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LilyFestre-Mommy+Daddy+Baby...now on to Life!

wysiwyg 16 Feb 10 - 12:19 PM
wysiwyg 16 Feb 10 - 12:12 PM
wysiwyg 16 Feb 10 - 11:58 AM
maeve 16 Feb 10 - 10:50 AM
LilyFestre 16 Feb 10 - 10:38 AM
SINSULL 16 Feb 10 - 09:22 AM
Revelations 16 Feb 10 - 08:30 AM
LilyFestre 16 Feb 10 - 08:24 AM
Sandra in Sydney 16 Feb 10 - 12:27 AM
LilyFestre 15 Feb 10 - 09:34 PM
VirginiaTam 15 Feb 10 - 12:23 PM
wysiwyg 15 Feb 10 - 12:08 PM
LilyFestre 15 Feb 10 - 10:44 AM
SINSULL 15 Feb 10 - 10:16 AM
wysiwyg 15 Feb 10 - 10:08 AM
Sandra in Sydney 15 Feb 10 - 08:29 AM
AllisonA(Animaterra) 15 Feb 10 - 07:44 AM
jacqui.c 15 Feb 10 - 07:39 AM
LilyFestre 15 Feb 10 - 06:45 AM
AllisonA(Animaterra) 14 Feb 10 - 08:19 PM
wysiwyg 14 Feb 10 - 07:31 PM
Rowan 14 Feb 10 - 03:31 PM
wysiwyg 14 Feb 10 - 11:51 AM
LilyFestre 14 Feb 10 - 09:47 AM
wysiwyg 14 Feb 10 - 09:14 AM
LilyFestre 14 Feb 10 - 08:56 AM
wysiwyg 14 Feb 10 - 08:38 AM
VirginiaTam 14 Feb 10 - 06:55 AM
AllisonA(Animaterra) 13 Feb 10 - 08:12 PM
TheSilentOne 13 Feb 10 - 05:12 PM
wysiwyg 13 Feb 10 - 04:19 PM
katlaughing 13 Feb 10 - 12:58 PM
Stilly River Sage 13 Feb 10 - 10:52 AM
wysiwyg 13 Feb 10 - 10:42 AM
maeve 13 Feb 10 - 10:39 AM
LilyFestre 13 Feb 10 - 09:59 AM
maeve 13 Feb 10 - 09:26 AM
LilyFestre 13 Feb 10 - 09:21 AM
LilyFestre 13 Feb 10 - 09:03 AM
Bobert 13 Feb 10 - 08:27 AM
LilyFestre 13 Feb 10 - 07:46 AM
LilyFestre 13 Feb 10 - 07:26 AM
AllisonA(Animaterra) 13 Feb 10 - 07:18 AM
Rowan 12 Feb 10 - 10:03 PM
wysiwyg 12 Feb 10 - 09:28 PM
wysiwyg 12 Feb 10 - 09:14 PM
Sandra in Sydney 12 Feb 10 - 08:55 PM
LilyFestre 12 Feb 10 - 08:42 PM
wysiwyg 12 Feb 10 - 11:24 AM
AllisonA(Animaterra) 12 Feb 10 - 09:17 AM
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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 16 Feb 10 - 12:19 PM

Songs for Battling Cancer

~S~


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Subject: Lyr Add: BRAID MY HAIR (Gray/Wilson)
From: wysiwyg
Date: 16 Feb 10 - 12:12 PM

Song linked in post just prev (includes background info) references Locks of Love.

Found the lyric.

~S~

===

BRAID MY HAIR
Written by by Gray/Wilson
As sung by Randy Owen on "One on One" (2008)


1. She could be the first female president
Or be the doctor whose experiment
Finds the cure to what she's in here for;
But right now treatments keep her sick in bed.
That baseball cap never leaves her head
And while she sleeps I sit and dream...
One day I asked her, "What do you wanna do when you grow up?"
I soon found out I wasn't dreaming big enough.

CHORUS: She said, "I'm gonna ride my bike, I'm gonna climb a tree
Gonna fly a kite, score a run in Little League
I'm gonna go to school, make a friend, be able to run again
Take off my mask and just breathe in the air--
But most of all I'm gonna braid my hair."

2. She could question God; Lord, knows I would!
She could just give up; I don't think I could
Be that strong or fight so long.
How can such a little girl have such big faith?
And even through the pain she still prays, saying,
"God will make a way...

CHORUS REPRISE: "For me to ride my bike, for me to climb a tree
I'm gonna fly a kite, and score a run in Little League
I'm gonna go to school, make a friend, be able to run again
And take off my mask and just breathe in the air.
But most of all I'm gonna braid my hair that's down to my waist
Then I'll get it cut so they can make
Locks of love for some little girl who's just like me."

Wonders if she'll ever be
Able to ride her bike, able to climb a tree
Able to fly her kite, and score running little league
Able to go to school, make new friends, be able to run again
Take off her mask and just breathe in the air
And most of all she can braid her hair
She can braid her hair


Source (correx made fr transcription): Braid My Hair lyrics at http://lyrics.cmlyrics.com/

SH


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 16 Feb 10 - 11:58 AM

Alert: Heart-thawing song link inserted into the following informational post.

~S~

===


New Randy Owen single to benefit St. Jude

"Braid My Hair," the new country single from Randy Owen, will not only serve to launch the country music legend's solo career, but will help children in the fight against childhood cancer.

That's because 100 percent of the song's publishing royalties are being donated to St. Jude Children's Research Hospital by Owen and songwriters Chris Gray and Brent Wilson. The single will hit radio stations in late January.

VIDEO SONG - BRAID MY HAIR

In addition, you can support St. Jude by purchasing a digital download of Owen's new single. Using the media player below, you can hear the single (http://www.weblastonline.com/store/product_info.php?cPath=2&products_id=42&ref=15) and then purchase a copy for $1.99. Fifty-cents of the purchase price will go to St. Jude. In addition, you will receive a free "Braid My Hair" ringtone and $1.00 off of the purchase of Randy's upcoming album release "One On One."

The song is the first single for Gray and Wilson and reflects Gray's experience as a teacher in a children's hospital, helping kids keep up with schoolwork while they underwent treatment for cancer and other conditions. Gray often witnessed the side effects of chemotherapy and knew kids – especially girls – wanted to be able to braid their hair again.

"The song is so real," Owen said, "and I've seen this lived out time and time again with the kids at St. Jude. It's an incredible story done in song."

The song will be featured on Owen's debut solo album, titled One on One, and will hit stores this spring on the newly-formed DMP Records. Owen and his 10-piece band will hit the road later this month for a tour that will extend into the fall.

Owen has long been a supporter of St. Jude, helping to found the Country Cares for St. Jude Kids radiothon program which to date has raised more than $315 million for St. Jude. In 2007, the Thomas family honored Owen with its prestigious Founder's Award.

January 2008
http://www.countrycares.org/content/latest_stories.cfm?content_id=195

===

Saw and recorded the song on CMT Studio 330 Sessions
(Looking for lyrics but so far no luck)

SH


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: maeve
Date: 16 Feb 10 - 10:50 AM

Thanks for checking in, Michelle. You are doing well!

maeve


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 16 Feb 10 - 10:38 AM

It's Mardi Gras and I'm celebrating with a giant ass cocktail of taxol and carboplatin.....too bad it won't have the same effect as a Tom Collins!!!

   I'm in the chemo chair at the moment, lots of anti-nausea pills and steroids have been given. IV in at the first try and right now it's just running saline, taxol to begin in about 15 minutes or so. My nurse is really nice and has answered my bazillion questions.


More later.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: SINSULL
Date: 16 Feb 10 - 09:22 AM

No I didn't change my name. Someone has been playing on my computer at work. I am back to SINS.


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: Revelations
Date: 16 Feb 10 - 08:30 AM

Between you and Kendall I slept about wo hours last night too. Mardi Gras, Lily. Fat Tuesday. Celebrate the first step towards total good health and a life.


Yeah - it sucks but that is the best I could come up with.
Love,
SINS


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 16 Feb 10 - 08:24 AM

I'm off to my first chemo appointment...slept maybe 2 hours last night. ARG.

It's going to be ok.
It's going to be ok.
It's going to be ok.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: Sandra in Sydney
Date: 16 Feb 10 - 12:27 AM

Susan & Tam - my sister (2 years younger) sometimes calls me Petal & I'd always assumed it was related to Pet - term used by older person to youngster! Our Nan used to call us Pet at times.

sandra


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 15 Feb 10 - 09:34 PM

Tonight I am at the House of Care which is mostly for cancer patients. There are no tv's in the rooms to encourage people to get OUT of their rooms and hang out in community areas like the kitchen, living room/library or one of the tv rooms.

There are some people here who have lost their hair and it bothers me to see them because I know that very soon, I am going to be one of them.

Lots of different people with various diagnosis and stories. Mom and I hung out in the kitchen area where there are several cafe style tables. We played some games, I learned a new one with Dominoes called Turkey Toes....fun! I also read in the living room for a bit and have now retired to our room.

By this time tomorrow, I will either be home or if it is still snowing, I'll be here....first treatment over with.

I am not looking forward to it.

In order to help assist with the IV issues, I've been drinking water like crazy....being dehydrated makes it all the harder to get an IV in.

And btw, I like Petal!!!!   :) Made me smile!

I'll explain LilyFestre another time. For now, I'm tucking into bed and going to try and focus enough to read.

I'm keeping a few things my priest told me in mind.....in particular, "Damn it, I WILL get through this!"

Love and hugs.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: VirginiaTam
Date: 15 Feb 10 - 12:23 PM

Oh no.. I am late in posting.

Well here waiting for your return and hoping all goes easy peasy for you.

Susan - Petal = part of a flower = different kind of term of endearment, like honey, baby, sweetie, sugah, angel.

Yes I wondered about Lilyfestre too


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 15 Feb 10 - 12:08 PM

Michelle,

Thank you for:

More directly, I am afraid that they will have trouble getting the IV in. I am afraid it will burn. I am afraid that I will be sick to my stomach for the next 6 months. I am afraid that it won't work. I'm afraid I'll cry and never stop just looking around the treatment room.

This is a good spot to share, now, with Hardi as well.

In the vein of my earlier post, I would say this: by the time you read this you will probably have experienced many of the following:

"I was afraid that they would have trouble getting the IV in, and the did, but I handled that well. I was afraid it would burn. It did but discovered that I could handle that quite well. I was afraid that I would be sick to my stomach for the next 6 months, but I realized that all I have to deal with is Today, and today I felt great and [insert the day's blessings]. I was afraid that it wouldn't work but then I realized how blessed I am and how much worse other folks have it. I'm was afraid I'd cry and never stop just looking around the treatment room, and then I remembered all the times Susan and other people have affirmed and welcomed my healing tears, which God sends me when I really need them, though the Holy Spirit which is also called the Comforter."

This is how I pray for you. I'm quite confident that any piece of it that is what you need to hear next, you will hear, and that you will shrug off the rest for a time it may or may not come back to you.

====

What does "lilyfestre" mean, BTW, and what does "Petal" mean?

~Susan


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 15 Feb 10 - 10:44 AM

More directly, I am afraid that they will have trouble getting the IV in. I am afraid it will burn. I am afraid that I will be sick to my stomach for the next 6 months. I am afraid that it won't work. I'm afraid I'll cry and never stop just looking around the treatment room.

And that's just for this trip. Forget about the port procedure coming up soon.

Leaving soon.

Thank you and much love to all,

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: SINSULL
Date: 15 Feb 10 - 10:16 AM

Tuesday will be a busy day in Mudcatville with Kendall in Boston and Lily at chemo.   I believe I will take a nun or two to work to keep me focussed on what's important.
Good luck to both of you.
Much love,
Mary


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 15 Feb 10 - 10:08 AM

If you can narrow the fear into a more specific thing, it's easier to know how to meet it.

One way is to name it and then laugh scornfully at the fear.

"I'm scared that xxxxxx. Ha Hah! HAH!, fear, I'm bigger'n you!"

Maxine: Wake every morning as if Satan says, when he hears your feet hit the floor, "Oh NO! She's AWAKE!"

I'll try to remember to print the cartoon where she sez that, for ya.

~Susan


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: Sandra in Sydney
Date: 15 Feb 10 - 08:29 AM

sending more love & good wishes

sandra


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: AllisonA(Animaterra)
Date: 15 Feb 10 - 07:44 AM

Holding your hand and breathing with you, my dear....


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: jacqui.c
Date: 15 Feb 10 - 07:39 AM

I will be here and thinking of you tomorrow Michelle.


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 15 Feb 10 - 06:45 AM

I'm up early this morning, packing for a 2 night stay at the House of Care. Tomorrow morning I will have my first chemo treatment via IV.

I'm nervous about it. Scared really.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: AllisonA(Animaterra)
Date: 14 Feb 10 - 08:19 PM

It's also a kind of neckwear...


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 14 Feb 10 - 07:31 PM

Rowan, isn't the bolo the whole shebang, strings and balls and all?

(yikes, imagery)

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: Rowan
Date: 14 Feb 10 - 03:31 PM

OTOH a "bolo" is a South American throwing thing to catch cattle.
with strings attached.

Cheers, Rowan


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 14 Feb 10 - 11:51 AM

Cop talk-- they issue BOLO's.

Be
On the
Look
Out

BOLO

OTOH a "bolo" is a South American throwing thing to catch cattle.

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 14 Feb 10 - 09:47 AM

Ok. I HAVE to ask. What is BOLO? Buy one lend one? LOL My grocery list often reads, BIG1F (buy 1 Get 1 Free).

Anyway, I can't make sense of it, help please!!!!

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 14 Feb 10 - 09:14 AM

LF,

When the CS and I plan these longer trips, we find Weather Underground (wunderground) invaluable. It has settings on the page where you can save your fav. cities to quickly see what weather they are having.

Thanks for showing me Jacqui's knitted caps last night. For a long time our dear Maeve was my best "window in" on the Mainers; the color variety/color/care taken/textures of the caps-- and especially the hatbox Jacqui had sent them all in-- was just as powerful. I knew that lady was special, of course-- but the abstract idea is seldom as powerful as the show and tell. So I thank you for sharing not only the gift from YOUR view, but for enlarging mine in a way that may benefit others as well (tho I am sure you didn't know that).

About the distances hereabouts, and the conversation last night about hats and books that "call" to me sometimes-- We sometimes pick up faraway items for others, and how we reduce the "clutter" about that is to call folks up while looking at items, to see if they are wanted. Is that something that would work for you? I think Hardi has your cell (maybe under Bonnie's name, LOL) on HIS cell and he usually carries it even on his day off (and I sometimes use it to field church stuff ON his day off sometimes so he GETS a real day off.)

About the word picture-- the photog. I'm looking fwd to you modeling your new look. ROLE modeling is what I was trying to suggest, because I think you will be equally gorgeous and graceful. People will see you and think, "Oh, that looks like a yoga person." (I know I will.)

Re: svc recordings. I found a spare cord finally, and that means I can slice up one we have that doesn't poke deep enough into the slot. If we can modify it-- and BTW I have a drawerful that need the mod-- I'll have a cord for you. In the meantime pls do not waste your $$ on one, because chances are it will not fit.

Go get 'em girl. And..... ya might wanna BOLO for the people that will be looking to you as their leader/mentor/comforter/ROLE MODEL..... :~) That teaching cert may kick in at any moment. :~)

~Susan


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: LilyFestre
Date: 14 Feb 10 - 08:56 AM

Having myself a mango smoothie for breakfast with the whey powder. It's not bad, not bad at all. :) Next time though, I need more mango!

As it turns out, we are supposed to get quite a bit of snow on Monday night. My first chemo appointment is early on Tuesday morning and the place is about 2 hours away. So...they have this place near the treatment center called The Care House. It's like the Ronald McDonald House but for adults who are undergoing cancer treatment. I called this morning to make reservations for Monday and Tuesday (as I'd like to be nearby for the first treatment in case I have any adverse reactions). First the hospital has to call The Care House to confirm that I am a patient. So now, I'm just waiting to hear if they have room. Bonus? It's only $15.00 a night. We have to make our own beds and change the linens when we leave. Big deal. There are no TVs in the rooms but there is a community room with a television if we want to watch tv. If not, we can read, or cook in the community kitchen. Anyway, I'm hoping it goes through so we don't have to drive these mountains in a snow storm.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 14 Feb 10 - 08:38 AM

VT, I WAS wondering how he could be TSO if he warn't being S.

:~)

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: VirginiaTam
Date: 14 Feb 10 - 06:55 AM

oops! TheSilentOne post was from me... I was on desktop pc and Mudcat was his log in..

Doh!


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: AllisonA(Animaterra)
Date: 13 Feb 10 - 08:12 PM

Lily, you sound positively euphoric! What a welcome sound! Keep it up, sweetie!

(my beloved baldy swears by conditioner...)


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: TheSilentOne
Date: 13 Feb 10 - 05:12 PM

just loving the constantly morphing title of this thread...

very good, very positive.


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Subject: RE: BS: LilyFestre -UPDATE - she's back in motion!
From: wysiwyg
Date: 13 Feb 10 - 04:19 PM

I like the new thread title. Already Traced so easy to Find.

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: katlaughing
Date: 13 Feb 10 - 12:58 PM

We applied to both hospitals here with what is considered a fairly decent income and we get a 35% discount. Well worth talking to the financial dept.

Good to hear you are doing so well!


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: Stilly River Sage
Date: 13 Feb 10 - 10:52 AM

I agree with Bobert--talk to the hospital and see what kind of deal you can cut. The trouble with all of this insurance/no insurance health care is that no one really knows how much anything costs. The hospital gouges the insurance companies hoping to cover the uninsured they have on their books, and your 20% is of a gouged price, or that's my guess. The amount the insurance company actually pays the hospital is much lower than the hospital asked for, so you need to figure out what numbers are really in play and go from there.

Good luck. Getting well in this day and age means not only surviving the medical treatment but also walking the minefield of hospital billing departments. And bills seem to trickle in from all sorts of directions.

SRS


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: wysiwyg
Date: 13 Feb 10 - 10:42 AM

LF,

BaldING folks have tips too-- they usually go first for warmth because you will not believe how much heat loss your scalp can generate.

The good news-- you will be burning a boatload of calories due to that. Yep, a weight-loss furnace.

The bad news-- in warmer weather the sensation is kinda neat but in cold weather it's painful-- so you may go hats now, scarves for spring, henna or other art for summer (if chemo goes that long or for the use of others who may read this).

The other bad news-- sugar/insulin adj.

SLEEPING in hats-- oh yes, bedtime can be cooooollllld. Ya wanna loose hat that pulls way down, seams in the right places for your sleeping position; ya want a variety of weights and textures. "Sallies" is our "pilot" source to see what we are going to like enough to pay for retail versions.

===

The book-- I only saw one copy there.

===

In your travels if you see a yellow store bag like the boxy, reusable bags all the stores have-- later tonight you'll see why we've been looking for one or two. Color-coded songbook totes.

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: maeve
Date: 13 Feb 10 - 10:39 AM

No, Michelle; he only uses very mild soap and avoids overly hot water.

http://www.burtsbees.com/
There is also a store locator link on the site.

maeve


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 13 Feb 10 - 09:59 AM

Maeve,

    OUCH. Can you ask him if he uses shampoo or conditioner in the shower? I like Burt's Bees stuff too...so I'll have to find some of that...I like that it's all natural and those products DO smell good!! Great idea! Thank you!

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: maeve
Date: 13 Feb 10 - 09:26 AM

Michelle- My husband's scalp was scorched in the fire. It's been wicked itchy; so he just shaved his head. He is using Bert's Bees Thoroughly Therapeutic Honey & Shea Butter Body Butter. Ingredients include honey, shea butter, mango butter, aloe, and Vitamin E.

I use it for dry skin, too. It's pricey for us, but was the first thing we bought for our comfort the week after the fire. We both like its effect on dry, irritated skin, and it smells pleasantly of honey.

Remember to use a good sunscreen and hat.

maeve


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 13 Feb 10 - 09:21 AM

Susan,

   Thanks for the information about the book. It so happens I have an article sitting on my table about cancer-fighting superfoods written by Rebecca Katz. Lots of good information there and I'll look for her cookbook the next time we are at Wegmans which may be later today or tomorrow.
   One of the things she said is that people who are going through chemo recover faster and have more energy when they increase their protein to 80 grams daily. She recommends using whey power (which is easily absorbed and won't add upset to the treatment) in smoothies made with frozen fruit and plain yogurt. I'm going to be adding that to my diet as soon as we get to the store.

   I've been to Guitar Works several times with Pete and the Moosewood is a great place to go...I LOVE the juice bar....best grapefruit juice EVER!!! And I do know about the Oriental market you are talking about....never stopped in but next time I'm in Ithaca I will. I appreciate the information.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 13 Feb 10 - 09:03 AM

One more thing....I've taken to asking bald men how to care for my scalp. Last night the local judge was at yoga and well, he hasn't got any hair...so I asked him what he did to take care of his scalp....shampoo? conditioner? He said he just uses soap, water and some moisturizer. And then he went on to tell me that his wife has had breast cancer twice and also lost her hair and I should call her. He gave me their home number and also told me she would be helping to run the next Look Good Feel Better Program and I should sign up. I'm already signed up...it's next week. Cool beans. It amazes me how many people have had cancer....why is it something that is hush hush? I don't know about you but talking with other people helps calm me down and feel better about the process. You can bet that I will talk with anyone, anywhere about my path when I am through this.

Michelle

PS. Anyone here take care of a bald head differently?


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: Bobert
Date: 13 Feb 10 - 08:27 AM

Michelle,

If you talk with the "finance department" at the hospital they can sometimes ***make deals***... Most hospitals have a certain percentage of cost that they finance person is allowed to write off... Of course, the formula is based on income and expenses so if ya'll are million-gazillionaires they probably won't do anythin for you but if yer laike alot of folks with mortgages, bills, etc, they just might help ya'll...

Doesn't hurt to ask...

Heck, I had a colonoscopy and just went in and asked if I could make payment on it and next think ya' know they knocked 25% of the charges off...

Glad yer feelin' better... But 2 hours in a department store worries me... It's a guy thing...*grin*...

B~


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 13 Feb 10 - 07:46 AM

Oh...and more news. My insurance company will only pay 80% of the chemo treatments. ARG. Oh well. I'll be paying for this until I die. No way around it though so I can't worry about it. Better news....they will pay 100% of a "Hair prosthesis" up to $1500.00! That means I'll be able to get myself a nice wig, one fitted for ME, if I want. There's a wig shop near the hospital that I'm going to have to check out. Currently I have 4 wigs, only 1 of which I have tried on (the others were sent to me) and I don't think I'm going to be a wig girl....I'm pretty sure I'm going to be a cap girl!!! They are so much softer and cooler (or warmer depending on the cap) and they don't look like dead animals! YAY!

I also talked to my surgeon's head nurse who really doesn't do any nursing but rather fields questions and soothes nerves. We talked for 20 minutes yesterday. She thinks I 'm a hoot! I told her I found some henna tattoos for bald heads and I might just go ahead and do one...found one of leaves and flowers that I really like!!! Pete said he'd give me $20.00 if I'd do a henna tattoo on my head that says, "This end up!" LOL. It might just be worth it!

Love to all,

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 13 Feb 10 - 07:26 AM

Allison,

   That did the trick!!! I slept last night for almost 9 hours!!!! YAY!!!!!!!

I feel SO much better this morning!

*******************GROSS ALERT***************

My incision is healed in most places. I still have two small spots just inside the rim of my navel that are healing very slowly....I had antibiotics for them but they are still green....much smaller, but green. The surgeon says they are topical infections and not to worry. And then almost at the top of my incision, there is a spot that did not close and had developed a large, thick black scab. It's been itchy and last night it came off. It's healed underneath, almost 100%! YAY!

*****************************************************

Later Gators!

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: AllisonA(Animaterra)
Date: 13 Feb 10 - 07:18 AM

...singing a Lily lullabye...


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-
From: Rowan
Date: 12 Feb 10 - 10:03 PM

Good news, Michelle!

All the best, Rowan


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: wysiwyg
Date: 12 Feb 10 - 09:28 PM

One BITE at a time, described at Amazon:

http://www.amazon.com/One-Bite-Time-Nourishing-Survivors/dp/1587612194

Descr. from earlier edition (it's also been revised):

Reviews
" Rebecca creates with the intention of nourishing people with cancer, survivors and their caregivers." -- Healing Lifestyles & Spa Magazine

"...Tantalizing recipes that should appeal to just about anybody with taste buds...plenty of useful information and interesting anecdotes." -- House Beautiful: Kitchen And Bath Magazine March,2005.

"A cookbook... with a difference. It educates the reader on how to cook in a healthful manner without sacrificing flavor." -- Knight Ridder/Tribune Book Review, March 07, 2005.

"A gem, especially if you in the diffcult position of caring for a relative or friend who is ill." -- The Baltimore Sun January 14, 2005.


Product Description
Through The Inner Cook, her San Francisco Bay Area practice, chef Rebecca Katz teaches creative culinary solutions to peple navigating the aftereffects of cancer treatments. For those whose appetites have been turned off by illness, Rebecca's ONE BITE AT A TIME is an instant turn-on to good, nourishing food. In this comprehensive cookbook, Rebecca shares delicious, immune-boosting recipes for people living with cancer, their caregivers, and the ever-growing number of cancer survivors.

ONE BITE AT A TIME features more than 85 simple-to-prepare, sumptuous recipes. From little nibbles to satisfying entrees Rebecca's flexible approach is designed for both the individual and the entire family to enjoy. Dishes such as Poached Coconut-Ginger Salmon, Spinach Orzo with Pine Nuts and Feta, Taxicab Yellow Tomato soup and Magic Mineral Broth reinvigorate the appetite with ingredients that help bolster the body's immune system.

To accompany the recipes, Rebecca offers down-to-earth information and helpful advice for those dealing with the culinary ups and downs often experienced during treatment. Learn what friends and family can do to best pitch in; discover easy substitutes for "forbidden" foods; look up "nutrition-at-a-glance" information for each recipe; and see how to wake up taste buds in any dish by using just a few basic staples from the pantry.

Rebecca's caring, humor-filled recipe notes will warm your heart and remind you that, along with a good meal, laughter can truly be the best medicine. Throughout the book's pages, Rebecca's clients attest to this fact, as they share anecdotes of the joyous impact these recipes have had on their lives.

At a time when you may feel that nothing is under your control, something as simple as creating a nutritious, healing dish for yourself or a loved one can be a reaffimation of your humanity and a tangible way to nurture someone you care about.

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: wysiwyg
Date: 12 Feb 10 - 09:14 PM

LF,

I can promise you that anxiety and sleeplessness will run their course, and your body's rhythms will re-assert themselves. (Details tomorrow if wanted). Ride out the short sleep as best you can-- I promise, it gets better.

At Wegman's in COrning I saw a book on anti-cancer nutruition, "One Boite at a Time," intended for cancer pts and their friends. Did not have time to look inside it-- we were ona major low-su=gar recon mission.

~S~


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: Sandra in Sydney
Date: 12 Feb 10 - 08:55 PM

wishing you a peaceful rest

sandra


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: LilyFestre
Date: 12 Feb 10 - 08:42 PM

Well, like I said, it's not nice but it IS true. I am NOT going to feed the cancer cells if I can help it and I DO hope they all starve to death.

Today had been a roller coaster for me and I guess that is to be expected.

I had to stop a med that I was taking at night to help me relax so I could sleep (side effect of this med is that it possibly lower white blood cell count...can't have that going into chemo). I haven't slept more than 6 hours in the last 72 hours.
I am TIRED.

Maybe tonight I will be able to sleep.

Michelle


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: wysiwyg
Date: 12 Feb 10 - 11:24 AM

LF, re: Ithaca, sugar, and The phrase, DIE MOTHER F#@K^R DIE comes to mind. Not nice, but TRUE.

===

Ithaca:

1. Guitar Works still there? Isn't there a Moosewood Cafe in that building? If so I recall that it had good, healthy eats, not to mention Guitar Works as CD-heaven and they did a GREAT repair or two for us there (non-guitar) as well. Also good amps, priced fairly. (Maybe you already know all this.)

2. Anytime you want something from this place (tho I know Pete works nearby), just let us know to put it on our list: Oriental market with GREAT stuff, on the road into town, near the Tractor Supply, same side of road, across from Sallie's-- maybe you already know this-- much of their staff is bilingual.... store name coming to me.... Winli. Hard to spot it on the way in, easier to see it on the way out. The Red Cargo rice is superb and lo-glyc, as is the brown jasmine rice. Cheeeeep. A great jarred curry powder is there. All the ingred for making Miso Soup, incl a tofu that does not require refridg. till opened. (!!!)

===

Re: Saying "mean" things to cancer. Short version: There are so many ways in which that battle is just like spiritual warfare; any GOOD reference on spir. warfare (SF) will also work on cancer. One of the most powerful tools in SF is to proclaim the positive rather than engaging the negative AT ALL. This can be done in a number of ways (and is one way I pray for you). Hardi or I have good SF texts. His are Angl. classics, mine are ecumenical. I even know where MINE are. :~)

===

Hardi is minimally briefed to make time to hear your great news and will be back at office-sched-mode tomorrow.

===

As you know, Hardi has this thread's URL to check in at his discretion, but does not read my PMs, so thanks for keeping most of our "chats" in here these days. If a new "Chemo" thread starts, you might want to give him that URL.

~Susan


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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-)
From: AllisonA(Animaterra)
Date: 12 Feb 10 - 09:17 AM

Yeah, I've been hearing about the sugar/cancer connection. Sucks, doesn't it?

Michelle, you are sounding happy and well and ALIVE- keep it up, honey!

(oops- no honey, either? I suppose in moderation...)


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