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LilyFestre-Mommy+Daddy+Baby...now on to Life!
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:- From: Sandra in Sydney Date: 04 Feb 10 - 04:51 AM lots of good news & advice here. sending more hugs & good wishes sandra |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: kendall Date: 04 Feb 10 - 07:24 AM You are going to be ok. Remember, "Steel is tempered by fire, and mankind by adversity." (Seneca) |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: maeve Date: 04 Feb 10 - 08:01 AM Kendall threw Seneca at me too, Michelle. He is correct. We are all going to be the most tempered folks imaginable after our current challenges fade away into memory! m |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 04 Feb 10 - 09:10 AM Hey, where do you want your wing chair? Kids' seating or elsewhere? Believed it or not the sound is pretty OK even back where it now sits-- that's one reason it sits there-- but wherever you want it we can set a chair by it for Bonnie (or whoever you choose). We also have a parish wheelchair. Yes I know you do not need a wheelchair!!! But it has a really comfy seat and is smaller-- a better fit for an aisle placement. Do you know the Obourn twins (Jean Z and Joan L), who come almost every Saturday night? Their granddaughter/grandniece Heidi often comes with them-- athletic-looking blond preteen with a thick ole shock of hair and a WAY outgoing personality. One of her ministries is to sit with folks. She sat with Joanne N. while Lew was away recovering from HIS chemo... she's quite the snuggler and whisperer... BOLO for her. I am told that some chemo's knock down the immune system more than others-- Lew had to stay away for a LONG time to be sure he didn't get any nasties (he was pretty fragile in general). Do you have an MP3 player? It's very easy now to record that service-- let me know, OK? Are you and Pete looking into henna tattooing (temporaries) if you both go Kojak? (I bet you can henna each other.) ~Susan |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 04 Feb 10 - 09:11 AM How wonderful to hear a doctor refer to a cancer as "ho-hum". Some of it really is routine stuff. You are going to be fine, Lily. You must be so relieved. I know I am. Mary |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Cuilionn Date: 04 Feb 10 - 10:42 AM Courage and Bold Healing Blessings to you! If you're going the smooth, shiny head route, you have lots of decorative options. Susan's already suggested henna... A woman in our church acquired a fantastic assortment of headscarves while she was (successfully) fighting breast cancer, and she wore them with such aplomb that us hair-encumbered women felt secretly jealous! |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: AllisonA(Animaterra) Date: 04 Feb 10 - 01:49 PM Love, love, love- I'm loving what all these good folks are saying, and of course, I'm still pouring love your way, as well! I'm glad Cuilionn popped the question- I love to knit hats, so if you want one I'll send you an assortment of pattern ideas to choose from! Allison |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: VirginiaTam Date: 04 Feb 10 - 01:58 PM I AM GOING TO BE HEALTHY!!!!! Yes indeed!!! something to consider - turning one of the side effects of your treatment into a gift.... Locks of Love You and your Peter might do this and every time you look at each other or in the mirror remember the gift you have given to children. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: katlaughing Date: 04 Feb 10 - 03:25 PM That's an excellent suggestion, VTam. My daughter has done that several times. It's a good feeling. Glad to hear your news, Michelle. Congratulations for making it through all of this and for your positive attitude now. kat |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 04 Feb 10 - 09:01 PM Today I woke up and for the first time since early December, I felt secure, safe and happy. The bubble of fear that has been sitting inside me is gone....and I hope it's gone FOREVER. Today is also the first time since early December that I haven't cried. I am so very thankful for that! Susan, about the chair, in front of the chapel would be great!! And depending how my chemo goes, I may have to stay away to protect myself from any infection (as you know my immune system will be low). I do have an iPod and it would be great to be able to still listen to the service. And chemo caps? Yep...I'm going to need some!!!! I remain overwhelmed with the kindness of all of you. <3 Much love, Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: maeve Date: 04 Feb 10 - 09:04 PM And so the strong woman rejoices! maeve |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Stilly River Sage Date: 04 Feb 10 - 10:27 PM Good for you, Michelle! Moonglow donated a big chunk of hair to Locks of Love several years ago. Busy day, got some stuff done, but I've been very tired. I'm convinced it is allergies, a reaction to the mountain cedar (a native juniper). One of the things I did today was get to the Half Price Books near work and I found the (now belated gifts) books I was looking for. SRS |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Stilly River Sage Date: 04 Feb 10 - 10:28 PM Oops-- that was more productivity stuff than get well stuff. Michelle, we're looking forward to you being back on the de-clutter list so we don't do these list faux pax! |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: AllisonA(Animaterra) Date: 05 Feb 10 - 08:13 AM For years I've been a "hair factory"- chopped off 10 inches every other year or so (yeah, if I've got the ability, might as well!). Now, my DH LOVES it the longer it gets, so I'm on hold for now. But in another year or so, 10 inches will still leave me with long tressees, and the factory will start up again! Michelle, PM coming. I'm finishing up a sweater for Afghans for Afghans but it'll be done in another week or so and I'll fire up the needles! |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Catherine Jayne Date: 05 Feb 10 - 08:32 AM Great news Michelle. Glad the bubble of fear is starting to lift. Here's to full healing. (hugs) Khatt xxx |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 05 Feb 10 - 08:51 AM Amazing how you can actually be looking forward to or at least planning for chemo. It is good to see you happy, Lily. You have earned it. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: VirginiaTam Date: 05 Feb 10 - 12:47 PM got nothin to offer here but a huge grin
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 05 Feb 10 - 01:13 PM :) Thanks Tam!!! I just got off the phone with the local American Cancer Society and they are going to send me some wigs to try and to take to a Look Good Feel Better program later this month. The woman who runs it is a beautician and she will be able to trim the wig to fit my face or whatever. They are also sending me some turbans for sleeping in (as many people get cold not being used to having no hair). I know it's stupid but this really bothers me. I KNOW it's a very VERY small price to pay in turn for wiping out any residual cancer cells. But I watched a video about the woman from Good Morning America who lost her hair during chemo for breast cancer and it just breaks my heart. I know it's superficial and my hair will grow back but it makes me so sad. :( On that same video, they talked about women who refused chemo in order to keep their hair. I think that's ridiculous....and I will do the chemo with my chin up as best I can...but right now, I feel almost like I'm in mourning. I wrapped up my hair last night to try and get an idea of what I will look like. It's NOT pretty. AT ALL. *sigh* I AM GOING TO BE HEALTHY....SCREW THE HAIR. *sniff* Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 05 Feb 10 - 01:24 PM I wish there were something to say to make you feel better about the hair loss. I have no experience with it. Many years ago I had the bright idea to permanent my waist length hair. I ended up with an enormous afro. A carful of young Hispanic men pulled up next to me on the street attempting to pick me up until they saw that I was too damn old. Next day I cut it all off - less than an inch long - and wore hats until it grew in. Most people assumed I had lost my hair to chemo but I had lost it to chemicals. LOL The hats looked great. I can't usually wear them but hairless they looked great. Play with turbans and scarves and baseball caps and whatever appeals. Have fun with it. It won't bring your hair back but will make the loss a little more bearable. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: jacqui.c Date: 05 Feb 10 - 01:43 PM Once you have the wig and some fetching little hats I think being hairless for a while won't be a problem. Rather than looking at the same old hair, day after day, you will have a selection of headgear to choose from for today's 'look'. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: VirginiaTam Date: 05 Feb 10 - 01:47 PM heya babe... I had self-induced alopecia (bald spots) in my mid 20's. So stressed I had picked up a habit of pulling out one hair at a time, twisting it around 2 fingers and cracking the twining with my thumb. It was an OCD thing. Did this for about a year. It was pretty long at the time and so at first I could hide spots by combing over to one side and putting in side braid. This worked until I started attacking the hairline at my temples. I got really creative about hiding the damage, using different hair styles and eye catching scrunchies, barrettes and combs. Distraction from the damage was key. I also wore hats. I had a couple of ball caps and a straw fedora. So I guess the same can be done with hair pieces. I ended up, cutting my hair boy short when the bald places had grown back to about 2 inches. After that I kept it short for the next 10 or 12 years. Which stopped me pulling it out. Nothing to get hold of. Would you consider cutting it very short now to help you get accustomed to having less hair? Another plus to doing this is that the less volume you have going into chemo, the less alarming seeing that fallen hair may be. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 05 Feb 10 - 02:00 PM This is JUST FOR LILYFESTRE, and only because I know her fairly well IRL. Michelle, here's a thought about a process I have used, have helped others use, and can heartily endorse. In brief, I call it "prevenient grieving." Prevenient GRACE is a concept Hardi can fill you in on, in classical theology. P-grieving as I have experienced it is related, and it's basically doing exactly what you are already doing, BUT with one key difference. I stumbled upon this by accident when I pre-mourned a breakup I knew was coming? (I KNEW it NEEDED to happen but I was afraid of the loneliness?) As I anticipated dumping this one guy, I just cried and cried. But when I actually got the courage to break up with him, I was able to do it "softly," really wished him the best, took responsibility for my own end of the problems, and felt FINE! So I started using it in peer counseling, and other folks had the same experience, when I combined it with another powerful peer-counseling technique of only looking at the upside of an issue. Looking SO FAR UP that tears and laughter MUST bust out. Loud, active weeping with a big ole grin on the face. With laughter punctuating the heaviness. And you can do this "hair-mourning" (adding prayer as Hardi suggests?) without a peer/partner!!! With your mirror! You can slick back the hair so it "disappears" and use your mirror to look at it while shouting the triumphant "triple exclamation points" that go with overcoming the cancer. "Hey, cancer, I'm throwing my HAIR at you, and it's powerful hair, so LOOK OUT, cuz yer GONE, baby, GONE GONE GONE!" Get the idea? By the time you lose some hair-- do this before the haircut if you can-- the sadness will be gone and the peace will remain. THE PEACE CAN REMAIN. Maxine (of cartoon fame) has one item I really like, too, and you can stealk it from her. Live every day as if Satan shakes when he hears your feet hit the floor. "Oh no! She's awake!" Well heck, "cancer" can go into any prayer that emotions "the enemy." I bet the BCP is full of them, and it's online, searchable. === You see, I don't think strngth equates to efforts to avoid, ignore, or deny ANY feelings that go with all this. I think you just need to put your best self in the driver's seat to meet them head-on. Instead of working hard against inner drives to make yourself feel better in short spells, you can claim peace as a permanent companion, both secularly and spiritually. (What if cancer is just a mere tool you can use to build that very nice life you and Pete are working on?) ~Susan cc: Hardi |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: gnu Date: 05 Feb 10 - 02:14 PM Glad to hear you are in better spirits. Keep the faith. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 05 Feb 10 - 03:03 PM Damn! Jacqui and I saw an amazing hat at a yard sale. It had dredlocks attached. I wanted to buy it. She made me put it down. "Put it DOOOOWWWNNNN, Mary" she said. And I said "But maybe someone will have chemo and need it" "Put it DOOOWWWNNNNN, Mary" she said. And I did. Now look - it could have been your reggae night hat. Maybe next yard sale season - but hopefully you won't need it by then... |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 05 Feb 10 - 03:09 PM LF, what hat sizes do you and Pete wear? ~S~ |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Bobert Date: 05 Feb 10 - 04:30 PM Okay, this chapter is on it's way out... Time to start planning the spring veggie garden!!! B~ |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 05 Feb 10 - 04:36 PM I bet Jacqui could figure this one out: http://cgi.ebay.com/Black-Knit-Chemo-Cancer-Hat-Headdress_W0QQitemZ180458691195QQcmdZViewItemQQptZLH_DefaultDomain_0?hash=item2a |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: katlaughing Date: 05 Feb 10 - 05:03 PM If you cut it off in stages, have some fun and dye it some colour you've always wanted to try..bright red, purple, green, you name it..even do stripes! Some women find they actually feel free-er and more alive and that, as one website said, "I can LIVE with bald." (They were talking about how sad it is that some women don't get treatment because they don't want to lose their hair.) Melissa Etheridge is one of them. There are some good quotes in her narrative below her picture. On the left, there are other names to click on to see them in all their "glory." kat |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:- From: Sandra in Sydney Date: 05 Feb 10 - 06:15 PM Michelle, I can almost sit on my hair, & had decided that if I needed chemo after my op. last year, I'd get it cut off above the usual 4 elastics so I could keep my very loooong pony tail! Then I'd spend another 10 years growing it back. sandra |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 05 Feb 10 - 09:04 PM Folks, remember upthread (or in another of these proliferating threads), Michelle already SAID what she planned to do about haircuts. Guess what-- she'll figure it out! :~) ~Susan |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Bobert Date: 05 Feb 10 - 09:18 PM Well, I'll just throw this into the mix... Fortunately, our Michelle is gonna survive this but... ...when my Judy, who died in 1996 of inflamatory breast cancer had to go thru chemo she lost her hair but... ...hey, that didn't stop her.... She did one of them glamour pic sessions (sans the hair) and I swear that she never looked better... And she was one of them Chez women with long very black hair before but she looked gorgeous!!! That's all I'm gonna say about hair, or lack there of... B~ |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 06 Feb 10 - 11:15 AM I spent an hour this morning lying awake in my bed, playing with my hair because I can. :) My hair isn't long enough for Locks of Love so what I'm going to do is have my hair stylist put about 10-15 little pony tails in my hair and clip them at the point closest to my head. I'm going to keep the pony tails so I can feel my own hair whenever I want...it's a comfort thing for me. My stylist will shave the rest off. I'm planning on doing this after the first chemo treatment. They say it starts to come out about 2 weeks after treatment (with the 2 drug combo that I will be getting)....so....it won't be long. ****************************************************************** Pete just walked in the door with the mail. Two packages from the American Cancer Society. They sent me 3 wigs and 3 hats that are really soft and vary in thickness. *big breath* This is harder than I thought. Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: jacqui.c Date: 06 Feb 10 - 11:23 AM We're with you Michelle. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 06 Feb 10 - 11:57 AM Michelle, it IS harder than we think, isn't it..... when our own troubles hit? But this is also the kind of time when you find out how strong you really are. I promise you-- the strength is in there. How do I know this? :~) From your stories of the women who raised you. DANG, there is some strong women there, in that lineage-- it's just your time to come into your own, in the strength department. Trust me, they put it in there! :~) ~Susan cc: Hardi |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 06 Feb 10 - 12:19 PM It's not that it's harder because it's *MY* problem....I think it must be hard for everyone. I met the author of Eco-Village (written by a woman who lives at the Eco-Village in Ithaca and helped to get it started) and she talked about community and the strength of the women in particular. There was one woman who was diagnosed with cancer and she was not going to get better. She still did all the treatments necessary to prolong her life, including chemo. I don't recall if she did this before or after her treatments started, but the entire village came together while this woman sat on the ground, on a tapestry cloth, and had her head shaved with all the people surrounding her....she didn't cry but kinda of embraced it. I don't know why I remember that (as I don't remember much else of what she said) but it has stuck with me. And yes, I do come from a family of VERY STRONG women on both sides. They all earned their strength in their own ways, as we all do. What can I say? Because they are strong I am too? I don't know that it works that way. I'm doing my best. I don't feel strong at all. I feel clingy, scared, sometimes confident and not myself at all. I did not try on the wigs. Opening the boxes to look at each wig felt like I was opening a coffin of a dead animal. I did try on the hats. All I can tell you is that it's NOT pretty. SCREW THE HAIR!! I AM GOING TO BE HEALTHY! I AM GOING TO BE CANCER FREE and if I have to sob every fucking time I look at the wigs, then so be it. I AM GOING TO BE HEALTHY AND CANCER FREE! And *THAT* is what I have to keep telling myself and keep my focus on. Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 06 Feb 10 - 12:36 PM Maybe the wigs aren't for you especially if you feel you have a dead animal on your head - sorry but that made me laugh. I don't come from strong stock. Most of the women in my family drink themselves into an early grave when things get tough. So - as I mentioned before - I throw things to get past anger, frustration, sorrow, loss. Do whatever works for you and results in a healthy future. Moderated sobbing is good. Don't know exactly how you can screw your hair - but whatever works, girl, go for it. As Jacqui said, we are all here with you. And, Bobert, everyone once in a while you bring a tear to my eye. That was beautiful. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: katlaughing Date: 06 Feb 10 - 01:41 PM Good for you, Michelle. I would only make one suggestion: try saying it in the present tense, i.e. "I AM healthy and cancer-free!" That way it is in the here and now which helps it to become so in your mind and body.:-) |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 06 Feb 10 - 03:36 PM LF, Because they are strong I am too? I don't know that it works that way. I'm doing my best. I don't feel strong at all. I feel clingy, scared, sometimes confident and not myself at all. Yes, THAT is what I meant to convey, not that it's harder because it's you. Just that this is the stuff that lets us know how strong we need to be, and that-- itself-- is a huge motivator for reaching deeper to where the strength is already right there. I would bet that your antecednets found their strengths exactly the same way, and that by the time you came along they were living it and modeling it. Not all of our best mentors do it in words... (which becomes apparent when their young fly out of the nest, discarding whatever words did not work for them, and keeping instead the stuff that DID work). BTW the all-caps part of your post looked exactly like that, to me. I think they did teach you well, whether it was in words-- or in just loving you exactly as you were. ~Susan |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: Stilly River Sage Date: 06 Feb 10 - 04:03 PM Son went to ER this morning, might be appendicitis. Surgeon wanted to operate today, but we've seen these symptoms over the years, might be migraine, might be constipation. We'll wait 24 hours, he said a wait of a couple of days would be okay, but if he doesn't feel completely better by tomorrow, we'll take him back. I started a different thread so those of us with passing ailments of a shorter duration can hash it out. And if Michelle wants to use that as limbo, between the big surgery and before the chemo, that would be good also. Report on the recovery as it is now. I have a co-worker who bought a fuscia pink wig and a dayglo blue wig. Kind of the straight hair style that Ann Jillian wore. She looks cute. SRS |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 06 Feb 10 - 05:23 PM LF, your chair and the recorded service will be all set. ~S~ |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 07 Feb 10 - 10:44 AM Thanks Susan....the chair was perfect and MUCH more comfortable...thank you!!!! Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 07 Feb 10 - 01:31 PM :~) It's too bad more people don't know how comfy church can be. Heck, I've been known to doze off during a service, in that chair. I recommend it! It came BTW from Louise Brown's house. There's a little game on at church about her china cat. Sssssh! So far, none of the other folks who move her to new sleeping spots know who any of the others are! When I asked James to move it last night, it turned out that the new sexton had already moved it at Fr. Cootiesniffer's request, for you. You'll see a side table and chairside hymnals/BCPs over there soon. Karen C made the kid-print lap-robe years ago, for nursing moms who come to church, but it's also a cozy (if dirty) leg cover. Feel free to add an afghan or anything you want in there. Don't forget to play with the toys, either! :~) The large basket in there also has great all-new activity bags-- remember that young boy you saw a few times in the summer services? That's Frank. He and his mom redid that whole basket all by themselves, when we noticed kids and kids and kids had dumped all the other contents loose in the basket and lots of pieces were missing. I told your mom the rest of that area's story. Last night's volunteer solicitation went well-- a snowbird-newsletter-lady stepped up after the service. The other-Bonnie/wedding ring lady.) Please, don't forget you can shed any volunteer job, any time. (That's always true around the whole parish.) Thanks also for that song request. It meant a lot to us, plus it WORKED! ~S~ (Hardi going away, he will see this later) |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 08 Feb 10 - 09:47 AM My incision is almost looking human! I think that in another week or 2 it will be completely healed over on the outside. So far, I'd say 80% of it is closed....have a couple little pesky spots that are taking their own sweet time....but it's coming!!!! I wish the surgeons would have drawn a map on the outside of my body from where things were removed because I have these little pains on my left side almost every morning. I think it might be from where the giant cyst was...and maybe the inside is still healing too. I don't know. Other than that, I'm feeling good. Tomorrow morning I have a consultation with my new chemotherapy Dr. I'm making a list of questions to take. One that I really want to know..and maybe someone here can tell me (if you've been through chemo).....does it hurt while the infusion is going in? After you are all hooked up and just letting the meds drip in, are you in any pain? Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: SINSULL Date: 08 Feb 10 - 10:07 AM Lily - is it time to start a new thread dealing specifically with chemo? You will have a better chance of getting an answer to your questions. You have come such a long way since this thread began. Your call. M |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 08 Feb 10 - 10:25 AM If you think it's appropriate, it's fine with me! This thread has helped me a LOT....sometimes I just sit and reread it over and over. It's been a good thing and I appreciate you doing this so much. Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 08 Feb 10 - 10:37 AM That sounds like a great idea. LF, Hardi does get some updates from these threads (especially when I request that he review my messaging, but also anytime at his discretion). So I will make sure he gets the link to the new thread in his email, but pls continue to assume that his more-timely awareness continues to come from your phone calls and Weds. visits. OK? ~Susan |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 08 Feb 10 - 03:20 PM Susan, That's fine. I email him when I need to or go see him. I know he's a busy guy and in no way do I expect him to follow everything I write here. I'm feeling pretty good today. I went to my appointment, took my car to get fixed, stopped to take care of a bill and dropped off some prescriptions. Now it's time to relax. :) Michelle |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: wysiwyg Date: 08 Feb 10 - 03:30 PM Yeh I though you knew that, but I wanted to be sure we didn't get lines tangled up. (This form of multi-level communication is a bit new for us.) Sounds like a great day-- because each day sounds like a tad more is do-able, and that you are also being really good to yourself with resting when needed. ~S~ |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: jacqui.c Date: 08 Feb 10 - 03:50 PM Michelle - my daughter's mother in law went through chemo - I've emailed her to see if she had a port and if she can give any info or advice. |
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Subject: RE: BS: LilyFestre -UPDATE - she's home, resting:-) From: LilyFestre Date: 08 Feb 10 - 03:59 PM Thanks Jacqui!!!!! That's what I am most worried about now...especially because they put a catheter in a neck vein....totally creeps me out...and the fact that I have to be somewhat awake while they do the procedure (a word I am beginning to HATE)....make a pocket of skin in my chest and stick some plastic in a neck vein.....does NOT sound like fun to me. On a completely different note, I just found out that in Williamsport, there is a wig bank with over 200 free (new) wigs for cancer patients. Mom and I will be stopping there tomorrow on our way home from the consultation with the chemo Dr. Hm. I'm gonna have to get over the dead animal thing or tomorrow is going to be a nightmare! Michelle |
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