hell. I don't know how the topic came up but he said that my surgeon told them that my cancer was contained and there was no reason to think that it would have spread.

Why didn't someone tell me this? I know the staging but I had NO idea that it was clearly contained. Guess who cried tears of relief?

Maybe the staging indicates that but I had not heard it in those terms. Contained. One of the best words ever.

Michelle who is off to have lunch with an old high school pal who I haven't seen in about 2 years.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 07 May 10 - 09:16 PM

I think people who say, "Everything happens for a reason" need to be smacked upside the head. Twice.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: AllisonA(Animaterra)
Date: 07 May 10 - 08:21 AM

You go, woman!


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 07 May 10 - 05:01 AM

rest well! as your mom will.

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 06 May 10 - 06:51 PM

Whew. I am just about worn out. Cooked breakfast, lunch and dinner (for Mom), dinner for Pete and I, did 4 loads of laundry, did the grocery shopping, took out the trash, did the dishes, packed up all my stuff to go home and whatever else Mom needed. She's doing MUCH bettter today and is able to get up and around on her own! Oh...and I did wound care for her today too! I'm glad she's feeling better! YAY MOM!!!

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: jacqui.c
Date: 06 May 10 - 01:55 PM

What good news dear. Keep thinking positively!


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: VirginiaTam
Date: 06 May 10 - 01:50 PM

still following your progress and sending love and hugs

happy about the numbers


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 06 May 10 - 01:37 PM

CA-125

Normal is 35.
Pre-Surgery: 500+
Late April: 17. something
Today, May 6, 2010: 18.6

They said a little flucutation is normal. No worries.

*Deep breath and gratitude*

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 06 May 10 - 11:59 AM

:) :) :)

Waiting for a call from the Dr. about my most recent CA-125 test results.

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Bobert
Date: 06 May 10 - 07:02 AM

Go Michelle and Michelle's Mom!!!

Still here...

Hang in there... Yer doc is right... You'll be in the 10,000 Club... Might even become prsident of the 10,000 Club...

B~


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 06 May 10 - 03:14 AM

At our recent National Folk festival, Catter Callie's choir almost went thru the stage! Naturally they kept singing.

The stage manager was worried when 77 members came onto the high temporary stage & said that if he gave the signal members had to leave immediately, so at the signal one side (sopranos I think) moved off backwards, singing & kept going from the ground as one member could see Callie & passed on her directions.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: maeve
Date: 05 May 10 - 10:57 PM

Michelle, here it is. Our chorus sings it too, and I love it. I used to have the words imprinted on a clay tile in the garden:
    "Be like a bird, who, halting in her flight

    On a limb too slight, feels it give way beneath her;

    Yet sings, sings, knowing she has wings;

    Yet sings, sings, knowing she has wings."*link


*adapted from words by Victor Hugo.


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: LilyFestre
Date: 05 May 10 - 10:51 PM

My Dr. told me to not worry until he told me I had something to worry about. It's just on my mind.

I have to say that I have enjoyed taking care of my mom the last few days. It feels good to be useful. I made an early dinner for her (lean burgers and perogies at her request) and then drove home to make dinner (and eat....salmon on the grill, brown rice infused with lemon and summer squash with carrots and had dessert too....coffee ice cream..YUM) with Pete. He was very happy about that and I was too as I miss him. At the moment, I'm back at Mom's and she's sleeping. As for my sleeping...I did get some last night with the help of Ambien. I'm pretty tired tonight and am hoping to fall asleep on my own. Mama is currently sleeping on the couch which is where I sleep but I don't have the heart to wake her up.

Allison, I was listening to your CD on the drive home....Be like a bird.......what is the next line of that song? LOVE IT.

Much love to all,

Michelle


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: AllisonA(Animaterra)
Date: 05 May 10 - 06:41 PM

You are a wonderful daughter, dear one, and you are and will continue to be just fine!
How about sleep? Getting any?


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Sandra in Sydney
Date: 05 May 10 - 06:35 PM

I saw my surgeon yesterday for my 3 monthly post-op check up (everything ok naturally!) & he looked concerned for a second or 2 when I said you were having treatment for ovarian/uterine cancer. When I said it was stage 1, he was very pleased (same as your doctor!) that it was found so early. So he's not worried about you (same as your doctor!) does that sentence make sense?

if the doctors aren't worrying, & you must, maybe you can worry about more important things like what's for dinner, or washing up or ...

sandra


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Subject: RE: LilyFestre - Great oncology numbers!!! Yowza!!!
From: Stilly River Sage
Date: 05 May 10 - 06:08 PM

What a busy recuperation you've been having, Michelle!

It's beginning to feel a little summery here. Have you checked about your meds--can you get sun, or do you have to stay out of it? I think I asked this before, but I don't remember if you got an answer. Anyway, take it easy back there!

SRS


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